Epilepsy Journal @Ollytreeapps
The #1 app for Epilepsy. Learn more about your epilepsy. Obtain greater control of your seizures. epilepsy-journal.com Toronto, Ontario Joined July 2016-
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Epilepsy Journal retweeted
Thank you all for your messages and the incredible wave of support. The past three months have been the hardest of my life. We’ve lost all avenues of funding, and years of hard work preparing for our trials came to a halt within days of the new U.S. government administration.…
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Epilepsy Journal retweeted
Rare Disease In Crisis, Our Leaders Have Failed Us! On April 2nd, 2019, a piece of my soul was taken from me. That was the day my youngest son, Michael, was diagnosed with a rare disease called SPG50. In my darkest moments, friends, family, and strangers from around the world…
Epilepsy Journal retweeted
Last Rare Disease Day, I found myself urgently trying to reach Senator Sanders and his team, who posed the biggest threat to preserving the Priority Review Voucher (PRV) program. The devastation I felt when Senator Paul, stating that his senatorial obligations had run their…
Epilepsy Journal retweeted
GENE THERAPY - the replacement of a defective gene in an organism. Recombinant DNA techniques are used to isolate the functioning gene and insert it into cells. By 2030, hundreds of gene disorders will be successfully treated by gene therapy. 💣
Celebrating Giving Tuesday by donating to FINDING HOPE FOR FRRS1L! FRRS1L.org
Thank you!! ❤️❤️
The development of a gene therapy for FRRS1L (frizzle) has reached its final stages! Our current goal is to reach $1.1 million by Dec. 31 to fund the toxicology study (to prove treatment safety) All donations made until Dec 31 will be 100% matched! frrs1l.org/givinghope
Over the last 3 years families affected by FRRS1L (frizzle) from around the world have been working tirelessly to raise money for the development of a gene therapy for frizzle #FRRS1L
Our beautiful daughter Olivia inspired us to create the Epilepsy Journal App. Olivia suffers from a rare genetic disease called FRRS1L mutation (frizzle)
Epilepsy Journal retweeted
Today’s #GeneOfTheDay is #Frrs1l. Human diseases associated with this gene include Epileptic Encephalopathy. Mice with this gene inactivated exhibit abnormal gait & limb grasping: bit.ly/Frrs1lgene
Epilepsy Journal retweeted
Considere apoyar el buen trabajo de Finding Hope for FRRS1L, al donar o compartir esta campaña con otros a quienes les gustaría ayudar. paypal.com/US/fundraiser/…
Become a FRRS1L ambassador and join our team to help fundraise for the development of genetic therapy for FRRS1l disorder. FRRS1l is devastating pediatric disorder. We are close to a cure! Find out more at: FRRS1L.org
Please share to help us fund development of genetic therapy for FRRS1l disorder. FRRS1l is devastating pediatric disorder which causes complete loss of function. We are close to a cure! Donate at FRRS1L.org
Please watch to learn more about our hope for a cure! #FRRS1L youtu.be/xtBpLmNpC0U?fe…
Our daughter Olivia suffers from FRRS1L disorder. This is a devastating disorder which results in severe epilepsy and loss of function. Gene therapy development for this disorder has shown promising results- a cure is within reach! 💜
Our daughter Olivia suffers from FRRS1L disorder. This is a devastating disorder which results in severe epilepsy and loss of function. Gene therapy development for this disorder has shown promising results- a cure is within reach! 💜
Brain Ablaze @BrainAblaze
10K Followers 7K Following As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
Torie Robinson 🇺�... @TorieRobinson10
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TalkAboutIt.org @TalkAboutItorg
8K Followers 6K Following STIGMA BUSTING for epilepsy & MANY other conditions! Co-founder: @GregGrunberg. https://t.co/VlYrkdNHa5 PODCAST: https://t.co/vL91AKrO7L…
purplewarrior5.1 Lean... @1Purplewarrior5
2K Followers 3K Following 47yrs old.. mom/ wife... rock painter believes in ghosts aliens and cryptids.. epilepsy warrior.. LGBTQIA ally 🌈
𝐓𝐢𝐟𝐟𝐚�... @TiffanyKairos
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Meriem Bensalem-Owen,... @bensalem_owen
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Lorrie @LorrieForseth
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Craig Fairclough @robinhood1972
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Ahsan Moosa Naduvil, ... @AMoosaMD
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Sarah May @SarahTopaz12
49 Followers 427 Following I am married to a wonderful man named: Jeffrey May, who I love very much. Christian. Healthcare Worker. Equestrian. Chronic Illness warrior.
The Mark Shaparin Fou... @markshaparinfdn
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MoonLightShadow2020 @Luna2020Shadow
159 Followers 2K Following Bisexual | Pronouns They/Them | Zodiac sign Taurus | Chinese Zodiac sign Earth Tiger | unofficial Zodiac sign Capricorn | Non-Binary |
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こうへいライフ... @Kohe_8
2K Followers 739 Following 📍 カナダ🇨🇦&クロアチア🇭🇷の2ヶ国生活。現在はカナダを拠点にタイル工などをしています。夏はクロアチアのアドリア海で泳いでいます。 ✞Catholic✞
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Aris Hadjinicolaou @ArisHadjiKor
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Pedrick Prints | ETSY... @pedrickprints
15 Followers 165 Following Welcome to my shop 🛍️ Thanks for the support! ☺️ Happy browsing!
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Elizabeth Ng, MD @ElizabethNgMD
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Milan Bajalica @MilanBajalica
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Ketogenic Dietitians ... @KDRN_online
374 Followers 140 Following A clinical research collaboration working together to expand the evidence base of ketogenic diets in neurological disorders. Views our own.
mari wagner @wags940
235 Followers 522 Following administrator and service support coordinator on International Autoimmune Encephalitis Society #AE survivor, have big thumbs and an excellent husband
ElectricSpark @ElectricSparkSC
11 Followers 84 Following A social club for folks with epilepsy. Let's connect, support each other, and have fun! Join our Discord community: https://t.co/Gus2Az0GcZ
Aiden Firlein @AFirlein1889
1 Followers 58 Following
Gissel Alejandra Torr... @LazcanoGissel
27 Followers 490 Following Neurology🧠 Epilepsy💜 Bolivian 🇧🇴 Genuine...dreamer💫traveler✈️ animal lover🐶🐺🦊 the plant lady 🍀🌵🪻 Iberoamerican literature 📚
Dr Christiyan Naydeno... @c_naydenov8
570 Followers 5K Following #neurology #epilepsy #microbiome #stroke #EEG #neuroscience #neuroimaging #research
Ma Seer @SeeramMalo
45 Followers 546 Following
nyukwa @BigPrintPro1
732 Followers 3K Following Mythology is my mystery! You cannot enslave a mind that knows itself. #Stoic Roaming free in the Savannah!
Virginia M Musselman @penguin_gia
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JoshProvides @JoshProvides
105 Followers 158 Following The mission is to raise funds and promote public awareness and advocate for people living with epilepsy. Benefiting JoshProvides.
Aura Arvelaez @ArvelaezAura
218 Followers 2K Following pediatra venezolana ,optimista ,creyente en Dios y segura nos vendrán tiempos mejores
Kassandra Therese Sag... @K_Saguisag
174 Followers 795 Following Epilepsy is more Than Just Seizure. Help raise awareness to see past the seizure.
daniel ogwa @danielogwa2
239 Followers 5K Following
ICG4m8rNinja @ICG4m8rNinja
324 Followers 2K Following VTuber, Skater, Softball,MauyThai Kickboxer,Kenpo Sport Karate Judo BJJ Wing Chun MLGamer Drummer DJ. Training 2 make get open A Fight team Gym dojo Cafe Studio
Mohamed Yasser @B0tchaaa
190 Followers 829 Following Medical student. لكن عوض الله سيمحي مُر ما رأيت ❤️ 
Accelsiors Epilepsy F... @AccEpilepsy
31 Followers 195 Following We are on a mission to promote and support the development of future therapies to combat epilepsy. #EpilepsyAwareness
Bernadette Booysen @BernadetteBooy0
551 Followers 3K Following I am a person with epilepsy and author of books about epilepsy! Spreading epilepsy awareness!🌹
elizabeth @elizabe91832346
37 Followers 174 Following
Annwen Williams @AnnwenWilliams4
59 Followers 505 Following Epilepsy warrior 💜💜. Loves music— Eminem, R&B, Hip Hop a 90’s gangster rap.
Torie Robinson 🇺�... @TorieRobinson10
6K Followers 2K Following @EpilepsySparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | #Epilepsy & #MentalHealth Research fiend | @MaudsleyNHS Gvnr | All views my own
Lance Fogan @lance_fogan
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𝐓𝐢𝐟𝐟𝐚�... @TiffanyKairos
7K Followers 4K Following Founder @tenofficial | Epilepsy Advocate | Blogger | Content Creator | All views are my own
Meriem Bensalem-Owen,... @bensalem_owen
5K Followers 3K Following Professor of Neurology | Immediate Past President @ACNS_org | President @efkentuckiana BoD | Division Chief Epilepsy | Views mine #Kentucky #JiuJitsu #Tango
Epilepsia @EpilepsiaJourn
10K Followers 226 Following Epilepsia is the world's leading journal of original scientific research and commentary in epileptology. A journal of the International League Against Epilepsy
Lorrie @LorrieForseth
3K Followers 2K Following hope is the quiet courage that carries us through the hardest days - esebc 💜 sports fan. writer
Craig Fairclough @robinhood1972
2K Followers 1K Following An #epilepsy media awareness ambassador and fund raiser. I work in #safeguarding for @nottspolice
SUDEP Action @SudepAction
6K Followers 2K Following Dedicated to raising awareness of epilepsy risks & tackling all #epilepsy deaths including #SUDEP Get in contact: [email protected]
Epilepsy Connections @EpilepsyConnexn
2K Followers 762 Following We offer support, info, advice and training to people with #epilepsy, their families, friends, carers and the professionals working with them.
Sophie Adler @sophieadler
764 Followers 748 Following Academic Clinical Fellow @ UCL GOSICH| Co-lead of MELD project | Mum of 3 little ones
Ahsan Moosa Naduvil, ... @AMoosaMD
3K Followers 1K Following Pediatric Epileptologist @ClevelandClinic 🧠 When medications fail, always explore if #epilepsysurgery is an option. 👉🏼 #twEEGtorial 🔺Tweets my own
EPIC LI @EPICLongIsland
6K Followers 5K Following We provide services for individuals with intellectual/developmental disabilities, epilepsy & mental health challenges. We are Extraordinary People in Care!
Epilepsy Sparks @EpilepsySparks
5K Followers 1K Following Educating re the #epilepsies 🧠⚡🔬🧬! Check out our podcast & website! We bridge the comms gaps between clinicians, academics, & people with an epilepsy!
Marian Galovic @GalovicMarian
566 Followers 226 Following Head of Epilepsy Unit at University Hospital Zurich, Switzerland. Chair of ILAE Career Development Commission. @Unispital_USZ @UCLIoN @yesILAE
The Mark Shaparin Fou... @markshaparinfdn
156 Followers 1K Following Honoring the life & legacy of Mark Shaparin through awareness, education & action to prevent Sudden Unexpected Death in Epilepsy with the goal of saving lives.
こうへいライフ... @Kohe_8
2K Followers 739 Following 📍 カナダ🇨🇦&クロアチア🇭🇷の2ヶ国生活。現在はカナダを拠点にタイル工などをしています。夏はクロアチアのアドリア海で泳いでいます。 ✞Catholic✞
Kruer Laboratory @kruer_lab
49 Followers 25 Following Our goal is to unravel the molecular mechanisms that lead to pediatric movement disorders in order to better diagnose and treat these disabling diseases.
Goran Visnjic @goranvisnjic
16K Followers 38 Following
Hope4FRRS1L @Hope4FRRS1L
5 Followers 15 Following Nonprofit org w/ a mission to find a cure for FRRS1L genetic disorder, provide community for families, & spread awareness. https://t.co/ZPA0OdC0mZ
Ted Cruz @tedcruz
7.1M Followers 5K Following Father of two, @heidiscruz's husband, fighter for liberty. Representing the great state of Texas in the U.S. Senate.
EMSC @LastQuake
340K Followers 484 Following Independent Scientific Organization and provider of real-time earthquake info BSky: https://t.co/Uk9IiOhEAA Get The App: https://t.co/VRKgoE3hxF
Cody McClain Brown @smedj
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Serge Goldner @gour369
13 Followers 5 Following
Dominic Slowie @dominicslowie
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Em @DrThat_Survived
4K Followers 412 Following Lived experience of Mental Health . Sharing my past to inspire & give hope! Trainee Mental Health Nurse. All views my own.
City of Toronto 🇨�... @cityoftoronto
509K Followers 194 Following Official #CityOfTO account sharing #TOnews. Monitored Mon-Fri, 8:30 am – 5 pm. Terms of use https://t.co/sD9XCzpjsX. Service request? Visit @311Toronto.
CP24 @CP24
2.5M Followers 51 Following CP24 is Toronto & the GTA's #1 source for breaking news. For breaking news alerts on your phone, download our app: https://t.co/pGf88z8tnI
CityNews Toronto @CityNewsTO
806K Followers 2K Following Toronto's #1 source for breaking news, traffic and weather. Listen or watch live 24-7. For the latest traffic information follow us @NewsRadioTO
ucb_iberia @ucb_iberia
2K Followers 2K Following Descubre como centrándonos en el paciente establecemos nuevas vías para el tratamiento de enfermedades graves crónicas. Inspired by Patients. Driven by Science.
Raquel Contreras @RaquelCon3ras
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Vivir con Epilepsia @vivirepilepsia
4K Followers 1K Following Tu comunidad online sobre #epilepsia. Infórmate, elimina prejuicios y aprende a gestionar mejor tu enfermedad
EduardBercovici @EduardBercovici
958 Followers 346 Following Neurologist / Epileptologist with special interest in diet therapy / Ketogenic diet in adults with refractory epilepsy - tweets are my own
Stéphane Auvin @stephane_auvin
2K Followers 830 Following Child Neurologist & Epileptologist. Professor at @univ_paris_cite. Dept Chair at @HopRobertDebre. Senior member 2021 @InstUnivFr. Deputy Editor @EpilepsiaJourn
Ryan M. @saskryan
2K Followers 3K Following 'Rider fan, Métis, lawyer, life member of Kin Canada, big buddy of #rylan♥, proud Saskatchewanian! He/His/Him
On Assignment with Ri... @OARichardEngel
35K Followers 1K Following Award-winning @MSNBC special series - reported from around the world by @NBCNews’ Chief Foreign Correspondent @RichardEngel
Mary Engel @MaryKForrest
3K Followers 882 Following
DN ICH @DNP_ICH
636 Followers 694 Following Developmental Neurosciences at the UCL GOS Institute of Child Health @UCL @UCLchildhealth . Molecular, Imaging, Clinical and Cognitive Neuroscience.
Mike Knox @MikeKnoxComedy
7K Followers 7K Following Not to brag but I once found a mouse in a beer bottle in Isla Vista. VNS Therapy Advocate
Ant's epilepsy blog @Antepilepsyblog
858 Followers 911 Following I'm a busy guy who is inconveniently epileptic. Seriously, how am I expected to fit that in? I also have a tuba in my living room... #epilepsy
The London Children's... @LCPclinic
842 Followers 1K Following A Multi Disciplinary Team of Speech & Language and Occupational Therapists in Sloane Square. Instagram: @lcpclinic
Marco @marcojonker15
227 Followers 1K Following I have #epilepsy and #Asperger's and #ADHD and I'm a bit of a historian also i have always wanted to be a pilot and I love cars
Janet MacLennan @janetSnapCare
1K Followers 4K Following Specialist Resourcer, Recruiter Assistant, supporting families with disabled children, teenagers & adults. Instagram @snap_care And I like a laugh!
@Karen.K @karen_keely
656 Followers 2K Following UNPAID SLAVE TO IRISH GOV➡they named me a Carer. 3 adults with Fetal Valproate Syndrome. Chairperson @oacsireland accountability, apology & redress
Pauline Duffy 🇨�... @PaulASAP
2K Followers 2K Following Rotarian, Rep for #PWD, Tutor, #Epilepsy Advocate
Jason Smale @Jasonsmale69
439 Followers 1K Following Hi i am jason i am 50 yrs old i have epilepsy which is uncontrolled but i dont let life get me down :-) and keep on smiling :-)
PurplWav @Purpl_Wav
44 Followers 47 Following We're trying to raise as much awareness for Epilepsy as possible!
War On Epilepsy @waronepilepsy
1K Followers 5K Following #Empowering #Epilepsy & #InterRelated Communities #Tech4Good #DoMore #BeMore #Achievemore #GoPurple, Talk about #Epilepsy #waronepilepsy #PurpleDayEveryday
korwave @korwhat
747 Followers 4K Following Korwave is a mobile, easy-to-use, and discrete EEG that continuously monitors brain activity. When a seizure occurs, Korwave can call for help.
Engage Therapeutics @EngageEpilepsy
270 Followers 419 Following Dedicated to helping the #epilepsy community #stopseizures and live healthier lives.
Giulia Curia, PhD @giulia_curia
1K Followers 4K Following Experimental Epileptologist, Neuroscientist, PI, Associate Professor of Physiology at Unimore, In vivo video-EEG on epilepsy models
UCB US @UCBUSA
19K Followers 610 Following Official U.S. Twitter for UCB, a global biopharmaceutical company. We are dedicated to putting patients at the heart of everything we do.
E-word @Ewordblog
68 Followers 176 Following Parent, reader, educator, explorer, dog walking - nature, music and drama lover. Writer of https://t.co/GAipWTm41s blog. Epilepsy.
Atanas G. Atanasov @_atanas_
124K Followers 80K Following Lead Editor: #CRBIOTECH & #ExplorDHT | PI: PaDiH & LBI-DHPS | Prof of IGAB-PAS | Leader: #DHPSP & #INPST | Expert Consultant in Biotech & Science Communication
the here and now @mary_epilepsy
135 Followers 120 Following Work for Epilepsy Action -views my own however this is my work account. Owned by two cats
India Epilepsy Awaren... @IndiaEpilepsy
146 Followers 269 Following At India Epilepsy Awareness we strive hard to spread awareness about epilepsy.
Marie Lyon @hormonepregtest
649 Followers 4K Following
Augustino Patti @Gaphotoman
104 Followers 625 Following A Freelance Photographer Journalist, Writer and Video Journalist have Epilepsy but that never stops me.Trends for United States
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