Partnership to Improve Patient Care (PIPC) @PIPCpatients
PIPC is a coalition of health care stakeholders promoting comparative effectiveness research and patient engagement to improve health care quality. PIPCpatients.org Washington D.C. Joined April 2013-
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A promising prostate cancer drug that attacks cancerous cells is only available at two private health practices in England and is not funded by the National Health Service. #IPIHurtsPatients #ValueOurHealth news.stv.tv/west-central/f…
On April 26, @HHSOCR and @CMSGov issued a final rule under Section 1557 of the Affordable Care Act advancing protections against discrimination in health care. hhs.gov/civil-rights/f…
We strongly encourage @icer_review to approach its assessment of #PTSD from the societal perspective and factor in the impacts to patients, families, and their caregivers. #ValueOurHealth pipcpatients.org/uploads/1/2/9/…
We're halfway through our first day of the Annual Summit and we've heard excellent discussions around improving health equity in maternal health, diabetes and Alzheimer's. Join us virtually this afternoon for more engaging conversations: youtube.com/live/jJfcqb9CM… #NMQFSummit24
In @PIPCpatients’ comment letter to @icer_review, Chair @HonTonyCoelho highlights the key flaws in the use of discriminatory cost-effectiveness metrics like #QALYs. Read more about why patients would benefit from a more comprehensive approach. tinyurl.com/2df75vt8
If Illinois follows through with legislation to create a #PDAB, some medications could get pulled from pharmacies. People without means to travel out of state or pay cash would be left out. #ValueOurHealth chicago.suntimes.com/other-views/20…
Unlock the secret to powerful stakeholder partnerships with PCORI's Building Effective Multi-Stakeholder Research Teams. Learn best practices and skills to help you overcome challenges and drive meaningful engagement. Explore Today: pcori.me/3DwSs0K
Though @icer_review acknowledges #PTSD to be a highly heterogenous condition, it still focuses its report on an "average" patient. #ValueOurHealth pipcpatients.org/resources/pipc…
We loved the conversation between @USDOL Acting Secretary Julie Su and AAPD President & CEO Maria Town about disability employment policy at our National Community Event. Interested in some of the resources @ActSecJulieSu mentioned? Check out this thread #DisabilityCommunity2024
"If this drug was added to the PBS and I could start taking it, there is a real chance the tumours would shrink and I could start to have hope for the rest of my life." news.com.au/lifestyle/real… #ValueOurHealth #IPIHurtsPatients
🌟 Opportunity Alert! PCORI scholarships available for patients, caregivers, and advocates to attend the 2024 PCORI Annual Meeting. Help us spread the word! #PCORI24 Learn more and apply ➡️ pcori.me/3W1MnE0
"Given this urgent need, it will be important for ICER to take an unbiased approach to this assessment to evaluate the potential value of treatments reflecting the diversity of PTSD patients." #ValueOurHealth #BeQALYAware
"Given this urgent need, it will be important for ICER to take an unbiased approach to this assessment to evaluate the potential value of treatments reflecting the diversity of PTSD patients." #ValueOurHealth #BeQALYAware
PIPC recently submitted a comment letter on @icer_review's assessment of PTSD treatment. #ValueOurHealth #BeQALYAware pipcpatients.org/resources/pipc…
Oh Canada, satisfied being last. Sadly for patients, being last is often both painful and deadly. #healthpolicy
Oh Canada, satisfied being last. Sadly for patients, being last is often both painful and deadly. #healthpolicy
A recent study published by the Canadian Health Policy Institute found that Americans get better and faster access to innovative medicines compared to Europeans and Canadians. #ValueOurHealth #IPIHurtsPatients ca.finance.yahoo.com/news/waiting-m…
“So great there's a new treatment but it's only great if the people who need it, who deserve it can access it as soon as they possibly can and that's the bit that must change.” #IPIHurtsPatients #ValueOurHealth itv.com/news/tyne-tees…
“The board just needs to open the door.” This is a crucial reminder from Lorren Sandt in her latest piece on Oregon’s #PDAB and its harm to patients and people with disabilities. @CaringProgram tinyurl.com/mr2byw7c
A vital supplement that assists patients with a rare metabolic disorder has been removed from Australia's PBS. #ValueOurHealth #IPIHurtsPatients abc.net.au/news/2024-04-1…
IVI salutes NMQF Action Network’s 40 Under 40 Leaders in Minority Health for 2024. We’re confident these awardees will reduce health disparities, make healthcare more patient-centered and strengthen our communities. #healthequity #minorityhealth #NMHM
Experts urge Pharmac to fund ‘life-saving’ drug targeted at deadliest form of breast cancer. #IPIHurtsPatients #ValueOurHealth nzherald.co.nz/nz/experts-urg…
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39K Followers 2K Following #EpilepsyAwareness & Education | FREE #SeizureFirstAid Certification | 24/7 Helpline (1-800-332-1000) | Unwavering ally for people w/ #epilepsy & #seizures.
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We're halfway through our first day of the Annual Summit and we've heard excellent discussions around improving health equity in maternal health, diabetes and Alzheimer's. Join us virtually this afternoon for more engaging conversations: youtube.com/live/jJfcqb9CM… #NMQFSummit24
In @PIPCpatients’ comment letter to @icer_review, Chair @HonTonyCoelho highlights the key flaws in the use of discriminatory cost-effectiveness metrics like #QALYs. Read more about why patients would benefit from a more comprehensive approach. tinyurl.com/2df75vt8
Join us April 29th for a live Q&A and learn more about our work towards creating a more inclusive environment in health for folks with disabilities with @AllofUsResearch. bit.ly/allofuszoom youtu.be/JXerwNJ30zc?si… #JoinAllofUs #OneMillionActsofScience
Unlock the secret to powerful stakeholder partnerships with PCORI's Building Effective Multi-Stakeholder Research Teams. Learn best practices and skills to help you overcome challenges and drive meaningful engagement. Explore Today: pcori.me/3DwSs0K
We loved the conversation between @USDOL Acting Secretary Julie Su and AAPD President & CEO Maria Town about disability employment policy at our National Community Event. Interested in some of the resources @ActSecJulieSu mentioned? Check out this thread #DisabilityCommunity2024
Closing this morning's sessions at #WorldOrphanUSA discussing "Challenge and Opportunity with the Current Regulatory and Legislative Landscape in the US." The EveryLife's VP of Policy Jamie Sullivan, was joined by Rachel Smith, Mark Trusheim, Kinnari Patel and Peter Marks.
🌟 Opportunity Alert! PCORI scholarships available for patients, caregivers, and advocates to attend the 2024 PCORI Annual Meeting. Help us spread the word! #PCORI24 Learn more and apply ➡️ pcori.me/3W1MnE0
“The board just needs to open the door.” This is a crucial reminder from Lorren Sandt in her latest piece on Oregon’s #PDAB and its harm to patients and people with disabilities. @CaringProgram tinyurl.com/mr2byw7c
IVI salutes NMQF Action Network’s 40 Under 40 Leaders in Minority Health for 2024. We’re confident these awardees will reduce health disparities, make healthcare more patient-centered and strengthen our communities. #healthequity #minorityhealth #NMHM
CMS did the right thing by requiring P&T Committees to include a patient representative. Read @PIPCpatients’ comment letter to @CMSGov on this topic for a holistic understanding of the impact on patients and people with disabilities. tinyurl.com/2vd28m6m
We live in a digital world too often inaccessible to people with #disabilities. Today, @USDOJ issued a rule calling for state & local governments to be accessible online. After 14 years, your stories & advocacy made this happen! #ADA #DisabilityInclusion justice.gov/opa/pr/justice…
We "will continue advocating for full implementation of this rule & others that expand access to the digital tools that we all rely on...celebrate that @USDOJ & @WhiteHouse has taken this momentous step..." @AFB1921 @acbnational @NDRNadvocates @NFB_voice afb.org/news-publicati…
Congratulations to Claudia on a well deserved appointment chairing @NatCounDis! You will bring the energy and focus needed to continue the agency's great work promoting disability policies that are inclusive and improve our quality of life. @DisabilityInclusion
Claudia L. Gordon, Esq., is the new Chair of the National Council on Disability. She was designated by @POTUS on April 5. Read the press release on NCD.gov ncd.gov/2024/04/09/ncd…
Register for an Applicant Town Hall on May 14 to learn about an upcoming Topical PCORI Funding Announcement offering up to $100 million in total funding for patient-centered #CER on addressing #RareDiseases. pcori.me/3Tth6sd
A PCORI-funded study from @UBuffalo found that #telemedicine treatment for #HepetitisC was more than 2x as successful as off-site referral among people with opioid use disorder (#OUD). Discover more about the research findings in @JAMA_current: pcori.me/3VKKewp
Big news: #UBuffalo findings published in @JAMA_current show that in people with #opioid use disorder, #telemedicine treatment for #HCV was more than twice as successful as off-site referral. An $8.2 million award from @PCORI helped fund the study. Story: buff.ly/3xo562F
State-level efforts are important to prevent discrimination against patients and people with disabilities in our healthcare system. Take a look at this piece to learn more about these efforts. @PIPCpatients tinyurl.com/mvz232yx
Did you know: Findings from @AHRQNews’ recently published systematic review on #ADHD, funded by PCORI, were featured in @aap_peds? Explore the articles: pcori.me/49ktSxT #Research
The latest #AHRQ systematic review on ADHD treatments for children and adolescents, commissioned by @PCORI, is pivotal for informing AAP's guideline updates. Access the manuscripts on the review in @aap_peds on March 25. #research bit.ly/3TADVsu
The key to improving cardiovascular care in primary practices? According to #AHRQ's EvidenceNOW: Advancing #HeartHealth initiative, it's about being responsive and flexible to the practices' needs. Check out this commentary in @AnnFamMed for more. annfammed.org/content/22/2/1…
April is #NationalMinorityHealthMonth. Let's tackle healthcare disparities together! Check out the amazing work by @NMQF and get involved: nmqf.org
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