PMG Awareness Organization @PMGAwarenessOrg
The PMG Awareness Organization is an international non-profit organization of families, caregivers, and medical professionals who care about those with PMG. pmgawareness.org California, USA Joined March 2012-
Tweets754
-
Followers214
-
Following249
-
Likes60
We are excited to announce our next PMG coffee chat! Join us on November 9th at 1:00 pm EST. We welcome you to connect with other families in a safe environment. To access the registration link, you must be a member of our official Facebook group. Please join us!
From all of us at the PMG Awareness Organization, a very happy birthday to all those with PMG who were born in October! Did you know we have a birthday program for anyone with PMG? To sign up: pmgawareness.org/birthday-progr… #pmgawareness #happybirthday
Today is World Cerebral Palsy Day. CP is a group of disorders that affect a person's ability to move and maintain balance and posture. CP is the most common motor disability in childhood. Many individuals with PMG also have a diagnosis of CP. #pmgawareness #worldcpday
For the past 3 years, we have had the honor of being Top-Rated on GreatNonprofits. To continue for a 4th straight year, we need your help! We need just 9 more reviews. It’s easy and takes less than 5 minutes! To rate and review: greatnonprofits.org/reviews/write/… #pmgawareness
Did you know that by supporting "The Sky’s the Limit" Virtual Race, you are helping PMGA provide our families with the biennial Family Convention? The next convention will be in Columbus, Ohio in July 2024. Consider donating to this wonderful cause! pmgawareness.salsalabs.org/pmgaskyistheli…
From all of us at the PMG Awareness Organization, a very happy birthday to all those with PMG who were born in September! Did you know we have a birthday program for anyone with PMG? To sign up, please visit: pmgawareness.org/birthday-progr… #pmgawareness #happybirthday
Happy Labor Day! The PMG Awareness Organization sends a very big thank you to all those who work hard and are an inspiration to us all. #pmgawareness

Margarita Saenz, MD @MargaSaenzMD
233 Followers 551 Following Clinical and Biochemical Geneticist, Child Advocate, looking to support underrepresented populations in receiving and providing health care, views are my own
Margarita Bergstrom @MargaritaB27894
0 Followers 62 Following
après @apres71120
42 Followers 4K Following
Valeria Mittica @ValeriaMittica
25 Followers 80 Following
Kelleher Lab at Purdu... @KelleherLab
42 Followers 150 Following We integrate psychology with developmental cognitive neuroscience to promote optimal outcomes for children with neurodevelopmental disorders & families.
Pediatric Epilepsy Re... @PERCepilepsy
233 Followers 146 Following
R.C. MacLeod @RCMacLeod1
0 Followers 2 Following
Loretta @lorettasaccucci
423 Followers 3K Following
Didathe @Didathe173145
7 Followers 411 Following
paulegreer @paulegreer
58 Followers 766 Following
Penny @pennyingersoll1
7 Followers 159 Following
Bloom Science @BloomScience
177 Followers 336 Following Bloom Science is a clinical-stage, central nervous system (CNS) company developing novel therapeutics through the #GutBrainAxis for neurological diseases.
Safdar @Safdar_khan94
6 Followers 334 Following
Jurgy🛩 @Jurgy13
144 Followers 684 Following | #SpecialOlympics | #InclusionRevolution |ALL things🏰 #Disney | #WDW | #MSU | #GoGreen Blessed with an amazing daughter | Laugh people!
NINDS Office of Resea... @NINDS4Rigor
547 Followers 389 Following Official account of NINDS/ORQ, part of @NIH We promote rigorous research practices and transparent reporting RTs ≠ endorsements Privacy Policy: https://t.co/0eBQVXO77H
RareRising @RareRising_Org
176 Followers 524 Following RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities.
Pro Bono Omics @ProBonoOmics
337 Followers 1K Following A journey to assist with rare disease challenges offering nil cost advice using computational modeling targeting personalized medicine for those in need.
Audrey Silver @MUNExpert12
6 Followers 68 Following
Jinjr @JinjrSay
94 Followers 1K Following
Todd Francis Ciccaron... @toddciccaronesr
108 Followers 585 Following NOTARY PUBLIC - Commonwealth Of PA 🇺🇸
Dr. Mark R. Schleiss @mschleiss
2K Followers 5K Following Pediatrician, Infectious Disease Physician, Vaccine Researcher & CMV Expert - UMN Center for Infectious Diseases and Microbiology Translational Research
Sara Hays @pizzazzled
23 Followers 369 Following
Brenda Hamilton @BrendaH180720
21 Followers 373 Following
Dana Hill @Zuul1234
3 Followers 22 Following
Rare Epilepsy Network @RareEpilepsy
2K Followers 617 Following Rare Epilepsy Network (REN) is working with urgency to collaboratively improve outcomes of rare epilepsy patients & families via research and advocacy.
Kathryn Cass @kathryncass
387 Followers 694 Following Information Professional with a passion for libraries and freedom of information! Views my own, retweet does not equate to agreement etc
Kim Mitchell @KimMitchell6898
82 Followers 203 Following Mom to 3 cool kids! Wife to a hard workin fella. Accountant/HR/Safety/Office Manager @ Unity Electric. True Bow Islander. Total Animal Lover 🐮🐔🐣🐷🐶🐴🐭🦀🐟
shari abercrombie @shariphoto
33 Followers 31 Following
Anna Luiza @sma_anna2019
416 Followers 2K Following Official intl profile of @ame_anna2019 👧🏻 SMA1 fighter 🎂2 years old 💉 My life DEPENDS on Zolgensma! 🧬 To help Anna ⬇️ https://t.co/Txwu5yVSfj
CongenitalCMV_BCM @CongenitalCMV
331 Followers 309 Following Committed to improve the quality of life of children through continued research, education and prevention of congenital CMV.
Gail Harrison @GailHarCMV
895 Followers 3K Following Professor Pediatrics Baylor College of Medicine Infectious Diseases Specialist Texas Childrens Hospital Congenital Infection CMV Specialist CMVDOC
PA Rare Disease Advis... @PARareDisease
787 Followers 634 Following To improve the quality of life for all those affected by rare diseases in Pennsylvania.
PSP Society of Canada @PSPSocietyCDA
596 Followers 2K Following Serving Canadian patients & families dealing with Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) & Corticobasal Degeneration (CBD)
Artsyheart_steph @ArtsyheartSteph
14 Followers 31 Following Social worker by day, artist by night. Igniting my love of art again. Starting with the old, adding the new. #artistsontwitter #artsy #art #iloveart
louise kerr @louisekerr1
213 Followers 1K Following Business leader in the pharmaceutical healthcare sector delivering impact for patients.
𝘫𝘢𝘳𝘦𝘵�... @jarettMN
140 Followers 504 Following Husband. Dad. Architect. 🎸🥌 ⛳️ MN Sports. SciFi generalist. Widower. Paul Wellstone. Tweedy - “What would we be without wishful thinking”
millie @milliepaige00
0 Followers 20 Following
Marleen De Rycke @mderycke1
6 Followers 50 Following “The way you get started is to quit talking and begin doing.”
👕🎽 Tshirt Print... @TshirtPrintin18
362 Followers 2K Following Tshirt Design Is My Hobby. I'm Tshirt Designer 👕🎽
Strike Prints @StrikePrints
26 Followers 122 Following We are Strike Prints. A full service printing and design firm. We specialize in brand merchandise and promotion based ideation. We also love tacos, just sayin'.
Lumikha Teams @lumikhateams
210 Followers 1K Following We're more than a marketing agency; we're a digital force — specializing in breakthrough communication that raises your brand above the noise.
Can-GARD @CanGARDSickKids
196 Followers 670 Following Advanced Therapies. Connecting People. Enhancing Lives.
V Ahava @ahavasheba7
28 Followers 78 Following I Iove study ancient Hebrew , including picto Hebrew . I also read Ladino Hebrew. I'm a musician and singer. I have a heart for Torah , Ruach Ha Qodesh Love
KCAL News @kcalnews
379K Followers 2K Following KCAL9 is now KCAL News! Breaking Local News, Weather & Investigations streams live from 5am-1pm, 4pm-6:30pm and 8pm-11:30pm!
🦎Flying Lizard Mot... @FlyingLizard_MS
24K Followers 253 Following 24-time sports car racing champions 🏆
Official Tesoro HS @OfficialTesoro
609 Followers 119 Following A place where all students’ needs are met. The Titan community consistently does the right and proper thing by demonstrating Wisdom, Strength, and Honor.
CM Racing @cmracingcup
223 Followers 148 Following Competition Motorsports - We build, race, and offer track support for Porsche GT3 Cup and GT4 Cayman Clubsport race cars. Call us today to ask us questions!
Jourdan Saunders @JourdanSaunders
235 Followers 50 Following Helping you Enter and Expand in The $23 Trillion Disability Market. The $23 Trillion Disability Market: Link in Bio.
Rare Epilepsy Network @RareEpilepsy
2K Followers 617 Following Rare Epilepsy Network (REN) is working with urgency to collaboratively improve outcomes of rare epilepsy patients & families via research and advocacy.
Linda H Starnes @Linda_PEART_FL
127 Followers 284 Following wife/mom/speaker ... holding hands with disability and differences, advocacy and inclusion ... and God.
Dup15q Alliance @dup15q
755 Followers 351 Following
BILLY Footwear @BillyFootwear
4K Followers 21 Following We make shoes that fit for everyone. Step In!
Hunter Swift @HunterSwift
4K Followers 3K Following Hunter Swift: EVP of Sales & Marketing at AGIGO. Professional Car Photographer. Marriott’s Millionth Mobile Check in. SF Giants Fan.
Kevin Madsen @MadsenRacing
284 Followers 296 Following 🇺🇸 Driver | #InceptionRacing Ferrari 296 GT3 | @raceforrp McLaren Artura Trophy | @rmsrapscallion Ligier JS2R | Watch the award winning documentary👇
Phil Robbins @PhilRobbinsROCK
879 Followers 1K Following
Custom Ink @customink
16K Followers 368 Following From inspiration to celebration, we’re here for every step of your custom creation.
DukeCHDI @DukeCHDI
469 Followers 235 Following Duke CHDI fosters multidisciplinary and innovative research that will positively impact childhood and lifelong health. https://t.co/vkbpkXZXRL
Sallie Permar MD PhD @SalliePermar
4K Followers 1K Following Chairwoman & Pediatrician-in-Chief @WeillCornell Medical School/NYP Pediatrics; Lab goal: Develop vaccines to prevent neonatal viral pathogens #CMV, #HIV
Dr. Mark R. Schleiss @mschleiss
2K Followers 5K Following Pediatrician, Infectious Disease Physician, Vaccine Researcher & CMV Expert - UMN Center for Infectious Diseases and Microbiology Translational Research
John Spytek @jspytek42
4K Followers 100 Following Husband | Father | Friend | Founder @nationalcmv | General Manager @Raiders
Cytomegalovirus CMV @MedicCMV
85 Followers 9 Following Identified the species of Cytomegalovirus, Human CMV Disease, Cytomegalovirus Pneumonia and Treatments
Jennifer Bray @Jennife21135174
1 Followers 2 Following
Cody Stevens @CodyStevensKJV
179 Followers 389 Following
ABC7 Eyewitness News @ABC7
1.3M Followers 518 Following Your #1 breaking news and local news source in Southern California and the greater Los Angeles area. When you witness news, share it with #abc7eyewitness.
Kim W. Fisher @kimwfisher
176 Followers 1K Following Inclusion and accessibility advocate. Researching digital participation in social, civic, and political spaces. Teacher educator. First Gen Associate
Mike Porath @mikeporath
951 Followers 1K Following Created @themightysite to help empower and connect people facing disabilities & diseases. Formerly @nytimes @nbcnews @abc @aol
Becky M. Abbott, MPH @RareWashWoman
951 Followers 3K Following Raising awareness for #EctodermalDysplasias & #RareDiseases. WI Mom fighting for #congenitalanomalies coverage #EnsuringLastingSmilesAct #ELSA
Stephanie Fischer @RarePOV
7K Followers 5K Following #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.
Rare Advocacy Movemen... @RareAdvocacy
3K Followers 1K Following Network of people with #RareDisease #LivedExperiences dedicated to evolving the #LivingRare experience into opportunities for the global community to thrive.
Perlara @PerlaraPBC
5K Followers 2K Following https://t.co/fyNyv0FS57 The first biotech public benefit corporation est. 2014. Direct-to-patient and decentralized. Co-owner @epalrestat
Carrie Ostrea, MBA @RareDiseaseAdv
1K Followers 107 Following Little Miss Hannah's Mom #RareMom. Providing education & mentoring to #raredisease advocates. Comments and opinions are my own.
Operation Warm @OperationWarm
3K Followers 2K Following A gift of a brand-new coat and shoes brings warmth, hope, and confidence. Tell us how you've seen us be #morethanacoat, and we'll RT our favs. 🧥
RDLA @RareAdvocates
6K Followers 2K Following A program of the EveryLife Foundation committed to growing the patient advocacy community and working collaboratively, thereby amplifying the patient voice!
EveryLife Foundation @EveryLifeOrg
7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
Rare Disease Ghana In... @RareDiseaseGh
2K Followers 1K Following A nonprofit organisation with the mission to improve the quality of life of persons living with #rarediseases in Ghana. #Awareness #Advocacy #Research #Support.
Stanford Social Innov... @SSIReview
134K Followers 1K Following Informing and inspiring leaders of social change. Follow us on other social media: https://t.co/oSs3nDpJ2R | https://t.co/t3zEftJFVY | https://t.co/MaFYymYmSU
VolunteerMatch, Power... @VolunteerMatch
42K Followers 3K Following VolunteerMatch is now part of Idealist! Follow us at https://t.co/zLelC9ZTa1 to stay updated on all things volunteering.
Council on Foundation... @COF_
56K Followers 2K Following The Council cultivates a community of diverse, skilled philanthropic professionals who lead with integrity, serve as ethical stewards, & advocate for progress.
Independent Sector @IndSector
35K Followers 6K Following We are the national membership organization that connects, strengthens, and advocates for nonprofits and philanthropies.
BoardSource @BoardSource
20K Followers 2K Following We envision a future where the nonprofit community has the leadership to fulfill its purpose and create a just world where all can thrive.
Taproot Foundation @taprootfound
18K Followers 2K Following Taproot Foundation connects nonprofits and social change organizations with passionate, skilled volunteers who share their expertise pro bono.
HuffPost Impact @HuffPostImpact
95K Followers 216 Following Causes, social justice issues, actionable news and inspiring stories.
BCM Academic General ... @BCM_AGP
1K Followers 1K Following Baylor College of Medicine Academic General Pediatrics team is dedicated to leadership in #MedEd, pediatric research, advocacy, and high quality patient care.
Gail Harrison @GailHarCMV
895 Followers 3K Following Professor Pediatrics Baylor College of Medicine Infectious Diseases Specialist Texas Childrens Hospital Congenital Infection CMV Specialist CMVDOC
CMV Congress @CMV_Congress
131 Followers 58 Following 4th #CMVcongress will take place from 20 – 21 November 2025 in Naples, Italy. Online streaming and On-demand access will be available for participants
Dr Karen Fowler @FowlerKarenb
341 Followers 448 Following Infect Disease Epidemiologist focusing on maternal & congenital CMV infections & CMV-related hearing loss. Professor in #UABPediatrics @fowlerkarenb.bsky.social
CongenitalCMV_BCM @CongenitalCMV
331 Followers 309 Following Committed to improve the quality of life of children through continued research, education and prevention of congenital CMV.
UDOH CMV Initiative @CmvUtah
135 Followers 105 Following Our mission is to educate women in Utah on the risks of cytomegalovirus (CMV) during pregnancy and to teach them strategies for CMV prevention.
CMV Association @CMVAustralia
491 Followers 659 Following CMV Association is a non-profit charity dedicated to raising awareness about congenital Cytomegalovirus (CMV) & supporting affected families