PSP Society of Canada @PSPSocietyCDA
Serving Canadian patients & families dealing with Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) & Corticobasal Degeneration (CBD) linktr.ee/pspsocietycana… Toronto, Ontario Joined November 2017-
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PSP RECIPE PROGRAM: Avocado 🥑 Chocolate 🍫 Pudding For those with advanced swallowing symptoms. Be sure to blend very well! Please see our YouTube channel for more Recipes! (Search PSP Society Canada on YT).
PSP PHYSICAL THERAPY PROGRAM: Triceps Extensions For those is the later stages of movement and rigidity symptoms. Please see our YouTube channel for more exercises (Search PSP Society Canada on YT).
PSP EXERCISE PROGRAM: Try these very bicep curls that can be done without any props. We can take a range of motion like this for granted under normal circumstances. Thanks @kaelanewman at @woolwhichp for these exercises 🙏. Find more exercises on our YouTube channel! Link in
PSP RECIPE PROGRAM: A nice alternative to thickened liquids with endless opportunities to customize to your own taste! Thank you @ChristineTheRD for the tip. Please ensure that the seeds are adequately softened and that the pudding has gelatinized sufficiently before serving.
More good news in the #PSP community - this time from France @PSPFrance -clinical trials for AZP2006 (ALZPROTECT biotech) involving 36 patients has finally started - find out more at pspfrance.org
News!! An event by PSP India - supported by @CurePSP - a Q & A Session on Speech and Swallowing issues in PSP on Sept 27th - - for more details see Promotus.org or register by visiting bit.ly/2Znehwf
PSP Exercise Program: Episode 6 (Wall Push Ups) Thank you Kaela at Wollwhich Physio for this exercise which can be helpful for maintaining the strength to help yourself up after a fall. More exercises on the PSP Society YouTube channel accessible through the link in our bio.
RECENTLY DIAGNOSED with PSP, CBD or MSA? Follow the link in our bio for help on things to consider. __________________ #progressivesupranuclearpalsy #progressivesupranuclearpalsyassociation #progressivesupranuclearpalsyproblems #progressivesupranuclearpalsyawareness
A quick read. Everything helps!
PSP Recipe Program: Épisode 5 (Vegetable Egg Bites) Suitable for those with moderate to advanced swallowing symptoms _______________ #progressivesupranuclearpalsy
#YoungCaregivers can experience feelings of anger, isolation, loneliness and grief — some suffer from depression or anxiety. @CMHAOntario offers mental health support services specifically for youth bouncebackontario.ca/what-is-bounce… #YouthDay @yngcaregivers
Have you signed up to become a PSPA member yet? By joining PSPA you will strengthen our voice as we strive to ensure people living with PSP & CBD, their families and carers receive the best possible care and support. Sign up on our website at: pspassociation.org.uk/get-involved/j…
PSP Recipe Program - Episode 4 Thanks once again to @ChristineTheRD for the great recommendation! And to @nourishedbynic for the recipe :) Very important that this come out solid, soft and moist and not crumbly!
In 1969, Graham and Oppanheimer established the name Multiple Systems Atrophy, to reduce confusion and encompass many different neuronal atrophy disorders that had previously each been given their own name. ncbi.nlm.nih.gov/pmc/articles/P…
Newly diagnosed patients & families -> WHAT DO I DO NOW?? 1. Understand the illness 2. Canadian treatment research 3. Provincial healthcare opportunities 4. PSP Society Programs 5. Advanced financial planning 6. Advanced care planning 7. Brain donations in Canada Online now

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