Supranuclear @PSP_Hummingbird

Are you supporting families living with PSP & CBD who need some equipment or a service? Then please share our PSPA Support Grants. We offer one-off £250 payments for people living with PSP & CBD. To learn more and how to apply, visit our website ow.ly/e5ze50WF60I #grants

Atypical parkinsonian syndromes (MSA, PSP, CBS) are ~20x less common than Parkinson’s disease and are often challenging to diagnose. Hu et al. compare their cognitive and psychiatric features to support more accurate diagnosis. tinyurl.com/3etr3p7j

Our first free online masterclass for healthcare professionals is taking place Tuesday 25 March at 6:30-8pm. This session is geared towards ophthalmologists who want to learn more PSP and how it affects the eyes. Register to attend here ow.ly/ORfe50UWPv7 #Online #Webinar

The first meeting of the Carers Support Group for those with a Loved One in Long Term Care is taking place next Thursday 30 January online at 7pm. We're offering a space for those with a loved one living in a care or nursing home. Signup to attend here: ow.ly/mCSi50UK5hw

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Today we're sharing an important new report by @AGoodDeath showing how we sometimes get it wrong for dying people in the UK. It raises questions about how we can listen to people at the end of their lives. compassionindying.org.uk/resource/rethi… #RethinkingDying #FuturePlanning #PSPASupport

This #InternationalYouthDay we are proud to launch a new Information for Young People web page. Created to help young people with family members with PSP & CBD. pspassociation.org.uk/information-fo… #supportforyoungpeople #progressivesupranuclearpalsy #corticobasaldegeneration

Signing up to donate brain tissues is an individual choice. However, such donations can be valuable to researchers, to learn more about PSP & CBD. Learn more about Brain Donation here: pspassociation.org.uk/research/get-i… #BrainDonation #MedicalResearch #PSPAware #CBDAware #RaisingAwareness

pspawareness.com/blogs/psp-q-a/…

Donating your brain to PSP & CBD research creates a long-lasting legacy: one donated brain can support dozens of research projects over many years. Download the PSPA Brain Donation Guide: pspassociation.org.uk/wp-content/upl… #BrainDonation #BrainBank #PSP #CBD

A poem I wrote #progressivesupranuclearpalsy @PSPAssociation

I think this might be the best summary of being a carer for a person with dementia that I've read. Brutal, honest and compassionate. It reflects what I hear from many carers in clinic, and I'm sure it will resonate with many people. theguardian.com/news/article/2…

Couldn't agree more. Tomorrow there's Woking and Saturday Leicester pspassociation.org.uk/events-list/

RARE Revolution Magazine® @RareRevolutionM

a year ago

Couldn't agree more. Tomorrow there's Woking and Saturday Leicester pspassociation.org.uk/events-list/

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Wednesday 19th June 2024 Thought Of The Day From Morden Underground Station #PSPCBDAwarenes #RaiseAwareness #PSP #CBD #WeCare @PSPAssociation

All carers have a legal right to an assessment if they are looking after a relative or friend who cannot manage without their help. Contact PSPA Helpline on 0300 0110 122 or email [email protected] for more information. #CarersAssessment #CarersWeek #PSPASupport

PSPA has created this handy guide for carers so you can quickly remind yourself of simple ways you can look after yourself. The suggestions are quick, free or inexpensive tasks that encourage you to spend time caring for yourself too. #CarersGuide #CarersSupport #PSPASupport

Today marks the first day of Carer’s Week 2024. There are six million plus unpaid family and friend carers in the UK. PSPA will highlight our useful services and resources available to carers. #CarersWeek #Carers #PSPASupport #PSP #CBD

PSPA volunteers help us to provide various support groups for the PSP & CBD community, both in-person and online. Support Group info: pspassociation.org.uk/information-an… #PSPASupport #SupportGroup #VolunteerAwarenessWeek #Volunteers #PSP #CBD

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Our #WeCare campaign calls for a better deal for the family and friends who care for people living with PSP & CBD You can show #WeCare by writing to your local Election candidates and asking them to support #WeCare campaign if they’re elected this July. pspassociation.org.uk/awarenessweek-…

Ahead of #VolunteersWeek beginning tomorrow we want to give a huge THANK YOU to our volunteers. Thank you for your dedication, time and hard work across the charity including: 🧡 Delivering support and information 💜 Raising awareness 🧡 Educating healthcare professionals