Laura Louizos @PSPAwareness
Advocate for Atypical Parkinsonism | Founder of Coleen Cunningham Foundation 🌿 | Author 📚 | Caregiver ❤️ | Sharing support and inspiration 💪 pspawareness.com Canada Joined November 2017-
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Laura Louizos retweeted
This Friday we will be holding an in-person Support Group for anyone affected by MSA in Coventry, Warwickshire and the surrounding areas. The meeting will be run by our MSA Nurse Specialist, Emma Saunders. If you would like to RSVP please email [email protected]
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CCF Coleen Cunningham Foundation Press Release Melbourne, Victoria – September 9, 2025 – The CCF Coleen Cunningham Foundation is partnering with researchers at the Alfred Hospital and Monash University to recruit participants for a groundbreaking study: “Assessing Cognitive…
Laura Louizos retweeted
Please share our Carer’s Guide to PSP & CBD with families you support. The guide features advice from family carers and provides support, knowledge, and encouragement. The guide is available to download from our website here: ow.ly/Hq2u50WA5m1 #CarersGuide #FamilyCarers
Laura Louizos retweeted
Do you know the 2025 updates on the diagnosis and treatment of functional neurological and movement disorders? Do you know all the most recent tips and tricks for examination and for proper diagnosis Functional neurological disorder occurs when the brain’s software is glitching…
Laura Louizos retweeted
Couldn’t agree more. Levodopa is like food for a #Parkinson patient and should be available to every PD patient irrespective of their income or the country they live in. Call for action
Couldn’t agree more. Levodopa is like food for a #Parkinson patient and should be available to every PD patient irrespective of their income or the country they live in. Call for action
Laura Louizos retweeted
Not everything labeled alternative therapy for Parkinson's is snake oil. Should we be rethinking Parkinson’s therapies in 'shades of grey.' A new paper just published in the Journal of Parkinson’s Disease by Alonso-Canavas, Dekkers and Bloem challenges the outdated black and…
Laura Louizos retweeted
People diagnosed with Multiple System Atrophy (MSA) may be eligible to take part in the TOPAS-MSA Study now enrolling locally. Learn more: topas-msa-study.com #MSAresearch #TOPASMSAStudy #MSAawareness #MODAGMSA #MSAsymptoms #MSAresearchstudy
Laura Louizos retweeted
What are the key 2025 updates on progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS)? Will they expand our frontiers of both diagnosis and care. The latest AAN Continuum article by Dr. Nikolaus McFarland reminds us that PSP and corticobasal degeneration are no…
Laura Louizos retweeted
Navigating public spaces with FTD can be challenging. AFTD’s Awareness Cards are designed to make it easier. With two versions, one for care partners and one for individuals diagnosed with bvFTD or PPA, these discreet cards help explain the effects of FTD to servers,…
Laura Louizos retweeted
Level Up: Fluctuating cognition and confusion w/ Parkinson's and/or Alzheimers features? Is Dementia with Lewy Bodies 'the overlooked diagnosis?' Bhavana Patel shines a light on the second most common neurodegenerative dementia in the hot off the press AAN Continuum issue. Today,…
Laura Louizos retweeted
Don’t miss Niemann-Pick Type C masquerading as PSP. In movement disorder clinics, not everything that looks like progressive supranuclear palsy (PSP) is PSP. Name one treatable mimic? Niemann-Pick Type C (NPC). This is a genetic cholesterol storage disorder that can present with…
Laura Louizos retweeted
Is it time to repurpose drugs for Parkinson’s? The future of Parkinson’s care could already be in our medicine cabinets. We just need the courage to look. We’ve had remarkable success treating the symptoms of Parkinson’s, but not so much in slowing it down. A new study from…
Laura Louizos retweeted
Exciting research from the University of Auckland has found distinct brain markers to help differentiate Parkinson’s disease and multiple system atrophy (MSA) early on. This breakthrough could help to diagnose between Parkinson’s disease and MSA. ow.ly/QiVz50WpgAM
Laura Louizos retweeted
New MDCP Clinical Pearl: Speech Differences between Multiple System Atrophy and Parkinson's Disease. doi.org/10.1002/mdc3.7…
Laura Louizos retweeted
MSA is a rare neurodegenerative disorder, diagnosed only with clinical examination and MRI markers. This “How Do I” video project supports clinicians in using the MDS MSA criteria by showing videos for each feature. loom.ly/k7xAFVQ
Laura Louizos retweeted
Some people with MSA can develop a symptom called antecollis. It is usually an advanced symptom of MSA and not everyone with MSA will develop it. In the latest issue of MSA News our MSA Nurse Specialist, Samantha Pavey, explains more - msatrust.org.uk/support-for-yo…
Laura Louizos retweeted
This PSP & CBD Awareness Week we are campaigning to #FixCHC Funding. Just 1 in 5 people who apply for CHC Funding receive it – this must change. Help #FixCHC. Write to your MP to ask for support. Download a template email and search for your MP: pspassociation.org.uk/pspandcbdaware…
Laura Louizos retweeted
Over 1 million young Canadians are caring for loved ones with long-term health issues. #TeamUHN's Dr. Karen Okrainec created a toolkit to help health care providers identify these young caregivers and connect them with available resources. Read more: bit.ly/3SWJEJB
Laura Louizos retweeted
Big news for the MSA community! For the first time, @NAF_Ataxia is offering a $50K #research grant focused on #MSA-C as part of their 2026 #grant cycle. LOIs are now open through August 15. Learn more: ataxia.org/researcher-res…
Laura Louizos retweeted
using Cryo-EM We expand the current structure-based classification of α−synucleinopathies and propose that cell-specific protein pathologies can be associated with distinct filament folds. See: nature.com/articles/s4200…
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