Ataxia and Me CIO 1184030 @Ataxia_and_Me
#Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma ataxia-and-me.org Wales - Cymru + Global Joined August 2016-
Tweets77K
-
Followers4K
-
Following3K
-
Likes28K
How times have changed (for the better)… still a long way to go to ensure people are informed, empowered, and involved in all aspects of health care and research #ISMPPAnnual2024
It’s been an inspiring first day at #Engage2024 - especially reflecting on how far we have come since the @NCCPE was created in 2008. For our university, public engagement has gone from strength to strength, truly part of the culture of the institution and increasing valued
It’s been an inspiring first day at #Engage2024 - especially reflecting on how far we have come since the @NCCPE was created in 2008. For our university, public engagement has gone from strength to strength, truly part of the culture of the institution and increasing valued
People living with #RareDisease must often manage their own care. The burden of care coordination can create pressures across the lives of patients, their families and carers. Help us #ElevateCareForRare #IAmNumber17 Check out iamnumber17.org.uk cc @FibroFlutters
Looky Looky the @WalesGenePark at @NCCPE #Engage2024
Excellent plenary: “there isn’t an ‘us’ and ‘them’ - to be disabled is to be human” #transformationalinclusion #compassionateempathy #Engage2024
Excellent plenary: “there isn’t an ‘us’ and ‘them’ - to be disabled is to be human” #transformationalinclusion #compassionateempathy #Engage2024
#Nominate us for a #Financial #Award towards our awareness projects via @benefactgroup movementforgood.com/index.php?cn=1… #Atacsia #Ataxia #Charity 1184030
📢Join Deni from Health & Care Research Wales Evidence Centre @NCCPE #Engage2024 Conference for an insightful co-produced session with @LibbyHumphris on co-production in public involvement. Discover how collaboration transforms engagement. See you there!😀#PublicInvolvement #PPI
Great stuff by @swynn_unique @Unique_charity #RareDisease #Charity #Medcomms #ProBono
CAG repeat mosaicism is gene specific in spinocerebellar ataxias. This study shows that CAG repeats are increasingly unstable during life in the blood and the brain of SCA individuals, with gene- and tissue-specific patterns cell.com/ajhg/fulltext/…
#medcomms webinar via @networkpharma Panelists @swynn_unique Jennie Talman #theSalve Liz Southey #passionpartnership Speaking #ProBono
Diary Date 3rd June - 9th June 40 years of #VolunteersWeek We support the day at #Ataxia / #RareDisease #Patient #Charity #Wales cc @WCVACymru @cavoceredigion @CAVSCarms @PembsPAVS @carerssupportww @PGGCWWCP
ADVANCE Diary Date #WorldPatientSafetyDay 17th September "Improving diagnosis for #patient safety we support the day at @Ataxia_and_Me #Ataxia #RareDisease #charity Wales cc @WHO
When I was younger you could have a good night out on just a fiver and still have enough for a bag of chips. Re-live those halcyon days by joining us on the 15th May @TinyRebelCdff to hear about science stuff that will blow your mind, all for £5 🤯 pintofscience.co.uk/event/genetici…
“Elucidating mechanisms underlying motor coordination rescue in a mouse model of ARSACS” research report from Dr. Watt and Dr. McKinney (McGill University). This project was funded by the Foundation in 2022-2023. arsacs.com/wp-content/upl…
Please share @MattEagles @EirwenLM
People living with #RareDisease must often manage their own care. The burden of care coordination can create pressures across the lives of patients, their families and carers. Help us #ElevateCareForRare #IAmNumber17 Check out iamnumber17.org.uk cc @LibbyHumphris
ISMPP was thrilled to feature more than 70 posters with the latest member research during #ISMPPAnnual2024. We're pleased to announce the poster winners for Most Reflective of Meeting Theme, Original Research, Best Visual Communication, and Most Visionary Research. Congrats!
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Effie Parks @OnceUponAGene
5K Followers 3K Following Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Ataxia UK @AtaxiaUK
5K Followers 1K Following Ataxia UK is the national charity for people affected by ataxia, a condition that affects balance, speech and co-ordination. About 10,500 in the UK have ataxia.
EURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Cambridge Rare Diseas.. @camraredisease
8K Followers 7K Following Improving #RareDisease lives. Creators of #RAREfest, #RAREsummit, Companies Forum & #UniqueFeetCam https://t.co/bWJ8DVF9iw
National Ataxia Found.. @NAF_Ataxia
3K Followers 675 Following Our mission is to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Dr Emma Yhnell 🧬�.. @EmmaYhnell
6K Followers 3K Following Neuroscientist 👩🏻🔬 • Educator (SFHEA / NTF) 👩🏻🏫 • STEMinist • EDI Advocate • Change-Maker • Keynote Speaker 🎤• Presenter • Host • Writer • (she/her)
Taylor Kane @rarelikeher
3K Followers 1K Following Patient engagement consultant, #raredisease advocate, author, speaker, founder @remember_girls, and more!
Health and Care Resea.. @ResearchWales
8K Followers 906 Following We promote & support health & social care research in Wales to improve the lives of patients, people & communities. Yn Gymraeg @YmchwilCymru Mon-Fri 08:00-17:00
Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
Medics4RareDiseases @M4RareDiseases
5K Followers 2K Following Medics4RareDiseases is driving an attitude change towards rare diseases amongst medical students and doctors in training #DareToThinkRare
Life Sciences Hub Wal.. @lshubwales
9K Followers 9K Following Inspiring health, care and wellbeing innovation. Follow us for the latest in #LifeSciences, #HealthInnovation and #DigitalHealth news. Yn Gymraeg: @hwbgbcymru
Community Connectors @CCPembs
2K Followers 2K Following Community Connector Project Pembrokeshire Association of Voluntary Services
Wales Gene Park @WalesGenePark
2K Followers 1K Following Twitter feed for the Wales Gene Park: Harnessing Genetics to advance Research, Healthcare, Education and Innovation.
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
RDI @rarediseasesint
5K Followers 699 Following Rare Diseases International - the global alliance of rare disease patients & families
dazzle4rare @dazzle4rare
1K Followers 1K Following Est. 2016 | Signal boost RARE with #dazzle4rare every Aug | #Signalise is our #podcast | Our 🔗 https://t.co/bS5LyCTiZ5
Orphanet @Orphanet
6K Followers 625 Following The reference portal and knowledge base for information on rare diseases and orphan drugs. Orphanet nomenclature, ORPHA codes, Orphanet RD Ontology @inserm
Petra Walles @petr_wal
47 Followers 5K Following
Physio Matt @matt_dowdeswell
10 Followers 583 Following Physio in MSK. FCP. NHS/Private practice. Sheffield based. Special interest ACL injuries 👍
Camila Ann @A_Camila1991
683 Followers 2K Following “It’s no use going back to yesterday, because I was a different person then.” ― Lewis Carroll
leo @leonardovertise
400 Followers 2K Following Senior Data Scientist, Conversational AI & all the things around it. MOOCs addicted, but above everything truly madly deeply happy dad.
Martin Davies 🇪�.. @Martindchemist
150 Followers 253 Following Pharmacist. Bevan Exemplar. Lead for medication adherence and Your Medicines Your Health at CTMUHB. Bevan Commission consultant.
Meri Tudruj @tudruj30351
87 Followers 5K Following
sean angelique @jnaoeioelaws
2 Followers 84 Following
MANZI Ndamukunze @MNdamukunze
437 Followers 3K Following Renforcement des Capacités - AT en finance inclusive (capacity building-TA in i.f.) Engaged for Persons Living with a Rare Disease (PLWRD) with CENTRE-ALLIANCE
SJ Garside @GaRsiDe_SJ
255 Followers 150 Following Neuro Physiotherapist / Ffisiotherapydd Niwroleg 👩🏻⚕️| North Wales/ Gogledd Cymru 🏴 Views are my own
Brynlee Dettorre @brynl_dettor
59 Followers 5K Following
Anne Betty @apiedpiper1
183 Followers 437 Following Mrs B & mum to Tom, Lauren & Ted 🐶 Registered Nutritionist, Triathlete 🏊♀️🚴♀️🏃🏽♀️Caravaner, Bagpiper #Coniston 5.25miles end-to-end swim finisher!🏊♀️
Princess Bloom @princess60848
103 Followers 5K Following
Ioan Ynyr Vaughan @Ioan_physio
56 Followers 109 Following Band 6 Physiotherapist BCUHB / Ffisiotherapydd Band 6 BIPBC & Physio for CPD Nantlle Vale 🏴 views are my own
Dr Sarah Rees @DrSarahRees
287 Followers 579 Following All things mental health research @ncmh_wales @cardiffuni
Helen Slade @HelenSlade17
97 Followers 373 Following Mum of 2, Lecturer @Swanseauni, Senior Audiologist👂
Rhys Thomas @Dr_Rhys
2K Followers 2K Following Consultant Neurologist and Epilepsy Neuroscientist: Mild mannered doctor by day; mild mannered doctor by night
Martyna Szymanski @MartynaSzy26950
74 Followers 5K Following
FormusPro @FormusPro
77 Followers 338 Following OotB and bespoke business focused software solutions such as: #MicrosoftDynamics365, #CRM and #ERP, #Azure, #PowerPlatform #ClickDimensions and much, much more.
Mistie Wislocki @misti_wisloc
69 Followers 5K Following
Daisy Werger @DaisyWerge15214
89 Followers 5K Following
aly100034 @aly100034
0 Followers 86 Following
Deborah Costa @deborahhcostamm
15 Followers 250 Following mãe do Davi, autista com alteração genética rara #CACNA1C
Rowena Spratley @RoweSprat
68 Followers 5K Following
Ataxie Ataxia Canada @ataxiecanada
481 Followers 381 Following #Ataxie Canada - #Ataxia Canada - Fondation Claude St-Jean Foundation
Lillie-rose Atiyeh @AtiyehRose69941
110 Followers 5K Following
Tracie Ser @traci_ser
78 Followers 5K Following
İLIMLIHAÇI @ilimlihaci15286
22 Followers 61 Following
Nikeela Uprichard @NikeelaErin
20 Followers 43 Following Project manager at the West Wales Regional Partnership Board 🏴 all views are my own 🔊
The Behçets Beauty�.. @BehcetsBeauty
962 Followers 1K Following ˈjaz-mən (n): A Gift From God | Published Author | Advocate | Spicy Goof Ball | Exhorter | Scientist | Behçets | Bipolar Type 1 | Epilepsy | Phoenix | ♍♏♍
Jeraldine Hawthorn @JeraldineH41264
64 Followers 5K Following
Jada Draper @JadaDraper58449
35 Followers 5K Following
iPain Foundation Rese.. @iPain_Research
3K Followers 2K Following Supporting @iPainOfficial & @powerofpain Research Projects #NERVEmber
Rare Disease Research.. @RDRUKHub
134 Followers 89 Following Bringing together the UK’s strengths and expertise in rare disease research.
Transport & Health In.. @TransportHealth
360 Followers 639 Following The Transport and Health Integrated research NetworK. Bringing academia, policy, practise & public together. Funded by @ResearchWales. Hosted @PsychAtAber
IDK @_chowexhausted
0 Followers 8 Following My : FEAR, weakness, unhealthy & non-organized life die at all! Literally I hate Being alive in a savage life with its people (like everyone I knew🤢) 😓
0yr2ftcvx8zcpl8a @bvisligpre
3 Followers 256 Following The team is a company that provides short-term investment income in cryptocurrency. With a rigorous plan, you can make $500 to $5,000. Click the link to join
Istaq Ahmad @istaqahmad
220 Followers 3K Following Research Coordinator Department of Neurology, AIIMS New Delhi India
Natalie J-W @NJosephWilliams
709 Followers 491 Following Reader in Improving Patient Care, Cardiff University School of Medicine | Associate Director Health & Care Research Wales Evidence Centre
Dr Jane Brearley @JBrearley
609 Followers 2K Following Founder and CEO of Intent Health, an agency built on the foundations that true diversity, creates stronger teams and more relevant campaigns
Eva-rose Teehan @EvaTeehan38466
80 Followers 5K Following
Ursula Towler @towler_urs91385
67 Followers 5K Following
Arcensus @arcensus
146 Followers 57 Following Arcensus is an innovative start-up healthcare company dedicated to the early medical diagnosis of all genetic diseases and dispositions.
Aisla Lasane @ais_lasan
63 Followers 5K Following
EnfermedadesRaras.es @eerr_es
11K Followers 2K Following Web dedicada a la información sobre enfermedades raras.
Yma @yma_cymru
276 Followers 354 Following Not for profit social enterprise enabling possibilities for exceptional care for the people of Wales now, and for future generations.
Neurological Alliance.. @naiireland
3K Followers 754 Following NAI is the national umbrella body representing over 30 not for profit organisations working with people with neurological conditions & their families.
Samantha Horwill @samanthahorwill
798 Followers 2K Following Mother, EV fanatic, gardener, singer-songwriter, primary care ally, cricket - Membership Secretary @AberCC - Co-founder @yma_cymru 🇿🇦 🏴 🇬🇧
Azalea Doiron @azalea62543
62 Followers 5K Following
Qiming (Simon) Yuan |.. @Psych_Yuan
231 Followers 448 Following DPhil (PhD) student in cognitive neuroscience of language @OxExpPsy @OxfordWIN @StJohnsOx @UniofOxford. Clarendon Scholar @Clarendon_OU, language lover.
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Effie Parks @OnceUponAGene
5K Followers 3K Following Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Michael Okun @MichaelOkun
34K Followers 860 Following National Medical Advisor @parkinsondotorg Author 14 books https://t.co/EJCwDpEIw8 blog Professor @UF @fixelinstitute Associate Editor @JAMANeuro @DBSThinkTank
EURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Cambridge Rare Diseas.. @camraredisease
8K Followers 7K Following Improving #RareDisease lives. Creators of #RAREfest, #RAREsummit, Companies Forum & #UniqueFeetCam https://t.co/bWJ8DVF9iw
MDS @movedisorder
15K Followers 314 Following MDS is a professional society of clinicians and other healthcare professionals interested in movement disorders. #movedisorder @MDJ_Journal | @MDCP_Journal
National Ataxia Found.. @NAF_Ataxia
3K Followers 675 Following Our mission is to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Dr Emma Yhnell 🧬�.. @EmmaYhnell
6K Followers 3K Following Neuroscientist 👩🏻🔬 • Educator (SFHEA / NTF) 👩🏻🏫 • STEMinist • EDI Advocate • Change-Maker • Keynote Speaker 🎤• Presenter • Host • Writer • (she/her)
Taylor Kane @rarelikeher
3K Followers 1K Following Patient engagement consultant, #raredisease advocate, author, speaker, founder @remember_girls, and more!
Health and Care Resea.. @ResearchWales
8K Followers 906 Following We promote & support health & social care research in Wales to improve the lives of patients, people & communities. Yn Gymraeg @YmchwilCymru Mon-Fri 08:00-17:00
Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
Medics4RareDiseases @M4RareDiseases
5K Followers 2K Following Medics4RareDiseases is driving an attitude change towards rare diseases amongst medical students and doctors in training #DareToThinkRare
Neurology Journal @GreenJournal
92K Followers 1K Following Neurology is the most widely read and highly cited peer-reviewed neurology journal. It is the medical journal for the American Academy of Neurology.
Brain @Brain1878
65K Followers 172 Following Brain: A Journal of Neurology. Publishing leading studies in neurological science since 1878.
Life Sciences Hub Wal.. @lshubwales
9K Followers 9K Following Inspiring health, care and wellbeing innovation. Follow us for the latest in #LifeSciences, #HealthInnovation and #DigitalHealth news. Yn Gymraeg: @hwbgbcymru
Community Connectors @CCPembs
2K Followers 2K Following Community Connector Project Pembrokeshire Association of Voluntary Services
Ethan Perlstein @eperlste
17K Followers 2K Following ceo @PerlaraPBC (@ycombinator W16), ceo @epalrestat, solo vc @AngelList, evo pharmacologist, mTOR worshipper, HODLer since '14, cofounder of Kai & Luca, bio/acc
Wales Gene Park @WalesGenePark
2K Followers 1K Following Twitter feed for the Wales Gene Park: Harnessing Genetics to advance Research, Healthcare, Education and Innovation.
Vincent Dion @VDion_and_Lab
908 Followers 837 Following Professor @UKDRI at @CardiffUni working on gene editing for the treatment of expanded CAG/CTG repeat disorders. #Huntingtonsdisease, #DM1.
Rob Galloway @DrRobgalloway
17K Followers 2K Following A&E Dr, Hon Clin Prof football loving, nhs supporting dad to 4 brill kids.Once voted HSJ wild card top 10 influencers but - since failed to have any influence
Havas @Havas
30K Followers 2K Following The official Twitter account of Havas. At Havas we make a meaningful difference to brands, businesses and people.
Havas Health & You @havashealthyou
55 Followers 21 Following Havas Health & You is a health network focused on promoting healthy living across the health ecosystem.
Cure Usher @CUREUsher
529 Followers 393 Following Raising funds & awareness for Usher syndrome research. Secretariat for All Party Parliamentary Group. Registered charity, 1181293.
Amy Houseman @amyhouseman__
401 Followers 930 Following Bioinformatician📍Cardiff Uni Cancer Genetics PhD👩🏼🎓 BSc Genetics Edge Hill Uni 🧬Big Data Biology Lab @ Fudan University 👩🏼💻 Funded by @cancer_wales
AGNC @theAGNC
1K Followers 481 Following The Association of Genetic Nurses and Counsellors, representing the profession in the UK and Ireland.
SJ Garside @GaRsiDe_SJ
255 Followers 150 Following Neuro Physiotherapist / Ffisiotherapydd Niwroleg 👩🏻⚕️| North Wales/ Gogledd Cymru 🏴 Views are my own
Ioan Ynyr Vaughan @Ioan_physio
56 Followers 109 Following Band 6 Physiotherapist BCUHB / Ffisiotherapydd Band 6 BIPBC & Physio for CPD Nantlle Vale 🏴 views are my own
VR MELODY @VR_Melody_Wales
9 Followers 3 Following Innovate UK funded project to research VR. Collaboration with Rescape and Centre for Trials Research.
North East ACPIN Hub @NorthEastACPIN
784 Followers 857 Following The Association of Chartered Physiotherapists In Neurology is a professional group that strives to promote excellence in neurological physiotherapy.
Paula Dimarco @PaulaDimarco1
1K Followers 1K Following Advanced neuro physio by trade. patient Safety Manager. member of the UKEMT. Lover of coffee, red wine, cake and the beach! Views my own.
TFS HealthScience @TFSCRO
322 Followers 573 Following TFS HealthScience is a global Contract Research Organization (CRO)
Society for Behaviora.. @SBCNeuro
67 Followers 82 Following Serves clinicians interested in brain-behavior relationships & disorders with neurocognitive & neuropsychiatric difficulties. RTs ≠ endorsements or advice.
Johns Hopkins Neurolo.. @hopkinsneurons
3K Followers 133 Following Official feed of the Johns Hopkins Neurology Residency Program 💪🥇🧠
BCM Neurology @bcmneurology
716 Followers 183 Following Developing compassionate and critically thinking neurologists who provide expert care to a diverse population of patients with neurologic disease.
Clair Swales @ClairSwales1
1K Followers 1K Following Former Firefighter 🔥 Mum of 3+2. CEO at Powys Association of Voluntary Organisations. Tweets personal & may include third sector and family.
Impatient Health @HealthImpatient
75 Followers 104 Following Patients need better. And we can do better. At Impatient Health, we don’t believe there are any more excuses.
Caring Hands Sarcoid @Sarcoid_Network
3K Followers 3K Following 501c3 nonprofit that connects, empowers and mobilizes the Sarcoidosis community.
Parkinson's UK @ParkinsonsUK
75K Followers 6K Following We are Parkinson's UK. Powered by people. Funded by you. Improving life for everyone affected by Parkinson’s. Together we'll find a cure.
IM Médico @IMMedicoHosp
4K Followers 1K Following El medio especializado en noticias sobre #salud e innovación para el #médico especialista hospitalario y de Atención Primaria.
Scimitar Custom @ScimitarCustom
8K Followers 3K Following The sustainable custom sportswear specialists.
PACTO @PACTO2004
18 Followers 13 Following PACTO's mission is to facilitate innovative transport solutions for everyone across Pembrokeshire. 📧 [email protected] 📲 01437 701123 #WithYouOnYourJourney
Transport & Health In.. @TransportHealth
360 Followers 639 Following The Transport and Health Integrated research NetworK. Bringing academia, policy, practise & public together. Funded by @ResearchWales. Hosted @PsychAtAber
Natalie J-W @NJosephWilliams
709 Followers 491 Following Reader in Improving Patient Care, Cardiff University School of Medicine | Associate Director Health & Care Research Wales Evidence Centre
DSI, a PLG Company @DSInPharmatics
311 Followers 1K Following DSI is a full service CMC Drug Development Consulting Firm, assisting emerging Biotech and Pharma sponsors with CMC, Regulatory and QA for NCEs & Biologics
Bethan Lewis @bethanalys29
901 Followers 608 Following Interim Assistant Director of Public Health at Hywel Dda University Health Board - proud to be a nurse, all views my own
Infection Prevention/.. @IPHywelDda
569 Followers 308 Following Follow for news and updates from Infection Prevention Team, Hywel Dda UHB. Dilynnwch am newyddion diweddara Tim Atal Heintiau, Bwrdd Iechyd Prifysgol Hywel Dda
Paul Smith @psmith_72
208 Followers 275 Following Service Delivery Manager for Unscheduled Care (GGH), Cardiology and Renal Medicine at Hywel Dda University Health Board. All views my own.
HealthPathways @1HealthPathways
802 Followers 161 Following Over 60 health communities in New Zealand, Australia, and the United Kingdom collaborating, creating, and sharing pathways to improve patient outcomes.
Yma @yma_cymru
276 Followers 354 Following Not for profit social enterprise enabling possibilities for exceptional care for the people of Wales now, and for future generations.
Samantha Horwill @samanthahorwill
798 Followers 2K Following Mother, EV fanatic, gardener, singer-songwriter, primary care ally, cricket - Membership Secretary @AberCC - Co-founder @yma_cymru 🇿🇦 🏴 🇬🇧
HIVE Teaching Innovat.. @HIVE_MedicCU
225 Followers 323 Following The School of Medicine's Hybrid & Interactive Virtual Environments (HIVE) unit at Cardiff University oversees the delivery of innovative, gold standard teaching
Charities Aid Foundat.. @Caf
36K Followers 3K Following We’re a leading charity and Bank seeking to connect vital organisations, institutions and individuals working to ensure everyone has a stake in the future.
Nikeela Uprichard @NikeelaErin
20 Followers 43 Following Project manager at the West Wales Regional Partnership Board 🏴 all views are my own 🔊
Timothy Syndrome Alli.. @tsa_charity
381 Followers 1K Following We're dedicated to improving the diagnosis, treatment and care of those living with #CACNA1C-related disorders including #TimothySyndrome and #LongQT8.
Sally Owen @SallyAnnOwen73
987 Followers 958 Following Well travelled Mum, wife, veteran & dog owner. Privileged to lead @SwyddiHDdaJobs Working hard to recruit into wonderful West Wales. Views my own 🏴
Cardiff and Vale Rese.. @crf_cardiff
988 Followers 680 Following The page for Cardiff and Vale Research Delivery Team - University Hospital of Wales Clinical Research Facility, and University Hospital Llandough. @CaerdyddRDT
CSNK2A1 Foundation @csnk2a1org
519 Followers 283 Following We are focused on finding a cure for OCNDS & ensuring affected individuals have the opportunities and supports necessary for happy & full lives #ocnds #csnk2a1
Rare @Rare_org
33K Followers 14K Following We leverage #BehavioralScience to inspire individual and community action for our shared waters, lands, and climate.
The Lily Foundation @4Lilyfoundation
4K Followers 2K Following The UK's leading charity fighting mitochondrial disease.We work to support patients & families,raise awareness & fund pioneering research towards finding a cure
Sergio Rodriguez-Quir.. @neurosrq
88 Followers 365 Following Neurólogo, Equipo de Neurogenetica y Trastornos de Movimiento, Hospital J.M Ramos Mejía, especial interés en la neurogenetica de los trastornos del movimiento.
Marcelo Kauffman @Marcelokauffman
581 Followers 379 Following Expert in Clinical and Molecular Neurogenetics. Founder and Ceo of Limay Biosciences @Limay_bio. Innovator and Entrepreneur in Molecular Genomics
Peter Gee 🇪🇺 @petegee87
539 Followers 1K Following Senior Public Involvement Manager @ResearchWales. Views are my own
Elin Griffiths @ElinGriffiths6
369 Followers 373 Following All Wales PD of Integrated Care GP fellowship scheme / Programme Director of Carmarthen GP Specialty Training...amongst other interests. All views are my own 😁
Roche Pharmaceuticals.. @RochePharmaUK
2K Followers 291 Following We focus our energy developing tests and treatments that change lives, giving us more quality time with the people we love. For Diagnostics see @RocheDiaUK
Eleanor Steele @medcommsmentor
45 Followers 111 Following With 15+ years' experience in MedComms, I'm passionate about helping medical writers achieve their potential.
Wait…what??? Gosh, I hope this isn’t a jet lag dream, but I think I have just received a Lifetime Achievement Award from @ISMPP. THANK YOU!! Personal thanks to many people to follow (no way will I make the X character count cut off) #ISMPPAnnual2024
Congratulations to Tomas Rees, @OxPharmaGenesis, on officially beginning his new role as Chair of the ISMPP Board of Trustees. Tomas accepted the gavel from Monica Mody, @bmsnews, immediate past chair of the Board of Trustees. #ISMPPAnnual2024
#Engage2024 day one is done! What an incredible day of sharing and learning, thank you to everyone who attended and contributed. Those of you joining us tomorrow - remember to sign up for outdoor thinking and walk & talk in the morning
Transformational #inclusion: Stop thinking about 'them' and 'us'; remember we will all have experience of being disabled at some point in our lives A call to action from @tanvirnaomi #Engage2024 #Disability #participation #research #coproduction
Engage Poster Party is a unique opportunity to encounter people working at the cutting edge of engagement. Expect to be intrigued and inspired by the wealth of talent and expertise at play Here's Emily, 1 of the 35 Poster Party 'hosts', preparing for day 2 at #Engage2024
Pre-conference build! ⚖️ The Balance Of Power 💥 #Engage2024 a creative dissemination activity i’ve designed to share themes from my PhD research experiences of power in #CoProduction Come play! 12.15-1.30 @uniofwarwick @HealthSci_WMS @warwickmed @NCCPE #creativemethods
Our education & engagement team are excited to be here at the Engage Conference in Bristol today! #Engage2024 @NCCPE #engagement
Thank you to all who have been checking up on me x I've had one hell of a journey lately but now its wrapped up with a big #skincancer ribbon cus life likes to challenge me like that 🤦♀️ 2 BCCs removed in time for awareness month so will be shouting out about #sunsafety this May x
Thank you to our Champion Sponsors with 10 or more attendees participating from their companies. #ISMPPAnnual2024 #MedComms #MedPubs #BioTech
Our own Emily Messina moderating a plenary on debunking neuromyths about learning styles … more leveraging the power of storytelling at #ISMPPAnnual2024 @IPGH_MedComms
@SondraB_RareQoL @TakedaPharma @lifearc1 @NIHRBioResource @uochester @Medscape @JBrearley @ResearchWales @GenomicsWales @Ataxia_and_Me Fantastic News! Congrats @SondraB_RareQoL on securing this sponsor. Looking forward to the event!
Ooo this looks interesting 🧐 Love seeing what’s happening in the Madsen lab 🥼 #PROSResearch
Busy day today👩🔬 Working at the Madsen Lab with @RalitsaMadsen on creating new models for PROS! @CLOVESSyndrome @GoPI3Ks @CaRAVAN_Network
Are you interested in becoming a Dementia Friend? 📅Thursday 16th May, 11am-12pm & 2pm-3pm As part of Dementia Awareness Week, Dementia Friends have organised two free sessions in the Ffwrnes Theatre. Dementia Friends is an Alzheimer’s Society led initiative which aims to 1🧵
Epidemiology of autoimmune liver disease in Korea: evidence from a nationwide real-world database dlvr.it/T6D9bl
Many thanks @PeredurPlaidAS for hosting @DisabilityWales briefing event at Ty Hywel about Welsh Government proposals to increase the maximum weekly social care charge. Great to be joined by member Amanda Say @TafTorfaen to explain the impact of charging
For the last few months I’ve been working hard on redesigning a new GoPI3Ks website. It’s finally here: gopi3ks.com Hopefully it’s more accessible & easier for people to us. Plus we have some extra pages for you to check out 😀
So true Phil , or in many cases throwing it accidentally all over yourself and anyone else in the vicinity because your dyskinesia is bad ! 😳
#parkinsons is ordering a takeaway because you are unable to cook, and then being unable to eat it when it arrives. #yopd #medsoff
Join @Benefacttrust as they delve into the heart of the hunger crisis in the UK with @TrussellTrust's Director of Public Engagement, Sophie Carre. Find the link to the full podcast in their post ⬇️
NEW episode | Ending Hunger w/ @TrussellTrust 🥖🥗 In this episode, we're joined by Sophie Carre, Director of Public Engagement at the @TrussellTrust, to discuss the growing issue of #foodpoverty in the UK. Watch: bit.ly/3xOBT0L Listen: spoti.fi/44iHNDG
Thank you to the Day 2 attendees of #ISMPPAnnual2024! We hope you're enjoying the networking, collaboration and learning. We extend a special appreciation to @PublicationPlan, our Media Partner for the 20th Annual Meeting of ISMPP. #MedComms #MedPubs #biotech
#PublicationProfessionals Watch your own bias (conscious and unconscious) and try not to hallucinate. The need to check output is not restricted to genAI content. #ISMPPAnnual2024
Above all, patients, carers, and the general public have a right to access research findings in a way that informs, educates, and empowers! #ISMPPAnnual2024
Trends for United States
You might like
