Effie Parks @OnceUponAGene
Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓 effieparks.com Seattle, WA Joined November 2018-
Tweets9K
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Likes15K
Honored to come to Canada with you over the air waves!!
Honored to come to Canada with you over the air waves!!
All rare diseases deserve a chance st treatment no matter how rare! Thank you @RareRevolutionM for sharing my story. #rarebone @MGHBoneResearch shout out to Dr. Jueppner and Dr. Gardella for leading the way for ultra rare disease like Jansen's!
All rare diseases deserve a chance st treatment no matter how rare! Thank you @RareRevolutionM for sharing my story. #rarebone @MGHBoneResearch shout out to Dr. Jueppner and Dr. Gardella for leading the way for ultra rare disease like Jansen's!
Effie turned the darkest hours of her life into a beacon of light for other rare families like hers, which she does through the power of storytelling via her popular podcast, Once Upon a Gene. bit.ly/OnceUponAGene #WomenInRare #CTNBB1 #OnceUponAGene #Podcast @OnceUponAGene
Attention to those attending the @GlobalGenes Rare Drug Development Symposium next week: @ctnnb1cc
Click to listen to the trailer: I created Once Upon A Gene to connect with others in the #raredisease community. Becoming a parent to a child with a rare disease was extremely isolating for me. Finding others who "get it" has changed everything. effieparks.com/podcast/trailer
Have a diagnosis of #CerebralPalsy? Get a #GeneticTest
Have a diagnosis of #CerebralPalsy? Get a #GeneticTest
Today, we are walking for LGS Foundation and LGS Research. Woo hoo!!! Thank you to all who donated!! 💜💚💜 Savannah’s Walk ‘n’ Wheel for LGS Research lgsfoundation.salsalabs.org/2024walkforlgs…
Excellent depiction! We’re aiming to improve this journey for Kabuki syndrome and others - KS families, save the date for our May 9 webinar to discover the power of your diagnosis!
Excellent depiction! We’re aiming to improve this journey for Kabuki syndrome and others - KS families, save the date for our May 9 webinar to discover the power of your diagnosis!
Many have attempted 2 illustrate the journey a fam undergoes when seeking a #GeneticTest that may lead 2 a #Raredisease dx, often these depictions fall short of capturing the true essence of the experience. I aim 2 provide a more accurate & factual representation of this journey.
Looking forward to @OrphanConf #RareDisease #AdvocateLikeAMother
Looking forward to @OrphanConf #RareDisease #AdvocateLikeAMother
A @NASEM_Health committee is seeking input from anyone impacted by, or interested in, U.S. #NewbornScreening to inform a study on strengthening and modernizing these essential programs. Learn more and sign up here: ow.ly/aqVq50QMgmx
I wrote this short blurb about Michael J Fox (@realmikefox) for the annual #Time100. This man means a lot to me. And I know he means a lot to you… ⬇️ I know Michael J. Fox. Like, I know him pretty damn well. He’s funny. He’s warm. He’s handsome and intensely smart. He also…
Check out the newest edition of @RareRevolutionM featuring some incredible Women in RARE. Thank you for including me alongside so many badasses. #RareDisease #CTNNB1 rarerevolutionmagazine.com/previous-editi…
The Oudin lab is looking for a new research technician to work on our cancer innervation project. Apply here! jobs.tufts.edu/jobs/20392?lan…
Such a special moment from @MamaBearforRare and her daughter. A beautiful day for this incredible rare disease warrior and family. ☀️ 🧬 💙 #BehindTheMystery #CareForRare #RareDiseaseCommunity #RareDiseaseAwareness
And we’re back. Training for her walk for LGS research with a little yoga. lgsfoundation.salsalabs.org/2024walkforlgs… @LGS_Foundation #Walk4LGS #LennoxGastautSyndrome #epilepsy #intellectualdisability #autism #Disability #Ability
Don’t miss out! Check out @OnceUponAGene. #RareDisease parent Effie Parks shares her family’s experiences, interviews with experts and moving stories from other rare disease families. Powerful, timely, well worth a listen! #RareandReady #podcast effieparks.com/podcast
Another amazing podcast episode featuring the trailblazing Rare Disease Mom, @SLC6A1_Mom, who sheds light on the crucial need for an ICD-10 code for our rare diseases.
Another amazing podcast episode featuring the trailblazing Rare Disease Mom, @SLC6A1_Mom, who sheds light on the crucial need for an ICD-10 code for our rare diseases.
Taylor Kane @rarelikeher
3K Followers 1K Following Patient engagement consultant, #raredisease advocate, author, speaker, founder @remember_girls, and more!
Ethan Perlstein @eperlste
17K Followers 2K Following ceo @PerlaraPBC (@ycombinator W16), ceo @epalrestat, solo vc @AngelList, evo pharmacologist, mTOR worshipper, HODLer since '14, cofounder of Kai & Luca, bio/acc
SynGAP Research Fund .. @cureSYNGAP1
10K Followers 6K Following #SYNGAP1 🧬 = 🧠NDD DEE causing #Epilepsy #Autism #ID #Sleep #GI. Incidence = 6️⃣.1️⃣/💯k ICD10 https://t.co/4UJNF5bKTl https://t.co/pjCrzqlbV7 🎙
Becky Sansbury @AftrTheShock
2K Followers 2K Following Emotional Support Specialist | Rare Disease | Palliative Care | Author of "After the Shock" | former hospice chaplain | always a mom
Mike Graglia 🌻 @JMGraglia
7K Followers 3K Following CEO @cureSYNGAP1 🧬 Pod https://t.co/9jkDkMg5R8 🎧 Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
Luke Rosen @lukebrosen
2K Followers 432 Following Dad of 2 amazing kids. Founder of https://t.co/M8dxuYqmgL. Works with families affected by rare neurological diseases and cancer. Baseball and hockey. Firefighter.
The Notorious EEG (M... @TheNotoriousEEG
10K Followers 2K Following Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Abby Turnwald (she/he.. @PedsGCAbby
927 Followers 1K Following Pediatric genetic counselor, neurogenetics, advocate for the rare disease community, let’s talk about sibling health
Adam Johnson - DadVoc.. @RareDiseaseDad
1K Followers 1K Following Dad w/#RareDisease | #Mito Advocate |🎙Host: #ParentsAsRare | Educator | Support | Kindness | Dad Jokes |#MentalHealthMatters | #BoiseState | ⚾️ @Cubs 🏈@49ers
Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
Stephanie Fischer @RarePOV
7K Followers 6K Following #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.
Sarita Edwards @SaritaEdwards
1K Followers 813 Following Rare Mom (#Trisomy 18) | MHA | CEO @everyoneiswe | Podcaster | Global Keynote | Award Winning Advocate | #RareDisease #Equity #MentalHealth #Policy #MeToo
Ana Mingorance @CNSdrughunter
3K Followers 1K Following 🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others.
FamilieSCN2A @FamilieSCN2A
2K Followers 1K Following Our vision is to find effective treatments and a cure for SCN2A disorders.
n-Lorem Foundation @n_lorem
1K Followers 572 Following Discovering, developing, and providing personalized experimental ASO medicines to treat nano-rare patients — for free, for life
Neena Nizar @NeenaNizar
2K Followers 2K Following Founder & Executive Director of The Jansen's Foundation. KOL,TEDx Speaker, Educator, Change Leader, https://t.co/Ty1g3WHftT Opinions are my own
Marni Cartelli @Purrfectly_Rare
3K Followers 2K Following Rare Disease Patient, mom, & advocate. Danny's Dose Alliance Board Member. Know who you are & live a way you can be proud of.
JudyBirrell @bH2099hgM2B0J0G
55 Followers 2K Following
💫HARPAZŌED soon j.. @palavrossavrvs
25K Followers 28K Following Looking for that Blessed Hope, the glorious appearing of our great GOD and SAVIOUR, YESHUA-JESUS! — «”Come up here"!» Revelation 4:1 🔥❤️💥
Eric Jones II @ii_eric62243
390 Followers 5K Following Customer Service Representative for Federal Student Aid, Department of Education. Employed by Goldschmitt and Associates LLC. Main headquarters is MOHELA
SK SOFTWARE solutions.. @SKsoftware256
2 Followers 84 Following
TinaBeerbohm @uNZo1LvhfUw7U3T
3 Followers 205 Following
Emilio Gamus @Egamus
119 Followers 428 Following
MoBro.co/WLyell🧬�.. @wlyell
1K Followers 5K Following #RadicalCentrist⚖️ with #chromosome(s‽)🧬 #afire🔥, #enduring🥶 to #nurture💗 “#choice-less🤔 #awareness🎗” thru #coherent🔔 #dialog🗣️. #Likes💞= #resonance📳…
Gerald J Maze Jr @GJMaze1975
123 Followers 1K Following
Matthias Rare @MatthiasRare
11 Followers 37 Following
January Payne @januarypayne
1K Followers 2K Following Health communicator. Health equity advocate. Former health/medical journalist @washingtonpost @usnews. Dog mom. 🐶🐩🐕 Opinions are my own.
Ahmed Siddiqui @ahmedsaleem431
833 Followers 2K Following Passionate about all things entertainment and recreation, exploring the world's offerings with a global perspective. Content creator and enthusiast. 🎬🌍 #fun
Slira @Slira25359
3 Followers 243 Following
Ukraine Watch @AnotherFellaLV
2K Followers 4K Following United we stand. Ukraine will win. I will follow back. #NAFO #NAFOfellas
After Dinner Conversa.. @AfterDinnerCon
33K Followers 31K Following Philosophy | Ethics Short Story Literary Fiction Publisher. Top 10 (Chill Subs) LitMag 2023, books, & podcasts. $ subscriptions (& Patreon) pay writers.
Seeking Truth @TheSilencedMaj4
503 Followers 2K Following Truth is the most precious and rare commodity in this world of lies
Setedo @setedo53371
2 Followers 251 Following
Elaine @ElaineOL24
8 Followers 92 Following Neuroscientist | Neuroimmunology | Epilepsy Research | Irish Mammy | Sea Swim and Tea | Views are my own
Leo Protestan men @LeoProtest19088
635 Followers 5K Following
gaby gergi majdalany @MajdalanyGergi
819 Followers 5K Following interior designer, furniture designer, formal president, vice president of the syndicate of int, designers in Lebanon.
Dr.Fatoom Jaar @fatoom_jaar
46 Followers 1K Following
Rizk Khodair @khodair_rizk
9 Followers 196 Following
Zohaib Hassan, PhD @drzohaibh
890 Followers 6K Following Postdoctoral Researcher at @ZhejiangLab Hangzhou
ksj Beats @KsjYouMadeThis
108 Followers 234 Following Multi Platinum Billboard Producer 💿Credits: meekmill | rockoballinenys | tydollasign | fettywap1738 | pyr3xliving | chrisbrownofficial | tayc | ye + more
Jimmie Briggs @briggsjimmie
2K Followers 4K Following
Elsie Megan @poemsandparents
22 Followers 224 Following My cathartic and honest (poetic) ramblings about the ups and downs of parenting a child with severe learning disabilities.
Bob Maness @bob_maness
1K Followers 2K Following
Ilirjan Cekrezi @ICekrezi
201 Followers 828 Following
Nicole Goforth @Goforth1Goforth
508 Followers 2K Following UT Graduate, Panhandle girl at heart, follower of true crime, animal lover and football fan always! Hook’em 🤘🏼
Dave Johnson 🇺🇲.. @DaveJoh238
247 Followers 4K Following I'm Dave Johnson the winner of the powerball lottery I won $283.3 million I'm giving out $30,000 to my first 2k followers... Approved By Government 🇺🇲🇺🇲🇺🇲
badtro @btis
57 Followers 671 Following
Ali Kheirandish @AliKheirandish4
158 Followers 4K Following
CF Vests Worldwide @CfVests
766 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
ABBA @thegunnerab
5K Followers 4K Following Israeli/American Patriot, ימני גאה Specializing in Biotech investing mainly via option strategies. All Lives Matter ! SoCal Gunner for Life, #COYG 🇺🇸❤ 🇮🇱
Sumac Imilla @sumacimilla87
138 Followers 984 Following
David Kaufman @dcoughman
1K Followers 5K Following married with children, I'd rather be swimming! RT ≠ endorsement
Narendra Patel @Narendr88014630
1K Followers 6K Following
Scott Hockens 🇮�.. @scotthockens
1K Followers 3K Following Global Knowledge Broker - Douglas Elliman Real Estate - diehard Fins fan 4 life🐬🐬🐬
David franco 🍌 @davidfanco12
555 Followers 837 Following proud ✡️ proud zionist love the life love the sea 🌊 love 🐕
Nation with RAGA 🇮.. @beinghuman1865
3K Followers 2K Following #No_vote_for_bjp #HaathBadlegaHalaat #Congress4INDIA #congress4Bharat
Ivelina Petrova @ivelinapetrovaX
34 Followers 785 Following Industrial Management and development Master Degree and Architect in Architecture [email protected] [email protected] [email protected]
༄✿Sana Queen♛�.. @SanaQueen_PTI
1K Followers 1K Following
Taylor Kane @rarelikeher
3K Followers 1K Following Patient engagement consultant, #raredisease advocate, author, speaker, founder @remember_girls, and more!
Ethan Perlstein @eperlste
17K Followers 2K Following ceo @PerlaraPBC (@ycombinator W16), ceo @epalrestat, solo vc @AngelList, evo pharmacologist, mTOR worshipper, HODLer since '14, cofounder of Kai & Luca, bio/acc
SynGAP Research Fund .. @cureSYNGAP1
10K Followers 6K Following #SYNGAP1 🧬 = 🧠NDD DEE causing #Epilepsy #Autism #ID #Sleep #GI. Incidence = 6️⃣.1️⃣/💯k ICD10 https://t.co/4UJNF5bKTl https://t.co/pjCrzqlbV7 🎙
Becky Sansbury @AftrTheShock
2K Followers 2K Following Emotional Support Specialist | Rare Disease | Palliative Care | Author of "After the Shock" | former hospice chaplain | always a mom
Mike Graglia 🌻 @JMGraglia
7K Followers 3K Following CEO @cureSYNGAP1 🧬 Pod https://t.co/9jkDkMg5R8 🎧 Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
Luke Rosen @lukebrosen
2K Followers 432 Following Dad of 2 amazing kids. Founder of https://t.co/M8dxuYqmgL. Works with families affected by rare neurological diseases and cancer. Baseball and hockey. Firefighter.
The Notorious EEG (M... @TheNotoriousEEG
10K Followers 2K Following Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Abby Turnwald (she/he.. @PedsGCAbby
927 Followers 1K Following Pediatric genetic counselor, neurogenetics, advocate for the rare disease community, let’s talk about sibling health
Ingo Helbig @IngoHelbig
3K Followers 349 Following Child Neurologist, epilepsy genetics researcher, blogger
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Adam Johnson - DadVoc.. @RareDiseaseDad
1K Followers 1K Following Dad w/#RareDisease | #Mito Advocate |🎙Host: #ParentsAsRare | Educator | Support | Kindness | Dad Jokes |#MentalHealthMatters | #BoiseState | ⚾️ @Cubs 🏈@49ers
Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
Dennis Lal @LalDennis
3K Followers 329 Following Director of the Center for Neurogenetics; Associate Professor at UTH - Neurogenetics & Informatics - My opinions are my own & do not reflect my employer.
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
Dr. Tracy Dixon-Salaz.. @TracyDixonSalaz
3K Followers 974 Following Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation
Stephanie Fischer @RarePOV
7K Followers 6K Following #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.
Sarita Edwards @SaritaEdwards
1K Followers 813 Following Rare Mom (#Trisomy 18) | MHA | CEO @everyoneiswe | Podcaster | Global Keynote | Award Winning Advocate | #RareDisease #Equity #MentalHealth #Policy #MeToo
Ana Mingorance @CNSdrughunter
3K Followers 1K Following 🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others.
Todd Myers 🐟🌲�.. @WAPolicyGreen
5K Followers 4K Following Author, "Time to Think Small" & advocate of environmental innovation. VP of Research, WA Policy Center. Former DNR staff, Salmon Recovery Council. Beekeeper.
Gays Against Groomers @againstgrmrs
423K Followers 528 Following A nonprofit of gays, lesbians and others in the community against the sexualization, indoctrination and medicalization of children under the guise of "LGBTQIA+"
Kyle Mann @The_Kyle_Mann
117K Followers 621 Following Editor-in-chief of The Babylon Bee. Beer, baseball, board games. far too easily pleased
Joanna Cherry KC @joannaccherry
131K Followers 3K Following SNP MP for Edinburgh South West, King’s Counsel and Feminist.
@TheCassReview @thecassreview
11K Followers 0 Following The independent review into NHS care for children & young people questioning their gender identity or experiencing gender incongruence. More on our website.
Henrietta Freeman @hen10freeman
18K Followers 4K Following 🏴🇬🇧 #RavensFlock JFT97 ❤️♿️ Protect Same-Sex Care. Keep Psych Wards Single Sex 💚🤍💜 1 Corinthians 16:13-14 ✝️
Rosie Duffield MP @RosieDuffield1
75K Followers 10K Following Only Labour MP in Kent since 2010. Believer in x-party working. @CommonsEFRA, Chair @APDAWG1, member of @APPGAA and many more. [email protected]
Rodney Smith Jr @iamrodneysmith
156K Followers 82 Following Founder of Raising Men & Women Lawn Care Service - 501(c)(3) | We provide free lawn care to the elderly, disabled, single parents , veterans.
Ron DeSantis @GovRonDeSantis
4.8M Followers 1 Following 46th Governor of the great state of Florida.
Clay Travis @ClayTravis
1.2M Followers 510 Following https://t.co/GDdmAGFxIU, @outkick @clayandbuck radio 12-3 pm et, author, American Playbook, dad of three boys, lawyer
Egetis Therapeutics @Egetis_EGTX
389 Followers 87 Following Egetis is an innovative pharmaceutical drug development company, focusing on projects in late-stage development for treatment of serious rare diseases.
Washington Initiative.. @WABoysMen
412 Followers 234 Following Advocating for healthy lives and improved outcomes for Washington's boys, men, and communities. Visit our site & join our email list.
The Free Press @TheFP
248K Followers 89 Following Honest. Independent. Fearless. A free press for free people. Listen to @thehonestlypod. Subscribe: https://t.co/xUrlJtH24v
Travis Couture @TravisSCouture
2K Followers 958 Following State Representative - 35th District - WA.
Scott Newgent-Trans R.. @NotScottNewgent
62K Followers 586 Following Accidental star of Matt Walsh's What is a Woman? Transman. Gender medicine survivor. Lesbian. Mother. Speaking out for kids. President of Trans Regretters
Kellie-Jay Keen @ThePosieParker
119K Followers 277 Following woman - adult human female https://t.co/3yZQntjHMJ - https://t.co/zTnh2hufaW - https://t.co/Y7vFrfOPsl
We Heart Seattle @weheartseattle
4K Followers 587 Following We Heart Seattle is a boots-on-the-ground, grassroots coalition who clean the city & provide outreach as a direct action strategy to supplement current methods.
alexmassie @alexmassie
64K Followers 2K Following Columnist for The Times & The Sunday Times. Substack Newsletter: https://t.co/kuwqRaci4c
Riley Gaines @Riley_Gaines_
1.0M Followers 465 Following University of Kentucky swim '22 😼 Host of Outkick's Gaines for Girls podcast🎙️ Director of the Riley Gaines Center⛹🏻♀️ Get my new book at link in profile📖
Watson @ImWatson91
79K Followers 929 Following #Detrans History buff. Bit of an arsehole. My Substack: https://t.co/s7EVfWd9bB
Attorney General Andr.. @AGAndrewBailey
123K Followers 754 Following The official account of Missouri Attorney General Andrew Bailey.
Christina Buttons @buttonslives
65K Followers 1K Following classical liberal | atheist | Asperger’s | independent journalist on gender medicine | gmail: buttonslives
Sall Grover @salltweets
105K Followers 879 Following Founder & CEO of giggle, a female social network - APP CURRENTLY UNDER RENOVATION. RELAUNCH SOON 💗 DM for media comments
Elena Varoni @ElenaVaroni
298 Followers 395 Following Associate Professor #Dentist, #Oralmedicine & #biomaterials specialist, Director of #DentalHygiene course, University of Milan; PhD in #Biotechnologies;#runner!
Ramiro Maldonado @RamMaldonado32
1K Followers 2K Following @Dukeeyecenter Retina specialist. Ophthalmic Geneticist. Clinician-Scientist. #ophthalmicgenetics #genetherapy #electrophysiology #translationalresearch
Independent Women's F.. @IWF
307K Followers 159K Following We work to develop & advance policies that aren’t just well intended but actually enhance freedom, opportunities, & well-being. Get our texts: WOMEN to 40442
Carilyn Johnson @CarilynJohnson
19K Followers 10K Following Mom, attorney, ultrarunner. 4 x Team USA 🥇🥇🥈 24 Hour Team. #SaveWomensSports. NO DMs.
Megyn Kelly @megynkelly
3.0M Followers 3K Following Happily married to Doug, crazy in love with my children Yates, Yardley, and Thatcher, journalist.
Andrea Suarez @weheartfounder
1K Followers 422 Following Founder and Executive Director of We Heart Seattle (501c3). We are a boots on the ground movement for a more beautiful and safe Seattle for all to enjoy.
The Chandler Project .. @thechandlerproj
74 Followers 164 Following Advocating for awareness surrounding R&D for #achondroplasia and other forms of #dwarfism, i.e., #skeletaldysplasia – @ach_research @skeletal_dys
NewYorkBIO @newyorkbio
1K Followers 297 Following
Grant W Mitchell @grantwmitchell
173 Followers 374 Following
The Med13L Foundation @Med13L_Fdn
71 Followers 646 Following Supporting MED13L families through awareness, research, and community. Connecting hearts and minds to overcome challenges. #NDD #Epilepsy #Autism #ID 🧬💙🧠
Nicole Thompson @ProducerNicoleT
2K Followers 768 Following Pod producer, travel is therapy, give me all the animals, go Hawks!
AROGUNDADE MUIDEEN TU.. @DMuideen
698 Followers 5K Following Biochemist, Drosophilist, Neuroscientist, Nanoscientist, Bioinformatics, oncologist
Epilepsy Genetics Pro.. @BCH_PoduriLab
695 Followers 176 Following Multidisciplinary, translational #epilepsy #genetics clinical care and research team @BostonChildrens. Disclaimer: https://t.co/z1MUJBFDdD
UC San Francisco @UCSF
77K Followers 469 Following UC San Francisco is the leading university exclusively focused on health. @UCSF on Instagram, Facebook, LinkedIn and YouTube
UCB US @UCBUSA
20K Followers 621 Following Official U.S. Twitter for UCB, a global biopharmaceutical company. We are dedicated to putting patients at the heart of everything we do.
Uncle For All Kids @UncleForAllKid1
354 Followers 2K Following I love and serve my God daily of happy children ministry and we have 21 children at the orphanage now and this our what's up number +256786235118 👇👇 DONATE
NeuroWoodworks @NeuroWoodworks
7K Followers 1K Following Developmental neurobiologist / artist. I sculpt biology in wood.
Change Washington @ChangeWash
2K Followers 419 Following ChangeWA is a non-partisan 501(c)(4) organization focused on advancing common sense policies around smart growth, public safety, and government accountability.
Safe Seattle @RealSafeSeattle
3K Followers 289 Following
Victoria Smith @glosswitch
67K Followers 2K Following Old lady feminist, aggressively promoting my agenda in an uncompromising way. Agent: @LittleHardman Email: glosswatch @ https://t.co/vHSPg1rFaj
Jeffrey Davis @JeffreyLDavis44
1K Followers 4K Following Health Policy Director @mcdermottplus. Husband, father of two, Duke basketball super fan. Opinions are my own.
Ann Davison @_Ann_Davison_
2K Followers 34 Following Seattle City Attorney, leading its law department as chief legal officer & prosecutor.
Gwyneth Gaul @GwynethGaul
629 Followers 2K Following Leading Strategic Partnerships & Philanthropy at Comcast NBCUniversalTravel to #PAS2024 🚗: 1) Listening to @OnceUponAGene 2) Border crossing 🇨🇦 3) Happy Hour stop along the way to visit my @HopeforHIE mom friend Gaby who I saw exactly a year ago! When you are connected to a global community, there are friends around every corner. ☀️🩵
@CollinRugg "Earlier today, officers responded to the Bank of America in Montebello regarding a patron who was causing a disturbance. Upon officer’s arrival, they discovered that a 92 year old man was trying to withdraw money from his account, however his California identification card was…
@DerrickShieldsX They gotta get that money off GoFundMe asap.
NEW: UNC Chapel Hill frat boy says he would have protected the American flag with his "dead body" from protesters. One of the students who protected the flag at UNC, Dan Stompel, gave an interview with Fox News as their GoFundMe has surpassed $400,000. Stompel said holding the…
🎉 At the @GlobalGenes Symposium in Philadelphia, Megan and Daniel from the Mission: Cure team, learned more about FDA and NIH support for rare diseases and had the opportunity to meet with organizations within the @ChanZuckerberg Rare As One network! #RDDS #CareAboutRare
Attorney General Bob Ferguson’s refusal to condemn the harassment of Jewish students on college campuses is a dereliction of duty. His silence - once again - is deafening. No one has the right to stomp on the rights of others. This can no longer be tolerated.
This is a Jewish student at @UW being blocked today from walking on his American college campus by pro-Hamas activists in 2024 The university was warned this encampment was coming over a week before it was established and failed to act.
Help us welcome new senior editor Gary Churchill of @jacksonlab to #G3: Genes|Genomes|Genetics 👋 His research focuses on statistical applications in genetics and molecular biology. Read more in Genes to Genomes: bit.ly/3TZl7Dx
It has been a couple of weeks, hasn’t it! So disgusted by the TitleIX debacle in the US, I decided I needed to take a step back and catch up on work (plus had a lot of travel), and other commitments. But, coming back online, and seeing Humza Yousaf has resigned, makes me know…
Having worked incredibly hard to be able to send a kid to @Columbia, and then watching it devolve into institutional support of antisemitism, makes me ill. So many of these young people don’t realize that their privilege of protest, which I fundamentally support, loses…
There is no doubt that not understanding the impact of the gender recognition reforms, has now brought down two SNP first ministers, it's entirely reasonable for the candidates this time around to spell out exactly where they stand on Cass & other areas of concern.
@The_Kyle_Mann She's a hero. (I can't even fake it). Roxy, go hug your parents.
Exploded pepper jack and scallion bread
Rare Mom’s making a difference!!! ⬇️⬇️⬇️⬇️
I am officially THE Democratic candidate for Florida’s 11th Congressional District and will be on the General Election ballot in November. Having a voice in Congress for every day, working, and middle class Floridians is more important than ever as DC politicians work for their…
Little girl runs to give the local pretzel man a hug in New York City after being gone on vacation for a week. More of this. “The sweetest pretzel cart man,” the girl’s mom said on IG. “He parks in front of my daughter's school and Madison loves giving him high fives when we…
Was thinking about the time Leftists wanted me cancelled as a keynote because I was friends with Dori Monson. Rather than get cancelled, I quit. I will NEVER do that again. The best way to let unreasonable people win is to give into unreasonable demands. brandikruse.locals.com/post/3441425/t…
@OliLondonTV Now imagine how the real women feel
@OliLondonTV It’s normal to feel uncomfortable when you trespass in a place you’re unwelcome and don’t belong.
Georgia state trooper has zero patience for a pro-Hamas extremist who flops to the ground and whines like a baby. The trooper quickly and literally takes matters into his own hands.
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