n-Lorem Foundation @n_lorem
Non-profit discovering, developing, and providing personalized experimental ASO medicines to treat nano-rare patients — for free, for life nlorem.org Carlsbad, CA Joined July 2020-
Tweets1K
-
Followers1K
-
Following563
-
Likes429
Happy to welcome Dr. Jennifer Bain as an #NRPC25 speaker! @BainBrainLab will discuss the challenges of long-term follow-up in pediatric neurological patients, focusing on a nano-rare patient with 3 years of ASO treatment. nlorem.org/nano-rare-pati…
0
0
0
84
0
Download Image
Transmitter Features Editor Brady Huggett guest-hosts this episode of the PEP podcast. He sits down with Dr. Stan Crooke, to reflect on the strides made over the past year—insights that will help shape the discussions at this year’s Colloquium. youtu.be/cO8FSP-r604
Happy Friday! Want to make a difference today? Spread positivity by bidding on artworks created by nano-rare patients and their families. Your bid supports the our mission to develop and provide personalized medicines to these artists and others. nlorem.org/auctions
We’re approaching 400 total #NRPC25 registrants, nearly twice as many as at this time last year! Can’t make it to Boston? Sign up to attend virtually and tune into the livestream at the time that works best for you. Visit nlorem.org/nano-rare-pati… to register today!
Kicking off the the morning session of #NRPC25 Day 1 will be inspiring n-Lorem presentations from Stan Crooke, Laurence Mignon, and Sarah Glass. Don’t miss it! Check out the full lineup here: nlorem.org/nano-rare-pati…
The countdown is on! Just 50 days until the #NRPC25! We can’t wait to bring the community together. nlorem.org/nano-rare-pati…
Research, published in Nucleic Acids Research, identifies splice-modulating ASO that corrects the effects of a nano-rare GBE1 indel mutation, offering a potential path to treatment for a subset of APBD nano-rare patients. Read: nlorem.org/n-lorem-founda…
📢 We’re excited to announce that Elizabeth Berry-Kravis, MD, PhD, of @RushUniversity Medical Center, will be joining us at #NRPC25! Event details: nlorem.org/nano-rare-pati…
Olivia Kim-McManus, MD, of @radychildrens and @UCSDHealth will be joining us at the #NRPC25 Register to attend in person or virtually: nlorem.org/nano-rare-pati…
Spine Enthusiast, a distributor of spinal implants, allografts and biologics supporting surgical cases ranging from outpatient procedures to complex deformity corrections for adolescents and adults, joins us in support of the #NRPC25 👏 nlorem.org/nano-rare-pati…
Ethan Perlstein bio/a... @eperlste
19K Followers 2K Following ceo @PerlaraPBC (@ycombinator W16), ceo @epalrestat, ceo @endrarediseases $CURES, evo pharmacologist, mTOR worshipper $RAPTOR, cofounder of K&L
Effie Parks @OnceUponAGene
6K Followers 4K Following Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
John Maraganore 🇺�... @JMaraganore
16K Followers 420 Following Founding CEO of @Alnylam. Pioneered RNAi therapeutics as a whole new class of medicines for patients. Now bioentrepreneur-at-large. Opinions are my own.
Luke Rosen @lukebrosen
2K Followers 423 Following Dad of two remarkable kids. Founder of https://t.co/GkrwXhfkoy & https://t.co/eWtcezWeJc. Works with families affected by neurological diseases & cancer. Firefighter. Baseball & hockey.
AnnemiekeAartsma-Rus @oligogirl
3K Followers 456 Following Translating science from bench to bedside and from jargon to lay language
Mila's Miracle @stopbatten
832 Followers 346 Following Mila fought hard against Batten disease, a rare fatal condition with no cure. Her story is now giving new hope to millions with genetic disease.
Dr. Heather Mefford @... @hcmefford
3K Followers 893 Following Physician, scientist, mom, wife #genetics #epilepsy #pediatrics #raredisease @StJude @StJudeResearch formerly @UWMedicine
The Notorious EEG (M.... @TheNotoriousEEG
10K Followers 2K Following Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Ana Mingorance @CNSdrughunter
3K Followers 1K Following 🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others. @cnsdrughunter.bsky.social
Ionis @ionispharma
5K Followers 464 Following Delivering innovative medicines to patients where no others have proven effective or existed. See our community guidelines: https://t.co/HWH9JQRBR2
Fyodor Urnov @UrnovFyodor
16K Followers 505 Following Gene editor + Professor Molecular Therapeutics @berkeleyMCB + Director for Technology and Translation @igisci + @danahercorp Beacon for CRISPR Cures.
Joseph G. Gleeson @jogleeson_ucsd
2K Followers 147 Following #UCSD Neurogeneticist studying origins and treatments of pediatric brain disease. CMO of #NLorem, and Neuroscience Director at #RCIGM
Oligonucleotide Thera... @OTSociety
4K Followers 1K Following A nonprofit forum to foster academia and industry based research and development of oligonucleotide therapeutics.
Alok Tayi @aloktayi
3K Followers 749 Following Building a community to find & fund treatments for rare diseases w/ @VibeBio Also: @biotech2050pod
Tracy Dixon-Salazar @TracyDixonSalaz
3K Followers 934 Following Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation
Neena Nizar @NeenaNizar
2K Followers 2K Following Founder & Executive Director of The Jansen's Foundation. KOL,TEDx Speaker, Educator, Change Leader, https://t.co/Ty1g3WHftT Opinions are my own
Madeleine Oudin @MadeleineOudin
5K Followers 2K Following Associate Professor at Tufts University, cancer and epilepsy researcher, fierce advocate for diversity and inclusion, mom of a daughter with SCN8A epilepsy
EveryLife Foundation @EveryLifeOrg
7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
ShorterLab @ShorterLab
12K Followers 7K Following Countering deleterious phase transitions in ALS/FTD, PD, AD, and related disorders @Penn @PennMedicine @bb_upenn @BMBGGUPENN @PGGUPenn @PennNGG @CAMBUpenn
Mike Graglia 🌻 @JMGraglia
7K Followers 2K Following CEO @cureSYNGAP1 🧬 Pod https://t.co/9jkDkMg5R8 🎧 Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
Sam Christey @S_Christey
75 Followers 245 Following
Dr. Krishnaa Upadhye,... @KrishnaSUpadhye
94 Followers 219 Following Clinical Pharmacologist (PhD) | CRO Founder (Krescent) | Driving global Phase I–IV trials | Bridging science, strategy & patients | #ClinicalResearch
Liana Talia Escalona @EscalonaTalia
19 Followers 306 Following
KIF1A Japan @kif1a_japan
24 Followers 34 Following KIF1A（キフワンエー）関連神経疾患家族会 たこやきの会の公式Ｘです。疾患や研究の最新情報など発信します。 Welcome to the official X of KIF1A Japan.
NewMexicoRareDisease @NMRareDisease
14 Followers 199 Following 🦓 Digital source for New Mexico Rare Disease Community.
George Mann @georgemann_jav
28 Followers 72 Following C/O 2023 || Hoover High School Javelin Thrower || 60.55 Meter PB || 6’1 175 || GPA: 4.3 || ACT: 33 ||
Aniruddha @AkunteAniruddha
175 Followers 3K Following सर्वेऽत्र सुखिन: सन्तु सर्वे सन्तु निरामया: । सर्वे भद्राणि पश्यन्तु मा कश्चित् दु:खभाग् भवेत् ।।,
Nadine Lipworth @Saving_Sasha
2 Followers 78 Following Developing a world-first personalised (ASO) to save my daughter from a regressive genetic epilepsy, and to pave the way for other families facing rare diseases.
Dr. Aparna Kalbag, Ph... @Work4urhealth
131 Followers 799 Following Research Scientist Rutgers Institute for Health she/her RT≠endorse, tweets mine
Carl Mahnke @carlmahnke
119 Followers 260 Following Husband, father, sibling, learner, event planner, wine maker
Tyler @chalkinsurance
306 Followers 919 Following Husband, dad to three kiddos, one with RHOBTB2 - loves tech, golf, insurance, music, cooking, and comedians.
Patti Pena @PenaPatti
11 Followers 633 Following
James Stauffer @JamesStauf60312
5 Followers 37 Following
Wirgew @Wirgew2459360
30 Followers 1K Following
Stéphane HOUMEAU @StephaneHOUMEAU
210 Followers 291 Following #SSSM #teamréservesanitaire @EPRUS, Infirmier SPV, IADE, Cadre Sup Paramédical #pretapartir @sdis67 @chru-strasbourg
Yvrooxe @Yvrooxe803736
19 Followers 2K Following
Wan Hee Yoon @WanheeYoon
185 Followers 237 Following Exploring neurological diseases with a focus on mitochondrial roles in neurodevelopment. Associate Professor in the Aging & Metabolism Research Program @OMRF
Ethan Goldberg @Go3than
510 Followers 153 Following Pediatric neurologist; Neurogeneticist; Neurobiologist; Fantasy Baseball player; Amateur chess enthusiast; Dad.
Swathi Sukumar @sukumar_swathi
374 Followers 872 Following Incurable hugger, reminiscing the hugging days of the past. Postdoc @TheCourtneyLab working on influenza virus-host interaction @WWIEM_QUB✨🔬
tom @tomprevails
55 Followers 626 Following Boxing, muay thai and keeping fit, video games and movies.
Luke McAlary @LukeMcAlary
313 Followers 919 Following Researcher from Molecular Horizons and UOW trying to find out cause and cure for MND
Dormann lab @DormannL
2K Followers 564 Following We study the molecular mechanisms of neurodegenerative diseases, in particular how RNA-binding proteins become dysfunctional in ALS and FTD.
Nathan Moerke @NMoerke
462 Followers 4K Following Scientist interested in drug discovery, regenerative medicine, and techbio. Previously at @harvardmed, @Denalitx, and @STEMCELLTech. All opinions my own.
Olga Meiri ChaiM #Vac... @olgachaim
2K Followers 1K Following Cientista, Professora, Bioquímica & Farmacêutica. @UFPR #STEAM #VAX #MolPharmaco #Toxins #ScienceNotSilence #WomenInScience #PublicHealth #TyposOFF 🌊
Stevi Gabrielle @steversbeavers
11 Followers 106 Following
Edward Grow, PhD @ControllingLMNT
2K Followers 1K Following Geneticist, TE/ERVist, chromatin nerd, embryology fanboy, repro bio, opera/schnauzer/brunch connoisseur. 🏳️🌈46XY. FIRBee2016 Mizzou-Stanford-Utah, now: UTSW
Ivana Brooks @IBrooks25298
41 Followers 783 Following Looking for more than just a like? So am I. 😘 Let’s connect!
Virginia @kumar12251981
0 Followers 992 Following
roman (Ro) wojdak @romanwojdak
87 Followers 5K Following Brilliant;) | Graphic Design | Production Art | print, motion, web. Global news addict.
Albrecht-W. Klein @klein_albrecht
239 Followers 3K Following Ph.D. Theor. Chemistry/Theor. Physics Uni Göttingen Spectroscopy, Environmental Chemicals IUPAC, German Informatics Society, Study Group "Quantum Computing"
Phil Marquez @PhilMarquez1992
10 Followers 158 Following
Filomena Walter @FilomenaW25656
53 Followers 3K Following
LMBRD2 France @lmbrd2france
19 Followers 9 Following LMBRD2 France est une association à but non lucratif qui promeut recherche scientifique et à l’aide aux familles touchées par une maladie rare liée au #LMBRD2
Woowaf @Woowaf6904893
28 Followers 2K Following
Xauvee @Xauvee01711
24 Followers 2K Following
Chao Lin @memphistigers90
34 Followers 272 Following
Dr Mahroz Abid @mahrozabid
110 Followers 270 Following Doctor👨🏻⚕️& Researcher. Endocrinologist. working on diabetes & obesity in adolescents . Pak China friendship Embassador. 巴基斯坦人在河南洛阳。 内分泌科的医生. 中巴友谊万岁。
Eleanor @Awqiqee575517
17 Followers 658 Following Healing begins with empathy, care, and dedication.
Hawkar Kamaran @HawkarKamaran1
16 Followers 205 Following
Byron @Byronn4561
532 Followers 5K Following
Kristin Kantautas @wolfeofscience
80 Followers 186 Following
Shannon Mae ♥️ @shannmaee29
3 Followers 79 Following
Mari Miyamoto @marimiya_tky
2K Followers 3K Following General Manager APAC & Japan at Protein Metrics (Dotmatics). Amateur bird photographer. Comments here are my own. https://t.co/8tzcgxxf5M
Ethan Perlstein bio/a... @eperlste
19K Followers 2K Following ceo @PerlaraPBC (@ycombinator W16), ceo @epalrestat, ceo @endrarediseases $CURES, evo pharmacologist, mTOR worshipper $RAPTOR, cofounder of K&L
Effie Parks @OnceUponAGene
6K Followers 4K Following Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Brian Wallach @bsw5020
143K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe
John Maraganore 🇺�... @JMaraganore
16K Followers 420 Following Founding CEO of @Alnylam. Pioneered RNAi therapeutics as a whole new class of medicines for patients. Now bioentrepreneur-at-large. Opinions are my own.
Luke Rosen @lukebrosen
2K Followers 423 Following Dad of two remarkable kids. Founder of https://t.co/GkrwXhfkoy & https://t.co/eWtcezWeJc. Works with families affected by neurological diseases & cancer. Firefighter. Baseball & hockey.
Brad Loncar @bradloncar
78K Followers 367 Following #Biotech, Founder of @BiotechTV, KC native, @univmiami hurricane.🧬🙌
AnnemiekeAartsma-Rus @oligogirl
3K Followers 456 Following Translating science from bench to bedside and from jargon to lay language
Mila's Miracle @stopbatten
832 Followers 346 Following Mila fought hard against Batten disease, a rare fatal condition with no cure. Her story is now giving new hope to millions with genetic disease.
The Notorious EEG (M.... @TheNotoriousEEG
10K Followers 2K Following Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Ana Mingorance @CNSdrughunter
3K Followers 1K Following 🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others. @cnsdrughunter.bsky.social
Ionis @ionispharma
5K Followers 464 Following Delivering innovative medicines to patients where no others have proven effective or existed. See our community guidelines: https://t.co/HWH9JQRBR2
Fyodor Urnov @UrnovFyodor
16K Followers 505 Following Gene editor + Professor Molecular Therapeutics @berkeleyMCB + Director for Technology and Translation @igisci + @danahercorp Beacon for CRISPR Cures.
Eric Topol @EricTopol
679K Followers 607 Following physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP and Ground Truths: https://t.co/YhatcBT0hA
Joseph G. Gleeson @jogleeson_ucsd
2K Followers 147 Following #UCSD Neurogeneticist studying origins and treatments of pediatric brain disease. CMO of #NLorem, and Neuroscience Director at #RCIGM
Oligonucleotide Thera... @OTSociety
4K Followers 1K Following A nonprofit forum to foster academia and industry based research and development of oligonucleotide therapeutics.
Alok Tayi @aloktayi
3K Followers 749 Following Building a community to find & fund treatments for rare diseases w/ @VibeBio Also: @biotech2050pod
ASGCT @ASGCTherapy
10K Followers 2K Following Advancing knowledge, awareness, and education leading to the discovery and clinical application of genetic and cellular therapies to alleviate human disease.
Tracy Dixon-Salazar @TracyDixonSalaz
3K Followers 934 Following Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation
Neena Nizar @NeenaNizar
2K Followers 2K Following Founder & Executive Director of The Jansen's Foundation. KOL,TEDx Speaker, Educator, Change Leader, https://t.co/Ty1g3WHftT Opinions are my own
Madeleine Oudin @MadeleineOudin
5K Followers 2K Following Associate Professor at Tufts University, cancer and epilepsy researcher, fierce advocate for diversity and inclusion, mom of a daughter with SCN8A epilepsy
Charliesgeneticjourne... @Charlie_CGJ
1 Followers 3 Following
Tyler @chalkinsurance
306 Followers 919 Following Husband, dad to three kiddos, one with RHOBTB2 - loves tech, golf, insurance, music, cooking, and comedians.
Rady Children's Hospi... @radychildrens
9K Followers 3K Following Now part of Rady Children’s Health, Rady Children’s Hospital San Diego is one of the nation’s top pediatric health care systems.
FSHD Society @FSHDSociety
2K Followers 749 Following World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). Empowering patients, accelerating therapies. #CureFSHD
Million Podcasts @MillionPodcasts
2K Followers 2K Following Podcast Media Database Built for PR Pros. Tweets about Public Relation, Podcast Industry news, trends, insights, market research and Podcast Discovery.
Craig McIntosh, PhD @CraigMcIntosh21
90 Followers 165 Following
Kristn Click @KristnClick
925 Followers 167 Following
Andrew Wilkinson @awilkinson
334K Followers 4K Following Co-founder of Tiny w/ @_Sparling_. We own @Dribbble, @Serato, @Letterboxd, @AeroPress, and 35+ other wonderful companies. Author of Never Enough.
AdTherapiesCongress @AdTherapiesConf
2K Followers 1K Following Official account for Advanced Therapies Congress UK and USA. For more info: https://t.co/tmP5weGWcQ
UK Platform for Nucle... @UpNAT_node
94 Followers 240 Following Creating a national network of experts/stakeholders to facilitate & promote the development of Nucleic Acid Therapies for patients with rare diseases in the UK
Oxford-Harrington Rar... @OHRareDisease
1K Followers 901 Following Rare Disease Centre @UniofOxford in partnership with @HarringtonDI_UH @UHhospitals, accelerating cures for rare diseases
Francisco Bustos @frbustos
398 Followers 2K Following Stem Cell and Signalling researcher. Assistant Professor of Pediatrics and Rare Diseases | Sanford Research. Ubiquitin lover. Chilean 🇨🇱
Rare Disease Advisor @RareDisease_Adv
5K Followers 1K Following Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
Rare Diseases @CheckOrphan
18K Followers 5K Following CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
Uri Manor 💔 @manorlaboratory
16K Followers 9K Following Goeddel Family Technology Sandbox Director; Chair/Assistant Prof. Cell&Dev Biology, @CZI Imaging; Hard-of-hearing; Follows≠endorse; mitos/ML/cochlea/neurons
David Taylor @VPResearch_ALS
1K Followers 1K Following ALS Canada VP, Research. Passionate ALS research nerd since 2001. Science brain, advocate heart. Opinions are my own. he/him
@SusanaDuarte @SusanaDuarte121
18 Followers 172 Following
Barclays Investment B... @BarclaysCIB
54K Followers 80 Following Official account for Barclays Investment Bank. Follow us for the latest insights, news and more. For T&C https://t.co/m1wqtQwIba
Mayo Clinic Center fo... @MayoClinicCIM
6K Followers 1K Following The Center for Individualized Medicine integrates the latest in genomic science, precision medicine into clinical practice at @MayoClinic. RTs ≠ endorsements.
Nets Radio @BKNetsRadio
2K Followers 188 Following Official audio and info from @BrooklynNets radio with @ChrisCarrino and @TimCapstraw heard on WFAN (660AM/101.9FM) stream on the #Nets app or https://t.co/bRhcaMK8MB
Diaverum @DiaverumGlobal
5K Followers 2K Following Diaverum is a Swedish-born, multinational healthcare organisation that provides life-enhancing renal care to CKD patients.
ARRE Foundation @arrefoundation
157 Followers 202 Following Supporting research and education to improve the quality of life for those living with ASXL-related disorders #BohringOpitz #ShashiPena and #BainbridgeRopers
NicoleZJohnson @NicoleZJohnson1
252 Followers 265 Following Co-founder, Exec Director @foxg1research - on a mission to cure the rare disease daughter Josie has called FOXG1 syndrome. Lover of music.
Barby Ingle Official @BarbyIngle
25K Followers 25K Following #AZFirst Candidate House #LD7 / #MAHA / Wife of @KenRayTaylor / Business Owner / NP Board Mbr / #Iam #RareDisease #ChronicPain / #IAm
George M. Steinbrenne... @GMSField
8K Followers 238 Following Official Twitter page of George M. Steinbrenner Field - Spring home to the New York @Yankees, home to the @TampaTarpons and Tampa's premier special events venue
Thomas Wagner @thomas_wagner
2K Followers 4K Following Marketing at YouTube, APAC. Ex Head of Strategy at BBH. Rare disease parent, working to #endaxd. Views are my own.
YellowBrickRoadProjec... @YBRP4hnrnph2
209 Followers 76 Following YBRP is a non-profit organization whose mission is to positively impact the lives of individuals with HNRNPH2 genetic variations.
Jenny Harmon, MD, PhD @md_harmon
154 Followers 131 Following Peds neurogeneticist/scientist @wakehealth interested in mito DNA depletion syndromes. Mom to a neurotypical firecracker and an autistic 🦖 lover. Views=mine.
Portugal. The Man @portugaltheman
108K Followers 5K Following Almost as good as PANTERA 👇 Tour tickets available now! New album SHISH out Nov 7. pre-order now
SOLVE FSHD @SOLVEFSHD
270 Followers 2 Following We are catalyzing the pace of innovation to accelerate a cure for FSHD.
Academia Europaea @acad_euro
3K Followers 13 Following Academia Europaea, founded in 1988, is a European Academy of Humanities, Letters and Sciences with more than 5,500 members including 88 Nobel laureates.
Takeda @TakedaPharma
30K Followers 259 Following Official Twitter handle of Takeda Pharmaceutical | Better Health, Brighter Future. Read more: https://t.co/vS94jm6SBf
Michael Coleman @Lab_Coleman
2K Followers 763 Following Personal views on the state of the world and occasional bits of science, especially axon degeneration and research culture. Much more science at 🦋 @colemanlab
NATA - Nucleic Acid T... @NATA_MRC_UK
361 Followers 164 Following Advancing the development of nucleic acid therapies and associated technologies through high-quality science, collaborations and interdisciplinary research
Kaveh MD is on Bloosk... @thehouseofpod
18K Followers 2K Following Humor-adjacent podcast looking at health/news. Host- Kaveh: Large mammal & GI doctor. Putting the “fun” back in mfunedicine. Listen: https://t.co/uOaIPujH3O
Marcie Nelson @marcie_nelson
278 Followers 483 Following
AGBT Meeting @agbt
6K Followers 3K Following AGBT is considered the preeminent genome science and technology meeting for top global scientists, researchers and innovators. #AGBTGM
Rareminds @RaremindsUK
947 Followers 2K Following Specialised mental health and wellbeing services for the rare disease community. https://t.co/eVmeTw0aah…
SLC6A1 Connect @SLC6A1_Connect
460 Followers 200 Following SLC6A1 Connect is a non-profit dedicated to curing the rare neurological disease SLC6A1.
Amy Dockser Marcus @AmyDMarcus
6K Followers 6K Following Health and science reporter for The Wall Street Journal, author of We the Scientists (2023) @riverheadbooks
Tania Simoncelli @TaniaSimoncelli
514 Followers 551 Following
Gay Grossman @GayGrossman
321 Followers 203 Following Founder of Rare Disease support group https://t.co/NjxJbAU9RJ and continually building relationships in the Rare Disease community.
The CGD Association o... @CGDAofAmerica
182 Followers 557 Following The CGDAA is committed to advocating on behalf of patients and X-linked carriers by providing news and information about Chronic Granulomatous Disease.
NewYorkBIO @newyorkbio
1K Followers 292 FollowingTrends for United States
15,2 B posts
378 B posts
2.984 posts
1.806 posts
117 B posts
16,7 B posts
14,1 B posts
5.710 posts
444 B posts
87,1 B posts
78,1 B posts
9.898 posts
24,3 B posts
43,2 B posts
44,8 B posts
73,7 B posts
24 B posts
You might like
Joseph G. Gleeson
@jogleeson_ucsd
2K Followers
Ionis
@ionispharma
5K Followers
stxbp1
@curestxbp1
948 Followers
Oligonucleotide Thera...
@OTSociety
4K Followers
Mila's Miracle
@stopbatten
832 Followers
Rare Advocacy Movemen...
@RareAdvocacy
3K Followers
AnnemiekeAartsma-Rus
@oligogirl
3K Followers
KIF1A.ORG
@KIF1A
1K Followers
Simons Searchlight
@s_searchlight
2K Followers
FOXG1 Research
@Foxg1Research
903 Followers
Effie Parks
@OnceUponAGene
6K Followers