Ataxia UK @AtaxiaUK
Ataxia UK is the national charity for people affected by ataxia, a condition that affects balance, speech and co-ordination. About 10,500 in the UK have ataxia. ataxia.org.uk London Joined March 2009-
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Take on England’s finest countryside at your pace. With distance options from the epic 100km full loop to 50km, marathon, 29km, or 10km – there’s a Lake District Challenge for everyone! Contact us now [email protected] to sign up!
Join us for our next Mindfulness session with Lucy Holland on Friday 10th May from 13:00 to 14:00pm! Lucy will take you through a range of techniques such as body scans and meditation to help you manage everyday stresses with a calmer mind. Sign up here: ataxia.org.uk/latest-news/vi…
This is the last week to get involved in the Ataxia UK 2024 Spring Raffle and be in with the chance of winning one of several top prizes! Entry to the raffle starts at just £1 a ticket! You can still buy your tickets online at bit.ly/3I0Wbac #ataxiaUK #ataxia
On 16th April, Lexeo Therapeutics announced that they have been granted a fast-track designation by the FDA for their gene therapy called LX2006 for people with Friedreich’s ataxia (FA) cardiomyopathy. Read more about this on our website here: bit.ly/3UbMY3G.
The London 2 Brighton Ultra is back on May 25th & 26th! This is your chance to sign up to the ‘original ultra challenge’ taking on the capital-to-coast route with spectacular scenery. Contact us at [email protected] to find out more! AtaxiaUK
Massive congratulations to Steve Sturt for smashing Brighton Marathon earlier this month raising an amazing £815. 🏃♀️ What a fantastic achievement! Thank you Steve! 💪 Still time to support him here: justgiving.com/page/stephen-s… #ataxiaUK #ataxia
We are here for you! 💙 April is Stress Awareness Month, so we want to remind you that as Ataxia UK, we are here to support you. If you need information, advice, or support, please contact the Helpline by phone on 0800 995 6037 or by emailing [email protected].
Thank you to everyone who joined us in Cardiff last weekend for our first Roadshow event of the year! Book now to join us at our other Roadshow events in Belfast (20th June) and Edinburgh (22nd June) ataxia.org.uk/support-servic… #ataxiaUK #ataxia #Roadshow
Well done to Adele Gerry for taking on the Reading Half Marathon, the second of her races for #ataxiaUK. She is running in loving memory of her father, Mark, who lived with #ataxia after being diagnosed in his early 20s. You can support her here: justgiving.com/page/adele-ger…
Keep up to date with ataxia research, news from pharma updates to research project results on our website by visiting the 'Research News' section: bit.ly/3xDCJ0t. If you have any questions, email [email protected] with the subject line 'Research News Feedback'.
Ataxia UK accredited Specialist Ataxia Centres are centres of excellence, where adults & children with ataxia receive the best possible quality of care & a co-ordinated service combining diagnosis, treatment, support & research. For more information, see: bit.ly/3I0Wbac
The ballot for the 2025 TCS London Marathon is now open! Deadline: You have until Friday 26 April to enter. Enter now: bit.ly/3UbMY3G Ataxia UK will cover the cost of your application if you are successful! Marathon Day next year is Sunday 27 April 2025.
A huge shoutout goes to Karen Bristow for conquering the Scunthorpe Half Marathon last month. Running 13.1 miles is no easy feat, and she helped raise an amazing £170 for #AtaxiaUK in the process. Well done on your fantastic achievement and raising money for a great cause! 👏
Massive congratulations goes out to daughter and father duo, Kathryn and Kevin Dolan, as well as Hamish Smeaton for running the Manchester Marathon over the weekend. 🏃♀️ All three should be incredibly proud of themselves for their dedication and efforts! 🥇
The very best of luck to all the incredible runners taking part in the #LondonMarathon tomorrow! Your dedication and hard work is truly inspiring! You’re making a real impact to the lives of those living with #ataxia. Please support our team here: justgiving.com/campaign/londo…
Are you a thrill-seeker looking for adventure? Why not take part in a skydive for #ataxiaUK? Conquer your fears and make it a life-changing experience for both yourself and for the lives of those living with #ataxia. Contact [email protected] to find out more!
Good luck to Mark Holdsworth & his friends who are embarking on a massive cycle ride tomorrow in order to help raise vital funds for research into #ataxia. They'll be pedalling all the way from Ouistreham, France across to La Rochelle. That’s about 600kms! bit.ly/43XFJke
Researchers at King’s College London are recruiting participants for a remote study on online peer support for those living with long-term conditions. You'll complete two eligibility screenings. More info: bit.ly/4aRA1Tg #ataxiaUK #ataxia #Research
Mice treated once per day with SBT-589 showed significantly reduced thickening of the heart muscle (known as hypertrophy) and delayed mortality compared to mice not given SBT-589. Read more here: bit.ly/3W5PVoK #AtaxiaUK #Research #FA
Scott Forsyth kicked off his astounding year of fundraising by tackling the Paris Marathon last weekend! Such a fab feat, but what’s even more impressive is that’s just the beginning of a whole line-up of physical challenges he’s got coming up this year. justgiving.com/page/scott-for…
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Ataxia and Me CIO 118.. @Ataxia_and_Me
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797 Followers 689 Following Tweeting my journey to revisit all 272 tube stations, this time in my wheelchair while racing against my neurological condition #Ataxia 🏳️🌈♿️
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Last week of this awesome art sale and there's still dozens of pieces available. I bought a beautiful acrylic painting called The Watchful Guardian. Please check it out - for a great cause!
Our amazing ‘Through My Gaze’ online art exhibition is open until 31 March! Browse stunning pieces from talented artists, all while supporting a great cause. 🦸♀️ Visit the exhibition at ataxia.org.uk/throughmygaze/ to find your next masterpiece whilst making a difference.
📢. We’re excited to share that thanks to #NationalLottery players, we’ve awarded almost £252m funding to over 5,000 community groups in England. Find out more about these inspiring projects. ⬇️ ow.ly/n1cG50PklTO
I had a loverly chat with @AdeAdepitan today about wheelchair training. Learned so much about how to get about safely in a wheelchair. Literally learnt more in 5 mins with him than I have in the last 4 months. Hopefully training will come as standard for new users one day soon.
Go champ!! Such a fantastic achievement!!! 😍
The interviews and press interest has started to happen after the climb, hopefully as well as raising money for @AtaxiaUK we can go global with our awareness champaign to help all those with #ataxia get diagnosed faster and receive the help and support they need. #snowdon4ataxia
It took 16.5 hours and a support team of 5 but using my wheelchair, Veloped walking machine and adapted walking sticks I got to the top of Yr Wyddfa, Mount Snowdon. We are so close to reaching the fundraising target. Please consider a donation at snowdon4ataxia.com #ataxia
I might have found the worlds most #yellow wall.
I’m using my wheelchair and walking machine to climb Yr Wyddfa, Mount Snowdon TODAY! To raise funds for charity. Please watch and share my video. #snowdon4ataxia #wheelchair #trionic #veloped #ataxia @AtaxiaUK @TrionicVeloped
@TheAccessMap @altontowers @AtaxiaUK @dotscotregistry @AccessAbleUK @EuansGuide Fantastic. @JessMarlowxx
@TheAccessMap @altontowers @AtaxiaUK @dotscotregistry @AccessAbleUK @EuansGuide Fabulous giveaway
@TheAccessMap @altontowers @AtaxiaUK @dotscotregistry @AccessAbleUK @EuansGuide
@TheAccessMap @altontowers @AtaxiaUK @dotscotregistry @AccessAbleUK @EuansGuide Fabulous giveaway thank you
@TheAccessMap @altontowers @AtaxiaUK @dotscotregistry @AccessAbleUK @EuansGuide I Would Love To Win 🥰
It’s goodnight from me and good night from Woodford. 😜
Whenever someone uses @WelcoMe_CS the venue they are visiting instantly receives information and clips like this one from @AtaxiaUK helping them become #DisabilityConfident and deliver the very best in #CustomerService. #Tech4Good delivering #Access4All youtu.be/QEM3aCUnszU
Our lead Prof Giunti @giunti_paola : "I have been working with @AtaxiaUK for more than 20 years and during this time we have worked closely on many projects improving #treatment and #care of people with #ataxia, and advance the field of ataxia #research ." #RareDiseaseDay2023
On @rarediseaseday , why not listen to “1 in 0.0002% of the population, Dee Smith" on the All4Inclusion Pod buzzsprout.com/1939716/116486… @RareBeacon @RareDiseases #Nord @AtaxiaUK @RareDiseasesint @rarediseasemom @rarediseasefdn @DisabilityExpo_ @ShawTrust @AndyBurnhamGM
A very inspiring read. Hat of to Pheobe.
Here is a Friday read from Hannah, Pheobe's lovely mother! "We have found Ataxia UK really helpful as a source of information and advice especially attending the online conference." Read the entire blog here:bit.ly/3E9ihVC
I’m going to be on @BBCRadioLondon today at around 12:35 talking to Eddie Nestor about my Tube Challenge, Living with Ataxia and my plans to go up Mount Snowdon to raise money for @AtaxiaUK. #ataxia #RareDiseaseDay @BBCAccessAll
Taking a break from all the media interviews today to go out Tube Snapping with a mate.
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