RunningToFindACure @RunToFindaCure
My son Ollie has AHC (Alternating Hemiplegia of Childhood) which is a very rare neurological condition. I run to help raise awareness of this condition. ahcuk.co.uk Joined September 2010-
Tweets44
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Followers28
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Following17
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Likes29
I’m a Champion Cruncher! What type of Cruncher are you? Buy a pack to find out #CrunchyNutShazam
#MondayMotivation my son featured by @TheSun for the #GiveItBack campaign being run by @DCPcampaign thesun.co.uk/news/9186016/o…
Win an iPhone XS Max or 1 of 100 PowerLine+ II Cables! wn.nr/MbdNmq @Richard_Malec
Is it just me or not only have @CadburyUK creme eggs shrunk since I was a kid but the quality isn’t as good either!! Still taste great 👍
@ChrisMoyles you should have asked @tobytarrant to do a #ChooChoo while at @Pipskin’s panel thing 🤣🤣
Great to hear keynote speaker Joan M. Anzi speak about Burn out: impact on parents, patients and providers at the #Atp1A32018 dinner @WarwickAllerton Chicago #Atp1A3
At the #ATP1A32018 symposium held at Chicago for the weekend. Great to see the wall of voices of AHC warriors. Thanks to @AHCkids
Amazing Ollie & you make all the kids living with this medical condition so proud. Well done and certainly #1inamillion #WellChildAwards #harryandmeghan #Kensingtonroyal #ahcuk
Super proud of Ollie & his parents (Adrian & Vickey) to be present @WellChild #WellChildAwards & have the honour of being amongst @KensingtonRoyal #PrinceHarry #MeghanAndHarry - #1inamillion child & our Alternating Hemiplegia of Childhood (AHC) Hero
Super proud of Ollie & his parents (Adrian & Vickey) to be present @WellChild #WellChildAwards & have the honour of being amongst @KensingtonRoyal #PrinceHarry #MeghanAndHarry - #1inamillion child & our Alternating Hemiplegia of Childhood (AHC) Hero
#proud to be at #WellChildAwards with @WellChild Such fantastic people and children. As always I will be #runningtofindacure
Excited to be @WellChild #WellChildAwards and Ollie is having a great time. Managed to pick up a magic wand already 😃
Time to make this account more active. You can follow me on Facebook just look for @runningtofindacure #ahcsucks #runningtofindacure #charity #disabilities @SupportAHCUK
#StephenHawkingRIP "My advice to other disabled people would be, concentrate on things your disability doesn't prevent you doing well, and don't regret the things it interferes with. Don't be disabled in spirit as well as physically." A true inspiration to many with disabilities
@HelloB I have been trying to set up an account with you for a week and can never get hold of anyone. Are you still having problems??
@RadioX @tobytarrant you’re a little hit & miss for me but bet your great to have a pint with. As 4 #meantweets people just need to grow up
@RadioX #RadioX @ChrisMoyles I'll have a 'car' sticker :)
atp1a3 Research @atp1a3Research
45 Followers 297 Following Our research study is recruiting people who have ATP1A3 gene variants, including RDP, AHC and CAPOS. » Learn more: https://t.co/DQbJJdPfax
Ollie's Mission @olliesmission
97 Followers 204 Following About Ollie and Alternating Hemiplegia of Childhood *** Sobre Ollie y la Hemiplejia Alternante de la Infancia #oneinamillion #rarediseases #enfermedadesraras
Dr. Jodi Wolff @drjodiwolff
515 Followers 1K Following Disability & patient advocate. World traveler. Midwesterner transplanted to the Sonoran desert.
Jo Brown 🕷 @PsychDrJo
993 Followers 2K Following Forensic psychiatrist in Scotland. Interest in promoting psychiatry; mental health; medical education; life, the world and everything. All views my own
Gloria Moreno Pecero @glomope
24 Followers 121 Following
Miracle 4 Mandy @miracle4mandy
18 Followers 103 Following Making the world a better place, one card at a time, while searching for an AHC cure.
Sam Carlisle @samcarlisle
4K Followers 4K Following CEO @CauseCommsUK, comms expert, journo. 20 yrs as national newspaper exec. Daughter with learning disabilities teaches me everything. @iHV trustee @WiJ mentor
Steph @mspenneywga
58 Followers 117 Following teacher - IRT/reading specialist / book lover/ traveler/ adventurer/ opinions are my own ✌️![happy birthday amy, you should be here but you fucked it up,next time hopefully I’ll get to meet you but happy birthday have a good one. [fan account]](https://pbs.twimg.com/profile_images/1201890972633829377/Ljz6Gb-i.jpg)
αму [FAN ACCOUNT] @BWAYCARUSO
1K Followers 2K Following happy birthday amy, you should be here but you fucked it up,next time hopefully I’ll get to meet you but happy birthday have a good one. [fan account]
Gene M. Andrasco @gandr1
10 Followers 54 Following Dad, husband, finance professional, AHCF Treasurer and Board member
Bridget Vranckx @bridget_vranckx
32 Followers 81 Following
Katherine Walesby. @kewdoc
1K Followers 2K Following Medical/Geriatric Registrar Clinical Research Fellow @AlzScotDRC PhD candidate #dementia #epidemiology #bigdata #meded;Mum 2child with #raredisease;Views my own
Cure AHC @CureAHC
758 Followers 2K Following Alternating Hemiplegia of Childhood (AHC) is a complex, ultra-rare neurological disease. Cure AHC exists to drive research, support, and find a cure for AHC.
Mandy @AHCfightersMOM
2 Followers 19 Following
Erin's Foundation @erinfund
33 Followers 85 Following Supporting children with special educational needs that deserve every opportunity to excel and reach their full potential
Special Needs Jungle @SpcialNdsJungle
39K Followers 9K Following #SaveOurChildrensRights Parent volunteers writing about all things #SEND. Telling it like it is & how it should be since 2008 Independent strategic advocacy
Claire Parsons @rubyahc
15 Followers 75 Following
Alternating Hemiplegi... @SupportAHCUK
208 Followers 87 Following AHC is a rare medical condition that causes transient weakness of either or both, sides of the body & affects less than #1inaMillion | Reg UK Charity No 1192701
AHC Foundation @AHCkids
718 Followers 572 Following Our vision is to find the cause(s) and a cure for Alternating Hemiplegia of Childhood & provide support to AHC families #Raredisease #Spreadawareness
Disabled Parking @BlueBadgeOnly
338 Followers 1K Following We are simply hoping to make people think about what they are doing to try and make our society a kinder and more accepting one.
Quidco @quidco
46K Followers 6K Following 👉 The cashback earning site & app 📲 💻 👉 Start receiving money back when you shop online ⬇️ Join 10+ million others shopping at 4500+ online retailers ⬇️
Life of Reilly Blog @life_of_reillys
3K Followers 2K Following Reilly is 15 ,non verbal autistic with an honest mother. Book on the way. Children's book partnering with Newcastle College Graphic Design coming soon too.
Singing Hands MBE @singinghands
17K Followers 2K Following MBEs. Makaton YouTubers. Makaton Tutors & Patrons of The Makaton Charity. Authors. SEN Mums. Classes, concerts, training & award-winning CDs and DVDs.
WellChild @WellChild
20K Followers 8K Following WellChild is the national charity giving children and young people with serious illness the best chance to thrive - at home with their families.
Special Needs Jungle @SpcialNdsJungle
39K Followers 9K Following #SaveOurChildrensRights Parent volunteers writing about all things #SEND. Telling it like it is & how it should be since 2008 Independent strategic advocacy
Genetic Alliance UK @GeneticAll_UK
15K Followers 2K Following National charity working for everyone affected by genetic, rare and undiagnosed conditions. We run the campaign Rare Disease UK and support network @SWAN_UK.
Adapt & Live @AdaptAndLive
6K Followers 4K Following Practical solutions supporting disabled individuals @kidztoadultz @redbankhouse @bladderboweluk Donate: https://t.co/8oRstxmfqg
Global Genes @GlobalGenes
28K Followers 6K Following Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
RareConnect @RareConnect
18K Followers 5K Following 🌐Connecting #raredisease patients globally at https://t.co/v6rTTK0X6I. 💻Website help at @RareConnectSup.
MedicsforRareDisease @MedicsForRare
5K Followers 2K Following This account is no longer active, please continue to follow our work on Instagram and Bluesky! @medicsforrare
Rare Disease UK @rarediseaseuk
20K Followers 2K Following National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them. #RareDisease.
AHC Foundation @AHCkids
718 Followers 572 Following Our vision is to find the cause(s) and a cure for Alternating Hemiplegia of Childhood & provide support to AHC families #Raredisease #Spreadawareness
CureAHCUK @CureAHCUK
235 Followers 601 Following The aim: facilitate research aimed at treating and ultimately curing Alternating Hemiplegia of Childhood (AHC) THERE IS HOPE [email protected]
Cure AHC @CureAHC
758 Followers 2K Following Alternating Hemiplegia of Childhood (AHC) is a complex, ultra-rare neurological disease. Cure AHC exists to drive research, support, and find a cure for AHC.
AHC UK @ahsguk
65 Followers 31 Following An extremely rare condition that causes alternating temporary paralysis of one or both sides of the body, epilepsy, dystonia, learning disability and neurologic
Alternating Hemiplegi... @SupportAHCUK
208 Followers 87 Following AHC is a rare medical condition that causes transient weakness of either or both, sides of the body & affects less than #1inaMillion | Reg UK Charity No 1192701
Disabled Parking @BlueBadgeOnly
338 Followers 1K Following We are simply hoping to make people think about what they are doing to try and make our society a kinder and more accepting one.Trends for United States
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