SADS Foundation @SADSFoundation
The SADS (Sudden Arrhythmia Death Syndromes) Foundation saves lives and supports families of children and young adults who are predisposed to sudden death. stopSADS.org United States Joined February 2009-
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.@ebonkowski, Genetic Counselor & Research Program Coordinator, @StJudeResearch speaks about the importance of patient reported outcome in research at #RDDS #CareAboutRare @GlobalGenes
.@HughCalkinsMD presenting the new way to name #ARVC - by genetic variant at @HopkinsMedicine. #CardioEd #EPeeps
Dr. Andreas Barth of @JohnsHopkins gave @SADSFoundation a huge shout out for our “tremendous efforts in educating families about gene therapy”.
Sam Sears, PhD gave an incredible talk about facing anxiety with a #cardiomyopathy condition. #ARVC
Family Support Director Genevie met up in-person with several members of the SADS Foundation #ARVC Steering Committee!
Family Support Director Genevie spent this past weekend at the @JohnsHopkins #ARVC Conference in Baltimore! Here’s a few highlights ...
Have you thought about what kind of legacy you'll leave for future generations of your family? You can leave a legacy in two simple, free ways. Click here to learn more: freewill.com/sadsfoundation.
#140 SADS Live - Pregnancy x.com/i/broadcasts/1…
Join us today for SADS live! youtube.com/watch?v=LauKDY…
Join us today for SADS live! youtube.com/watch?v=LauKDY…
Join SADS & @heartuni_org for State of Genetic Testing for SCD-Predisposing Channelopathies and Cardiomyopathies with @MJAckermanMDPhD, Mayo Clinic & @PeterAzizMD, Cleveland Clinic. Register: sads.org/resources/heal….
Join us this Friday with @MJAckermanMDPhD and special guest Laura Otto, MS, CGC as we dive into the important topic of pregnancy with a SADS Condition and the benefits of pre-implantation genetic testing!
This is a great foundation that works tirelessly for patients with heat conditions of SADS (Sudden Arrythmia Death Syndromes). This organization is very dear to me as both my sons have Long QT1 syndrome that they take medicine for and exertion/exercise can trigger their…
This is a great foundation that works tirelessly for patients with heat conditions of SADS (Sudden Arrythmia Death Syndromes). This organization is very dear to me as both my sons have Long QT1 syndrome that they take medicine for and exertion/exercise can trigger their…
Help us help YOU- by donating so we can host our meeting to inform the FDA. This is a unique opportunity to participate remotely June 11th as we show why we need targeted treatments for Long QT and CPVT. Click HERE: sads.org/donate/support… to make a donation of any amount.
We're a proud sponsor of @SADSFoundation Gene Therapy in PKP2-ACM Clinical Trials webinar, a patient event shedding light on genetic disorders. #ARVC Register here: bit.ly/3JhXgu2
YOUR story can help advance new treatments for #LongQTSyndrome and #CPVT. Even if you can only attend part of the day, YOU are the key to this meeting’s success. Register and share your story at sads.org/research/get-i….
Nicole was diagnosed with #LQTS at birth. Today, she’s in her last semester of medical school – and hopes to help others with rare diseases and disabilities access the support and expert medical care she received as a child with a SADS condition. More: sads.org/blog-cat/nicol….
Join @HeiseToxFM of @CredibleMeds who will address your questions about specific supplements and interactions, if any, while living with #LQTS. Register at sads.org/what-now/livin….
CONGRATS 🎊🍾🎉🎈to @sarandanimani on WINNING 🥇 the #EHRA2024 Young Investigator Award for her work using our @MayoClinic @MayoClinicCV KCNH2 #gene #therapy to treat Prof Odening’s @OdeningLab rabbits w/ Short QT Syndrome 1. STRONG WORK 🤗👍💪
📆 Apr 25, 4:30 PM PT: Join Dr. Will Heise's webinar 'Drugs to Avoid with LQTS' on supplements, herbs, & more for LQTS patients. Q&A included. Info & registration 👉 sads.org/what-now/livin… #LongQT #SADSFoundation #LQTS
This makes perfect sense! This will be so helpful for healthcare professionals! Thanks @LGlaucomflecken! @SADSFoundation
This makes perfect sense! This will be so helpful for healthcare professionals! Thanks @LGlaucomflecken! @SADSFoundation
Michael J. Ackerman M.. @MJAckermanMDPhD
7K Followers 950 Following Mayo Clinic Genetic Cardiologist; Love taking care of families w/ #genetic #heart #diseases like #LQTS, #CPVT, & #HCM & researching their conditions.A/Prof Jodie Ingles @jodieingles27
8K Followers 3K Following Head, Clinical Genomics Lab | Program Director, Genomics & Inherited Disease @GarvanInstitute | Cardiac Genetic Counsellor | Swiftie | Opinions my ownJeffrey M Vinocur @jeffrey_vinocur
6K Followers 1K Following Pediatric/congenital electrophysiologist. Lapsed computer scientist. #ZeroFluoro. Views are my own, and not medical advice.Elijah Behr @BehrElijah
2K Followers 356 Following Professor of Cardiovascular Medicine, Consultant Cardiologist and Electrophysiologist researching sudden death, genetics and genomics.Shubhayan Sanatani @DrSanatani
877 Followers 200 Following Pediatric Cardiologist 🫀 and Electrophysiologist in Vancouver 🇨🇦 Husband, father, #runningshu, probably some other stuff. Views my own.Andrew Landstrom, MD,.. @APLandstrom
1K Followers 411 Following Pediatrician, cardiologist, scientist, giant nerd passionate about caring for children with heritable arrhythmias & cardiomyopathies. Tweets are my ownCirculation: Genomic .. @Circ_Gen
2K Followers 436 Following We seek studies in genomics and precision medicine with relevance to human CV biology. RT/follows do not imply endorsementLaura Yeates @LauraYeates1
1K Followers 534 Following Cardiac Genetic Counsellor @centenaryInst | Ex-officio of Australasian Society of Genetic Counsellors (ASGC) | PhD Candidate CPG @GarvanInstitute | @Sydney_UniLady Glaucomflecken (.. @LGlaucomflecken
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369 Followers 238 Following Physician | scientist | husband | father of two | genetic cardiologist @MayoClinic and @MayoClinicCV | tweets = my ownSudden Cardiac Arrest.. @SCAFoundation
4K Followers 262 Following Helping to raise awareness of sudden cardiac arrest--a leading cause of death worldwide--and prepare you to take action. You can save a life!Bradley Clark @Bradley_C_Clark
829 Followers 518 Following Pediatric electrophysiologist. Director of pediatric EP, Masonic Children's, Minneapolis.Parent Heart Watch @PHWorg
2K Followers 757 Following Parent Heart Watch is the national voice solely dedicated to protecting youth from Sudden Cardiac Arrest (SCA) and preventable Sudden Cardiac Death (SCD).Carol Ann Remme @CarolRemme
1K Followers 404 Following Assoc Prof Translational Cardiac EP @amsterdamUMC | @escardio Communications Comm, Council on Basic CV Science | Dep Editor @physiolrev | Dep Editor #EuropaceSara Cherny (she/her) @Sara_Cherny
989 Followers 809 Following Cardiovascular Genetic Counselor & Asst Prof at Lurie Children's. Chicago denizen. All tweets are my own. She/her. BLM. Love is love. Abortion is healthcare.Alice Lara @Alice_SADS
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154 Followers 137 Following Cardiologist, Electrophysiologist, Uppsala University Hospital, SwedenAlbert Danso Osei @albertdansoosei
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8K Followers 3K Following Head, Clinical Genomics Lab | Program Director, Genomics & Inherited Disease @GarvanInstitute | Cardiac Genetic Counsellor | Swiftie | Opinions my ownDr. Glaucomflecken @DGlaucomflecken
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6K Followers 1K Following Pediatric/congenital electrophysiologist. Lapsed computer scientist. #ZeroFluoro. Views are my own, and not medical advice.Elijah Behr @BehrElijah
2K Followers 356 Following Professor of Cardiovascular Medicine, Consultant Cardiologist and Electrophysiologist researching sudden death, genetics and genomics.Shubhayan Sanatani @DrSanatani
877 Followers 200 Following Pediatric Cardiologist 🫀 and Electrophysiologist in Vancouver 🇨🇦 Husband, father, #runningshu, probably some other stuff. Views my own.Andrew Landstrom, MD,.. @APLandstrom
1K Followers 411 Following Pediatrician, cardiologist, scientist, giant nerd passionate about caring for children with heritable arrhythmias & cardiomyopathies. Tweets are my ownRoderick Tung @DrRoderickTung
20K Followers 1K Following Professor of Medicine, Chief of Cardiology. Director, Banner Heart Institute & CVSL. Executive Producer @HeartRhythmTV. Question the status quo! 🌎🌏 🌍HeartRhythm @hrs_journal
19K Followers 31 Following Heart Rhythm, the official Journal of the HRS, CES, and PACES, is a unique journal for fundamental discovery & clinical applicability in electrophysiology.European Society of C.. @ESC_Journals
103K Followers 7K Following Official @ESC_journals account for the most successful family of CV journals. Articles FREE for 24h from time of post. European Society of Cardiology @escardioCirculation: Genomic .. @Circ_Gen
2K Followers 436 Following We seek studies in genomics and precision medicine with relevance to human CV biology. RT/follows do not imply endorsementLaura Yeates @LauraYeates1
1K Followers 534 Following Cardiac Genetic Counsellor @centenaryInst | Ex-officio of Australasian Society of Genetic Counsellors (ASGC) | PhD Candidate CPG @GarvanInstitute | @Sydney_UniLady Glaucomflecken (.. @LGlaucomflecken
70K Followers 672 Following Speaker. Podcaster. Writer. SCA lay responder. Co-survivor of cancer/SCA/med school/marriage to @DGlaucomflecken. https://t.co/6O5U57OkTgGenetic Counselors @GeneticCouns
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369 Followers 238 Following Physician | scientist | husband | father of two | genetic cardiologist @MayoClinic and @MayoClinicCV | tweets = my ownSudden Cardiac Arrest.. @SCAFoundation
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829 Followers 518 Following Pediatric electrophysiologist. Director of pediatric EP, Masonic Children's, Minneapolis.Parent Heart Watch @PHWorg
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260 Followers 420 Following Hope for People with Dilated Cardiomyopathy. If you need support, contact [email protected] or visit our website.Partnership to Advanc.. @advcardiohealth
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3 Followers 0 Following At LifeSure, we specialize in world class delivery of AEDs, from hospitals to home environments, and know how to work with various insurers and AED funding sourIn A Heartbeat @In_A_Heartbeat_
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31K Followers 303 Following Founded in 1950, Nicklaus Children's Hospital, formerly Miami Children's Hospital® is South Florida’s only licensed specialty hospital exclusively for children.Sahej Bains @sahejbains
300 Followers 247 Following MD-PhD Candidate @MayoClinic. Interested in #cardiology research. #PurdueAlumna #medtwitter #DoubleDocs #MayoMSTPLea @Lmsg74
41 Followers 622 Following MH therapist by trade. Activist in my own way. Therapy *is* political. SADS advocate: https://t.co/jsmpAweSvOAravind Asokan @arvndasokan
205 Followers 103 Following Synthetic Virologist, Prof, Biotech Founder.Ride4ARVC @Ride4ARVC
103 Followers 339 Following Riding across Canada 🇨🇦 for Arrhythmogenic Right Ventricular Cardiomyopathy #ARVC 🚴 Donate to @uhnfoundation https://t.co/WdwIdlOn7kWill Heise MD @HeiseToxFM
352 Followers 422 Following Medical Tox, Precision Medicine, Pharmacogenomics. Constant fascination of the intricacy and precision of the world. Travel with my family.Mott Children's MD @MottDocs
2K Followers 351 Following News and insights for physicians and clinical professionals from University of Michigan Health @mottchildren. Research, case studies and CME opportunities.Richard Ferraro @RichardAFerraro
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3K Followers 2K Following We deliver the healing power of play to children with medical needs through trained and dedicated volunteers.Danielle Belardo, MD @DBelardoMD
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14 Followers 25 Following Fighting and Saving Young Life. SADS-Taiwan: go go go!!!GenCOUNSEL @GenCOUNSEL_CA
1K Followers 3K Following GenCOUNSEL Project -Optimization of genetic counselling for clinical implementation of genome-wide sequencing. https://t.co/MZ9HqIUzavVanderbilt University.. @VUMCDiscoveries
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6 Followers 8 FollowingKyle W. Davis @kylewalterdavis
2K Followers 3K Following Full-time: genetic counselor @VUMCgenetics, husband, father. Part-time: fiction & science writer, basketball, tex-mex food. He/him; tweets = mineJohn Papagiannis @JohnPapagianni2
245 Followers 53 Following Dir. Peds EP, Childrens Mercy Hosp KC MO Training: St Louis CH, Duke Univ, Boston CH Interests: Ablation, adult and ped CHD, Genetic arrhythmiasHenry Han @HanCardiomd
14K Followers 888 Following Cardiologist MBBS, MD, FACC, FESC | Physician-Sci & Researcher MPH | #HeartFailure👨🏼⚕️| #HFA & #EACVI Committee @escardio | Content Catalyst in @TCTMDMASSIMILIANO GNECCHI,.. @MaxGnecchi
1K Followers 1K Following Associate Professor of Cardiology Director Translational Cardiology UNIPV 🇮🇹 - Visiting Prof UCT 🇿🇦 - Harvard & Duke former researcherThis is a great foundation that works tirelessly for patients with heat conditions of SADS (Sudden Arrythmia Death Syndromes). This organization is very dear to me as both my sons have Long QT1 syndrome that they take medicine for and exertion/exercise can trigger their…
Help us help YOU- by donating so we can host our meeting to inform the FDA. This is a unique opportunity to participate remotely June 11th as we show why we need targeted treatments for Long QT and CPVT. Click HERE: sads.org/donate/support… to make a donation of any amount.
LTSL EP 18 - Brugada Syndrome: Understanding it's History, Genetics, and Current Management x.com/i/broadcasts/1…
CONGRATS 🎊🍾🎉🎈to @sarandanimani on WINNING 🥇 the #EHRA2024 Young Investigator Award for her work using our @MayoClinic @MayoClinicCV KCNH2 #gene #therapy to treat Prof Odening’s @OdeningLab rabbits w/ Short QT Syndrome 1. STRONG WORK 🤗👍💪
Children's Heartbeat - Session 40 youtu.be/LimuIAXURcc?si… via @YouTube
Thank U @kwanleemd & the #Cardiology fellows on our @MayoClinic @MayoClinicCV campus in #Arizona for a wonderful dinner last night & an engaging Grand Rounds this morning. I loved sharing the past, present & future as it related to #athletes w/ #genetic #heart #diseases!
A scarey abd amazing story and journey you have been on Andy. SADS and CRY do phenomenal work. ✨️
“I treat February 22, the day my heart once hit 444 beats per minute, as my second, unofficial birthday. It’s crazy to think that I survived - but I also now think of it as the first day of my new life.” Learn more about Andy's #ARVC story at sads.org/blog/andys-arv….
Thanks to @SADSFoundation for this 🩵
“I treat February 22, the day my heart once hit 444 beats per minute, as my second, unofficial birthday. It’s crazy to think that I survived - but I also now think of it as the first day of my new life.” Learn more about Andy's #ARVC story at sads.org/blog/andys-arv….
@andydxblad @SADSFoundation Glad they found answers & happy to see you’re recovering with no new episodes! All the best to you & that ticker of yours, Andy!
@Jamiehop27 @SADSFoundation Appreciate it! Yep been going strong for a few months now, let’s hope it continues 🙏. All the best to you too!
@andydxblad @SADSFoundation Quite glad to see you're doing well!
@jblu79 @SADSFoundation Appreciate it, doing well thanks!
@andydxblad @SADSFoundation Wow. That’s incredible, 444. Good luck Andy
@20Kr93 @SADSFoundation Thank you! Quite proud of the 444 personal best 😀
@Turban_Spaceman @SADSFoundation Thanks mate! Onwards and upwards
@andydxblad @SADSFoundation Quite a story there Andy - Hope it all works out mate! 💪
Love seeing @MJAckermanMDPhD available to #Arizona #LQTS patients
So excited! About to see my first patient down here @MayoClinic @MayoClinicCV in #Phoenix/#Scottsdale. Here for next 3 weeks to advance our mission to bring #hope & #healing to families here, there, everywhere w/ #genetic #heart #diseases like #LQTS.
To celebrate the creation of our new SADS Foundation Instagram page, we’re holding a giveaway! Enter to win a FREE bag full of exciting SADS Foundation merch! Head to instagram.com/thesadsfoundat… to learn more.
This 👇 ...
Share to spread awareness! Brugada Syndrome is a rare cardiac condition that affects less than 0.02% of the population in the West. For more information about #Brugada, including educational brochures, drugs to avoid, and our support groups, visit sads.org/sads-condition….
@SADSFoundation Nice to see him living his best self. I wasn't quite so lucky but a great story, thank you for sharing. 🫶