🎉 Thank you Canada! Your generosity has raised $175,000 for #scleroderma research, education and awareness. Help us keep the momentum going! sclerodermawalkrun.ca#sclerodermaAwarenessMonth
From diagnosis to living with scleroderma in day-to-day life, there have likely been a lot of changes. Watch our May webinar to hear from Dr. Maureen Mayes about how scleroderma symptoms evolve over the first five years. buff.ly/2SCN9WF
A new stem cell transplant that's commonly known to treat cancer is improving the quality and quantity of life for those with scleroderma. wndu.com/content/news/N…
"Even though I am happy and excited, I do feel pain today. I felt it all day yesterday." Katie Kinison opens up about her daily battle with #scleroderma on @syttd. Learn more here: ow.ly/iLxh50yszCC
Building resilience helps those living with a chronic illness take steps toward accepting their illness, being more mindful and learning to live a life filled with a positive attitude. Research shows that a positive attitude can favorably effect the immune system.
Join the search for a possible SCLERODERMA THERAPY. If you are a patient or know a patient with diffuse SSc, call 203-737-5571 or email [email protected]
Rep. Peter T. King & Sen. Kirsten Gillibrand introduced identical bills titled the "National Commission on Scleroderma & Fibrotic Diseases Act of 2019. Reach out to your own representative and let them know that this legislation matters to you. bit.ly/30rqbnZ
To support the Michigan Chapter’s advocacy efforts, Michael Bessert, Cynthia Peppers, and David Murad met with Senator Peters to discuss scleroderma and its many effects.
Wow! Successful trip to Capitol Hill! We got to talk directly with Senator Portman today and meet with many other Congressional aides yesterday. In addition, Senator Portman's Legislative Director lined up a tour of the Capitol building for us today.
Pics from 2018 National Conference in Philly! It was fantastic and we brought home an award - our Board President, Debbie Metz, was awarded the Chapter Volunteer of the Year!
Haley is 16, learning how to drive and will be a junior this fall. A spot on her chin unrelated to a tooth issue until earlier this year, led recently to a diagnosis of scleroderma. Now Haley and her family learning about #scleroderma together. Read more: scleroderma.org/site/DocServer…
We’re at the @scleroderma conference being wowed by one story after another! Visit booth #100 to share how you are #MorethanScleroderma, and hear the stories of others living with #scleroderma here: bit.ly/2HExuyv
Just arrived in Philly for the @scleroderma National Patient Education Conference! It’s my first time here. Looking forward to connecting with like-minded folks! #scleroderma
226 Followers 102 FollowingThe official journal of the Portuguese Society of Rheumatology (@SPReumatologia). Indexed in PubMed. Free submission and free access to all articles.
220 Followers 622 FollowingIPCWell and Dr. Buffy is devoted to mitigating infectious diseases in long-term care and supporting the heroic and dedicated staff!
26 Followers 24 FollowingDid you know that Kids Get Scleroderma, Too!? Learn more and be sure to check out our coloring book at 👇 #sclerodermakids #kidsgetsclerodermatoo
76 Followers 94 FollowingScleroderma Australia has been incorporated since 2005 to facilitate a national representative voice in supporting our scleroderma community across Australia.
23 Followers 145 FollowingAuthor of A life with Uncertainty 📚
BSci Psychology 🎓
Scleroderma Survivor 🌻
Interstitial Lung Disease Warrior 🦋
Follow my journey
483 Followers 2K Following27 ans d'ind. pharma, 25 d'assoc (fin de vie, sos inceste)
psy pour toujours, #scléroderm à l'occasion
je suis née, je vis....et je mourrai...what else?
128 Followers 326 FollowingSpreading awareness about scleroderma, lupus & other autoimmune diseases, by acquiring affordable treatment and medication for affected persons.
6K Followers 7K FollowingTrump supporter and Drain the swamp supporter. .#MAGA #KAG 🇺🇸🇺🇸🇺🇸🇺🇸Registered Nurse. President Trump is the best President in history!
471 Followers 995 FollowingYes that’s Me, Father of 5, Husband, Construction Manager, IBEW ⚡️member, 🇺🇸 Patriot who had his suspicions confirmed…Q, BTC, Father was disabled by flu 💉
121 Followers 110 FollowingBringing together expertise, compassion, and innovation to empower individuals affected by scleroderma. Research: https://t.co/u0axsBXKyf
7 Followers 110 FollowingLoved being the Innkeeper of The Glen House Inn B&B. Now I'm a banjo playing, Wolfoodle romping, Mom and Systemic Sclerosis/Scleroderma/Cancer battling lady
2K Followers 2K FollowingWe are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma.
#scleroderma #autoimmunedisease
34 Followers 49 FollowingSELL | BUY | INVEST Visit us on Facebook at https://t.co/AFzcMFs1YQ…, or at our primary site https://t.co/E7JPAOiJJ7 for details.
235 Followers 1K FollowingWyatt is a 10 yr old who was diagnosed at the age of eight with a rare autoimmune disease Scleroderma. Wyatt does weekly chemotherapy and 10 pills daily.
100 Followers 296 FollowingForbius is a clinical stage protein engineering company that designs, develops & commercializes biotherapeutics for the treatment of cancer & fibrotic diseases.
239 Followers 685 FollowingRheumatologist @ Columbia Asia Hospital & Trust Rheumatology Arthritis &Cardiology Clinic, Bangalore. Love Indian(Carnatic) Classical music & Kannada literature
34 Followers 49 FollowingSELL | BUY | INVEST Visit us on Facebook at https://t.co/AFzcMFs1YQ…, or at our primary site https://t.co/E7JPAOiJJ7 for details.
3K Followers 2K FollowingScleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.
496 Followers 505 FollowingDiagnosed with diffuse Scleroderma in 2011. Since then I've also developed Raynaud's, Interstitial Lung Disease, and Acid Reflux. And I'm alive and well.
1K Followers 218 FollowingScleroderma is an autoimmune disease with no known cause or cure. Our chapter is dedicated to changing that, and we hope to help our patients along the way.
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