SRFCure @srfcure
America’s leading nonprofit investor in medical research aimed at finding better treatments and, ultimately, a cure for #scleroderma. srfcure.org San Francisco, CA Joined April 2011-
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Register now for "Collaborating for a Cure," the SRF Patient Forum, on 6/3! This is a virtual event that anyone can attend for free by registering in advance. Kick-off #sclerodermaAwarenessMonth with us & learn more about #scleroderma. Register today: bit.ly/49YI5Rs
This #NationalVolunteerWeek, we're sending a heartfelt shoutout to the amazing Cure Crew of the Scleroderma Research Foundation! 🙌 Here are just a few of the creative Cure Crew members who raise awareness of #scleroderma and funds to find a cure. Thank you to ALL members!
#ThrowbackThursday to when Tracy Frech, MD, MSCI hosted “Understanding Scleroderma Vascular Biology” for the SRF patient forum: youtu.be/yTXg53ZQ0IY Interested in new sessions like this one? Save the date for the 2024 Patient Forum on 6/3! It’s free & virtual—more info soon.
Not enough people know what scleroderma is and does. Even though it's very rare, everyone should know what to watch for as the first signs of scleroderma—including swollen or pufy fingers, joint pain, weight loss, cold sensitivity, & more. Learn more: bit.ly/45gjUw4
Share your #scleroderma life hacks on video! ✨ Create a short video and send it in. We'll feature as many as we can in our upcoming Patient Forum, "Collaborating for a Cure," and may even share some here on social media. Learn More: bit.ly/3VqxxH2
Earlier this month, the Scleroderma Research Foundation hosted an international group of investigators to learn more about CONQUEST, our groundbreaking platform clinical trial, at the Systemic World Congress Meeting in Prague. Thank you all for gathering with us!
This past January, Carl Mayer hosted a special version of his #15dollargameshow on Instagram Live in memory of his long-time friend, Bob Saget—raising more than $3,100 for scleroderma research! Thank you SO MUCH from all of us.
SRF-funded researcher Dr. Howard Chang shares a breakthrough discovery he & his collaborators made, shedding light on why women are more likely than men to develop autoimmune diseases like #scleroderma, in this recent piece from Fox News.
Research is at the center of all we do to find a cure for #scleroderma. This is why here at the SRF we launched CONQUER (COllaborative, National QUality and Efficacy Registry), a first-of-its-kind registry of #scleroderma patients. Learn more: bit.ly/3TDmzwu
Let's talk about how #scleroderma can mobility. The increased production of collagen associated with scleroderma can cause vascular dysfunction. This can contribute to stiffness, warmth, tenderness, & pain in the joints and muscles. Learn more: bit.ly/3u5AlOE
It's the rarest day of the year: #RareDiseaseDay! Join us and raise awareness of rare diseases like #scleroderma as part of this global effort today. 📣 Looking for facts to share about scleroderma? Check out bit.ly/srf-resources today. Thank you!
Nearly 90% of those with scleroderma have Raynaud’s phenomenon. This is why Raynaud's can be a “red flag” that helps lead to diagnosis & treatment of #scleroderma. This was true for Aneila, dx 2021. “Raynaud’s was actually my first symptom,” she said. #RaynaudsAwarenessMonth
It's #RaynaudsAwarenessMonth! Raynaud’s phenomenon is a common condition & most people with Raynaud’s will not develop scleroderma. But, worldwide nearly 90% of those with scleroderma DO have Raynaud’s. @WeAreSRUK & @srfcure are working together to raise awareness—join us!
The rarest day of the year is coming up—February 29th is both a #LeapDay and this year's #RareDiseaseDay! Help us raise awareness in the coming days of rare diseases, like #scleroderma—one of over 6,000+ diseases identified as rare.
Coming up this Tuesday! There's still time to register for this webinar presented by Dr. Howard Chang of Stanford University. Sign up now: bit.ly/3ueOsRO
Coming up this Tuesday! There's still time to register for this webinar presented by Dr. Howard Chang of Stanford University. Sign up now: bit.ly/3ueOsRO
Dr. Elana J. Bernstein, of Columbia University Irving Medical Center, breaks down exactly how #Raynauds phenomenon works. #RaynaudsAwarenessMonth Watch the full talk from Dr. Bernstein from the 2023 SRF Patient Forum: bit.ly/4bB5IS7
Research News Alert: @HowardYChang's new study in @CellCellPress on the role of XIST in female-biased autoimmunity, primarily funded by @srfcure, possibly answers why women are more likely than men to develop an autoimmune disorder. Learn more: nyti.ms/3SNz2gP
The @srfcure was the lead funder of this breakthrough project—a collaboration among a number of SRF-funded researchers and additional research team members.
The @srfcure was the lead funder of this breakthrough project—a collaboration among a number of SRF-funded researchers and additional research team members.
Calling on all #scleroderma advocates! February marks not just #RareDiseaseAwarenessMonth but also #RaynaudsAwarenessMonth. 📣 Together, let's raise awareness about Raynaud's phenomenon & its impact on those with scleroderma. More info about Raynaud's: bit.ly/srf-resources
February is #RareDiseaseAwarenessMonth—an opportunity for us to raise awareness about what it means to live with a rare disease like #scleroderma. To kick things off, Dee (dx 2012) shares her journey with this disease. Produced by Project Scleroderma, in collab with the SRF.
National Scleroderma .. @scleroderma
7K Followers 2K Following A relentless force improving the lives of people affected by scleroderma through support, education, & research. Together, we can overcome #scleroderma forever.
Scleroderma Canada @SclerodermaCAN
3K Followers 2K Following Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.
Raynaud's Assn. @raynaudsorg
4K Followers 595 Following The Raynaud's Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud's Phenomenon.
Kelly Rizzo @EatTravelRock
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SRUK | Scleroderma & .. @WeAreSRUK
5K Followers 1K Following Scleroderma & Raynaud’s UK is the only charity dedicated to improving the lives of people affected by scleroderma and Raynaud’s.
Scleroderma Society o.. @scleroderma_sso
2K Followers 2K Following We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease
Scleroderma India @ScleroIndia
485 Followers 293 Following A Charitable Trust and Patient Support Group
National Scleroderma .. @SclerodermaTS
810 Followers 189 Following We strive to raise awareness, support #scleroderma patients and raise funds for a #cure. https://t.co/VclqavsAxC
SPIN - Scleroderma @spinsclero
749 Followers 115 Following The Scleroderma Patient-centered Intervention Network (SPIN): patients, researchers, & healthcare providers, working to develop support programs for scleroderma
Autoimmune List @AutoimmuneList
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ERN ReCONNET 🇪🇺 @ern_reconnet
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American College of R.. @ACRheum
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The Journal of Rheuma.. @jrheum
10K Followers 258 Following The Journal of Rheumatology features peer-reviewed research articles on clinical subjects from scientists working in #rheumatology and related fields.
National Scleroderma .. @SclerodermaCO
874 Followers 131 Following The National Scleroderma Foundation was founded to advance medical research, promote disease awareness, and provide support to people with scleroderma.
Rare Disease Day @rarediseaseday
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Sindhu Johnson MD PhD @SindhuJohnson5
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Scleroderma Awareness.. @SclerodermaKC
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RARE Revolution Magaz.. @RareRevolutionM
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SABC Research Program @SABCResearch
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Claire Beesley @cf_beesley
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qhrcakdk2fe7 @kwiy98hi8crv8v
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Dhyann NewVentureWeb... @CrochetDiva66
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National Scleroderma .. @scleroderma
7K Followers 2K Following A relentless force improving the lives of people affected by scleroderma through support, education, & research. Together, we can overcome #scleroderma forever.
Scleroderma Canada @SclerodermaCAN
3K Followers 2K Following Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.
Dr. John Cush @RheumNow
22K Followers 481 Following Know-it-Now. Info on RA, Stills disease, Lupus, Gout, Pregnancy, Spondylitis, Psoriasis, Drug Safety, Rheumatology Research, Medical Education & Drug Evaluation
Raynaud's Assn. @raynaudsorg
4K Followers 595 Following The Raynaud's Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud's Phenomenon.
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16K Followers 1K Following Comfort Food With Kelly Rizzo Podcast out now! 🎙️ Blonde Sicilian LA/Chicago gal- lover of tattoos & The Simpsons.
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3K Followers 92 Following 👉University of Michigan Scleroderma Program leading the way through excellence in clinical care, teaching, & research #scleroderma tweets≠advice Follow≠endorse
SRUK | Scleroderma & .. @WeAreSRUK
5K Followers 1K Following Scleroderma & Raynaud’s UK is the only charity dedicated to improving the lives of people affected by scleroderma and Raynaud’s.
Scleroderma Society o.. @scleroderma_sso
2K Followers 2K Following We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease
Alfred Kim @alhkim
5K Followers 4K Following Founder/Director @WUSTL_Lupus @WUSTLMed | Assoc Program Director @WUSTL_Rheum | Chief Medical Officer @KyphaInc | Complement, Lupus, & @COVaRiPAD | #HCQbrigade
Scleroderma India @ScleroIndia
485 Followers 293 Following A Charitable Trust and Patient Support Group
National Scleroderma .. @SclerodermaTS
810 Followers 189 Following We strive to raise awareness, support #scleroderma patients and raise funds for a #cure. https://t.co/VclqavsAxC
SPIN - Scleroderma @spinsclero
749 Followers 115 Following The Scleroderma Patient-centered Intervention Network (SPIN): patients, researchers, & healthcare providers, working to develop support programs for scleroderma
Autoimmune List @AutoimmuneList
9K Followers 4K Following #Autoimmune diseases: information and worldwide medical news updates. https://t.co/zp6PHneZxj
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American College of R.. @ACRheum
34K Followers 4K Following Global medical society providing education, research, advocacy, and practice management support to over 9,100 rheumatology professionals since 1934.
EURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
The Journal of Rheuma.. @jrheum
10K Followers 258 Following The Journal of Rheumatology features peer-reviewed research articles on clinical subjects from scientists working in #rheumatology and related fields.
National Scleroderma .. @SclerodermaCO
874 Followers 131 Following The National Scleroderma Foundation was founded to advance medical research, promote disease awareness, and provide support to people with scleroderma.
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Nature Communications @NatureComms
238K Followers 522 Following Nature Communications is an open access journal publishing high-quality research in all areas of the biological, physical, chemical and Earth sciences.
Kyverna Therapeutics @Kyverna_Tx
137 Followers 147 Following We are committed to change the paradigm in the treatment of autoimmune diseases.
The Lancet Rheumatolo.. @TheLancetRheum
13K Followers 269 Following The #LancetRheumatology is a clinical #rheumatology journal publishing innovative & practice-changing research & opinion across all #rheumatic & #MSK disorders
ACR_Journals @ACR_Journals
11K Followers 38 Following Official journals of the ACR: Arthritis & Rheumatology, Arthritis Care & Research, and ACR Open Rheumatology. SoMe Editor: Karen Costenbader, MD, MPH
Caitlin McHugh Stamos @howcanihelppod
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Stanford Rheumatology @StanfordRheum
788 Followers 462 Following The Division of Immunology and Rheumatology in the @StanfordDeptMed at the @StanfordMed; Advancing rheumatology care and research
FOREO @FOREO
11K Followers 1K Following At-home self-care solutions inspired by science, nature and technology Proudly Swedish 🇸🇪
Bob Newhart @BobNewhart
225K Followers 69 Following Official Twitter Page for Bob Newhart - comedian / actor / all around nice guy Also on Facebook http://t.co/aRL8i5ZeCG
SclerodermaAustralia @ScleroAus
63 Followers 99 Following Scleroderma Australia has been incorporated since 2005 to facilitate a national representative voice in supporting our scleroderma community across Australia.
SclerodermaBC @sclerodermabc
95 Followers 57 Following Hard word. Harder Disease. Scleroderma Association of BC
Mgprior @mgprior
8 Followers 46 Following
BrowneMusser @BrowneMusser
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Mike Binder @MikeBinderjokes
10K Followers 1K Following Stand up comic. Writer. Director. Please follow and Sign up for my newsletter for Standup clips, insiders info on the business and world of Stand-up, 👇👇👇
World Scleroderma Fou.. @Worldsclerofnd
2K Followers 344 Following The World Scleroderma Foundation is a non-profit, non-governmental foundation based in Switzerland, promoting scleroderma research and supporting patients.
Mithu Maheswaranathan.. @MithuRheum
7K Followers 904 Following Rheumatologist at Duke 🧑🏽💻💉🏥 | Creator of Rheum OnePagers | Infographics • Lupus • Health Literacy | Tweets are my own.
Rheum OnePagers @RheumOnePagers
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Global Scleroderma In.. @globalsclero
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Deann Wright @DeannKWright
159 Followers 309 Following Board Member Scleroderma Research Foundation @srfcure #medicalresearch #raredisease 🧬⚖️ 🐕🐶
Norman Lear @TheNormanLear
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724K Followers 321 Following Kindness, decency, humanity, empathy, curiosity and the desire to laugh just a little bit - let’s try for those and see if we make the world a little better
Jake Tapper @jaketapper
3.1M Followers 11K Following Dad; husband; anchor of @TheLeadCNN & @CNNSOTU; author of The Outpost, The Hellfire Club, The Devil May Dance, and All the Demons Are Here
Artie Lange @artiequitter
399K Followers 690 Following Tour, podcast, contact and more at https://t.co/zoyVUnODRC
EUSTAR @EUSTAR_org
1K Followers 152 Following European Scleroderma Trials and Research group - aims to foster the awareness, understanding and research of scleroderma and its management throughout Europe
U.S. FDA @US_FDA
563K Followers 145 Following Our posts are FDA Approved! Privacy Policy - https://t.co/LbTJXYRXVP FDA Authentic Accounts - https://t.co/w2LNbzG7M0
Boehringer Ingelheim @BoehringerCA
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Mass General Research.. @MGH_RI
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851 Followers 481 Following Assistant Professor @USC |Parker Bridge Fellow | Postdoc @Stanford | PhD @UCSD | Immunogenomics + immunoengineering
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Matthew Slater @mslateresq
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Scleroderma Manitoba @MBScleroderma
237 Followers 122 Following Helping the scleroderma community in Manitoba connect through awareness, education, patient support and fundraising to support research. #youarenotalone
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791 Followers 3K Following •• 🇨🇦 •• 🌊 •• progressive •• 🖼️ •• artist •• 🕶️ •• autistic •• 🔥 •• outsider •• 🇺🇸 •• she/her •• 🙋♀️ •• BLM •• 🖤 •• 🏳️🌈 •• ally •
Jeffrey Gevirtz @jgevirtz
69 Followers 77 Following
Rex Chapman🏇🏼 @RexChapman
1.2M Followers 32K Following It’s Hard For Me to Live With Me is available now - for business please contact [email protected] - for media requests: [email protected]
Jemele Hill @jemelehill
1.4M Followers 3K Following Contributing writer for The ATLANTIC. Born and raised in Detroit. Grew up at Michigan State. MY MEMOIR UPHILL IS ON SALE NOW. LINK BELOW.
Lea Thompson @LeaKThompson
223K Followers 1K Following Thanks 🇺🇸🏳️🌈Actress #BackToTheFuture etc. Director #theYearOfSpectacularMen etc. Proud mom of Maddie and Zoey Deutch Cahttp://cameo.com/leathompsoniSULWe are excited to announce Dr. Murray Baron (@LadyDavisJGH) as a confirmed speaker for our 2024 National Scleroderma Conference in #StJohnsNL! You won't want to miss his panel & research update. Interested in hearing him speak? Register today 👉 sclerodermaconference.ca
Thanks @Boehringer for the opportunity to discuss how we can improve the quality of the conversation between patients & physicians so we become proactive partners @iaiaraia @sclerodermaUM @profchrisdenton @
🤝 Today's #8thWorldSclerosisCongress features the Boehringer Ingelheim Round Table, an essential discussion on Improving Communication between Physicians and Patients with SSc.@Boehringer
In this study, Drs. Dinesh Khanna @sclerodermaUM, Johann Gudjonsson, and John Varga focus on Hippo signaling pathway as a critical link between #fibrosis, vascular dysfunction, and sex bias in systemic sclerosis. Check it out! michiganmedicine.org/health-lab/hip…
@sclerodermaUM @delgaldoFrances Dr D.Khanna and Prof F.Del Galdo presented amazing comprehensive review about novel drug development 🎯and keratinocyte role in SSc! ❤️🔥
Delighted to be honored by the King Faisal Prize. I am deeply grateful for all my mentors, collaborators, supporters, and especially lab members former and present. tinyurl.com/yssd6u8b
prnewswire.com/news-releases/… Excited to launch the CONQUEST @srfcure @TobyMMaher @UMIntMed
Honored to have met you. I’m sure you’re making Bob laugh in heaven. ❤️🙏
#Venture capitalist Luke Evnin encouraging drugmakers to tackle rare autoimmune condition #scleroderma Conquest enables companies to compare their drugs to common control group, reducing # of patients on placebo & ⬇️ cost of study @srfcure @SanofiUS @WSJ wsj.com/articles/ventu…
We are pleased to announce @US_FDA clearance of an Investigational New Drug application for KYV-101 for the treatment of #scleroderma. This news marks the third IND clearance for our novel, fully human CD19 CAR T-cell therapy. Learn more: prn.to/3Q8jFhv
Thank you, for the tour of a lifetime. We love you! #BansheeSeasonTour 📸: Ehud Lazin
There is still time to register for the 2024 National Scleroderma Conference at Early Early Bird pricing! 3 days of of #scleroderma experts (incl @CSRG2022), panel discussions, research + more. Connect with medical professionals in beautiful St. John's NL. sclerodermaconference.ca
@srfcure @CFCharityDay 🔥🔥🔥Thank you Regina!!!🔥🔥🔥🔥🔥
Can't wait! nycomedyfestival.com/lineup/cool-co…
Guess who's performing at Cool Comedy • Hot Cuisine, a tribute to Bob Saget on 11/8? Michael Che, @NikkiGlaser, @realjeffreyross, and Adam Duritz & David Immerglück of @CountingCrows—and more! Purchase tickets or make a donation to support research: srfcure.org/cchc
After just watching a group of writers and actors on both coasts wish me a happy birthday, I can’t help but think back to my very first WGA strike in 1960. It was a different America then and has me reflecting on all of the Americas I’ve known for 101 years.
#WorldSclerodermaDay Did you know kids get #Scleroderma aka #Systemicsclerosis? There are ~7000 kids in the US w/#SSc! Aside from skin, it can affect heart, lung, kidneys, GI tract, & joints #Localizedscleroderma is skin-only #Scleroderma, 1:100000 kids have this #morphea
Today is #WorldSclerodermaDay, a day created to tell people what it means to have scleroderma, recognize those who live with it, and share why we need a cure. We're honored to share from members of the scleroderma community here. #SayScleroderma
Please join us in congratulating Dr. Antony Rosen for being named an AAAS Fellow in recognition of his pioneering work elucidating mechanisms of rheumatic disease! @aaas @HopkinsMedicine hub.jhu.edu/2023/01/31/ten…
Gossamer Bio is proud to sponsor today's Collaborating for a Cure Patient Forum hosted our partners at @srfcure! Learn more about some of the great work being done by @srfcure here - srfcure.org/living-with-sc…
It's officially World Scleroderma Month! We invite businesses, organisations, and families all across Australia to bathe their buildings and homes in a radiant golden hue in observance of World Scleroderma Month. Learn how you can support us here: sclerodermaaustralia.com.au/shine/
Absolute must-see film at #HotDocs2023: Angel Applicant. Screening today at 3:30 pm. Our interview with narrator/director Ken A. Meyer here: bit.ly/3ACXaIS @AngelApplicant @HotDocs @srfcure #Documentary
Today at 4pm EST. Global Meet the Experts #Scleroderma Join for a discussion with experts from around the 🌎🌍🌏 Canada: @Janetbirdope UAE: Dr. Rajaie A. Namas Chile: @antoniamariav @ACRRheum @scleroderma @srfcure
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