Ferne Robin @SclerodermaSoFl

Executive Director of Scleroderma Foundation Southeast Florida Pompano Beach Florida Joined July 2011

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85
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Ferne Robin @SclerodermaSoFl

14 years ago

Good morning everyone! Hope everyone is enjoying their Monday so far :-)

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Ferne Robin @SclerodermaSoFl

14 years ago

Come see us at the Boca Food and Wine Festival!

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Toby Srebnik (he/him) @fsutoby

14 years ago

Thanks! RT @InspirationU: Big thank you to some of our amazing sponsors @BrowardHealth @ikeasunrise @InspireHealth #totalwomensconvention

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Toby Srebnik (he/him) @fsutoby

14 years ago

Nice to see @BrowardHealth here - some great takeaways. #totalwomensconvention

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Toby Srebnik (he/him) @fsutoby

14 years ago

Thanks to Kelly from MELA Therapeutics for not going easy on my chair massage. They're on FB. #TotalWomensConvention

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Ferne Robin @SclerodermaSoFl

14 years ago

We raised over $20K at #SclerSoFlWalk!!!!

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Ferne Robin @SclerodermaSoFl

14 years ago

It is! RT @fsutoby: Hope the weather is delightful! RT @Sleeeping: Getting ready for the crowds at the @SclerodermaSoFl walk! #SclerSoFlWalk

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Ferne Robin @SclerodermaSoFl

14 years ago

Great day for a walk!! RT @Sleeeping: Mom says hi from the #SclerSoFlWalk. @IJasonAlexander instagr.am/p/S0oq_/

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Ferne Robin @SclerodermaSoFl

14 years ago

RT @BounceToACure How have I been training for the 200,000 bounces to $20,000 for Scleroderma? This video shows how: ow.ly/5J0VR

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High__Priestess_Catri... @CatrinaHig80067

10 Followers 368 Following

Danie D @daniedemar312

9 Followers 199 Following Chief Training Officer for 9-1-1 Dispatch... Dispatcher, Wife, Mom, Master of Chaos... Scleroderma Warrior

CDNurse2000 @Mshutch25

83 Followers 686 Following

Cosimo Bruni @CosimoBruni

200 Followers 232 Following

Scleroderma Australia has been incorporated since 2005 to facilitate a national representative voice in supporting our scleroderma community across Australia.

SclerodermaAustralia @ScleroAus

76 Followers 94 Following Scleroderma Australia has been incorporated since 2005 to facilitate a national representative voice in supporting our scleroderma community across Australia.

SclerodermaCa @scleroCA

121 Followers 337 Following https://t.co/zM9Em1IIrP

malc24 @johnmalcolmson1

277 Followers 493 Following

Chronic Pain sufferer Proud soldiers wife, mom of 2, conservative to the core and Patriot in heart and mind! PRO-LIFE! Believer in the good to come.

ValuesMatter @Tinala1111bama

229 Followers 388 Following Chronic Pain sufferer Proud soldiers wife, mom of 2, conservative to the core and Patriot in heart and mind! PRO-LIFE! Believer in the good to come.

Merve @merveemircan

162 Followers 757 Following Biraz dünya , biraz ütopya

Journey with #ChronicIllness #Scleroderma #SSc #TMA #AutoimmuneDisease #CKD on #TPE - sharing info, opinion & #optimism; hoping to help others along the way☺️

Sick With Optimism @OptimismSick

175 Followers 432 Following Journey with #ChronicIllness #Scleroderma #SSc #TMA #AutoimmuneDisease #CKD on #TPE - sharing info, opinion & #optimism; hoping to help others along the way☺️

Boston Irish @molly_paradis

41 Followers 184 Following

A journey to assist with rare disease challenges offering nil cost advice using computational modeling targeting personalized medicine for those in need.

Pro Bono Omics @ProBonoOmics

338 Followers 1K Following A journey to assist with rare disease challenges offering nil cost advice using computational modeling targeting personalized medicine for those in need.

Sandra Goldberg @SandraGoldberg4

1 Followers 20 Following

PILLOMITT™ @pillomitt

2K Followers 3K Following The Pillow with Cool-Warm Pockets & Surfaces for Hand-Warming, Napping, Traveling, & More!

Tony Tadros @ttony80

42 Followers 833 Following

Myrna Carrasquillo @jazzym718

261 Followers 1K Following I am a female diagnosed with scleroderma trying to live with it.

martin luis duran sal... @luisduransala

78 Followers 1K Following

Official Twitter of McMaster University's Demystifying Medicine Seminar Series and HTH SCI 4DM3 course in #KnowledgeTranslation #Science #Medicine & #Research

DemystifyingMedicineM... @McMasterDMS

531 Followers 2K Following Official Twitter of McMaster University's Demystifying Medicine Seminar Series and HTH SCI 4DM3 course in #KnowledgeTranslation #Science #Medicine & #Research

chronically Uniquely ... @momma3710

26 Followers 210 Following I'm a stay at home disabled mom of 3,Navy wife,and Angel Mom of 1 precious boy.

traci hayes @hayes_traci

1 Followers 38 Following

Herbs Solutions By Nature is just the right destination for all those who have been looking for a herbal cure to their relevant disease.

Herbs Solutions @herbssolutions1

856 Followers 4K Following Herbs Solutions By Nature is just the right destination for all those who have been looking for a herbal cure to their relevant disease.

The Journal of Scleroderma and Related Disorders (JSRD), the official independent journal of the World Scleroderma Foundation & EUSTAR published by Wichtig

JSRD @JScleroderma

620 Followers 556 Following The Journal of Scleroderma and Related Disorders (JSRD), the official independent journal of the World Scleroderma Foundation & EUSTAR published by Wichtig

National Scleroderma ... @SclerodermaTS

779 Followers 184 Following We strive to raise awareness, support #scleroderma patients and raise funds for a #cure. https://t.co/VclqavsAxC

The Pulmonary Hyperte... @PHAssociation

7K Followers 3K Following Our mission is to extend and improve the lives of those affected by pulmonary hypertension.

Sjogrens Village @SjogrensVillage

741 Followers 918 Following

Lady J @JeffersForce5

596 Followers 2K Following Life traveler.

We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma.

#scleroderma #autoimmunedisease

Scleroderma Society o... @scleroderma_sso

2K Followers 2K Following We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease

Bailey Srebnik @xwOBAiley

1K Followers 1K Following @FGCU Analytics Major & Statistics Minor • @Florida_PG Scout • #MSDStrong • Let’s Connect on LinkedIn!

Scleroderma Chi Chpt @Chi_Scleroderma

22 Followers 43 Following

National Scleroderma ... @OhioScleroderma

391 Followers 316 Following

A #GrandRapids startup out of #GVSU. We produce specialty therapeutic heated clothing specifically for patients with Raynaud's Disease, Lupus, and Scleroderma.

Soletics Medical @SoleticsMedical

36 Followers 201 Following A #GrandRapids startup out of #GVSU. We produce specialty therapeutic heated clothing specifically for patients with Raynaud's Disease, Lupus, and Scleroderma.

Registro Español de Pacientes con Esclerodermia Infantil, activo desde 2005
- Spanish Registry of Patients with Pediatric Scleroderma, active since 2005

REPESIN @REPESIN_ES

205 Followers 485 Following Registro Español de Pacientes con Esclerodermia Infantil, activo desde 2005 - Spanish Registry of Patients with Pediatric Scleroderma, active since 2005

Scleroderma UA @scleroderma_ua

157 Followers 68 Following Всё о склеродермии. Специализированный ресурс. https://t.co/oSdCkJ2MQO https://t.co/Bkf7mwC6WD

Jessie @nacamura73

200 Followers 770 Following

Julie Ure @julieure

120 Followers 133 Following *Investor* Formulator* Business Owner* Travel Addict* Natural Health and Wellness Advocate*

Kim Markley @oceanbound09

120 Followers 1K Following

Conni Goulet-Dion @ConniGouletDion

40 Followers 303 Following NHS class '73, Nashua native. love life with loving hubby-mike dion, 1 cat; sclerodermatomyositis since '76.

karlene romphf @karlenerom1

98 Followers 515 Following I am a person who likes to stay positive, like bright colours, I have God in my life, and give to others.

Sharing hope, inspiration and laughter to help individuals find joy in life despite illness and challenge. #lupus Speaker/Consultant/Patient Advisor

Cindy Coney @CindyConey

687 Followers 1K Following Sharing hope, inspiration and laughter to help individuals find joy in life despite illness and challenge. #lupus Speaker/Consultant/Patient Advisor

Committed to leveraging expertise in immunology to fulfill purpose of developing innovative new medicines that improve lives (NASDAQ: $CRBP)

Corbus Pharma @CorbusPharma

6K Followers 2K Following Committed to leveraging expertise in immunology to fulfill purpose of developing innovative new medicines that improve lives (NASDAQ: $CRBP)

Scleroderma Aware @SclerodermaHelp

47 Followers 77 Following Raising awareness about Scleroderma, 1 person at a time.

Camp Diasozo is a unique camp working throughout the year to enrich the lives of children with morphea and scleroderma and their families.

Camp Diasozo @CampDiasozo

131 Followers 681 Following Camp Diasozo is a unique camp working throughout the year to enrich the lives of children with morphea and scleroderma and their families.

Lisa Marie Calderon @lisabeme2

94 Followers 444 Following ♡God first♡virgo♡foodie♡love to cook♡love my friends♡love the ocean♡cruising♡jamaica♡One Love♡♡

Morning Fresh Market @MorningFreshNow

24 Followers 156 Following Online Grocery Store Made Easy!

bobby douglas @BobbyBobcat003

3 Followers 37 Following

Alicia @aliciamgms

284 Followers 2K Following This account is for escapism purposes. Please do not take my posts too seriously. I’m here for the laughs.

RSI is an Irish patient group working with those affected by either Raynaud’s or scleroderma and is committed to providing support and information.

Irish Raynaud's @IrishRaynauds

441 Followers 608 Following RSI is an Irish patient group working with those affected by either Raynaud’s or scleroderma and is committed to providing support and information.

Ball For A Cause @BallForACause

196 Followers 863 Following 💙Please support The Scleroderma Awareness Ball For A Cause Chicago Basketball Game | Keep The Faith |

ABRAPES @ABRAPES

671 Followers 113 Following Associação Brasileira de Portadores de Esclerodermia.

Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.

Scleroderma Canada @SclerodermaCAN

3K Followers 2K Following Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.

Championing Social Impact at @ukginc, Philanthropist, Fundraiser, Athlete! Founder @madddash, Past Chairwoman @maddonline #dontgivebackjustgive

heather geronemus @hgeronemus

4K Followers 4K Following Championing Social Impact at @ukginc, Philanthropist, Fundraiser, Athlete! Founder @madddash, Past Chairwoman @maddonline #dontgivebackjustgive

Ashley Ochoa @Ashyaaayy

69 Followers 141 Following

Aiming to take back the world record for consecutive bounces on a pogo stick to raise money for the New England Center and Home for Veterans.

Hopping For Heroes @Hopping4Heroes

533 Followers 63 Following Aiming to take back the world record for consecutive bounces on a pogo stick to raise money for the New England Center and Home for Veterans.

We provide peer-to-peer patient support service, educational programs, and raise funds to support the Foundation’s research and awareness.

Scleroderma @SclerodermaSCal

1K Followers 8 Following We provide peer-to-peer patient support service, educational programs, and raise funds to support the Foundation’s research and awareness.

Leading the fight against autoimmune disease by collaborating to improve healthcare, advance research, and support the community.

Autoimmune Associatio... @AutoimmuneAssoc

6K Followers 2K Following Leading the fight against autoimmune disease by collaborating to improve healthcare, advance research, and support the community.

Stepping out to cure Scleroderma Walk for the Cure Sunday June 12th 2011. Battery Park, Manhattan 9:00AM Registration - 10:30AM Walk Begins.

Scleroderma @SclerodermaWalk

314 Followers 250 Following Stepping out to cure Scleroderma Walk for the Cure Sunday June 12th 2011. Battery Park, Manhattan 9:00AM Registration - 10:30AM Walk Begins.

Following the road less traveled by... passionately:) Web/graphic design, coding, management, 2 SiteSell domains. Also read my other account @AltMedNWellness

Grace Cross @Grace_Cross

363 Followers 158 Following Following the road less traveled by... passionately:) Web/graphic design, coding, management, 2 SiteSell domains. Also read my other account @AltMedNWellness

Kindness, decency, humanity, empathy, curiosity and the desire to laugh just a little bit - let’s try for those and see if we make the world a little better

jason alexander @IJasonAlexander

662K Followers 303 Following Kindness, decency, humanity, empathy, curiosity and the desire to laugh just a little bit - let’s try for those and see if we make the world a little better

TV Marketing Personality, Persuasion Marketing Consultant, Author of 3 Marketing Books & Adjunct Professor. My tweets are my own opinion.

Craig Agranoff @Lapp

9K Followers 4K Following TV Marketing Personality, Persuasion Marketing Consultant, Author of 3 Marketing Books & Adjunct Professor. My tweets are my own opinion.

Mgr, #PR/Communications, @TrulyNolen. Past-Pres. @PRSAPalmBeach, Current President @PRSAFTL. @floridastate alum, @RaysBaseball & @Seahawks fan. Opinions my own.

Toby Srebnik (he/him) @fsutoby

5K Followers 5K Following Mgr, #PR/Communications, @TrulyNolen. Past-Pres. @PRSAPalmBeach, Current President @PRSAFTL. @floridastate alum, @RaysBaseball & @Seahawks fan. Opinions my own.

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