Tourette Researcher @TS_Researcher
PhD student who would like to bring the latest in Tourette research to you. Come with me on my journey! #Tourette #Autistic #FunctionalPlurality Joined July 2021-
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Can you identify 'cerebellar scanning speech?' Here is a nice case example in Wilson's disease and even if you do not speak his native language, by listening carefully to the pattern of speech, it may help you pick up what folks mean when they say 'scanning speech.' Definition…
Functional tic-like behaviors are common comorbidity in Tourette syndrome similar to functional overlay in other movement disorders. Before diagnosing treatment-resistant tics, functional overlay should be considered. @Natalia99510427 loom.ly/SD4S7U0
Thanks @UniofHerts and @VanceAdd for having me earlier on in the week and allowing me to share the presentation! youtube.com/watch?v=myrDak…
It is so lovely seeing all the events across the UK being organised for neurodiversity week. I can't wait for ours to begin @UniofHerts @HertsPSG @UniofHertslms
It is so lovely seeing all the events across the UK being organised for neurodiversity week. I can't wait for ours to begin @UniofHerts @HertsPSG @UniofHertslms
2 week countdown.....We @UniofHerts are so thrilled to be partnering with the amazing charity @VanceAdd as part of neurodiversity week celebrations. Can't wait to hear all the amazing speakers @TS_Researcher @daleyjones1
2 week countdown.....We @UniofHerts are so thrilled to be partnering with the amazing charity @VanceAdd as part of neurodiversity week celebrations. Can't wait to hear all the amazing speakers @TS_Researcher @daleyjones1
Hot off the press! Recognizing that the treatment of #FND should be individualized, we explored our approach to the nebulous process of triaging patients with #FMD to rehabilitation. 🧵 1/8 @SarahLidstone @IntegratedMove @HaseelBhattPT @FNDSociety …mentdisorders.onlinelibrary.wiley.com/doi/10.1002/md…
Thanks to the engagement of the TS Community, studies like the following are made possible. 🎉 Please continue reading for a synopsis from @UniofHerts and @UniofNottingham buff.ly/3OJLLhV #Tourettes #Tourettesyndrome
'When the interoceptive and conceptual clash: the case of oppositional phenomenal self-modelling in Tourette Syndrome' by Darius Parvizi-Wayne and Liberty Severs buff.ly/48jhGg8 We wanted to share this recent research article in case it was of interest to our community
Looking forward to being a part of this! Thanks @tourettesaction ! tourettes-action.org.uk/162-ts-advisor…
Here's a new video I've done with @FNDAction explaining why #FND is a brain network disorder. Click on this link to watch the full video - youtube.com/watch?v=OxGaxE…
‘Adults with Tourette syndrome (TS) have worse mental health, physical health, and quality of life than the general population’ tandfonline.com/doi/full/10.21…
Really interesting paper on tics and attention. I'm particularly interested in the condition where watching oneself not tic (video playback) actually helps reduce tics. What do you all think? sciencedirect.com/science/articl…
Pleased to share our new paper about functional tic-like behaviors, published in Movement Disorders Clinical Practice ‘What are the Key Phenomenological Clues to Diagnose Functional Tic‐Like Behaviors in the Pandemic Era?’ doi.org/10.1002/mdc3.1… @TMPringsheim
It is frustrating that there is so much to gain by taking FND seriously - life-changing rehab, social validation, dismantling of sexist stereotypes, fundamental neuro insights - but many people can’t get there because they clock out after someone says, “oh, it’s psychological.”
Excellent short film highlighting delayed diagnosis and difficulty accessing treatment for people with FND 👏👏👏👏
Excellent short film highlighting delayed diagnosis and difficulty accessing treatment for people with FND 👏👏👏👏
Thanks to colleagues on this paper: Ludlow AK, Anderson S, Robinson S, Owen T, Hedderly T. An investigation into mothers’ experiences of their children’s functional tic-like behaviour and tic attacks. PLoS One. 2024 Jan 2;19(1):e0292742.
An interesting paper moving away from reliance on raters to identify eye tics and instead using automated tic detection from video for tic quantification. This may be useful in diagnosis …mentdisorders.onlinelibrary.wiley.com/doi/pdfdirect/…
Our new article about stigma and Tourette’s syndrome is out: link.springer.com/article/10.100…
a wee update, happy new year x
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The Plural Associatio.. @TpaNonprofit
4K Followers 820 Following The grassroots, volunteer & Plural peer-led nonprofit empowering all Plurals, including Dissociative Identity Disorder & OSDD We are inclusive! Plurality = ☂For our second webinar, @Natalia99510427 welcomes Dr Agnieszka Małek, psychologist, to discuss about her latest study, "Pain in Tourette Syndrome-Children’s and Parents’ Perspectives". essts.org/news/pain-in-t…
Looking forward to a brilliant week, thank you @SCLDNews for inviting @leadscot_tweet to talk about this important subject. Please share our Easy Read resources lead.org.uk/easy-read-reso… & encourage people to sign up for the sessions @CyberResScot @Enable_Tweets @CapabilityScot
Don't fall for it! Join @leadscot_tweet at 10.30am during #ScotLDWeek24 to learn how not to fall for scams online. Register your free place here: zurl.co/lJvW
Divorce is awful, here’s true lessons from going through it... 1. Marrying well is the biggest life hack of all. 2. Marrying poorly is a costly path to misery. Choose wisely. 3. When someone gets divorced I often say, “I’m sorry and congratulations.” Usually there is pain and…
Our crew has assembled over 18 clinicians and researchers all with lived plural experience in order to to start drafting our new training program for OSDD / DID/ and Plurality which will eventually offer a certification for clinicians!#nothingaboutuswithoutus
People with #Tourettes have insight & expertise that could enrich research. I’d love to see greater collaboration & recognition of the knowledge & expertise held within our communities. We need to be able to trust that you’ll value our perspectives: touretteshero.com/2024/04/09/wha…
New blog post on the survey's circulating within #Tourettes communities about diagnostic names. Fundamentally it's an issue of power & currently clinicians are listened to more readily than those of us with tics, so I ask them again please tread carefully: touretteshero.com/2024/04/09/wha…
With OSDD and DID, the concept of encouraging us to simply pretend we are all one people, and addressing us as one, doesn't actually lead to health. We've been pretending to be one our whole lives and that contributed to increased life struggling, shame and hiding.
Today @TS_Researcher giving amazing coverage to #tics #tourettes in adulthood as part of #NCW2024. Free talk and no need to register. @HertsPSG @UniofHerts @UniofHertslms @Pandaresearch2 @uhequality
It's day 2 of #NCW2024! @NCWeek ADD-vance is delighted to be partnering with the @UniofHerts to bring you 3 FREE Lunch & Learn webinars this week. Open to ALL, not just those in Herts! Zoom Link to today's FREE webinar: us02web.zoom.us/j/84616049919 #NCW #NCW24 #Neurodiversity
Neurodiversity Celebration Week buff.ly/34N402o Celebrating different minds - including people with tics and Tourette Syndrome #tourettes #tourette #tourettesyndrome #tics #ticdisorder #tourettesyndromeawareness #tourettesawareness #neurodiversity
Hi friends please help us spread the word & reach families with children who tic @tourettesaction @TourettesPod @sypped @goldylookfleece @sweetanita @LewisCapaldi @TICYorkshire @scope @Fat__Sister
Very excited to launch the #TourettesheroWelcomePack for children & young people with tics & #Tourettes. This is a pack of letters to welcome children to our community & we hope it will make them feel seen & valued? These packs are free, find out more here touretteshero.com/2024/03/15/let…
I feel like people don’t understand just how hard it can be for neurodivergent people to find an affordable therapist who specialises in ND conditions and who understands the importance of neuro-affirming care.
Contracts are signed and I can now announce that I'll be joining @iHumanSheff as a Postdoctoral Research Associate this May! Feeling very grateful for the opportunity, and I'm looking forward to getting stuck in with the @wellcometrust Anti-Ableist Research Culture project! 🤩
New study. If you are a parent/carer whose child/children are regularly absent from school, we would love to hear from you! Opportunity for your voice to be heard and help shape recommendations to support families like yours. #schoolabsentee @laurenadenyer_ @DakshaTrivedi
Throughout my PhD programme, I'm constantly reminded of the shambles that is #TouretteSyndrome discourse in the UK. Why are so many medical professionals telling #TS patients that nobody in their region has TS other than them, and not signposting them to any support services? 🙄
The Value of Interdisciplinary Collaboration in Human Geography and Bioethics, by @DPhilipJones and yours truly open-research-europe.ec.europa.eu/articles/4-49/…
Our first of 3 regional workshops with healthcare professionals exploring challenges & solutions to improving #NHS healthcare for children with #tics & #tourettes in England Great energy & commitment from attendees & positive suggestions for change! @InstituteMH @UoN_Institute
⭐ Understanding the expression of everyday vocal and motor tics in adults ⭐ A cross-disciplinary team from @UniofHerts is looking for adult participants who have a confirmed diagnosis or have self-identified as having a Chronic Tic Disorder (such as TS) buff.ly/3SVqdAa
🎉🎂 Happy Birthday to Our Amazing CEO, Emma! 🎂🎉 Today, we're celebrating our truly exceptional leader—our CEO! 🥳🌟 Emma's dedication, passion, and tireless commitment to the TA team and our TS community inspire us all. #CelebratingOurCEO #Tourettes #Tourettesyndrome
We're thrilled to share the latest findings on the experiences of parents with young people aged 10-17 who've developed sudden tics. The study sheds light on the challenges, and support needs within this community @AmandaLudlow7 @UniofHerts buff.ly/48aMI9X #Tourettes
We live in a culture that detests co-dependence with other humans yet demands it with our handheld device. You are a far too wonderful nexus of connection to allow the most significant relationship in your life to be the one with your phone. #turnitoff
1st webinar of the year! Have we forgotten what tics are? A re-exploration of tic phenomenology in youth with primary tics. @Natalia99510427 speaks to @TMPringsheim and @ChristelleNlls MDS Clinical Practice journal; Research Article of the Year 2023 essts.org/news/have-we-f…
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