Voices of Alzheimer's @VoicesofAlz
Empowering people living with or at risk of Alzheimer’s and other cognitive illnesses to drive equitable access to innovation in treatment and care. voicesofad.com Joined July 2022-
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Following89
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We're honored to celebrate one of our amazing members, Scott Berkheiser, who recently competed in the IRONMAN Texas race. Despite receiving a diagnosis of early-onset Alzheimer's, Scott has continued to live with joy. He is a shining example of maintaining an active lifestyle.
Have you joined the Voices of Alzheimer's Movement yet? Go to voicesofad.com to become a member and advocate for the #Alzheimers community. #VoA #MentalHealth #BecomeaMember
Voices of Alzheimer's is thrilled to announce that we're launching "Alzheimer's Voices," our very own podcast! Stay tuned for insightful discussions and inspiring stories on Alzheimer's and related topics. #VoA #AlzheimersVoices #Alzheimers #Podcast
We're back with another segment of weekly wisdom from our CEO, Jim Taylor! He discusses why we should continue to remain optimistic about Leqembi, given its positive approval and the overall rise of new and innovative Alzheimer's treatments. Hope is here! #Leqembi
An eye-opening read from Carol Steinberg sheds light on the critical need for accurate cognitive screenings. Read her full opinion piece here: kevinmd.com/2024/04/i-had-… #VoA #Alzheimers #AlzheimersAwareness #CognitiveScreening #Alz
Disappointed by recent Reuters article on Leqembi. Historical skepticism risks denying access to life-changing therapies. Future of Alzheimer's treatment depends on overcoming skepticism and ensuring equitable access. Read more: tinyurl.com/ckr2khyn #Leqembi #Alzheimers
VoA Board Member Jay Reinstein was spotted at the annual Alzheimer’s Association’s Alzheimer’s Impact Movement (#AIM) Advocacy Forum in Washington alongside Senator Susan Collins of Maine. #VoA #Alzheimers #EndAlz #Impact #AlzheimersAssociation
Today's the big day! Join us for an engaging discussion on the essential rights for people living with #Alzheimers disease. Secure the link to our webinar by registering here: rb.gy/588v5g We're excited to see you there! #AlzheimersDisease #Alz #AlzheimersRights
Have you secured your spot yet? Voices of Alzheimer's is hosting a #webinar on Friday, April 19th, from 1:00 PM to 2:00 PM EST. Join us for a compelling discussion on the fundamental rights of those affected by #Alzheimers disease! Register here: rb.gy/588v5g!
A diagnosis of Alzheimer’s has long been a death sentence—a signal that life as you know it is over. But new advances in detection and treatment are changing that. on.wsj.com/3TRiRhK on.wsj.com/3TRiRhK
Voices of Alzheimer's is thrilled to invite you to an engaging webinar on the essential rights of individuals living with #Alzheimers disease! Join us on Friday, April 19th from 1:00 pm to 2:00 pm EST! Register here: rb.gy/588v5g #VoA #Webinar #BillofRights #Access
The strength and compassion of caregivers of Alzheimer's inspire us every day! Tag a caregiver you appreciate and let's spread love and gratitude. #VoA #VoicesofAlzheimers #Caregiving #Alz #EndAlz #AlzheimersHeroes
VoA Board Member Doreen Monks will be featured on Being Patient for a live talk about her #Alzheimers diagnosis and #advocacy. Tune in on Friday, April 12th at 12:00 PM PT / 3:00 PM ET! RSVP here: beingpatient.com/event/doreen-m… *It will take place on Being Patient's Facebook page.
You're not alone! Healthcare paperwork can be daunting, but together we can navigate through it with resilience and support! Go to voicesofad.com to learn how we can support! #VoA #VoicesofAlzheimers #Healthcare #Meme #Paperwork #Alzheimers #Alz
Voices of Alzheimer's is big on impact. Join the movement! We're here to empower you in effective #advocacy, and make a meaningful difference in the lives of those touched by #Alzheimers. Go to voicesofad.com to become a Voices of Alzheimer's member. #VoA
The Voices of Alzheimer's Foundation newsletter is out! This issue, we spotlight Michele and Doug Hall. Michele was diagnosed with early onset #Alzheimers when she was 53. Go to voa-foundation.org/april-issue to read their story. #VoAFoundation #BillofRights #Newsletter #Story
Join the movement! Have you signed our Bill of Rights #Petition yet? We're on a mission to reach 3000 signatures, and we're less than 600 away! Click here to add your name and make a difference today: change.org/p/stand-with-v…! #VoA #BillofRights #Alzheimers #MentalHealth
Tune in to another weekly wisdom episode with our CEO, Jim Taylor on the importance of getting an annual cognitive screening if you're 65+ #Alzheimers #VoicesofAlzheimers #cognitivescreening #clinicaltrials
Did you know that 74.3% of all advocates are women? Join the movement, raise your voice, and be a force for change. Go to voicesofad.com to become an Alzheimer's advocate! #VoA #Alzheimers #AlzAdvocate #EndAlz #Women #WomenHistoryMonth
Kari Rhinehart @KariRhinehart
333 Followers 2K Following “I have only seen one thing more relentless than cancer. Mothers.”#glioblastoma #emmasgrace the cause is the cure view=mine
Casey @caseypateZen
174 Followers 417 Following This and that. Somethings at STEM, lab enthusiast, botany, student, stoic, writer, real-life freedom fighter, humanitarian.
Amanda @agrammel12
73 Followers 257 Following
Brain & Environment S.. @BrainEnviro
109 Followers 525 Following A day long symposium to uncover the influence of environmental toxins on brain disorders. May 20, 2024 | Washington, DC
A Mind to Care @Mindtocare
2K Followers 3K Following Unique Game & Activity System - super light, versatile, designed for adults living with Alzheimer’s, Dementia and other cognitive impairment conditions
John Crary @JohnCraryMDPHD
560 Followers 444 Following Neuropathologist, neuroscientist, swashbuckler, virtuoso, deep learning pioneer, aspiring dendrologist
Elizabeth Dole Founda.. @DoleFoundation
33K Followers 24K Following Empowering, supporting, and honoring military and veteran caregivers, our nation’s #hiddenheroes.
Ferne Patrone @fer_patro
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Halle-rose Scancarell.. @RoseScanca63542
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Shawanna Collinson @ShawannaCo41536
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Keena Sliwa @keena_sli
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Abigail Freeman @freema_abig
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Cherly Gehringer @GehringCher
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Chanel Kranwinkle @ChanelK7398
50 Followers 5K Following
Alzheimers Boy @alzheimermatt
13 Followers 117 Following inherited early onset alzheimers. on a mission to soak up the science, understand incentives enabling it and champion the champions
Lakita Riemann @laki_riema
81 Followers 5K Following
Leisha Lou @LeishaL5679
79 Followers 5K Following
Sharilyn Seratti @SSeratti84533
37 Followers 5K Following
Being Patient @Being_Patient_
2K Followers 2K Following Editorially independent source for news, science & human stories from #brainhealth experts, scientists, #caregivers & people living with #Alzheimers & #dementia
Sofie Altschuler @so_altschu
47 Followers 5K Following
Alishba Lapidus @alis_lapi
32 Followers 5K Following
StyleSuffering @SufferingS89768
18 Followers 2K Following
Coquiatville @coquiatville
657 Followers 1K Following Just a father, and happy husband, still working and living for now in Switzerland.
Sinaptica Therapeutic.. @SinapticaTX
40 Followers 84 Following Revolutionizing the Treatment of Alzheimer’s Disease
VanceMcclenny @VMcclenny42650
62 Followers 2K Following
Svetlana Tankersly @STankersly21379
34 Followers 5K Following
Luke Davis @oldavis3
577 Followers 938 Following
Sandra Rankin @slrankin
15 Followers 119 Following
Christina Williams @hohman_che12070
191 Followers 4K Following Tasha specializes in adult products (silicone dolls) and provides you with the best quality service, please visit the Telegram channel for details.
Parent Projects™ @ParentProjects
37 Followers 37 Following A community of verified age-friendly businesses providing families an Ai-assisted lifeline to clarify & simplify the challenge of supporting an aging loved one.
Morgan Lock @mlock1109
30 Followers 117 Following Account Executive at @GCIhealth | previously: @LaVoieGroup @Morgridge_Inst
Maria Cavalli @enbraplats
1K Followers 2K Following #Socialentrepreneur creating needbased #digital tools to provide knowledge, guidance & hope #patients @AlzheimerGuide #caregivers @demenslotsen
Diana @mullins18diana
119 Followers 3K Following
Sara Hondel, ALZ Advo.. @HondelSara
144 Followers 320 Following Tweeting from Alaska- #ENDALZ Alzheimer’s Association Advocate and Alaska Chapter Board Member
Simone Attanasio @SimoAttanasio
169 Followers 903 Following PhD student at @UniOsnabrueck | Neurobiology 🧠 If you tweet too much, I get very aggregated 😖 https://t.co/uvsOfJoVnn
Claire @robinson23clair
145 Followers 3K Following
CareSmartz360 @CareSmartz360
3K Followers 5K Following CareSmartz360 is an advanced cloud-based home care software solution to empower home care businesses.
BettyTheBaldChicken @BettyBald93517
143 Followers 516 Following Betty the Bald Chicken is an ideal tool to get all ages to talk about the impact we have on one another. Mental Health, Chronic illness, Bullying, Addiction...
Laureen Waters @LaureenWaters1
228 Followers 621 Following Walking the Talk for Dementia, CO-Host T&L WTD let's talk about it, ESAG 20/21, Paint Clover Purple, Wife, Mom, Gmom, my tweets are my own
Judith @judith_gales_
225 Followers 3K Following
Denise Wilson @DeniseWils66224
119 Followers 3K Following
Stephanie J. Monroe @SMonroe2020
526 Followers 462 Following Champion for health and education equity. Fighting for a cure for Alzheimer’s and for brain health across the lifespan. Views are my own.
Agustin Ibañez @AgustinMIbanez
19K Followers 1K Following Director, Latin American Brain Health Institute @BrainlatUAI at @UAI_CL; Ass. Prof. at @tcddublin, Researcher @CNCUdeSA; Senior Atlantic Fellow @GBHI_Fellows
Niles Frantz @FrantzNiles
21 Followers 54 Following
M0NIKKIA @M0NIKKIA
32 Followers 25 Following Community Outreach Specialist - Alzheimer's Association (Norcal/Nevada)
National Alzheimer's .. @NACCData
2K Followers 4K Following NACC collects, harmonizes, and shares Alzheimer's disease research data from 37 NIA funded Alzheimer's Disease Research Centers across the US.
Maggie Hooper @Maggie5Hooper
3 Followers 17 Following
Aging Congress @AgingCongress
1K Followers 4K Following Sciinov Group welcomes you to the “8th Edition of Aging and Gerontology (Aging & Gerontology 2024)” HYBRID EVENT during Oct 21-22, 2024
ARCH Respite for Fami.. @ARCHRespite
1K Followers 992 Following ARCH National Respite Coalition; ARCH National Respite Network and Resource Center
Brain Matters Researc.. @BrainMattersFL
59 Followers 89 Following Brain Matters Research in Delray Beach, Florida is one of the nation’s largest, private research organizations.
Evolution Research Gr.. @ERGClinical
619 Followers 2K Following Evolution Research Group - Clinical Research Units Specializing in CNS Indications and Early Drug Development
Laurie McGinley @lauriemcginley2
8K Followers 2K Following former reporter and editor @washingtonpost, @wsj, @latimes, @KFFHealthNews. [email protected]
Alzheimer's Associati.. @alzdelval
3K Followers 202 Following Chapter of the premier organization for the care and support of those living with Alzheimer's and other dementias. Offering free programs and services.
Robert Egge @RobertEgge
2K Followers 752 Following Alzheimer's Association's Chief Public Policy Officer and Alzheimer's advocate. Tweets my own and not those of the Association. (Re)tweets are not endorsements.
Eisai US @EisaiUS
7K Followers 626 Following Eisai Inc. is a research-based human health care (hhc) company breaking through in oncology and neurology. View our community guidelines: https://t.co/1XdB1FUwhU
Cuban-American Diva @MyraGar07093
80 Followers 240 Following Wife * Mother * Music Lover * Alzheimer's Advocate
Linda Martin @tapper100
184 Followers 376 Following Volunteer Alzheimer's Advocate: Ca State and Federal Advocacy Chairperson Sacramento Walk to End Alzheimer's
Michelle Makino @MichelleMakino
65 Followers 62 Following Board Member Alzheimer's Association NoCA/NoNV Board Member Center for Age-Friendly Excellence Volunteer Bread and Roses Presents. Retired - San Mateo County
Daniel G @mexmoviestar
228 Followers 807 Following Delirious Padres sympathizer, eternal Titans romantic, #ENDALZ, Husband, Girl Dad, Chicano, cyclist & @sdbikecoalition board member, tequila puritan.
Patricia Berkeley @ppberkeley
69 Followers 151 Following Alzheimer's Ambassador Virginia #EndAlzheimers
Usha Tewari #IndianCa.. @ushwari
560 Followers 911 Following My passion is political engagement while advocating #ENDALZ & #dementia Ⓐ︎Ⓦ︎Ⓐ︎Ⓡ︎Ⓔ︎Ⓝ︎Ⓔ︎Ⓢ︎Ⓢ︎ @alzimpact (Alz Ambassador) https://t.co/kA7ymAXXz8
Debbie Warburton @DebWarburton1
219 Followers 509 Following working toward a world without Alzheimer’s. Opinions expressed are my own.
Annette M. @Amora_alz
101 Followers 107 Following Alzheimer’s State Champion. Daughter and niece who lost family members to Alzheimer’s. Advocate for research to aid in finding a cure. #ENDALZ
Matt Katawicz (he/him.. @mkatawicz
297 Followers 537 Following Director of Services and Success @WorkBoardinc; Advocate for Alzheimer's Assn. & LGBTQ+ issues; Celine Dion+Sara Bareilles stan. Views are my own.
Hector R Montesino- A.. @HectorEmbrace
245 Followers 888 Following Alzheimer’s Warrior! I fight for love everywhere I go. #endalz today! @alzimpact
Dementia Centre @dementiacentre
22K Followers 1K Following We provide training, consultancy, undergraduate and postgraduate education and information on dementia for professionals and carers around the world.
ADI @AlzDisInt
18K Followers 953 Following Alzheimer's Disease International (ADI) is the global voice on dementia. We raise awareness by supporting Alzheimer associations and individuals worldwide.
American Society Agin.. @ASAging
46K Followers 2K Following ASA unites, empowers and champions everyone striving to improve aging.
Alzheimer's Associati.. @ALZNCA
4K Followers 449 Following Providing help and hope to people with dementia, families and caregivers in the District of Columbia, Suburban/Southern Maryland and Northern Virginia.
AARP @AARP
141K Followers 1K Following AARP is leading a revolution in the way people view and live life after 50
Alzheimer's Society @alzheimerssoc
203K Followers 1K Following We want a world where dementia no longer devastates lives. That’s why we give help to everyone living with dementia today, and hope for the future.
Alzheimer Europe @AlzheimerEurope
14K Followers 5K Following Non-profit NGO, making #dementia a European priority. Newsletter: https://t.co/iaeUoVUg0r Conference #34AEC
Alzheimer Society of .. @AlzCanada
33K Followers 529 Following Working nationwide to improve quality of life for Canadians affected by Alzheimer's disease and other dementias and advance the search for the cause and cure.
Fisher Center for Alz.. @FisherCenter
38K Followers 3K Following The Fisher Center for Alzheimer’s Research Foundation is an organization that provides millions of dollars for novel Alzheimer’s research.
Alzheimer's Research .. @AlzResearchUK
92K Followers 1K Following We are the UK's leading dementia research charity and we won’t stop until everyone is free from the heartbreak of dementia. We stand #ForACure. 🟧
Murvell Delpino @MurvD
676 Followers 2K Following Dementia Care Specialist, Alzheimer's Ambassador, Career and Life Activist, Crafter, friend, Devoted Human
Linus Health @linushealth
118 Followers 133 Following Our mission is to make brain health accessible for everyone by transforming the way we measure, monitor, and maintain brain function.
Beth McMullen @BethENDALZ
406 Followers 423 Following Alzheimer’s Association Vice President of Advocacy and #ENDALZ advocate. Tweets my own, not Association. (Re)tweets not endorsements.
Joanne Pike, DrPH @joannepikedrph
2K Followers 501 Following President & CEO of @alzassociation and public health advocate - Tweets are my own, retweets are not endorsements
Lauren Ashburn @LaurenEndsAlz
316 Followers 691 Following Alzheimer’s and dementia advocate, licensed social worker, grassroots organizer,ally, weightlifter. Views are my own. #ENDALZ #NYSAlzAdvocacy @NYSALZ
Lucas Bremer 💵🏀.. @Lucas_BYWA
249 Followers 2K Following Student of Markets, National Park Nerd, College Basketball Has Been, and Saluki for Life
Yarissa Reyes @Yarissa6
589 Followers 773 Following Director of DEI Engagement, Alzheimer’s Association. #ENDALZ Thoughts are my own.
Thomas Elness @thomas_elness
2K Followers 4K Following Working to end Alzheimer’s through public policy. Otherwise, probably playing golf or eating sugary foods. @AugustanaSD alum. I am responsible for tweets.
Tony Bennett @itstonybennett
170K Followers 113 Following The Full Tony Bennett Catalog: https://t.co/htTnjPinkl New album Love For Sale out now: https://t.co/lpprYXY7jS
Chelsea Rangel @chelseanrangel
115 Followers 326 Following Proud South Texan | Former Educator | @LBJSchool & @UTAustin alum | All tweets are my own. | RT ≠ Endorsement
Amanda Walker @mandabrooke01
69 Followers 87 Following Chair Space Coast Walk to End Alzheimer’s, AIM Advocate, Florida State Alum, paddle boarder, loves coastal living, book nerd
Shonda B @scb81271
541 Followers 1K Following I'm a teacher, Alzheimer's Ambassador, child of God & MJ fan for life! I try my best to be positive, kind, and loving to everyone. Kobe is forever the man!
Alzheimer's Associati.. @alzassociation
168K Followers 5K Following The Alzheimer’s Association is the leading voluntary health organization in Alzheimer's care, support and research. #ENDALZ
Jessica Rothhaar @AlzAdvocateCA
981 Followers 2K Following Public Policy and Advocacy for @alznorcalnornev.
ALZ Impact Movement @ALZIMPACT
9K Followers 2K Following AIM advances and develops policies to overcome Alzheimer's and all other dementia through increased investment in research, enhanced care and improved support.
CMSGov @CMSGov
202K Followers 116 Following Official Twitter account for the Centers for Medicare & Medicaid Services (CMS). Official government account. Authentication: https://t.co/phdhdq21Gg
CMS Innovation Ctr @CMSinnovates
59K Followers 19 Following The Center for Medicare & Medicaid Innovation at the Centers for Medicare & Medicaid Services (@CMSGov). Please visit us:
Medicare.gov @MedicareGov
56K Followers 105 Following This is the official government account of the U.S. Medicare program. For more info, visit https://t.co/D4iRdDULuA. Authentication: https://t.co/zeNI9RPuPb…
The National Institut.. @NIHAging
25K Followers 670 Following Official X account of NIH's National Institute on Aging. Dedicated to improving the health of older adults through research. Privacy: https://t.co/6XA3jNUXwcCatch our latest newsletter? Jump into February's newsletter by reading a gripping article on the importance and lack of diversity in Alzheimer's clinical trials! Learn about the causes of this underrepresentation! #VoicesOfAlzheimers #Alzheimers
What is Brain Capital? Check out our next #wef24 interview featuring @HarrisAEyre, @RiceUniversity, @AllianceBrain. Learn how Dr. Eyre defines "brain capital" and why it presents an economic imperative for governments and the private sector. youtu.be/llLNPG3hR9U?si…
Meet Julia and Debora, two incredible women caring for their husbands with Alzheimer's and supporting each other. As full-time care partners, they also participate in the mentorship program at Penn Memory Center. Read the full story here: tinyurl.com/bdtdhrzs
Celebrating Rebecca Chopp, a dedicated Alzheimer's advocate and our board member. She's boosting support for Alzheimer's legislation and recently met with Senator Michael Bennet to make Alzheimer’s a priority! 🙌 #AlzheimersAdvocacy
It's been a little over a year since Voices of Alzheimer's began, and we're taking a moment to celebrate everything we have accomplished, from gaining over 650 members to publishing dozens of newsletters! We'd like to thank you for your support and commitment to our cause!
Our incredible CEO Jim Taylor and his wife Gerrie are making headlines for their unwavering dedication to Alzheimer's advocacy. Read the full article here: newstimes.com/news/article/j…
Elevate your journey with ease! Unlock a world of resources and support by becoming a VoA member. Let us pave the way while you focus on what truly matters. Join today and empower your path forward.voicesofad.com
Reflecting on a Year of Triumph in Alzheimer's Advocacy! Join us as we celebrate a year of Voices of Alzheimer's, honoring the progress we've made and the voices that drive change. Together, we're shaping a brighter future.
In honor of Voices of Alzheimer's one-year anniversary, we're celebrating some of our news features. Check out our website for direct access to all of these articles. voicesofad.com
Patient advocate and @VoicesofAlz Champion, Phil Gutis speaks out against @CMSGov restriction of critical Alzheimer's treatments in the latest op-ed for The Pittsburgh Gazette (@PittsburghPG). Read more below:
A steadfast patient advocate for access to treatments for #Alzheimers, Phil Gutis shares his concern via the @PittsburghPG that patients like him are being singled out when it comes to access to treatment. (1/3) bit.ly/3Os2Pby
Join us tomorrow for a free webinar about medicare and affordable Alzheimer's treatments!
#Gratitude #ENDALZ #WeArePalmGarden
Happy Older Americans Month! This May, we're shining a light on the critical role that conversations about #cognitivehealth play in healthy aging. Follow us as we share tips on how to start these conversations with your #healthcare provider. #olderamericansmonth #Alzheimers
From our friends at Voices of Alzheimer's (@VoicesofAlz), we share this perspective from people living with the disease and their caregivers. bit.ly/3ncvuYu #Alzheimers #StopRationingCare #CMSFixThisMess #AccessNow #EndAlz
@lauriemcginley2 @ALZNYCC1 Thank you!!! #endalz #moretime #Adelante
Meeting the people in this story was a gift — and a surprise. The new face of Alzheimer’s: Early stage patients who refuse to surrender washingtonpost.com/health/2023/04…
This. This is Alzheimer’s. Not only was my friend Arnie awarded advocate of the year, his loving wife and care partner was then also surprised with an advocate of the year award. I am the luckiest person in the world to have friends like these. #EndAlz
Thank you, @lauriemcginley2 and @WashPost for featuring the Champions at @VoicesofAlz in “The new face of #Alzheimers: Early stage patients who refuse to surrender”! 💜 #CMS #StopRationingCare #MoreTime washingtonpost.com/health/2023/04…
Beautiful piece in the WaPo today. CMS must move to cover these drugs asap. 💜 #endalz #moretime #cmsgov washingtonpost.com/health/2023/04…
The sons of cosmetics giant Estée Lauder pledged $200 million to the Alzheimer’s Drug Discovery Foundation. trib.al/zduNsRV
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