🧠DBSAmbassador @WeAreBionic1
A community of those with an interest in #Deep Brain Stimulation #Patient Engagement and better health outcomes @matteagles m.youtube.com/watch?v=r_9NCd… North West, England Joined October 2017-
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Alison Christy, MD, PhD, tells us about the life and advocacy of Dr. Mary Putnam Jacobi, the first female physician to focus on neurology. doctorsonsocialmedia.com/advocating-for… @MattEagles
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@MattEagles @MrsAnneTwist @PdAvengers @ParkinsonsUK
Moomba Festival 2022 Birdman Rally Geoff Constable (PD Avengers) youtu.be/Xl1HvdgRAcI via @YouTube my loony Parky mate and fellow #PDAvenger He's flying again in 2023 !! @PdAvengers @MrsAnneTwist 2024's challenge ? @ParkinsonsUK
Moomba Festival 2022 Birdman Rally Geoff Constable (PD Avengers) youtu.be/Xl1HvdgRAcI via @YouTube my loony Parky mate and fellow #PDAvenger He's flying again in 2023 !! @PdAvengers @MrsAnneTwist 2024's challenge ? @ParkinsonsUK
HTN Now Awards 2023 - htn htn.co.uk/htn-now-awards… via @health1tech @MattEagles
Heineken | The Office Cleaners youtu.be/k4GF1o80bhQ via @YouTube
The Greatest | Apple youtu.be/c2UF26YpPFg via @YouTube @MattEagles
@signalongwithus hi jade this is an amazing campaign my good friend @jomilne10 wants exactly the same !
@JuvenileAlex hey Alex have you met @MattEagles he’s had #Parkinsons since he was 7 ?
@MattEagles uses steady mouse ! It’s awesome- really takes the frustration out of using my laptop!
Hand tremors from Parkinson's can make using a mouse nearly impossible. SteadyMouse set out to solve this problem: steadymouse.com
I've downloaded @HAVASLYNXEU #PatientCentricityonTrial whitepaper to see how patients can fix clinical trials bit.ly/2VAYm9H
🧠DBSAmbassador retweeted
Gut, inflammation and #Parkinson. I have Tweeted these words so many times recently that I feel like a parrot!
Further nation wide (S. Korea) evidence of an association between inflammatory bowel disease & #Parkinsons. Corticosteroid use showed a preventive effect on developing PD in patients with Crohn's disease, but not ulcerative colitis ncbi.nlm.nih.gov/pubmed/31398905
🧠DBSAmbassador retweeted
Last Thursday we stepped into the ring at the @creativefloor awards to fight it out against the best in healthcare. We're so proud to announce that we received 13 shortlists, and won 8 awards across 7 of our campaigns gaining the title of World’s Most Awarded Agency! #LYNXLife
🧠DBSAmbassador retweeted
Last month @321tapas, Associate Medical Director at the Havas Lynx Group, contributed to a @PMLiVEcom article about social media in pharma. Read the full article, where Tapas discusses Key Opinion Leaders and how they might be impacting HCP engagement: bit.ly/2JYCZL2
@christheowl Dr Chris - I’m getting assistance at Dublin airport in Sept from flights to and from Manchester and Chicago .....
Further nation wide (S. Korea) evidence of an association between inflammatory bowel disease & #Parkinsons. Corticosteroid use showed a preventive effect on developing PD in patients with Crohn's disease, but not ulcerative colitis ncbi.nlm.nih.gov/pubmed/31398905
🧠DBSAmbassador retweeted
When we launched the #LXAcademy 2019, we were joined by Prof. Andrew Biankin, a world leader in pancreatic cancer & Regius Chair of Surgery at the @UofGlasgow. Watch his full talk as he discusses the importance of finding the best treatment for patients: youtu.be/KCD0kP-QWwc
@foltynie @HelenMatthewsQ @MattEagles @voluptousvicki
Last month we hosted a focus group where we brought together patients, carers, industry advocates and more to discuss the trial patient experience and how considering every aspect of this can lead to trial success. Watch the teaser film here: youtu.be/30AKt8TIf_I #LYNXLife
@PconciergeAllen Strangely I’ve never heard of any of these people @ParkinsonsEN
Are any of these presentations available to watch Fiona please ? H
Lynn Rochester delivering the final presentation @ParkinsonsEN conference - The future of digital technology and wearables in Parkinson’s
Toghea @TogheamUxL
96 Followers 3K Following
Drew Hallam @AndrewHallam5
126 Followers 199 Following living with Parkinson’s, trying to make a difference bigger than my size
Larry Gifford @Giffordtweet
3K Followers 1K Following Cofounder and President of PD Avengers. Cohost of @parkinsonspod. DX 2017, DBS 2023. #LEGO, #Announcer #Host #Ambassador #Keynote #Speaker
Chris Duffy (The Park... @theparkynext
546 Followers 876 Following The real slim shaky. Author Grumpy Granddad . Fish keeper. Poet, Bigot, Writer. Insomniac or Maniac, Has PD but puts up a good scrap !
Shafaq @Dr_SF_Hussain
882 Followers 1K Following Professional Tooth Fixer and unintentional PD fighter since July '19. Co-chair @ the BDA Benevolent Fund.
Lisa Nicholas @lisanicholas_x
1K Followers 2K Following Reader, writer, dog lover. Author of the Mila Kiss mysteries. Buy the latest instalment, MOTHER, REBEL, MISFIT, SLEUTH, here: https://t.co/d1FEhZ6biV
Charlotte Maria @M2M_Academy
10K Followers 3K Following Director @_mind2muscle Clinical Rehabilitation for Neurological / Mental Health - Medical & Health Clinics. Training Academy - Founder Mind2Muscle Charity
Braindisorder Congres... @BraindisorderC
210 Followers 2K Following Brain Disorders 2020 Invites and welcomes delegates, presenters, sponsors, and exhibitors from allover the globe to Barcelona, Spain. We are delighted to invite
togetherforsharon @togetherforsha1
1K Followers 4K Following TogetherForSharon® in memory of my mom, Sharon Riff Ackerman for Parkinson’s disease awareness and hope for a cure. Author. Sharon’s son, George
Andrew Butler 💙�... @AndySambut
1K Followers 2K Following All Views My Own. Worldwide Parkinson’s Disease Advocate. Board Member Of Parkinson’s Europe. https://t.co/8vyg9Ykqaz
Becky Potter @Becks86Hill
38 Followers 111 Following I love the amazing people I have the privilege to know. ❤️ ❤️
MyelinatedFilms @MyelinatedFilms
42 Followers 397 Following film production #startup devoted to #empowering the informationally disadvantaged electorate with cinematic medical #documentaries; first project = #parkinsons
Matthew Bucci @mcbsid23
1K Followers 5K Following Retired educator, #BookNerd; I, Me, He, Him. 3 daughters betwn 14-20. Tweets are mine. #MusicLover; Have Parkinson’s, but try to live as a #PositiveParky
Rickety Warrior 🦋 @RicketyWarrior
992 Followers 3K Following 60 year old Parkinson's Warrior diagnosed 2018. Parkinson's advocate and volunteer. Motivational Parkinson's speaker nationally and on the global stage. 🌷 🦝
Russ & Charlotte “t... @weofferrealcare
562 Followers 809 Following Experts in Patient Engagement Consultants, Consultants for Pharma, & Research. Campaigning for Personalised Care. People Connectors.
Grove Ayers @GroveAyers
2K Followers 2K Following Grove. Amalgamist. @JLL GM, @UOsojc alum, @Brkfldproprtl alum, @NWParkinsons board, @CharityMiles Ambassador, @MichaelJFoxorg Advocate, @WorldPDCongress guy.
Andy Bjornson @andybjornson1
1K Followers 5K Following Passionate about Transforming Living with #Braininjury #MS #MSsucks,Using New(OLD) Neuro #Technology #Electronics #Electricity & #Me.
Isabella Signs @IsabellaSigns
10K Followers 1K Following Sign vids, and lifestyle content All my other socials ⬇️ Verified on IG and Fb! 478k Tiktok 202k on Insta!!
Alex Juvenile Parkins... @JuvenileAlex
196 Followers 206 Following Hi I am Alex's mum I am tweeting for him. I got diagnosed wit Juvenile Parkinsons Disease when I was 11. I am living life the best way I can by having fun!!
Sandrine Perrot @SandrineMartel4
105 Followers 483 Following
Phil B @philnlouise
831 Followers 2K Following Hubby, dad, PwP & SPG7, member of @UKHSPGroup, Sec of Medway’s NVDi, co-chair of @Medwayneuro1 & Ass Mem @UniKent /PCIT
Rev. Dr. James Jacob ... @RevDrJamesJaco2
255 Followers 4K Following Disabled Veteran: US Army-Gulf War Era; Parkinson's Disease Plus patient with DBS implant. Social Security/Medicare/Medicaid recipient.Defende of the US Constit
Parkinson's Humor �... @YumaBev
4K Followers 2K Following Parkinsons symptoms since the 80's, finally diagnosed in '07, bilateral STN DBS in '12. Funny stories & helpful tips about life. Come laugh with me 🤣
MSA-AMS Canada @Canada_MSA_AMS
197 Followers 802 Following MSA-AMS CANADA - multiple system atrophy; leading the way to help Canadians with MSA...
Sceneray @Sceneray3
50 Followers 172 Following Professional Deep Brain Stimulation System Manufacturer.
Parkinson's Magician @DRabotnick
352 Followers 1K Following Raising Parkinson's Disease awareness, 1 magic trick at a time!
Defeat MSA Alliance @DefeatMsa
2K Followers 5K Following Defeat MSA Alliance: Multiple System Atrophy; A Public Non-Profit Charity, 501(c)(3)
HOPE MSA @MSAhope
839 Followers 4K Following
Birgit Bauer @Birgitpower
3K Followers 2K Following Initiatorin @DSL_Deutschland #DigitalHealth & #SocialMedia Expert #PatientExpert, blogger, HIMSSFuture50, member of @sciana, about: https://t.co/HagxEbmTIl
The Dystonia Guy @TheDystoniaGuy
332 Followers 2K Following Any media enquires - [email protected] Instagram - @thedystoniaguy #dystonia
Ryno @Loubser_Ryno
80 Followers 661 Following Don't be discouraged for I am your God - Isaiah 41:10 Positivity is a choice.
Neurosurgery Cocktail @BipinChaurasia_
35K Followers 6K Following Connecting Neurosurgeons Worldwide
K Ray Chaudhuri @KRayChaudhuri1
3K Followers 675 Following Director Parkinson Centre of Excellence, Professor of Neurology, Movement Disorders at King’s College London. Research Director and EDI lead ARC.
Identify NeuroEvents @NeurologyEvents
8K Followers 5K Following #IdentifyEvents #NeurologyEvents tweets on upcoming worldwide Neuroscience & Neurology Conferences,Travel Grants, Fellowships etc Follow & start tracking events
Carole Sian @scrufton73
2K Followers 3K Following @FibroFlutters #patientspeaker #ChronicIllness #ChronicPain #hEDS #MentalHealth #IBS #rare #ZebraStrutters #patientengagement MYH11 & TNFRSF13B gene mutations
WPC 2029 @WorldPDCongress
7K Followers 911 Following Only global meeting to include ALL members of the Parkinson's community. #WPC2029 #parkinsons #neurology #neuroscience BLOG: https://t.co/3zK88CQ4oS
Parkinson's Research ... @PDresearchadvoc
1K Followers 939 Following The Twitter Page of the patient lead Facebook forum for discussion on PD research. https://t.co/VxU3Mr5YJW
iDEA @idea_award
8K Followers 5K Following The Inspiring Digital Enterprise Award (iDEA), helps people enhance their chances in life & on the job market with digital & enterprise skills for free.
Steve Petherbridge�... @sjpetherbridge
549 Followers 1K Following Vice President @seniorsparl Dir @DystoniaIreland; DBS surgery @uclh @QSNeurosurgery @mdtneurosurgery in 2016; Admin @DystoniaIreland; Student @AgeFriendlyDCU;
Matt W @neuromatty
878 Followers 4K Following Med student on pause with an RNS device⚡️Following neuromodulation for neuropsych, epilepsy, Parkinson’s⚡️
NEXT Pharma Summit @SummitNext
1K Followers 4K Following NEXT: Sharpest #pharma #commercial and #medical event. Dubrovnik - May 20&21, 2025 Vienna - Nov 18&19, 2025 #digitalhealth #pharmaevent #nextpharmasummit
Tim Blake @timblake1978
51K Followers 46K Following #digitalhealth disruptor. blogger. speaker. engaged patient and carer. former health cio. deep thinker. genetic genealogist. husband and dad.
Philipp Brunnbauer @PBrunnbauer
160 Followers 268 Following Founder of @medenginegmbh trying to improve #Parkinsons care through technology!
Faux_Report @faux_report
2K Followers 3K Following Exposing the lies of FoxNews, Trump and Putin and the small men that spread them.
The New Music Film @thenewmusicfilm
765 Followers 915 Following Adrian, a 25 y/o pianist struggling with Parkinson's & the punk band who help him live again |Written/Directed by Chiara Viale | Spirit of IndieCork Winner '19
Adam Benyo @Adam_Benyo
7 Followers 16 Following
Flutters and Strutter... @FibroFlutters
3K Followers 4K Following Non Profit for chronic (FibroFlutters) & rare illnesses (ZebraStrutters) Patient Advocacy Organisation
Quand Parkinson éton... @Cinquanteet1
205 Followers 374 Following Jean-Louis Dufloux is born in Paris in 1960. Diagnosed with PD at 51. Trying to give a more accurate image of this pathology through my books and my blog.
Brand+Code @brandcodedesign
30K Followers 19K Following Creative agency based in London and the North of England. Email: [email protected]
MedEngine @medenginegmbh
237 Followers 373 Following MedEngine is helping people with Parkinson's lead a better life through the development of wearable medical technology. #Parkinsons #MedTech #Wearables
Parkinson's News Toda... @parkinsonstory
2K Followers 3 Following Your source for Parkinson's disease news, support, & real stories from the community. Let’s raise Parkinson's disease awareness together!🎗️
American Parkinson Di... @APDAParkinsons
5K Followers 1K Following Every day we provide the support, education, and research that will help everyone impacted by Parkinson’s disease live life to the fullest. Call: 800-223-2732
Arlene Smyth @TSSSARLENE
282 Followers 237 Following I am executive officer of the Turner Syndrome Support Society UK working to improve information and understanding about Turner Syndrome.
Mama Twist @MrsAnneTwist
2.4M Followers 668 Following I'm just me. Take me or leave me & don't forget to smile.
Laurence Woollard @TheWoollard
1K Followers 611 Following Director @PulseInSync | Advocacy & Policy in Rare Disease | Patient Research Team Leader @IMABQistudy @uniofeastanglia | MSc Health Policy @imperialcollege
Dr Kate Khair PhD @katekhair
1K Followers 860 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Haemophilia Journal @haemophilia_jnl
2K Followers 294 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee Chair. Wife & mum, artist, forever learning. Winner of Nursing Times Nurse of the Year Award 2024. Opinions are mine.
Haemophilia Society @HaemoSocUK
5K Followers 703 Following For everyone with a bleeding disorder. We're a member organisation supporting the UK bleeding disorder community through information, events and advocacy.
Brian O Mahony @Brianhemophilia
3K Followers 505 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
World Federation of H... @wfhemophilia
8K Followers 169 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
EAHAD @EAHADnews
3K Followers 459 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
EHC_Haemophilia @EHC_Haemophilia
3K Followers 420 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
World's Toughest Row @toughestrow
4K Followers 92 Following The Adventure of a Lifetime. #pacific2028 June 10th #atlantic2026 Dec 12th Organized by Atlantic Campaigns
emily m @maitlis
547K Followers 2K Following #TheNewsAgents host. Newsnight, BBC2 Interviews with Prince Andrew, Donald Trump, Mark Zuckerberg, Keir Starmer James Comey , Bill Clinton. Appalling typing.
Livewell Southwest Pa... @plymouthPDnurse
324 Followers 474 Following Plymouth community Parkinsons nurse service.
Shafaq @Dr_SF_Hussain
882 Followers 1K Following Professional Tooth Fixer and unintentional PD fighter since July '19. Co-chair @ the BDA Benevolent Fund.
Clare Lindley @LindleyClare
431 Followers 546 Following
Drew Hallam @AndrewHallam5
126 Followers 199 Following living with Parkinson’s, trying to make a difference bigger than my size
Lisa Nicholas @lisanicholas_x
1K Followers 2K Following Reader, writer, dog lover. Author of the Mila Kiss mysteries. Buy the latest instalment, MOTHER, REBEL, MISFIT, SLEUTH, here: https://t.co/d1FEhZ6biV
Charlotte Maria @M2M_Academy
10K Followers 3K Following Director @_mind2muscle Clinical Rehabilitation for Neurological / Mental Health - Medical & Health Clinics. Training Academy - Founder Mind2Muscle Charity
Sarah Webb (Cowen) @slwcowen
353 Followers 912 Following Diagnosed with Parkinson’s @ 39. Founder of South London Younger Parkinson's Network(SLYPN). Needs a Cure.
i-PROGNOSIS Project @i_PROGNOSIS
530 Followers 437 Following @EU_H2020 funded research project on Intelligent #Parkinson early detection guiding novel supportive interventions. Tweets are views of project owner only.
Paul Long @PaulLon38966526
89 Followers 309 Following
Mind2Muscle®️ @_Mind2Muscle
3K Followers 2K Following Rehabilitation for Neurological and Mental Health & Long-Term Conditions - Leading Education & Training Academy
Adam Benyo @Adam_Benyo
7 Followers 16 Following
Philipp Brunnbauer @PBrunnbauer
160 Followers 268 Following Founder of @medenginegmbh trying to improve #Parkinsons care through technology!
Parkinson's Research ... @PDresearchadvoc
1K Followers 939 Following The Twitter Page of the patient lead Facebook forum for discussion on PD research. https://t.co/VxU3Mr5YJW
Neurosurgery Cocktail @BipinChaurasia_
35K Followers 6K Following Connecting Neurosurgeons Worldwide
MSA-AMS Canada @Canada_MSA_AMS
197 Followers 802 Following MSA-AMS CANADA - multiple system atrophy; leading the way to help Canadians with MSA...
Isabella Signs @IsabellaSigns
10K Followers 1K Following Sign vids, and lifestyle content All my other socials ⬇️ Verified on IG and Fb! 478k Tiktok 202k on Insta!!
Grove Ayers @GroveAyers
2K Followers 2K Following Grove. Amalgamist. @JLL GM, @UOsojc alum, @Brkfldproprtl alum, @NWParkinsons board, @CharityMiles Ambassador, @MichaelJFoxorg Advocate, @WorldPDCongress guy.
Rickety Warrior 🦋 @RicketyWarrior
992 Followers 3K Following 60 year old Parkinson's Warrior diagnosed 2018. Parkinson's advocate and volunteer. Motivational Parkinson's speaker nationally and on the global stage. 🌷 🦝
Braindisorder Congres... @BraindisorderC
210 Followers 2K Following Brain Disorders 2020 Invites and welcomes delegates, presenters, sponsors, and exhibitors from allover the globe to Barcelona, Spain. We are delighted to invite
togetherforsharon @togetherforsha1
1K Followers 4K Following TogetherForSharon® in memory of my mom, Sharon Riff Ackerman for Parkinson’s disease awareness and hope for a cure. Author. Sharon’s son, George
Andy Bjornson @andybjornson1
1K Followers 5K Following Passionate about Transforming Living with #Braininjury #MS #MSsucks,Using New(OLD) Neuro #Technology #Electronics #Electricity & #Me.
Russ & Charlotte “t... @weofferrealcare
562 Followers 809 Following Experts in Patient Engagement Consultants, Consultants for Pharma, & Research. Campaigning for Personalised Care. People Connectors.
YOPD TV @YOPDtv
324 Followers 156 Following The purpose of @yopdTV is to raise awareness and some understanding of what #Parkinsons at a younger age is and what it isn't. Admin @tapehead81 #yopdtv #yopd
Becky Potter @Becks86Hill
38 Followers 111 Following I love the amazing people I have the privilege to know. ❤️ ❤️
Alex Juvenile Parkins... @JuvenileAlex
196 Followers 206 Following Hi I am Alex's mum I am tweeting for him. I got diagnosed wit Juvenile Parkinsons Disease when I was 11. I am living life the best way I can by having fun!!
Laila Ali @TheRealLailaAli
122K Followers 307 Following Undefeated 4 Time World Champion Boxer 24-0 with 21 KO's....Television Host, Fitness & Wellness Expert, Author, Speaker, Mother, Wife...And I can cook!
Lynn Duffy @DrLynnDuffy
60 Followers 100 Following Former scientific copy writer @ParkinsonsUK. Lover of tea. Views are my own
JanetShipton @PPaintingwith
627 Followers 558 Following Janet Shipton: Artist, Parkinson’s Activist and ‘Parky Player’. Enjoying art, creativity and making the most of life. Also see @parkyplayers
genna @imgennawithag
72 Followers 156 Following
ParkinsonCommunityTV @PDCommunityTV
52 Followers 36 Following 'That Person You See is Me' ( #TPYSIM ) Featuring weekly VLOG's by people living with #Parkinsons @youtube live streams.
Lizzie @LizziePerdeaux
199 Followers 139 Following Medical writer, geneticist and rare disease patient advocate. Views are my own.
Rev. Dr. James Jacob ... @RevDrJamesJaco2
255 Followers 4K Following Disabled Veteran: US Army-Gulf War Era; Parkinson's Disease Plus patient with DBS implant. Social Security/Medicare/Medicaid recipient.Defende of the US Constit
Sceneray @Sceneray3
50 Followers 172 Following Professional Deep Brain Stimulation System Manufacturer.You might like
Russ & Charlotte “t...
@weofferrealcare
562 Followers
Dilys
@dilysnz
270 Followers
Team Fox
@TeamFoxDetroit
327 Followers
Jane Smedley
@smedley_j
206 Followers
Mari S
@dottie_123
261 Followers