Without a Map @WithoutaMap2023

Come find me at @WithoutaMap.bsky.social Navigating long-term illness Without a Map or compass and finding a cure... UK Joined February 2023

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tern @1goodtern

2 weeks ago

Long Covid Physio had 25k followers on their old account, but they were locked out and have started a new one. Follow them here and let's see if we can get their 25k back! 👇

Long Covid Physio @LC_Physio

2 weeks ago

Long Covid Physio had 25k followers on their old account, but they were locked out and have started a new one. Follow them here and let's see if we can get their 25k back! 👇

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Hey @BBCNews, next time, instead of speaking with a TV psychiatrist and motivational speaker (this is how 'Dr. T' defines himself), why don't you speak with the scientists actually investigating what Brain fog is? #NeuroCovid #LongCovid

BBC News (UK) @BBCNews

2 weeks ago

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charlos @loscharlos

2 months ago

This is wild — adding #LongCovid or #MECFS blood to healthy muscle tissue leads to mitochondrial and structural collapse. There must be something measurable in the blood?

thetranscendedman @atranscendedman

2 months ago

This is wild — adding #LongCovid or #MECFS blood to healthy muscle tissue leads to mitochondrial and structural collapse. There must be something measurable in the blood?

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Grok @grok

2 months ago

@WithoutaMap2023 @simonmaechling The petition opposes reintroducing acetamiprid (banned in France since 2018), citing evidence of sublethal harm to bees (e.g., disrupted gut microbiota, reduced survival) and potential human risks like neurotoxicity. While EFSA deems it low-risk at approved doses, studies show…

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tern @1goodtern

3 months ago

'Deaths in Service' of NHS England staff were pretty consistent for years. Then Covid infections came. And the deaths increased. And then they kept increasing. #SicknoteBritain

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Without a Map @WithoutaMap2023

4 months ago

A view from within open.substack.com/pub/withoutama…

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The Vertlartnic @TheVertlartnic

4 months ago

Covid Is Surging, So Remember To Protect That Important Bit Of Your Neck Just Under Your Chin.

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Without a Map @WithoutaMap2023

4 months ago

When people ask, "are you any better?", they don't usually want a conversation about where you are and how bad it is..... They want a yes thanks, a bit, improving slowly, kind of response. Reactions to, "no, not really". Can be met with total disbelief ☹️

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Without a Map @WithoutaMap2023

4 months ago

I have new found empathy for people with invisible long term illnesses. Looking out from within an illness is completely different to being on the outside looking in. If you haven't had the experience it's so difficult to make your illness understandable to others.

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Without a Map @WithoutaMap2023

4 months ago

In the depths of Long COVID I didn't know whether I would ever be able to recover; Or if there would be lasting damage as a result of being ill for so long. That is very isolating and worrying... Even with brilliant support from my family I've never felt as alone

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Without a Map @WithoutaMap2023

4 months ago

Confucius said, "if language is not correct, then what is said is not meant; If what is said is not what is meant, Then what ought to be done remains undone". I think this applies specifically to language we use to describe symptoms. Exhaustion and brain fog = very misleading

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Prof Katherine Sleeman @kesleeman

5 months ago

Ahead of today’s assisted dying Bill debate, I thought I’d do a thread of FALSE FACTS. You know… campaigning soundbites, PR spin. That come up again and again. And are persuasive… but wrong.

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Resia Pretorius @resiapretorius

5 months ago

🧵1/7 🚨 New preprint alert with @dbkell and team! Our latest study explores Post-Vaccination/Post-Infection Syndrome (PV/PIS). We used plasma proteomics to uncover its immune & clotting abnormalities: It can be found at: 10.21203/rs.3.rs-6521005/v1

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Stella Chadwick | Functional Medicine @stella_chadwick

6 months ago

You saw it happen. Your child got sick - and everything changed. Speech slipped. Anxiety soared. The light dimmed. And no one could tell you why. Now a new study has quietly confirmed what you’ve known all along: The immune system can drive autistic symptoms. Researchers…

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Simon Maechling @simonmaechling

6 months ago

I’m a scientist. Every time I hit "post," I hesitate. Not because I doubt the science. But because I know what’s coming....1/

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Without a Map @WithoutaMap2023

7 months ago

I often think how difficult it is to appreciate other people illness… I didn’t always think like this. I’m embarrassed to say that I was always sceptical of the long term, undiagnosed ill. substack.com/profile/170209…

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Health | Wellness | Nutrition @NutritionTipzzz

7 months ago

Meet Big Pharma’s greatest foe. Barbara O’Neill. This 71-year-old woman’s banned healing methods have saved millions of lives. I've collected her top 8 lessons:

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Boo-trino Lab @PutrinoLab

7 months ago

A tumultuous 24-ish hours since our preprint was released yesterday. I mentioned that this was a fraught issue and I genuinely do understand that people have mixed feelings about the work. I wanted to take some time to respond to some of the concerns and comments that have 1/

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Prognostic Chats @PrognosticChats

7 months ago

Hey. Just in case you were wondering. Today. Like right now. Is “during Covid”.

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Nattokinase.info @natto_info

3 years ago

The top benefits of nattokinase: ➡️ Regulate blood pressure ➡️ Boost gastrointestinal health ➡️ Eliminate blood clouds ➡️ Lower the risk of Alzheimer's ➡️ improve cardiovascular health ❤️