A.S.A.P. Be Informed @asapbeinformed
A.S.A.P.'s purpose is to advocate and educate in South Florida for those affected by Sickle Cell Disease or Trait as well as bring awareness to the community. facebook.com/AsapBeInformed Florida, USA Joined August 2015-
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Participating in sickle cell research studies help aid in the progress of finding better treatment options and hopefully one day having a universal cure for sickle cell disease. How do you feel about sickle cell studies? Have you participated in any? What was your experience?
Thank you for your interest in our Virtual Chronic Pain Self-Management Program. Unfortunately, due to the overwhelming response our current session is full. We will notify you of the next date when it is made available. For questions please contact us at [email protected]
Check out A.S.A.P. Be Informed's video! #TikTok tiktok.com/t/ZT8EHJCje/
What other “sickle tips” do you use to manage you or your child’s sickle cell? #sickletips #sicklecelldisease #asapbeinformed
Hey Sickle Village! What’s the hardest part of self advocacy for you as a warrior? How can we as a community support and equip you better? #sicklecell #sicklevillage #asapstrong #advocacy
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Stay current with the Pediatric Blood & Cancer research article, The relationship between cumulative risk and health-related quality of life in youth with sickle cell disease: Moderating effects of secondary control engagement coping. #PedsHemeOnc #SCD ow.ly/xfFO50Rf7YZ
Nicklaus Children's Hospital is routinely ranked among the best in the nation by U.S. News & World Report for Neonatology! Apply today! Physician/Attending - Urgent Care - Miami, FL (Full Time, Evening shift) bit.ly/4aZo6Tv #MD #HealthcareWorkers
Exciting news to share…we wrote a book! A 📕 for kids about #sicklecell! A 📘 you want to share w/ teachers, neighbors, friends. A 📗 you want to read w/ your kid bc it’s important for them to know more about a disease that affects so many in our 🌎. a.co/d/iX3cAFG
Join us for a captivating virtual interview at Author's Corner on April 19, 2024, at 4 pm PST/7 pm EST! 🎉 We're thrilled to feature Joyce Koomson. An incredible sickle cell caregiver and author behind "Captain Blue vs. The Red Crescent Moon." Register eventbrite.com/e/authors-corn…
National Minority Health Month is a chance to spotlight health disparities that impact racial & ethnic minority communities. This serves as a crucial reminder of the significance of health education, early detection, & efforts to control diseases. bit.ly/3t8dYm0
ASH needs #hematologists w/ the following expertise to join the Scientific Committee on Bone Marrow Failure: 🩸Inherited clonal hematopoiesis 🩸Telomere biology disorders 🩸Acquired severe aplastic anemia Details: ow.ly/lFmp50RbNx3 Tag someone who should see this!👇
Just a quick #Psa family hope this encourages someone today rest of this week💜💜💜
If you’re drinking GREEN in the morning, you’re doing the right thing💚💚💚 We’re dropping our NEW green juice this month and we’re excited!!!! Couple your juice with a #WellnessShot for added benefit and impact ✨
Make your mark on the world by empowering the next generation! 🌟🤝 Sickle Cell Foundation of Georgia is committed to IMPACT. Join us as we continue to make an impact in the world, make your donation today: sicklecellga.networkforgood.com/projects/18611… #sicklecell #sicklecellawareness
Are you a dedicated caregiver looking to expand your knowledge and network? Join us at the Caregiver Summit. If you need additional assistance to participate in the 3rd Annual Caregiver Summit. Contact us at [email protected] to request a scholarship.
This weekend @umichmedicine hosts its Sickle Cell Symposium on Saturday, Nov 18th from 9am-3:30p. There’s still time to registered. Come learn from industry and patients experts, ask questions ! #SCDAAMI #SCDAA #LivingWithSickleCell #SickleCellDisease #SickleCell #Symposium
Register today for the Caregiver Summit and follow @SCCConsortium for more information zoom.us/webinar/regist…
A warrior can avoid every known trigger in Sickle Cell and still have a crisis. So don't assume that a warrior isn't taking proper care of their body or avoiding their triggers because they have a crisis.
“I’m the mother of two daughters. I lost one daughter in 2018, she was my baby girl at the age of 25. She has a sister who’s still a warrior right now. . . . #Caregiver #Caregivermonth #Warriors #sicklecell #parent
It's Wellness Wednesday! Plan Ahead for Pregnancy: If you're considering pregnancy, consult your doctor well in advance to discuss the potential risks and how to manage your condition during pregnancy. #sicklecell #sicklecellawareness #sicklecellwarrior #sicklecellanemia
If you're not a chicken, then don't run from the fun! Join Dr. Ralph Levy at the 2023 @TurkeyTrotFTL. Make the meaning of Thanksgiving more fulfilling by participating in this years 5k walk/run. Your contributions help strength our community! Sign up 👉 turkeytrotftl.com
#TBT to when the City of Miami Gardens named July 30th ASAP Day! We proudly sponsored the #SickleCell Awareness and Wellness in the Park event with the Advancing Sickle Cell Advocacy Project (@asapbeinformed). #SickleCellAwarenessMonth #SickleCellWarriors
You are destined for victory 🎗🏅💪
Ask yourself this: could HEMLIBRA be right for my patients? Full PI, incl. BOXED WARNING: bit.ly/2kp959s
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