Paul @atar2mcs
Joined October 2012-
Tweets261
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Followers14
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Following185
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Likes157
What do patients and their families want from clinical trials? I will be exploring this with a panel of trial participants at the #2024ARCS conf next week. But, how would YOU answer this question? Let me know in this quick survey by 12 Jun, 8 am AEST. bit.ly/WhatPtsWantFro…
Want to find out your biological age? @davidasinclair and others are developing a new test - see youtu.be/mrnQkA8I6DQ?t=… for a brief discussion. If that sounds good, you can join the waitlist at tallyhealth.com/?r=zr1NM
What medical laboratory tests might be or are useful in diagnosing #LongCovid ? Suggestions appreciated for an international meeting I'm attending end of next week. (On which I'll be able to share more after the event.)
The need for improved Australian data on social determinants of health inequities - @theMJA letter from the CRE-DH @JodieBailie1 onlinelibrary.wiley.com/doi/10.5694/mj…
The MCS-Aware Autumn/Winter 2022 magazine is out! We talk about; Living with Chronic Illness Ways to Cut Costs Brain fog Electro sensitivity Join us for more discussion about Multiple Chemical Sensitivities @MCSAware
🧵1/My sister caught Covid when she visited the UK 8 weeks ago. Since returning to Australia she&the kids have had: -tonsillitis -Then another virus -The kids then got hand,foot&mouth -Now they all have metapneumovirus. Respiratory centres in oz are doing viral swabs for these…
I think that there is lots of useful stuff to help people with #chemicalsensitivity #MCS #environmentalillness #EI #invisibleillness #chronicillness #LongCovid #mecfs challenge the "it's all in your mind" claims in abc.net.au/radionational/… Thanks @DavidPZone and @DianeOLeary!
Wtaf @AustralianLabor. In a meeting on Thurs to elect the Chair of the #NDIS Joint Standing Committee, Labor overlooked the only disabled member in favour of their own party, so Libby Coker was nominated as chair. Okay, politics. But then THEY SECONDED HOLLIE HUGHES AS CO CHAIR.
Will 2022 be the year primary healthcare takes a step up? By @stephenjduckett HT @cohealth_au @JenniferDoggett @NACCHOAustralia @LeanneWells63 @Mark_Butler_MP @Kavanagh_AM croakey.org/will-2022-be-t…
Excellent little video on ableism from United Nations Human Rights vimeo.com/492480733
Measuring the inequalities experienced by Australians with disability: Today we launch the Baseline Data Report for the Disability & Wellbeing Monitoring Framework #PWD 🎨credit: Alvaro Alvarez @artsprojectaust ses.library.usyd.edu.au/bitstream/id/0…
As #AusVotes people with #disability not in the #NDIS are being forgotten. @DisabilityHlth @mdi_unimelb Concern millions of Australians with disability not on the NDIS have been 'forgotten' abc.net.au/news/2022-05-1… via @ABCaustralia
My GP & ED friends are absolutely exhausted.The pandemic has exposed the flaws in the healthcare system but the flaws have been there all along. We are too reliant on the goodwill of HCWs. We need ⬆️beds ⬆️nurses ⬆️drs ⬆️allied health workers and we needed them yesterday
Patients have an exaggerated idea of how much doctors can heal them, while doctors are painfully conscious of their limited powers. Doctors are reluctant to be fully honest about their limitations. bmj.com/content/377/bm…
Thanks for iview.abc.net.au/show/my-story/ @esioul! I caught it earlier when it was repeated on @ABCTV. What a great programme. Real stories presented "just right".
Would you like to lead or co-lead your own conversation on health & care improvement topics that matter to you? 💬Apply to lead an Open Conversation!💬 🗓️They will be held on day 2 of The Big Conversation (12 May) Find out more: thebigconversation.nhs.uk #ImprovingTogether
#COVID19 is becoming endemic. But we can’t buy into the delusion that is a synonym for harmless. If there is one overarching lesson from the pandemic, it is that messaging matters. We need a lot less black-and-white, and a lot more grey. By @picardonhealth theglobeandmail.com/canada/article…
1/ Very proud of sharing our new @CHEMTrust report today Chemical Cocktails: The neglected threat of toxic mixtures and how to fix it chemtrust.org/chemicalcockta… A thread 🧵with the key messages, recommendations and infographics #cocktaileffect #mixtures
Mae @m_spraggins33
279 Followers 3K Following
Diane O'Leary, PhD @DianeOLeary
3K Followers 2K Following Philosophy of medicine/phil of mind/bioethics. Rct visiting faculty @Center4PhilSci & @RotmanPhilo. Smtms disabled by chronic disease. Happy #IndependentScholar
ASEQ EHAQ @aseqehaq
445 Followers 579 Following Le lien entre la #santé et l'#environnement.🖼Rejoignez-nous! The 🔗 between #health & the #environment. Join us! #MCS #SCM Follows/RTs❌approbation/endorsement
SDS Network @SDSNetwork
315 Followers 329 Following Network to share information and support for people working to create systems of self-directed support - working with #UNICproject - part of @citizen_network
allyann @me_allyann
2K Followers 5K Following Living with & advocating for ME, POTS & FM, ex IT. Homebound & at times bedridden. I regularly delete tweets. @allyann.bsky.social #mecfs #pots #fm #endo
Janelle Bowden @JanelleBowden
2K Followers 1K Following Muddling through. Passionate abt #medicalresearch #clinicaltrials #technology #innovation #patientvoice #ppi #patientengagement #womeninstem @AccessCR she/her
Basic Income Forum @UBIforum
1K Followers 976 Following ❗️Introducing #basicincome ❗️Making the case for basic income ❗️Answering the objections to basic income | Editor @Geoff_Crocker
Detoxing For Health @Detoxing4Health
2K Followers 5K Following Detox Your Body To Live A Healthy Life
AccessCR @AccessCR
1K Followers 1K Following A social enterprise helping researchers & industry engage and involve the community and consumers in their R&D, while supporting the #CCReW to be involved.
CivilSocietyOz @CivilSocietyOz
15K Followers 18K Following Civil Society Australia is the peak body for civil society in Oz (associations, groups and social relationships outside government and the market). Join us.
Reboot Box @Reboot_Box
363 Followers 2K Following Reboot Box will to help you incorporate quality products into your life without harmful chemicals! See how we can help you with our monthly subscription box!
#SQM #SFC #FM @SindromeSQM
1K Followers 877 Following Síndrome de Sensibilidad Química Múltiple / Síndrome de Fatiga Crónica / Fribromialgia/ Enfermedades emergentes.
Dr Sarah Myhill @MyhillNews
7K Followers 5K Following Pls do not use to report health concerns. Detailed questions about Dr Myhill's protocols not answered.
Social Health Network @socialhealthnet
54K Followers 38K Following A community for patients, caregivers & healthcare professionals with the goal of bringing empathy & humanity to healthcare.
Neurology Today @NeurologyToday
65K Followers 3K Following The official news source of the American Academy of Neurology, published by Wolters Kluwer.
Eric Topol @EricTopol
679K Followers 607 Following physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP and Ground Truths: https://t.co/YhatcBT0hA
S Blitshteyn MD, FAAN... @dysclinic
21K Followers 2K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
LongCovidPharmD @organichemusic
35K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS researcher & clean air advocate. Here to share & learn. Tweets not medical advice. https://t.co/lKQezPwtQs
AHHA @AusHealthcare
11K Followers 578 Following The voice of public healthcare in Australia. Publisher of Australian Health Review. Join us and support our work at: https://t.co/pw7HBloFkE
HEAL Network - Health... @HEALenviron
945 Followers 955 Following Australia-wide initiative catalysing research, knowledge exchange and translation into policy and practice to improve our health and the environment.
Muggs ❎ @ElMuggs
201 Followers 276 Following Casual Gamer, Serious Geek studying Public Health @Deakin. Human Pollution Detector, DM of the #RavenloftRemix Campaign, Living in the #DumbestTimeline
Stephen Duckett @stephenjduckett
14K Followers 186 Following health policy & management person ex: Grattan Institute, CEO Alberta Health Services, Secretary Australian Health Department. Not all retweets endorsed
Diane O'Leary, PhD @DianeOLeary
3K Followers 2K Following Philosophy of medicine/phil of mind/bioethics. Rct visiting faculty @Center4PhilSci & @RotmanPhilo. Smtms disabled by chronic disease. Happy #IndependentScholar
The Chemical Sensitiv... @podcastingmcs
867 Followers 4K Following Podcast amplifying voices of people with Multiple Chemical Sensitivity (MCS) and research about the illness. Subscribe where you get your podcasts! 🎙️🎧✨
Accessibility Awarene... @A11yAwareness
19K Followers 2 Following Bot by @PatrickMGarvin. Helping you better understand web accessibility for people with disabilities. @[email protected]
Dr Julie Schneider @JulieSChemPollu
325 Followers 303 Following Ex Senior campaigner @CHEMTrust now incapacitated by ME/CFS Chemical pollution from persistent chemicals #PFAS Environment, wildlife and biodiversity #MECFS
CHE @CHE_healthenv
3K Followers 1K Following The Collaborative for Health & Environment (CHE) amplifies environmental health science to promote a healthier world for all.
Clean Air Australia @Lamamu63393009
702 Followers 636 Following Clean Air For All. Advocate for human rights. Sufferer of Air pollution. Scientist: BBiomedicSci, (Hons in Phys), MHumNutDiet.
Dylan Alcott @DylanAlcott
59K Followers 2K Following Insta @dylanalcott | Australian Paralympian 🏅🏅🏅| Tennis player 🎾🎾 | Speaker | Dylan Alcott Foundation
AMA President @amapresident
36K Followers 1K Following Dr Danielle McMullen FRACGP Leading Australia's Doctors, Promoting Australia's Health. Follow AMA_Media on Twitter @ama_media
PX Journal @PXJournal
2K Followers 67 Following #PXJ is an international, open-access, peer-reviewed journal sharing research, proven practice on #patientexperience. Published in association w/@berylinstitute
The Beryl Institute @BerylInstitute
7K Followers 2K Following The global community of practice dedicated to improving the #patientexperience through collaboration and shared knowledge #ptexp #pxmatters
Getting It Right Firs... @NHSGIRFT
17K Followers 790 Following GIRFT is a clinically-led NHS improvement programme using benchmarking data to support best practice, reduce variation and improve patient outcomes.
Melanie Cheng @mslcheng
3K Followers 1K Following Writer, GP. Author of Australia Day' Text 2017, ‘Room for a Stranger’ Text 2019, ‘The Burrow’ Text 2024, Tin House 2024.
FluTracking @Flutrack
2K Followers 2K Following Online weekly survey of respiratory symptoms in Australia & New Zealand.
The Q community @theQCommunity
23K Followers 6K Following We are a community of thousands of people across the UK and Ireland, collaborating to improve the safety and quality of health and care.
Annie Laverty 💙 @annielaverty
3K Followers 1K Following Proud Mam of Geordie Boys. Chief Experience Officer - Newcastle Hospitals. Health Foundation Generation Q fellow. Tweets my own.
Clean Air Communities @CAirCommunities
664 Followers 223 Following Breathing is a basic biological imperative for life - and so it is a basic right to have #CleanAir, everywhere, all the time #StopBurningStuff 🛑🔥
SDS Network @SDSNetwork
315 Followers 329 Following Network to share information and support for people working to create systems of self-directed support - working with #UNICproject - part of @citizen_network
Building Better Homes... @BetterHomesAus
414 Followers 228 Following Join the campaign to make housing accessible for all Australians.
BODY POLITIC @itsbodypolitic
21K Followers 366 Following Grassroots health justice org at the forefront of the patient-led #LongCovid movement. Home of Body Politic COVID-19 Support Group. [email protected]
Dr Ian Frayling 🇺�... @Doctor_IMF
3K Followers 1K Following Past-President Association of Clinical Pathologists, patient, retd NHS. I usually do hereditary cancer. Trustee of @Long_Covid Support. Views my own.
Designing for Health @Design4HealthOz
246 Followers 327 Following Building a community of practice for human-centred design in an Oz/NZ health/care context. Join our Slack team using the link: https://t.co/16LI0Kf05S
Sydney Health Partner... @SHPartners
2K Followers 287 Following Sydney Health Partners aims to reduce or remove the barriers to the effective translation of medical research into clinical practice.
Every Australian Coun... @EveryAustralian
14K Followers 5K Following We're the people with disability, families and supporters who campaigned for the NDIS. Now we're fighting for the #NDIS to deliver as promised. #DefendOurNDIS
Research Australia @ResAustralia
12K Followers 1K Following Research Australia is the national alliance representing the entire HMR pipeline from the laboratory through to the patient and the marketplace.
Aus Clinical Trials @AustCT
3K Followers 1K Following Welcome to news, updates and information about Australian Government Clinical Trials initiatives
BeatCovid19Now @BeatCovid19Now
254 Followers 20 Following Covid19 Anonymous Symptom Tracker. Developed by researchers at Swinburne University. #beatcovid19now
AllStripes @_allstripes
3K Followers 1K Following Our mission is to unlock new treatments for people affected by rare disease.🚀
Solving Healthcare @KwadCast
7K Followers 985 Following The podcast about healthcare innovation and improving healthcare delivery. Hosted by @kwadwo777. In association with @ResourceOptNet
Kwadwo Kyeremanteng @kwadwo777
18K Followers 918 Following Assoc prof @uottawa. Critical care & palliative doc. Father of 3. Oilers all day. Founder of: @GyataNutrition & @KwadCast. Tweets are my own. Pre-order 📌⬇️
Dr. Brian Goldman @NightShiftMD
102K Followers 4K Following ER MD (he/him). Author of four Canadian bestsellers including Nightshift, Power of Kindness and my latest The Power of Teamwork. RTs are not endorsements.
André Picard @picardonhealth
133K Followers 2K Following André Picard is the health columnist at The Globe and Mail and author of "NEGLECTED NO MORE". I tweet about public health, health policy, and journalism.
Melbourne Disability ... @mdi_unimelb
2K Followers 691 Following The Melbourne Disability Institute is building a collaborative and inclusive interdisciplinary disability research agenda at the University of Melbourne.
ELIXIRFinland @ELIXIRFinland
533 Followers 517 Following ELIXIR (European life science infrastructure for biological information) is building a sustainable European infrastructure for biological information.
Jen Morris @JenWords
808 Followers 566 Following Patient perspectives consultant & advocate. Healthcare quality & safety researcher. Writer, editor & science communicator. Interested in bioethics & disability
Sam Connor @criprights
18K Followers 5K Following human + disability rights activist | bolshy diva | trans rights = human rights | disability consultant | views are my own | sam-i-AM | antifa
Research on Research ... @RoRInstitute
5K Followers 1K Following RoRI’s mission is to accelerate transformational research on research systems, cultures & decision-making. Find us on Blue Sky and LinkedIn @rorinstitute
NSW Agency for Clinic... @nswaci
5K Followers 1K Following We work with clinicians, consumers & system leaders to design & implement new ways to deliver healthcare. Monitored M-F AEST 9am-5pm. RTs are not endorsement.
Clinical Excellence C... @NSWCEC
5K Followers 618 Following This account is inactive. Visit https://t.co/7RXRbodF5N for information, resources and updates.
Leanne Wells @LeanneWells63
4K Followers 738 Following Consultant | NED | Health advocate | Chair | Mentor | Former Chief Executive Officer, Consumers Health Forum of Australia.
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