Claire Asp @clairabelle

Manchester, UK Joined February 2009

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657

Adam @ABrokenBattery

a year ago

“One of the wider problems is that many of the doctors working in the NHS today were taught that people with ME have got a functional rather than physical illness. The problem is, that generation was actually taught that this is not a biological illness" theguardian.com/society/articl…

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Dr Pete Olusoga @PeteOlusoga

a year ago

This isnt going where you think it is. 🧵 One of the most annoying things about children is that they want you to stop what you're doing every 0.7 seconds to watch them attempt what I think is supposed to be a cartwheel, or show you how good they are at standing on one leg.

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Vlad Vexler @VladVexler

a year ago

Severe ME is lying in darkness wondering how you can be so ill without being dead, while the world stymies medical research that will make you better. Severe ME patients are the most socially abandoned group I can think of in the Western world. Millions of them. #SevereMEday

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ME Research UK @MEResearchUK

a year ago

Today, 8th August, marks 'Severe ME - Understanding and Remembrance Day' , which aims to make healthcare professionals and the public aware of just how severe ME can be. August 8th was the birthday of Sophia Mirza, a severe ME sufferer, who died in 2005. bit.ly/severemeday2024

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Carole Bruce @CaroleBruce17

a year ago

Like many thousands of others I have been living in one room, in the dark, for over 3 decades. Subjected to disbelief, apathy, ignorance and hostility. The #NHS offers no treatment, no understanding nor support. We need outrage on our behalf. Radical change now. #SevereMEDay

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Thomas F. Varley @ThosVarley

a year ago

Doing a deep dive into the history of post-viral syndrome research and it's one of the most blackpilling rabbit holes I've ever fallen into.

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Adam @ABrokenBattery

a year ago

Full article: Sajid Javid: Labour must deliver on ME as patients suffer without a cure The former health secretary’s call to action coincides with a landmark inquiry into the death of Maeve Boothby-O’Neill... archive.ph/2024.07.19-150…

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Adam @ABrokenBattery

a year ago

Full article: My child died of ME’: a scandal waiting for its Post Office moment Sean O’Neill is dreading his daughter’s inquest but hopes it will show the nation how people with the condition are routinely stigmatised and ignored by the NHS archive.ph/2024.07.19-150…

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Channel 4 News @Channel4News

a year ago

World’s largest genetic study of ME offers hope to sufferers channel4.com/news/worlds-la…

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Frances Ryan @DrFrancesRyan

2 years ago

This is awful news. Paul’s life and his tenacity and bravery were astonishing. That one of the last polio survivors - who lived much of his life in an iron lung - was killed by covid is such a devastating symbol of how society has failed to protect disabled people in the pandemic

Kai Kupferschmidt @kakape

2 years ago

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Guardian Science @guardianscience

2 years ago

‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal | George Monbiot theguardian.com/commentisfree/…

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George Monbiot @GeorgeMonbiot

2 years ago

It’s the greatest medical scandal of the 21st Century. Intransigent doctors and gullible journalists have made the lives of ME/CFS patients a living hell. A massive and shocking story in this week’s column. theguardian.com/commentisfree/…

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Ian Dunt @IanDunt

2 years ago

This is the price they put on love: How the Home Office barred most British citizens from living with someone they met overseas open.substack.com/pub/iandunt/p/…

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JT @Jamieturner008

2 years ago

Hi Everyone, my name is JAMIE TURNER and I am in no way affiliated to JAMES THOMAS of JT Landscaping. My company is called JT Landscape services LTD and we are based in Northampton. I am receiving a lot of threats wrongly. Please share so this is directed at the right person.

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Department of Health and Social Care @DHSCgovuk

2 years ago

We're consulting on a delivery plan for myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) and want to hear from: 🟢 patients 🟢 healthcare professionals 🟢 researchers Share your views by completing the survey 🔻 #MECFS

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Quenby Olson @QEisenacher

2 years ago

Sometimes I remind myself how Terry Pratchett was one of the most brilliant writers in a generation, and yet when someone new to Discworld asks "so should I start with The Color of Magic?" almost everyone goes, "... ehhhh." In other words, your best work may still be to come.

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Sadiq Khan @SadiqKhan

3 years ago

Let’s be honest: Brexit isn’t working. British exporters are struggling, our living standards are falling and the UK is now the only G7 country with a smaller economy than before the pandemic. Unless we face up to the harm Brexit is causing we can't start to address it.