David Rose @davidrose88
Working with @RareRevolutionM. Rare disease patient 🧬 Life drawing model. rarepatientvoice.com/DARose/ United Kingdom Joined February 2011-
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LIMITED OPPORTUNITY! We have a RARE opportunity for one company to become our summer editorial sponsor. Is YOUR company invested in supporting the voices of the #RareDisease community? By becoming the editorial sponsor of RARE Revolution Magazine, you ensure that the community…
Enough is enough. Disabled people are not the problem. Last week the Prime Minister made a speech about so-called 'sicknote culture'. He also proposed major changes to disability benefits. Today we're launching a petition in response to this full-on assault of disabled people.
"We have come to the end of BHD Foundation's #TuesdayTakeover! Thank you to Rare Revolution for helping us spread awareness." If you want to stay up-to-date with the latest about BHD, sign up to our monthly online newsletter: thebhdfoundation.org/newsletter @BHD_Foundation
'Goal direct from a corner' alert! 🚨 #EFL | @leytonorientfc
"What is #EctodermalDysplasia? #EctodermalDysplasias are a diverse group of genetic disorders affecting ectodermal tissues, including hair, nails, teeth, skin, and glands For more information visit: ozed.org.au." #RareDiseaseDay2024 #RareDiseaseDay #RDD2024 #RDD
"Happy #RareDiseaseDay! @Chelseashopela1 is dedicated to improving the lives of those affected by #LaforaDisease & accelerating the development of treatments. chelseashope.org Watch the Merriam family story to learn about the #RareDisease: youtu.be/xYeic7R88Y4" #RDD
🌟 It’s #RareDiseaseDay 2024! Today is all about amplifying the voices of the ‘1 in 17’ people affected by a rare disease to drive change and raise awareness for those living with conditions worldwide. #ShareYourColours
It's #RareDiseaseDay - 29 Feb - the rarest day of all! Join us... 9 -12pm Addenbrookes outpatients 12:30pm Webcast with @CambridgeBRC on patient-centred #RareDisease research 4pm We'll be 'taking over' @RareRevolutionM ... & look out for the launch of Rare Patient Passport Report
Wendy Erler from @AstraZeneca joins our free #InternationalWomensDay2024 webinar to discuss building frameworks for collaboration and influencing corporate decision making. Sign up here: bit.ly/RARE-REVinar-W… #RareDisease #WomenInRare #WomenInScience #WomenInResearch
Funded by and developed in collaboration with Chiesi GRD. This Rare Disease Day we are so pleased to be partnering with Chiesi Global Rare Diseases to showcase their global initiative, ‘It’s rare for me’, elevating the voices of the rare disease community. Their programme aims to…
Just ONE WEEK until #RareDiseaseDay kicks off around the world! Did you know? There are around 300 million people worldwide living with a #RareDiease. While each disease and condition is rare, together we're collectively common. Find out more at rarediseaseday.org.
What #RareDisease do you advocate for? Let us know in the comments... #RareDiseaseAdvocacy #RareDiseaseAdvocates
Industry has an amazing network of committed advocacy employees . They are often working within system constraints and are not immune to burnout either. Join our free webinar for #RareDiseaseday as we discuss the need for a sustainable system of support: bit.ly/RARE-REVinar-B…
Missed our webinar or need a reminder about what was said? The recording is out now! 🎉 We covered a variety of topics, including medical gaslighting, social media strategy, past initiatives and much more! 💡 Listen here: youtube.com/watch?v=FYTaTA… #RareDiseaseDay
Tiny charities deliver herculean feats for the community. What is the cost of this? Burnout on a large scale across the sector, and the implications of this could be huge. Join our free webinar for #RareDiseaseDay as we unpick the strain on these orgs: bit.ly/RARE-REVinar-B…
Anna Samson writes for RARE Youth Revolution about losing friends and family because of #Disability and also feeling unsupported. "Becoming disabled during my early twenties was very isolating." Read Anna's article at bit.ly/3SkqyMs
Somewhere in the process of moving from being the community to serving the community, something gets lost. What is the impact on their #MentalHealth? Join our free webinar to discuss the strain that the community is feeling. bit.ly/RARE-REVinar-B… #RDD2024 #RareDiseaseDay2024
Could your charity be the star of our next Takeover Tuesday? On each Tuesday of the year, we have a charity organisation take over our social media for the day—and it could be yours! Hurry! Only 18 slots available for the rest of 2024. Email [email protected].
In RARE Youth Revolution's latest blog, Sian, who lives with #MarfanSyndrome, writes her Letter to my Younger Self. "Unlike many with Marfan syndrome, you are the only one in your family. A random event, a lottery you wouldn’t like to win, a mutation." Read Sian's letter at
Today is World Cancer Day—a day to close the care gap. For us however, it's a day to also bring attention to types of rare cancers. In 2019, we published our RARE Cancer Edition, dedicated to those who have been touched by cancer. Discover more at rarerevolutionmagazine.com
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.Cambridge Rare Diseas.. @camraredisease
8K Followers 7K Following Improving #RareDisease lives. Creators of #RAREfest, #RAREsummit, Companies Forum & #UniqueFeetCam https://t.co/bWJ8DVF9iwRARE Revolution Magaz.. @RareRevolutionM
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5K Followers 2K Following Medics4RareDiseases is driving an attitude change towards rare diseases amongst medical students and doctors in training #DareToThinkRareS Blitshteyn MD, FAAN.. @dysclinic
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32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.Global Genes @GlobalGenes
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24K Followers 6K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).🇯🇲abortion conn.. @tiashakurr
870 Followers 789 Following she/her • 5head🦑 • Lady Saw 2.0 • ♿️EDS Spoonie🩼🦓 • will cuss ya mango seed head pickney 💅🏽 • 💕Fancy Rats🐁 • NO antivax/TERF/🦝/Karen/r*y4list/bigots🖕🏽Louise Fish @LouiseFish1
808 Followers 2K Following Chief Executive at Genetic Alliance UK. Passionate about improving health and social care.Rare Disease UK @rarediseaseuk
22K Followers 2K Following National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them. #RareDisease.The92Bible @The92Bible
19K Followers 53 Following Covering football content from across England’s top 4 leagues! ⚽️ Follow our Instagram page 👇Dr. Sketchy's B-more @DrSketchysBmore
515 Followers 255 Following Baltimore's liveliest life drawing event! Join us most months at @creativalliance for drinks, drawing, and prizes!Lu Reason @LuReasonArt
50 Followers 91 Following Artist | Drawing & Painting | Please also check out my TikTok account @lureasonart ✍🏻🖤BeingMe420 @BeingMe420
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550 Followers 734 Following Artist & Art Tutor - Capturing the female form Life-Drawing Tutor, Stay at home Dad.tina maxwell @tinamaxwell2
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466 Followers 241 Following We run friendly life drawing classes in beautiful pubs around London, as well as life drawing for hen parties and corporate events, sculpture workshops & moreHackney Wick Life Dra.. @hwlifedrawing
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70 Followers 1 Following Neon Naked is a new and unique Life Drawing experience that specialises in creating unusual and creative designs by using vibrant and bold living sculptures.Life Drawing MK @LifeDrawingMK
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1K Followers 2K Following I'm an easy going lad always up for a laugh, I have a disability called Spina Bifida but I don't let it stop me living my life, Man United Fan and a Music LoverAlfie Indra @AlfieIndra
26K Followers 357 Following Make music. Podcaster on @jaackshappyhour & @mynewfootballclub. Half of The Gaffers on YouTube. Listen to my EP pls👇Edgar Allan Bitch (Sa.. @edgar_a_bitch
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156K Followers 832 Following Demanding: ➡️ All oil, gas and coal licences issued since 2021 are revoked. ➡️ Gov plan to end fossil fuel use by 2030. 🤝 Part of the A22 NetworkDoncaster Rovers FC @drfc_official
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861 Followers 3K Following Managing Director KM Consultancy Associates ltd - Crohn's sufferer, OstomateD @transportnut89
196 Followers 556 Following Young guy, who likes transport of all kinds, keen photographer. Also a Fibromyalgia warrior and autistic.Footie Girl 25♿ @jenkins_helz
194 Followers 231 Following Retired bookkeeper and mum of two boys Married to John and have developed a 💗 for 🏝️holidays, 🍹 and ⚽ Loud voice when it comes to disabled access👨🦼Ipswich’s Harry Clarke getting emotional as fans sing his name, after the side clinched promotion to The Premier League today. What it’s all about. 🥹👏 #ITFC
During Birmingham City’s pitch invasion to commemorate their relegation, a blues fan scored an absolute screamer 🤣🤣🤣
@leytonorientfc Penalty save at Pompey by @Sol_Brynn1
⌚ It's time to put an end to the rumours... #LOFC #OneOrient
@scope It is time to means-test MPs' expenses.
We also wish to place on record our sincere thanks to Idris El Mizouni, Shaq Forde, Sol Brynn, Khayon Edwards, and Dan Adu-Adjei, who will return to their parent clubs following the conclusion of their loan deals. Once an O, always an O! 🤝 #LOFC #OneOrient
Good luck to Rob Hunt, Adam Thompson, Harrison Sodje, Emmanuel Harvest, Jephte Tanga & Ethan Light who will be leaving #LOFC at the end of the season following their expiry of the contracts..❤️
🅰 72 appearances ⚽ 2023/24 Goal of the Season winner 🏆 League Two Champion Thank you for everything, Hunty ❤ #LOFC #OneOrient
‘So I do think it is a bit odd that the manager wasn’t there’…🤔 Your South Stand Chums have lots to talk about in👏EPISODE 355👏on iTunes, Spotify & soundcloud.com/orient-outlook including Richie’s absence at the weekend, aswell as the latest #LOFC news, talking points & more!✅
✅ 📊 StatZone presented by @ReSpaceLtd #LOFC #OneOrient
The Supporters Club Merit Award winner for 2023/24 is Idris El Mizouni! 🏆 #LOFC #OneOrient
@RishiSunak You’ve never made a a cup of tea in your life. That milk pour was awful and the ratio is just as bad.
@RishiSunak Who on Earth does your social media content? Eek.
@RishiSunak £900 is nothing to the families who are already 3 months overdue on their rent because they starve to death if they pay You are so out of touch with the average persons life it amazes me
@Sol_Brynn1 @leytonorientfc top keeper and absolute gent, hope to see you back in E10 soon Sol x
Another season done✅ Huge thanks to all staff, players and fans at @leytonorientfc Loved every moment❤️
The Supporters Club Merit Award winner for 2023/24 is Idris El Mizouni! 🏆 #LOFC #OneOrient