EAT @eatfederation
EAT is a federation of member support groups each associated with the rare congenital condition of Esophageal Atresia (EA). we-are-eat.org EU Joined May 2013-
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Annual meeting of @ernica_ern: over 50 reps from healthcare providers from 25 EU countries & 10 patient reps from NL, UK, and DE gathered at University Hospital Wroclaw. Discussions ranged from nutrition in pediatric #esophagealatresia to transitioning care for adults.
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Bronchiectasis Patient Conference 2024: Saturday 23 March 2024 from 10:00 to 16.00 CET. @EuropeanLung and @EMBARCnetworkonline present the annual bronchiectasis patient conference. Register here: europeanlung.org/en/get-involve…
The joint meeting of the International Network of Esophageal Atresia (INoEA), the Pediatric, Adolescent and Adult Foregut Interdisciplinary Society (PAAFIS), and @aerodigestive will be held in Istanbul, Türkiye between April 30 and May 3, 2025. More: we-are-eat.org/news/inoea-paa…
You may find the presentation now here on YouTube: youtu.be/NzcqqCeWTtc?si… #esophagealatresia
EAT at the #ERSCongress: We are proud to speak about the topic of #esophagealatresia as a lung disease on #PatOrgDay2023. @EuropeanLung
EAT at the #ERSCongress: We are proud to speak about the topic of #esophagealatresia as a lung disease on #PatOrgDay2023. @EuropeanLung
EAT retweeted
From Volunteer Awardee 👉 Board Member! Read our interview with Graham Slater where we discuss his journey into advocacy and the importance of volunteers in the rare disease community! 💜eurordis.org/interview-with… Nominations now open for🌟#EurordisAwards2024 @eatfederation
EAT retweeted
Surgical Treatment of Esophageal Anastomotic Stricture after Repair of... sciencedirect.com/science/articl… @BCHPedSurg @Me4Ped @StayCurrentMD @eatfederation @jpedsurg
we-are-eat.org/news/the-inter… A consensus guidelines on the transition of patients with oesophageal atresia–tracheoesophageal fistula #guidelines #INoEA
We are very proud to announce that Graham Slater, former chair of EAT, was elected a member of the board of @EURORDIS, the alliance of over 1,000 rare disease patients organisations in Europe! Congratulations, Graham! #ESPHGAN23 #esophagealatresia #raredisease
Forging new connections: Only 0.5 % of babies are born with a congenital disease, but 40 % of babies with #esophagealatresia are premature. Yesterday we were meeting up with Silke Mader, founder of @EFCNI, at #ESPHGAN to raise awareness for our cause.
We are delighted to be at the #ESPGHAN23 patient forum. Together with @TOFS, our chairwomen @keks_awg represents the interest of patients with #esophagealatresia amongst medical professionals.
we-are-eat.org/resources/curr… Prospective cohort of adolescents born with esophageal atresia in order to assess the long-term health outcome #TransEAsome #esophagealatresia #cracmo #afao
Eberhard Schmiedeke, paediatric surgeon in Klinikum Bremen-Mitte, Germany, and Dalia Aminoff, head of AIMAR, the Italian patient organization for ARM, about the Advantages of centralization of care: youtu.be/9XRpeXTpbx8
An @ERN_eUROGEN & @ernica_ern webinar supported by ARM-Net: 🖥 #AnorectalMalformation: Centralization of Care 👥 Eberhard Schmiedeke & Dalia Aminoff 📅 Wed 26 Oct 1800 CEST 🔗 bit.ly/3yysmID #UroSoMe #SoMe4PedSurg #PedUro @Uroweb @UrowebESU @EupsaSurgeons @ESPUorg
Graham Slater receives the Esophageal Atresia World Award at the Quad 2022 Conference. youtu.be/zyVhoDiBoCA via @YouTube
EAT retweeted
Did you get your #LondonMarathon #ballot place? If you did, we’d love you to join our team♥️! Not successful? Apply for a TOFS #charity place & support people born unable to swallow🏃♀️ tofs.org.uk/event/london-m…
EAT retweeted
Congratulations to TOFS' Trustee, Graham Slater on being awarded the Esophageal Atresia World Award from @eatfederation. This is Graham's 2nd award this year. #ea #oa #tof #tef tofs.org.uk/2022/10/graham…
The #QUAD2022 conference was a great success! We, as experts by experience, are glad to share our knowledge and challenge the medical experts to move together from Good Practice to Best to Next Practice when treating #esophagealatresia. See you at the next conference in 2025!
EAT retweeted
Dr. Corné de Vos, Pediatric Surgeon at Tygerberg Children‘s Hospital, Cape Town, explains at the #QUAD2022 conference what the most important value of patient support groups is for her. #esophagealatresia
TOFS @NEWSFORTOFS
997 Followers 963 Following TOFS is a registered UK charity supporting those born with #OesophagealAtresia, #TracheoOesophagealFistula and associated conditions #OA #TOF #TEF #EA #VACTERL
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TransEAsome @TransEAsome
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TOFS @NEWSFORTOFS
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RMCH Paediatric & Neo... @RMCH_PaedSurg
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BAPS @BAPS1953
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