emmabirgit @emmabirgit
Chronic lifer, psychotherapist, writes. Joined April 2014-
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It’s the greatest medical scandal of the 21st Century. Intransigent doctors and gullible journalists have made the lives of ME/CFS patients a living hell. A massive and shocking story in this week’s column. theguardian.com/commentisfree/…
Excellent but heartbreaking radio segment on ME/CFS. Woman's Hour - BBC Radio 4 Emma Barnett talks to Sean O'Neill (The Times) who lost his eldest daughter Maeve to ME. Also features Dr Charles Shepherd of the ME Association. youtu.be/6ce3jSoOA0c
1. There’s an aspect of this story that I didn’t have space for in the column. This is about how the scientific and media establishment closed ranks around bad science, defending it from legitimate questioning and criticism.
In a meeting I watched today, microglia priming was mentioned in #LongCovid and #ME/CFS. It’s important to clarify what “microglia priming” means. Microglial priming does not mean that after a trigger has “cleared” microglia remain perpetually activated
For two years in my life I couldn't speak or read due to neurological problems from ME. I asked to be surrounded by open Bach scores. I would like to share how I see that now, looking back. 1/8 #pwme
A "post-viral tsunami" is gathering, with devastating consequences for large numbers of people. Some of its effects closely resemble ME/CFS, a condition whose 250,000 sufferers in the UK have been horribly neglected. It's time for action. My column. theguardian.com/commentisfree/…
Those who have suffered for years from ME/CFS, and have been ignored, neglected and even stigmatised know how long term conditions (often triggered by viruses) are overlooked by governments. Following C-19, hundreds of thousands could suffer. We must take this seriously.
"Ghost Apples" are an unusual phenomenon where freezing rain coats rotting apples before they fall, then when the apple turns mushy it eventually slips out and leaves the icy shell still hanging on the tree.
We were all inspired by @jennashworth's insightful Writer-to-Writer advice on how to stay motivated and connected during her talk, this morning. Thank you for joining our #DHAOpenDay for under-represented Writers, Jenn!
Coronavirus: who will be winners and losers in new world order? theguardian.com/world/2020/apr…

Long Covid Advocacy �... @LongCovidAdvoc
14K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #pedanticzebra book club. 🛍️ https://t.co/8JlRWqxASF
Joan Crawford @joan_crawford1
597 Followers 2K Following Counselling Psychologist Ex Chemical Engineer
Genese Grill @genese_grill
8K Followers 7K Following Essayist, Translator, Writing first English-language Biography of Robert Musil for Yale UP. Portals: https://t.co/nDxvVUxN8C
Henry Anderson @macanders
2K Followers 2K Following Mild-mannered author of several novels. Chronically hopeful. https://t.co/LmWv26cywx
ChronicLivingTherapy @ChronicLiving1
184 Followers 476 Following Directory of counsellors and therapists who understand the biomedical nature of ME/CFS, Long Covid, Fibromyalgia and other similar chronic illnesses.
ℜ𝔞𝔠𝔥𝔢�... @RachelBurch2
5K Followers 2K Following Living with severe chronic illness, wheelchair user, Dartmoor photographer, old book lover and hedgehog whisperer. 🦔🦼📖 have been a photographer for 35 years.
Anthony Fowler @afowler06
121K Followers 55K Following 🇧🇷 2016 Rio Olympian | 🥊 Professional Boxer | 💚 Entrepreneur & Business Founder @Supreme_cbd also featured in @forbes use code Fowler40 at checkout CBD ⬇️
Heather Hayes @hhayes91
1K Followers 6K Following 💙 BC Survivor, Music, Lake & Dog Lover #meshinjured Diagnosed w/#MECFS, MCAS, Fibro, CRPS, PA, Sjogren’s,Hashimoto’s, Lupus & CIRS from J&J Prolene mesh.
The Creative Writing ... @cwp_uk
391 Followers 515 Following The leading centre for creative writing in the UK–in-person and online courses from some of the best writing tutors around. ⬇️ Enrolment open for October 2025
Katy W @SylphSea
1K Followers 919 Following Writer, visual poet housebound #mecfs An Orchid in My Belly Button (Elsewhen 2025) Let Them Float (2023) 51 Trillion Bits (2023) + Snapshots of Apocalypse
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
I AM MADELINE @IamMADELINEpod
1K Followers 3K Following Pod: Madeline AKA #MarciaDoherty's #LongViral #EBV #MyalgicE struggle with Drs #diseasebias. 1st 5 eps @AshDKelly @byGawley #disability
Cal @tweetercal
2K Followers 5K Following Post Epstein-Barr ME 41 years of rotting RA HD 3 Heart Attacks 5 Stent Post Lymes & Fibro Professional Flaneur of 30yrs.Medically Retired #TwitchAffiliate #Indy
Jackson @1BStQFX27KOB9Ai
5 Followers 96 Following Single, like gym, drink tea, read books, draw pictures, like to make money and spend money more.
@TheChronicCollaborat... @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Nicola Jeffery @NicolaCJeffery
5K Followers 4K Following 'Behind that loud-mouthed journalist @MrTopple is an even louder-mouthed woman!' Digital Editor https://t.co/xMDS7UtHEl #FreePalestine 🏳️🌈🏳️⚧️✊️
Clare James @Clarejames131
6K Followers 4K Following ✍Writing first novel. Enjoy 📚 Photography Piano/Sax Art Gardening QiGong Laughter + Tea 🍵 #amwriting #pwME
DT #MECFS #freepalest... @davro_t
1K Followers 1K Following #MECFS since 2018. Socialist, antifascist, nerd, gamer, horror/sci-fi/fantasy. Used to read & run a lot. Now a 'useless eater' #millionsmissing #autistic #audhd
Edna, M.E.Advocate �... @EdnaMacNamara
777 Followers 1K Following 💙 M.E.Carer/Advocate of son aged 33, ME,13yrs 💙. RaisingAwarenessFor #PwME #Carers #LC #findAcureME #greatestMEdicalscandal https://t.co/XiPgGQc0tn
In memory of Angela K... @AngelaK11635746
2K Followers 2K Following In memory of Angela Kennedy, a carer and retired sociologist, who was murdered while homeless for being disabled.
Colin-Roy Hunter @criquaer
2K Followers 3K Following Happy queer pantheistic Quaker, despite being disabled by & sufferer from inter alia #MyalgicEncephalomyelitis. Non-partisan. Always follow back #pwME. %)
Grim Art @GrimArtGroup
71K Followers 23K Following #GrimArt - the beauty & value of the everyday, the ordinary & the overlooked; industrial landscapes, whippets & wastelands, red bricks & rust. #art #photography
Bayou Mystère @BayouMystere
2K Followers 2K Following Undead undead undead 🦇she/her 🐈⬛Ex-burlesquer 🐈 deep down inside I got a rock 'n' roll heart 🖤🩶🤍💜 gradual onset ME/CFS
All of them snollygos... @OnlyEnnui
3K Followers 2K Following Ex philosopher, Ex Singer Song Writer Ex Friend & lover. #MEcfs activist #hEDS benzo withdrawal = hell. Expect swearing & sarcasm
Jeremy Gilbert @jemgilbert
16K Followers 4K Following Cultural theory, political analysis, dance party politics. Latest book: Hegemony Now (Verso 2022) https://t.co/VodcZmZlq0
Phil Stewart 💙 @PhilStewart23
2K Followers 2K Following Person Centred Counsellor. ME Sufferer. Social Justice & Equality. LFC. #MyalgicEncephalomyelitis #autismawareness #YNWA #MentalHealthMatters
Dr Hng + Friends @DoctorwithME
2K Followers 1K Following Author of "Doctor with M.E." Founder of Doctors with M.E. (DwME), international professional association. Views our own (me + friends) not DwME.
Katie Bee🇪🇺 @KatelinBee
449 Followers 1K Following Artist, Mother, Nature Lover. Living with and raising awareness of Post-viral Autoimmune/neuro-endocrine disease commonly known as M.E/cfs 10yrs+ @kateboyceart
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Elisabeth Klaar | Oak... @lammas_leaves
2K Followers 5K Following Marketing for SMEs and NGOs. Mentoring & Tuition: WordPress, Marketing. Also @chronicliving1 - project built with WordPress
James Clammer @JamesClammer
1K Followers 1K Following A punter sleeps during Shock Around The Clock New novel, Insignificance, with @GalleyBeggars (UK), @coachhousebooks (North America) & Querido (Netherlands)
Phoenix Rising @aboutmecfs
6K Followers 4K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
Tilman Andris @TilmanAndris
3K Followers 5K Following Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
Louise Kenward - Psyc... @ZebraPsych
727 Followers 788 Following Psychologist | Writer | Practitioner/Supervisor Cognitive Analytic Therapy | previously NHS | Energy Limiting Chronic Illness #ZebraBookClub 🦓 #DP100 2023
Dan Holloway @agnieszkasshoes
10K Followers 11K Following Activist: mental illness, basic income, radical open access. seagrass; 3x creative thinking world champion; founder @RogueInterro; ultra runner; lifter; writer.
Fragmentary Blue @FragmentaryBlu
184 Followers 754 Following Academic. Bereaved mum, learning to live without my young daughter. Navigating Long Covid and thinking a lot about chronic illness.
lulah ellender @LulahEllender
5K Followers 3K Following Writer | GROUNDING: Finding home in a garden, @GrantaBooks 2022 | ELISABETH'S LISTS, Granta 2018 & Les Escales | Agent: @natgalustian
Simon J Duffy @simonjduffy
12K Followers 9K Following I’ve moved to Blue Sky @simonduffy.bsky.social #EverydayCitizenship Out Now. https://t.co/gU8LmR6nHJ
William Blake @williamblakebot
15K Followers 5K Following Tweets quotes from William Blake's poetry every hour.
Daniel Moore @Talmandaniel
5K Followers 4K Following Founder of Northern Life Stories, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
John Peters @johnthejack
5K Followers 5K Following Unbeliever (political & relig), Wales rugby, #c4news, porridge, #MEcfs johnthejack.peters https://t.co/DO2RA0zRnE
Maija Haavisto @DiamonDie
8K Followers 4K Following ~20 books, free trauma/dissociation book is out! Work: IFS/SE, hypnosis, metta, jhana, trauma. Poet, artist. Balkan chakras, plants, food, medicine, CFS/ME, HF.
Dr Myriam François @MyriamFrancoisC
158K Followers 3K Following Presenter The Tea on YT - ex @ajstream • Director “Finding Alaa”•Docs @mpwrproductions• Present-Direct-Write RT≠endorse [email protected]
@TheRealMcCoy aka Meg... @RipperMD41
2K Followers 2K Following Chronically ill. Until we land on one, Instagram: @/RipperMD41, Mastodon: @[email protected] T2: same as here @rippermd41.bsky.social
Ryan Haecker @RyanHaecker
11K Followers 3K Following PhD @Cambridge_Uni | Fellow @AmAcademyRome @NTOntologies | Theology of Logic & Technology Author: 'Restoring Reason: Theology of Logic in Origen of Alexandria'
Andrew Davison @AP_Davison
5K Followers 618 Following Regius Professor of Divinity @UniofOxford @ChCh_Oxford; Founding Member of @LeverhulmeCLU; Interested in God and all things as they relate to God.
john milbank @johnmilbank3
27K Followers 4K Following Theologian, philosopher, poet, political theorist.
Fr Fedora @EOrthodoxy
7K Followers 486 Following Apokatastasis is but the gospel of Christ’s absolute and unconditional love sung in an eschatological key.
Jacob Sherman @Shermanicus
4K Followers 1K Following Professor of Philosophy and Religion, Chair of Philosophy, Cosmology, and Consciousness @CIIS_SF • Currently working on Contemplation and the Book of Nature
Susannah Black Robert... @suzania
17K Followers 994 Following Christian, postliberal / Journo / Editor @Plough, @mereorthodoxy / Rooted cosmopolitan / Wife to @zugzwanged / A spider sitting at the center of my web
Jennifer A. Frey @jennfrey
35K Followers 1K Following Philosopher @utulsa fellow @HumanEcologyCUA host @eudaimoniapod board @CLT_Exam. Bylines @wsj @nytimes Mother to many. Frequently argues w/ @FreyChristopher.
Henry Wallis Commenta... @henryjkwallis
5K Followers 3K Following Commentary on the Pre-Raphaelite author, painter, and collector.
Christopher Satoor... @aufgehenderRest
29K Followers 5K Following Schellingian. Ph.D. Candidate at York University. Research Interests: Schelling. German Idealism. Digital Creator. #TheYoungIdealist Series.
New Trinitarian Ontol... @NTOntologies
2K Followers 1K Following New Trinitarian Ontologies is a new movement in philosophical theology exploring ontology or metaphysics in imitation of the Trinity @Cambridge_Uni @CamDivinity
Dr Simone Kotva @thisnonhumanity
3K Followers 1K Following Senior Lecturer in Theology at the University of Gothenburg. Author of Effort and Grace https://t.co/zkoCyUlsrT. All views my own.
“paula” @paularambles
26K Followers 3K Following playing with words. creating whimsical ai companions @ https://t.co/khnCIsqbhL. built iOS apps @xAI, @Spotify, and co-founded @imagilabs.
PwME 4 bioMEdical res... @ValeBodi
5K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
KarenLesliePhysio @karenphysiocouk
5K Followers 1K Following Neurological physiotherapist with https://t.co/3BfNtxTDCW / Co-founder @PhysiosForME / Research Assistant and PHD student at Liverpool University
ME/CFS Science @mecfsskeptic
4K Followers 465 Following In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
RonaldwDavis @Ronaldw_Davis
695 Followers 22 Following
BACP @BACP
37K Followers 892 Following The British Association for Counselling and Psychotherapy. We support counsellors and psychotherapists to help them better serve their clients.
Joan Crawford @joan_crawford1
597 Followers 2K Following Counselling Psychologist Ex Chemical Engineer
Long Covid Advocacy �... @LongCovidAdvoc
14K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #pedanticzebra book club. 🛍️ https://t.co/8JlRWqxASF
Genese Grill @genese_grill
8K Followers 7K Following Essayist, Translator, Writing first English-language Biography of Robert Musil for Yale UP. Portals: https://t.co/nDxvVUxN8C
Dr David Vernon @DrDavidVernon
24K Followers 303 Following writer | books: nabokov • beethoven • wagner • mahler • sibelius • mishima • lispector (2026) • kawabata (2028)
Tina Katsaros @tinakatsaros
1K Followers 250 Following PhD candidate researching ME/CFS at La Trobe University
Sarah @SarahLizzyLou
3K Followers 2K Following She/her. Physio student with #longcovid #MEcfs since Oct 2021. #CognitiveDysfunction 🧠♿️ #FBLC
Jeremy Jeffs @magnetoJJ
2K Followers 2K Following Director at Magneto FIlms, making films for not for profits. Currently shooting photos of #PwME. Living with #ME since 1987
WACM @_VFK_DAA
522 Followers 1K Following LC is unique due to its chronic inflammation of the vessels (vasculitis). Just because some symptoms are shared, it doesn't mean the conditions are the same.
Henry Anderson @macanders
2K Followers 2K Following Mild-mannered author of several novels. Chronically hopeful. https://t.co/LmWv26cywx
Michael R Scoma MD @DrMichaelScoma
8K Followers 96 Following Infectious Disease Immunology physician specializing in complex chronic diseases. Views are my own; no medical advice given.
Channel 4 News @Channel4News
2.4M Followers 4K Following Stories that reveal and inspire, challenging expectations. Weekdays 7-8pm on Channel 4. Got a story? [email protected]
BBC News (World) @BBCWorld
42.1M Followers 17 Following News, features and analysis from the World's newsroom. Breaking news, follow @BBCBreaking. UK news, @BBCNews. Latest sports news @BBCSport
Nele @NeleHelena
5K Followers 1K Following I tweet about the things I don't like: severe chronic illness / ableism / toxic positivity / medical gaslighting / dysautonomia / MEcfs / autoimmunity
Zack Polanski @ZackPolanski
83K Followers 11K Following Green Party Leader. London Assembly Member. 🏳️🌈
ChronicLivingTherapy @ChronicLiving1
184 Followers 476 Following Directory of counsellors and therapists who understand the biomedical nature of ME/CFS, Long Covid, Fibromyalgia and other similar chronic illnesses.
Katherine Everitt �... @katherineveritt
14K Followers 1K Following Philosopher, writer, poet, artist. 🗯 Hegel. 🗯 Brooklyn.
Cadell Last @cadellnlast
2K Followers 525 Following Author: Global Brain Singularity / Systems & Subjects; Teach @ Philosophy Portal; YT philosophy-psychoanalysis; join a living thinking community @ The Portal
Darren Randon @DarrenRandon
423 Followers 586 Following Community Builder - Creative Facilitator He/Him/His All views here are my own #pwME
Democracy At Work @democracyatwrk
51K Followers 3K Following d@w produces media & live events to expose capitalism’s systemic problems & to show how democratizing our workplaces solves them. Co-founded by @Profwolff
Jacobin @jacobin
376K Followers 7 Following Jacobin offers socialist perspectives on politics, economics, and culture. Support our work and subscribe to our print magazine!
Richard D. Wolff @profwolff
249K Followers 2K Following Host of #EconomicUpdate, Prof. of Economics Emeritus @UMassAmherst, visiting Prof. @TheNewSchool, founder @democracyatwrk. #WeCanDoBetterThanCapitalism
Karen Hargrave @karen... @KarenLHargrave
2K Followers 2K Following Independent researcher & policy analyst | @karenlhargrave.bsky.social | Research Associate @ODI_Global | Co-founder #ThereForME https://t.co/qzdifn9AUg
👻ghost of submersi... @MECFScomrade
2K Followers 1K Following she/her | life on pause due to severe ME & co (since 2019)♿️ land back! 🇵🇸🇨🇩🇸🇩🏳️⚧️