gerardvanoortmerssen @gvanoortmerssen
Guest researcher at Leiden University, TiU, private consultant ICT and Innovation, passionate about the evolution of Internet / Africa / cancer patient advocacy Naarden Joined April 2009-
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Dit is toch ongelofelijk Je neemt een video op in één taal, AI vertaalt het, spreekt het met je eigen stem opnieuw in, en maakt de lippen weer sync. 🤯
Major frustration for the experimental oncologist: being deeply involved in strategic guidance on/preclinical and early and late clinical testing of active novel agents which finally never reach patients in small markets due to either corporate or regulatory decisions.
⭐️It's Friday & we have another approval !!! FDA Approves Atezolizumab for Alveolar Soft Part Sarcoma. It is the 1st #Immunotherapy approval specifically for a sarcoma subtype ! @OncoAlert onclive.com/view/fda-appro… via @OncLive
Promovendus gebruikt AI om onbekende bijwerkingen op te sporen in patiëntenfora universiteitleiden.nl/nieuws/2022/11…
Wonderful to be at #CTOS2022 in Vancouver and to meet colleagues and friends in the @sarcomapatients patient advocacy lounge. Great to see so many people stopping by.
Today, @ctosociety and Sarcoma Patient Advocacy Global Network (SPAGN) officially announced their collaboration. Read more: bit.ly/3EaHVIG #sarcoma #experts #patientadvocacy #strongertogether
Great opening session from CTOS President @WTapMD and lovely to hear mention of the @sarcomapatients partnership and the work of @Sarcoma_UK founder @Amocras #CTOS #CTOS2022
Hard to believe but I currently have 4 active clinical trials with MDM2 antagonists for sarcomas and various other solid tumors. Trials range from highly exploratory to potentially practice-changing. Some randomize against SOC, others combine with immunotherapy. Get in touch!
The voice of the patient must be heard when setting the research agenda! Results of a priority setting partnership for sarcoma patients just published in ESMO open. @sarcomapatients @PPSarcomenNLMSF @Winette_vdGraaf @OlgaHusson @NationalLMSF esmoopen.com/article/S2059-…
Congratulations Anne! Great work with relevance for sarcoma patients. @NFKkanker @PPSarcomen @ContactgrpGIST @sarcomapatients
Congratulations Anne! Great work with relevance for sarcoma patients. @NFKkanker @PPSarcomen @ContactgrpGIST @sarcomapatients
A big congratulations to @AnneDirkson who won the Krijn Rietveld Innovation Memorial Award! She won this prize for her PhD research on automatic collection of patient experiences from online forums. universiteitleiden.nl/en/news/2022/0…
Mooi interview met Monique Baas @LUMC_Leiden ter gelegenheid van de week van de zeldzame kankers. Ook voor sarcomen zijn er verpleegkundig specialisten: Els Duym voor neurochirurgie, Nicolette Leijerzapf en Marloes van Duijvenbode voor orthop.chirurgie. zeldzamekankers.nl/het-verschil-k…
Het is van belang dat patiënten op zijn minst met een expertisecentrum worden besproken. Essentiële voorwaarde hierbij is dat financiering van expertisezorg adequaat geregeld is. patientenplatformsarcomen.nl/wvdzk22/de-zor… @IKNL @zeldzamekankers @NFU_kwaliteit @kwf_nl @MinVWS @ZNnieuws
Oekrainse soldaat en een vogel.
Our CTOS & SPAEN Paper “Global Patient Involvement in Sarcoma Care“ is published in Cancers! bit.ly/3uIj4Zu A remarkable step of a global initiative of Sarcoma Experts and Patient Advocates to address & overcome #challenges in #sarcoma care together!
Vandaag op online borstkanker congres van uit @hetAVL worden de Artsen bijgepraat over #phyllodes tumoren. Door dr. F. van Duijnhoven en @RosenbergerMd uit NY. Toch onze bijdrage kunnen leveren al kunnen we het niet volgen. phyllodes.nl
Ben je professional en wil je het blad ontvangen? Neem dan contact op: [email protected]. #netwerken #expertise #sarcomen @NFKkanker @kwf_nl @IKNL @ctosociety @sarcomapatients
Patient-centered care cannot be advanced without patient input in clinical research #CTOS2021 @sarcomapatients @SelnetH2020
@ctosociety It is over. We did it ! Amazing team with LizDelmicco @Ylc2001 @ManuPalmerini. Thanks to everyone who helped us to make this meeting happen! See you all in Vancouver next year (I hope)
Jon Trent, MD, PhD @JTrentMDPhD
6K Followers 4K Following Associate Director @SylvesterCancer. Director #Sarcoma and #GIST. Telemedicine and in-person clinics are open. Tweets are my own.
WinetteVanDerGraaf @Winette_vdGraaf
3K Followers 2K Following Medical Oncologist @NKI_nl Amsterdam. Sarcoma; AYA cancer. Prof. @ErasmusMC President of @EORTC, chair @AYAzorgnetwerk @COMPRAYA_study @strong_AYA
SPAGN @sarcomapatients
2K Followers 557 Following Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of Sarcoma, GIST and Desmoid Patient Advocacy Groups
Herbert Loong @herbloong
4K Followers 2K Following academic medical oncologist @ Hong Kong with interests in sarcoma medical oncology, neuro-oncology, thoracic oncology and phase 1 clinical trials.
Tom Wei-Wu Chen @saxotomy
815 Followers 549 Following Dedicated sarcoma and breast medical oncologist from Taiwan. (National Taiwan University Hospital and Cancer Center)
Anette Duensing @A_Duensing
961 Followers 721 Following Division Head, Precision Oncology of Urological Tumors, University Hospital Heidelberg
Patrick Schöffski @schoffski
1K Followers 448 Following Passionate medical oncologist with experimental + public health agenda heading the Dpt. of General Medical Oncology + Lab. of Exp. Oncology at UZ/KU Leuven (BE)
The Life Raft Group @Liferaftgroup
2K Followers 1K Following Enhancing survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
Brian Van Tine @bvantine1
3K Followers 2K Following Prof of Medicine and Pediatrics, Medical Oncologist, Washington University in St. Louis Sarcoma Doctor, Phase 1 Director, and tumor metabolism researcher.
Bone Cancer Research .. @BCRT
9K Followers 3K Following The leading charity dedicated to saving lives and fighting primary bone cancer through #Research, #Information, #Awareness and #Support. We are #TeamBones.
Suzie Siegel @SuzieSiegel
2K Followers 1K Following Newspaper reporter & editor b4 metastatic #leiomyosarcoma. Master's in women's studies. Board member emerita of #Sarcoma Alliance. #urostomy #colostomy
Dees @caseofdees
11K Followers 4K Following Moeder van I en zo ongeveer mijn moeder van J. Getrouwd. Patient advocate (erfelijke aanleg) borstkanker (en eierstokkanker). Later wil ik @IrisBApfel worden.
Richard Davidson @RichardDavidson
2K Followers 1K Following Chief Executive of Sarcoma UK. Chair of SameYou. Devon, via North London and County Durham. All views my own.
Patiëntenplatform Sa.. @PPSarcomen
830 Followers 1K Following Patiëntenplatform Sarcomen biedt informatie over botsarcomen, wekedelensarcomen, GIST en borderlinetumoren (desmoid en phyllodes).
Food Microbiology @FoodMicrobiolo6
1K Followers 5K Following Food microbiology is the scientific study of microorganisms, involving both beneficial and deleterious effects of microbes on the quality and safety.
Ahmed Farhat🇵🇸�.. @Ahmedd_farhat
259 Followers 817 Following CS &IT. at ACU 🇪🇬🇨🇦 .|| Programming is not about typing, it's about thinking💻 .|| Manchester United. #Mufc
Emily Holthuis @EmilyHolthuis
35 Followers 61 Following PhD student at the Netherlands Cancer Institute - Antoni van Leeuwenhoek.
Cory Archibald cmarch.. @CMArchibald
2K Followers 2K Following I do comms stuff. | Likes: animals, Trek, and politics. | Genocide opposer | All opinions my own (no one else wants them). | she/her
Leids Universiteits F.. @LUF_Leiden
2K Followers 952 Following Het Leids Universiteits Fonds (LUF) laat ambities tot bloei komen met de hulp van vele betrokken alumni.
Atanas G. Atanasov @_atanas_
123K Followers 92K Following Innovations in Molecular Medicine and Digital Health. PI of LBI-DHPS. Prof of IGAB-PAS. Editor-in-Chief #CRBIOTECH and #ExplorDHT. Leader of #DHPSP and #INPST
Rein in Sarcoma @reininsarcoma
2K Followers 5K Following Rein in Sarcoma is a Minnesota based non-profit organization dedicated to sarcoma patient support, research, and education
Pauline Bouvy-Koene @PaulineBouvyKo1
271 Followers 407 Following
Suzanne Fischer @fischer_suz
140 Followers 367 Following MD, PhD(c) @Ugent 🔬Sarcoma, PDX and EV's @CRIGhent👩⚕️Surgery Resident @UZGent. 🚴♀️🏃♀️🏐🍕(she/her)
Windalarm @WindalarmA
821 Followers 802 Following Wij zijn vóór duurzame energie. Echter niet ten koste van onze gezondheid en onze schaarse natuur. Er zijn genoeg alternatieven. IWT = Industriële WindTurbine
Manon Crijns @ManonCrijns
549 Followers 372 Following Verdwaalde Limburger uit Arnhem | NFK | Worldgymnaestrada ‘23 | triathlon | wielrennen | reizen | buiten I Italië | goede koffie & chocolade
annie achee @annieachee
101 Followers 271 Following I am a caregiver of a Leiomyosarcoma-diagosed spouse. My husband is also a very accomplished physician - internal medicine and radiology.
Sarcoma Cancer Irelan.. @SarcomaIreland
1K Followers 2K Following We are a charity for sarcoma patients & their loved ones in Ireland, North & South. Our focus areas are: Advocacy, Education & support. CHY# 20206638
B-Cell Directed Thera.. @BCell_Summit
26 Followers 126 Following the 1st ever cross-disciplinary meeting for large pharma, biotech & academia dedicated to in-depth examination of developing B & plasma cell directed therapies
Vanessa Buisman @vanessabuisman
532 Followers 1K Following Host Freelancer to Founder journeys. "Vanessa looks at someone like creating her own project and that actually saves you a lot of brain work and thinking."
Iefke van Unen @iefkevanunen
39 Followers 226 Following
Sachin Sarcoma Societ.. @SachinSarcoma
2K Followers 5K Following An effective, dedicated and active patient support group in India to help Sarcoma, Desmoid tumor and GIST patients and caregivers all across the globe.
Floortje Mols @FloortjeMols
543 Followers 551 Following Associate Professor in medical psychology - proms - Cancer survivorship @TilburgU @IKNL @profielstudie @Profilesregistr - tweets are my own
BuffaloGrid @BuffaloGrid
1K Followers 1K Following Offline streaming and digital services for the unconnected 🌎 #KnowledgeIsFreedom
Vizocom @vizocom1
709 Followers 5K Following Vizocom provides satellite broadband services, IT & telecommunication solutions, and ELV & security solutions to customers across the globe.
Association of Intern.. @aofirss
2K Followers 4K Following The Aofirs World's leading non-profit Association that provides Training, Education & Certifications Courses for Professional Online Search.
EvelyneRoets @EvelyneRoets
12 Followers 47 Following
Sarkomföreningen @Sarkomfreninge1
95 Followers 168 Following Sarkomföreningen är en ideell patientorganisation för sarkomdrabbade och anhöriga/närstående. The Sarcoma Association is a nonprofit patient organization.
Patiëntenplatform Ze.. @zeldzamekankers
435 Followers 414 Following In Nederland leven meer dan 130.000 mensen met of na een zeldzame vorm van kanker. Dit platform is er speciaal voor hen. Onderdeel van @NFKkanker.
Jet van Lierop @Jetvanlierop
12 Followers 45 Following
Bradley Price @BradleyJPrice
944 Followers 3K Following Director of Policy & Public Affairs @ActionPFcharity. Fleeting between hobby obsessions, currently ☕️🥃🍸⛳️♟️🎷 Views my own. (he/him)
Michiel Van De Sande @michielvds
106 Followers 126 Following Dr. MAJ van de Sande. spec. in orthopaedic oncology and paediatric orthopaedics.
Sarcoma European Lati.. @SelnetH2020
1K Followers 858 Following SELNET aims to improve the diagnosis and clinical care of sarcomas through a European and Latin American network. SELNET has received funds from the EU H2020
Wanda de Kanter @Wdekanter
21K Followers 22K Following Chest physician, oncology, prevention cancer, COPD. Smoking cessation & anti tobacco industry #inequity https://t.co/ol5mEudNey
Sarcoma Cancer Care F.. @CareSarcoma
1K Followers 1K Following Awareness, Prevention, Assistance in Treatment. Prevent Abandonment of Treatment. Rehab, Fight Recurrence. Accommodation, Blood, Tests, Medical Aids. Research
Rashi Kapoor @RashiKapoor17
2K Followers 5K Following Social worker ,sarcoma survivor, President of Sachin Sarcoma Society Life is an echo, u receive what u give, do good deeds,be kind,help others,live each moment
Participatiekompas @Part_Kompas
953 Followers 1K Following Wegwijzer naar patiëntenparticipatie | voor onderzoekers, zorgverleners, beleidsmakers, patiëntenorganisaties | redactie: PGOsupport
Kees Machielse @keesmachielse
314 Followers 583 Following
IT starts with facts @Factual_Reality
236 Followers 362 Following
Economie071 @Economie071
2K Followers 3K Following Via Economie071 werken overheden, ondernemersverenigingen, onderwijs- en kennisinstellingen uit regio Leiden aan het versterken van de regionale economie.
Computational Social .. @CSBS_community
1K Followers 3K Following We are a community of computational social & behavioral scientists from the Netherlands. We share knowledge, skills and inspiration. https://t.co/CcuG9Ahqd9 Based at @UvA_IAS
PiNSA - Primary Immun.. @PiNSA_ZA
333 Followers 875 Following PiNSA is a NPO, patient driven association dealing with Primary Immunodeficiencies (PID) to ensure that PID people in SA receive optimal treatment and support
Sapna Sheth @Sapna_79
181 Followers 1K Following
Uzelf @Uzelf_info
277 Followers 940 Following Uzelf ondersteunt innovaties die elke inwoner uit de regio Utrecht de regie laten voeren over hun gezondheid. Onze thema's: eten | bewegen | slapen | preventie
Jon Trent, MD, PhD @JTrentMDPhD
6K Followers 4K Following Associate Director @SylvesterCancer. Director #Sarcoma and #GIST. Telemedicine and in-person clinics are open. Tweets are my own.
WinetteVanDerGraaf @Winette_vdGraaf
3K Followers 2K Following Medical Oncologist @NKI_nl Amsterdam. Sarcoma; AYA cancer. Prof. @ErasmusMC President of @EORTC, chair @AYAzorgnetwerk @COMPRAYA_study @strong_AYA
Emmy Fleuren @EmmyFleuren
223 Followers 139 Following Team Leader - Sarcoma Biology and Therapeutics. Focus on paediatric and AYA sarcomas, Children's Cancer Institute, Sydney, Australia
SPAGN @sarcomapatients
2K Followers 557 Following Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of Sarcoma, GIST and Desmoid Patient Advocacy Groups
Alessandro Gronchi @alegronchi
3K Followers 205 Following Chair Sarcoma Service - Department of Surgery - National Cancer Institute - Milan - Italy.
Tom Wei-Wu Chen @saxotomy
815 Followers 549 Following Dedicated sarcoma and breast medical oncologist from Taiwan. (National Taiwan University Hospital and Cancer Center)
Anette Duensing @A_Duensing
961 Followers 721 Following Division Head, Precision Oncology of Urological Tumors, University Hospital Heidelberg
Patrick Schöffski @schoffski
1K Followers 448 Following Passionate medical oncologist with experimental + public health agenda heading the Dpt. of General Medical Oncology + Lab. of Exp. Oncology at UZ/KU Leuven (BE)
The Life Raft Group @Liferaftgroup
2K Followers 1K Following Enhancing survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
Brian Van Tine @bvantine1
3K Followers 2K Following Prof of Medicine and Pediatrics, Medical Oncologist, Washington University in St. Louis Sarcoma Doctor, Phase 1 Director, and tumor metabolism researcher.
CTOS @ctosociety
2K Followers 263 Following Medical professionals and scientists from around the world connect, collaborate, and share knowledge, experiences, and research for the treatment of sarcomas.
Sarcoma UK @Sarcoma_UK
11K Followers 3K Following We fund vital research, offer support for anyone affected by sarcoma cancer and campaign for better treatments.
Bone Cancer Research .. @BCRT
9K Followers 3K Following The leading charity dedicated to saving lives and fighting primary bone cancer through #Research, #Information, #Awareness and #Support. We are #TeamBones.
Sander de Hosson @shossontwits
57K Followers 2K Following Longarts. Auteur ‘Slotcouplet’ (2018) en ‘Leven toevoegen aan de dagen’ (2023). “Palliatieve zorg verdient alle spotlights”. Tweets deels door redactie Carend
Suzie Siegel @SuzieSiegel
2K Followers 1K Following Newspaper reporter & editor b4 metastatic #leiomyosarcoma. Master's in women's studies. Board member emerita of #Sarcoma Alliance. #urostomy #colostomy
César Serrano Garcí.. @DrCeSarcoma
3K Followers 608 Following Physician-scientist · #sarcoma #GIST @VHIO | External Group Leader @IRBBarcelona | #SanidadPública | #SinCienciaNoHayFuturo | @MyEsmo Faculty. Tweets are my own
Sarcoma Foundation of.. @CureSarcoma
8K Followers 2K Following The Sarcoma Foundation of America advocates for increased research & better therapies for #sarcoma patients. Join us in the fight to #CureSarcoma #Cancer!
Fondazione Paola Gonz.. @Rete_Sarcoma_It
363 Followers 337 Following The Paola Gonzato Foundation was founded to support sarcoma patients and develop a network among all those who operate in the sarcoma field. Ornella Gonzato
DTRF @DTRFoundation
1K Followers 321 Following The Desmoid Tumor Research Foundation (DTRF) is the only 501(c)3 in the U.S. solely dedicated to finding a cure for desmoid tumors, a rare soft tissue sarcoma.
Erik Voermans @ErikVoermans
1K Followers 166 Following Schrijft, maakt muziek. Ex-klassiekemuziekredacteur Het Parool. Maakt programma's voor de Concertzender. Heeft toffe Fender Telecaster Deluxe gekocht.
Pauline Bouvy-Koene @PaulineBouvyKo1
271 Followers 407 Following
LMSpapers @LmSpapers
113 Followers 3 Following Continuous feed of the latest #Leiomyosarcoma papers and preprints from PubMed, bioRxiv and medRxiv. Twitterbot maintained by @Joseph_Carlson
Deutsche Sarkom-Stift.. @Sarkomstiftung
187 Followers 64 Following Die Deutsche Sarkom-Stiftung ist eine gemeinsame Organisation von Patienten und Experten. Datenschutz: https://t.co/Wa9QgPz6kd
Sorrel Bickley @Sorrel_Bickley
410 Followers 212 Following Director of Research, Policy and Support @Sarcoma_UK. Fitness fan and general science nerd. Views my own. (She/her)
William Tap @WTapMD
2K Followers 690 Following Chief, #Sarcoma Medical Oncology Service, MSKCC, building an #AYA program - advice welcome. #Equity and #CulturalCompetence in #Healthcare and life.
Sebastian Bauer @seppobauer
339 Followers 280 Following #sarcomoloGIST from Essen (that is in Germany) #nurderHSV 🟦 https://t.co/FbFs5JW7Yu
EvelyneRoets @EvelyneRoets
12 Followers 47 Following
annie achee @annieachee
101 Followers 271 Following I am a caregiver of a Leiomyosarcoma-diagosed spouse. My husband is also a very accomplished physician - internal medicine and radiology.
Manon Crijns @ManonCrijns
549 Followers 372 Following Verdwaalde Limburger uit Arnhem | NFK | Worldgymnaestrada ‘23 | triathlon | wielrennen | reizen | buiten I Italië | goede koffie & chocolade
Marleen Stikker @MStikker
106 Followers 0 Following
Windalarm @WindalarmA
821 Followers 802 Following Wij zijn vóór duurzame energie. Echter niet ten koste van onze gezondheid en onze schaarse natuur. Er zijn genoeg alternatieven. IWT = Industriële WindTurbine
Vice President Kamala.. @VP
14.5M Followers 6 Following Vice President of the United States. Wife to the first @SecondGentleman. Momala. Auntie. Fighting for the people. Text me: 310-861-2977
Jill Biden @FLOTUS
4.4M Followers 5 Following First Lady of the United States Jill Biden. Community college educator. Military mother. Grandmother. Wife of @POTUS.
President Biden @POTUS
34.8M Followers 5 Following 46th President of the United States, husband to @FLOTUS, proud dad & pop. Tweets may be archived: https://t.co/HDhBZBkKpU Text me: (302) 404-0880
TARPSWG @TARPSWG
1K Followers 126 Following Transatlantic Australasian Retroperitoneal Sarcoma Working Group. A collaborative group for Surgical Oncologists and Sarcoma Professionals.
Robin Lewis Jones @RobinL_Jones
2K Followers 2K Following Head of #Sarcoma Unit at @royalmarsdenNHS. Team Leader of Sarcoma Trials for @ICR_London. All personally tweeted views are my own.
Sachin Sarcoma Societ.. @SachinSarcoma
2K Followers 5K Following An effective, dedicated and active patient support group in India to help Sarcoma, Desmoid tumor and GIST patients and caregivers all across the globe.
Sarkomföreningen @Sarkomfreninge1
95 Followers 168 Following Sarkomföreningen är en ideell patientorganisation för sarkomdrabbade och anhöriga/närstående. The Sarcoma Association is a nonprofit patient organization.
Michiel Van De Sande @michielvds
106 Followers 126 Following Dr. MAJ van de Sande. spec. in orthopaedic oncology and paediatric orthopaedics.
Sarcoma European Lati.. @SelnetH2020
1K Followers 858 Following SELNET aims to improve the diagnosis and clinical care of sarcomas through a European and Latin American network. SELNET has received funds from the EU H2020
Sarcoma Cancer Irelan.. @SarcomaIreland
1K Followers 2K Following We are a charity for sarcoma patients & their loved ones in Ireland, North & South. Our focus areas are: Advocacy, Education & support. CHY# 20206638
Patiëntenplatform Ze.. @zeldzamekankers
435 Followers 414 Following In Nederland leven meer dan 130.000 mensen met of na een zeldzame vorm van kanker. Dit platform is er speciaal voor hen. Onderdeel van @NFKkanker.
Mirjam van Belzen @BelzenMirjam
257 Followers 573 Following public affairs, stakeholdermanagement, business development, programmamanager, strategie&beleid, fondsenwerven, moeder van drie, kunst, thai chi.
Irene Dingemans @IreneDingemans
372 Followers 431 Following Belangenbehartiger Nederlandse Federatie van Kankerpatiëntenorganisaties
Sarcoma Cancer Care F.. @CareSarcoma
1K Followers 1K Following Awareness, Prevention, Assistance in Treatment. Prevent Abandonment of Treatment. Rehab, Fight Recurrence. Accommodation, Blood, Tests, Medical Aids. Research
Roberta Sanfilippo @Robertasanfili
798 Followers 357 Following Medical oncologist focused on soft tissue sarcoma -National Cancer Institute -Milan
Rashi Kapoor @RashiKapoor17
2K Followers 5K Following Social worker ,sarcoma survivor, President of Sachin Sarcoma Society Life is an echo, u receive what u give, do good deeds,be kind,help others,live each moment
Monique vd Kist 🇪�.. @mvanderKist
4K Followers 5K Following Jurist, oud-advocaat, kinderrechten, (jeugd)strafrecht, advocatuur kan en moet anders, veilige werkomgeving, (psychische) gezondheidszorg
Ton Jacobs @ton65jacobs
3K Followers 4K Following Geboren in '65. Getrouwd in '88. Kids in '89 en '91. Zware depressie in '96. Kanker in '08 en ‘19. Kleinkinderen in '16, ‘18 en ‘21. Leeft!
Roger Wilson CBE @Amocras
981 Followers 390 Following Interests: sarcoma, palliative care, cancer quality of life, PROMs, patient involvement, cancer research, heresy, faith and castles. @[email protected]
Jet van Lierop @Jetvanlierop
12 Followers 45 Following
Irish Sarcoma Group @IrishSarcoma
516 Followers 144 Following Specialist clinicians, nurses & supporting professionals who treat people with sarcoma on the island of Ireland. Founded 2014. Retweets not endorsements
(((Jaye))) @HealthCoachJaye
860 Followers 5K Following Cancer/Wellness Coach/JD,MSK Cycle4SurvivalTeamHOPP, BasserBRCA Young Leadership Council,ChildhoodCancerProject,Anti-Nazi/PROUDJew Motto: #DOGOOD✡️ 🖖🇮🇱🇺🇦🎗
Jan Kremer @JKNL
6K Followers 824 Following ‘Rocking the boat while staying in it’ | hoogleraar zorg & samenleving Radboudumc | speciaal gezant passende zorg | voorzitter RvT OLVG
Hanneke P @hanneke_poort
237 Followers 220 Following Psychologist @Radboudumc 🇳🇱 and Affiliate Faculty Member @DanaFarber 🇺🇸 | Advanced Cancer, Quality of Life, and Fatigue ResearchMajor frustration for the experimental oncologist: being deeply involved in strategic guidance on/preclinical and early and late clinical testing of active novel agents which finally never reach patients in small markets due to either corporate or regulatory decisions.
@jandejongasus @MinPres @ZelenskyyUa U is wel heel dom.
Ik ben erg geschrokken van de extreme, seksueel grensoverschrijdende uitspraken bij een Amsterdamse studentenvereniging. Het toont aan hoe diepgeworteld en hardnekkig het probleem is. Dapper dat er leden zijn die zich hiertegen uitspreken.
Zonder de grote betrokkenheid en inspanningen van trekkers binnen het @PPSarcomen en ook internationaal binnen @sarcomapatients kunnen de #sarcoma zorgverleners niet de relevante en noodzakelijke stappen maken #sarcomaAwareness. #patientinvolvement #DutchSarcomaGroup
Onze Caroline werd geïnterviewd voor het jaarbericht van @hetAVL over de samenwerking tussen PPS en het AVL. jaarbericht.avl.nl/jaarbericht-20…
@debroervanroos Dit gebeurd dagelijks op deze aardbol! Jij gaat elke dag achter “oplichters” aan! Nu het dichtbij komt kruip je onder de bank??
Our CTOS & SPAEN Paper “Global Patient Involvement in Sarcoma Care“ is published in Cancers! bit.ly/3uIj4Zu A remarkable step of a global initiative of Sarcoma Experts and Patient Advocates to address & overcome #challenges in #sarcoma care together!
Vandaag op online borstkanker congres van uit @hetAVL worden de Artsen bijgepraat over #phyllodes tumoren. Door dr. F. van Duijnhoven en @RosenbergerMd uit NY. Toch onze bijdrage kunnen leveren al kunnen we het niet volgen. phyllodes.nl
Well done!!!
Great news for GIST patients. As an extremely rare cancer there's little money for research. This has been possible only because of valuable fundraising by patients, their friends and families - and tireless work by @PAWSGIST founder, Jayne Bressington. Well done, thanks to all.
@ctosociety It is over. We did it ! Amazing team with LizDelmicco @Ylc2001 @ManuPalmerini. Thanks to everyone who helped us to make this meeting happen! See you all in Vancouver next year (I hope)
#Avapritinib toegelaten op de Europese markt #GIST #Europe contactgroepgist.nl/?p=1413
Fabienne (Faab) was een jonge meid met een ontembare levenslust en een zeldzaam #sarcoom achter het oog. Zij overleed in 2019. @OverMijnLijk - gefeliciteerd met de #Televizier Ring en bedankt dat jullie dit programma maken.
"Leven is niet wachten tot de storm voorbij is, maar leren dansen in de regen.” - Dag lieve Faab 💜
#BoneCancerAwarenessWeek2020 heeft als doel: • Vergroten bekendheid van deze zeldzame vorm van kanker • Bewust maken van huisartsen, radiologen, fysiotherapeuten en medische studenten van de tekenen en symptomen van primaire botkanker om verlate diagnose te voorkomen #sarcoma
Kwaadaardige tumoren van bot en weke delen, ook wel ‘sarcomen’ genoemd, zijn zeldzame vormen van kanker. In Nederland wordt de diagnose ‘sarcoom’ jaarlijks bij ongeveer 1.400 mensen gesteld. Hiervan hebben circa 200 mensen een botsarcoom. #Amsterdamumc #LUMC #Radboudumc #UMCG
Botsarcomen (met name het Ewing-sarcoom) komen relatief vaak voor bij kinderen (ongeveer 35 diagnoses per jaar). #VOKK #PMC #BoneCancerAwareness
Nederland telt zeven door het Ministerie van VWS erkende expertisecentra voor sarcomen. Vier van deze centra zijn een expertisecentrum voor botsarcomen: UMCG, LUMC, Amsterdam UMC en Radboudumc. Wij geven ze graag het podium dat ze verdienen. Vandaag meer over het #Radboudumc.
In de Bone Cancer Awareness Week laten we graag 'onze' patiënten aan het woord. Vandaag het verhaal van Monique die in 2010 met een ACT/laaggradig chondrosarcoom werd gediagnosticeerd. patientenplatformsarcomen.nl/?p=6141 #bonecancerawareness #chondrosarcoom #ACT #NFK #IKNL
Ik kreeg vandaag een mailtje van een patiënte met uitgezaaide kanker met wie ik bijna 2 jaar geleden besloot dat de bijwerkingen Vd behandelingen te hevig waren. Ze is dankbaar voor haar LEEFtijd & met goede kwaliteit! #daarwordikblijvan #oncoloog
Ik krijg maar leefgeld voor 1 persoon. En niet dat het ophoudt. Nee bewind maakt er een potje van. En hoe zal mijn zoon dit later meenemen in zn leven? Gescheiden worden van zn moeder. ONTERECHT ook nog eens. Ik ben niet perfect. Maar dit verdienden wij niet. #toeslagenaffaire
Gefeliciteerd @WinanvanHoudt met deze toekenning, waarmee de sarcoomzorg in NL en met name de onderzoekskant weer stap in de goede richting komt. #sarcoma
It is an honour to have been awarded by the Dutch Cancer Society (KWF) with a YIG Grant to build my own translational research lab for sarcoma.I am very grateful to KWF and my collaborators within and outside the @hetAVL as well as @PPSarcomen for their support.
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