Ivy Elkins @ivybelkins
Co-Founder, @EGFRResisters LC Patient Group; writer for https://t.co/W6HLnN0ibZ; lc advocate/survivor; dx stage IV 2013, @Princeton & @Wharton alum. egfrcancer.org Evanston, IL Joined October 2016-
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18 year stage IV EGFR+ lung cancer survivor, Dann Wonser, is raising funds for our research foundation and these donations will be QUADRUPLED! That means that a donation of $100 = $400! Donate here: fundraise.lungevity.org/index.cfm?fuse…
Our thematic analysis of #priorauth comments finds: Patients feel #priorauthorization is a confusing, opaque process that increases the administrative & psychosocial burdens of cancer care. 🏆Dr @BThomPhD won a #APOS2024 Poster Award yesterday for this #fixpriorauth work.
Link to the webinar: Research Update: EGFR Resisters and @lcrf_org This webcast is an update on the three 2022 EGFR Resisters-funded research projects in collaboration with the Lung Cancer Research Foundation (LCRF) lcrf.zoom.us/rec/play/aOYZ-…
February is here and so is our monthly newsletter! This month, read about the Sally Rudney Memorial Fund, lucky T-shirt’s available for purchase, a paid survey opportunity and so much more! Read here: mailchi.mp/19a5cfcd03cd/s…
Exciting news! We’ve extended the BeLUNG Here™ Digital Advocacy Program’s recruitment deadline to Friday, February 9th! #lcsm #JanssenOncology #LungCancer #BeLungHere #HealthEquity #LungCancerAwareness #Ad
Exciting news! We’ve extended the BeLUNG Here™ Digital Advocacy Program’s recruitment deadline to Friday, February 9th! #lcsm #JanssenOncology #LungCancer #BeLungHere #HealthEquity #LungCancerAwareness #Ad
I’ve teamed up with @JNJInnovMed to educate and equip members of historically underrepresented communities impacted by #LungCancer to become online health advocates. Apply for the free BeLUNG Here Digital Advocacy Program so your voice can be heard: bit.ly/48drycy #Ad
Honored to be part of this group! #lcsm @EGFRResisters
Honored to be part of this group! #lcsm @EGFRResisters
Improved efficacy with combination treatment is important, but not necessarily at the expense of quality of life. @ivybelkins shares a patient perspective in #ILCN: bit.ly/3RfmkGP @EGFRResisters #LCSM
@ivybelkins does a good job of outlining the challenges of this therapy. Research has shown that patients would need a two year increase to accept... Patient Perspective: Patients With EGFR NSCLC May Still Opt for Quality Over Quantity After FLAURA2 ilcn.org/patient-perspe…
This should not be happening, @cvspharmacy! Nonsensical refill denials like this add to patient stress and waste valuable oncologist time! #lcsm #lcam #endpriorauth
Congratulations to our Runner Up Junior Faculty winner, @AlvaroQuintanal of @MSKCancerCenter! #EGFR #MedEd #MedX #MedTwitter #EGFRSummit
Congratulations to this year’s Distinguished Young Investigator, @bherzbergmd of @ColumbiaMed and @columbiacancer! #EGFR #MedEd #MedX #MedTwitter @EGFRResisters #EGFRSummit
Congratulations to the @EGFRSummit trainee award winners - Drs. @Kev_Levine @dreyersheetmd and Eric Gardner! Really great presentations all around!
Such an exciting and rewarding opportunity to attend this year’s @EGFRSummit! An overwhelming amount of exciting work presented by talented young physicians/scientists. And powerful talks by influential and eloquent patient advocates. 💪 @EGFRResisters
Such an exciting and rewarding opportunity to attend this year’s @EGFRSummit! An overwhelming amount of exciting work presented by talented young physicians/scientists. And powerful talks by influential and eloquent patient advocates. 💪 @EGFRResisters
I’m excited to be at this year’s EGFR Resisters Research Summit with all of these rising stars! @EGFRSummit @EGFRResisters
A major milestone for the @EGFRResisters — our 5th annual @EGFRSummit! Glad to be here this weekend to meet the young investigators who are the future of #lungcancer research. #lcsm #lcam
A major milestone for the @EGFRResisters — our 5th annual @EGFRSummit! Glad to be here this weekend to meet the young investigators who are the future of #lungcancer research. #lcsm #lcam
So excited to kick off November’s Lung Cancer Awareness Month with this announcement! We have now funded over $1 million in patient- directed research to improve outcomes for patients with #EGFR+ #lungcancer! #lcsm #lcam @EGFRResisters @LUNGevity
So excited to kick off November’s Lung Cancer Awareness Month with this announcement! We have now funded over $1 million in patient- directed research to improve outcomes for patients with #EGFR+ #lungcancer! #lcsm #lcam @EGFRResisters @LUNGevity
We need to do something to streamline the #priorauth process! Honored to be part of this very important project.
We need to do something to streamline the #priorauth process! Honored to be part of this very important project.
A few years back, @NarjustFlorezMD told me about an idea for a study on #sexualhealth in women with #lungcancer . Today, the paper is online! Congrats, team! @KellyMezaMD, @AnaVManana, @jillfeldman4, @IvyRadOncMD, @ivybelkins @JenniferCKing acsjournals.onlinelibrary.wiley.com/doi/10.1002/cn… #LCSM
Stephen V Liu, MD @StephenVLiu
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9K Followers 930 Following Professor of Medical Oncology @CancerCentreIre | Thoracic Oncologist | Immunotherapy & Immune toxicity | Adjunct faculty Johns Hopkins UniversityNarjust Florez, MD, F.. @NarjustFlorezMD
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192 Followers 281 Following Texas Farmer. Raises cattle, horses, kind and grows plants. Focus on the underprivileged and underprivileged children. Only my personal opinionAudrey Baier @baieraud
0 Followers 53 FollowingStephen V Liu, MD @StephenVLiu
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36K Followers 480 Following Senior Executive & Chief GU Cancers @DanaFarber; Prof Medicine @HarvardMed; 2021 Giants of Cancer Award ⚽ lover; 🚲@PanMass, seen on @msnbc @cnn @TODAYshow @GMAFaces of Lung Cancer @LungCancerFaces
11K Followers 2K Following Change the conversation around Lung Cancer: no stigma, fair research funding, early detection, media attention, survival. #lcsm 🇮🇱 עַם יִשְׂרָאֵל חַי 🇮🇱Dr. Amy C. Moore @acmoorephd
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5K Followers 3K Following Founder of the Chris Draft Family Foundation, Co-Founder @Teamdraft with #KRD #WeAreGoingtoFight . NFL Ambassador @NFLPlayerEngage. Motivational speaker.H. Jack West, MD @JackWestMD
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19K Followers 4K Following Director Breast Oncology, Lifespan Cancer Institute, Legorreta Cancer Center Brown Univ | Medical Advisor @drloveresearch | #bcsm #clinicaltrials | Views MineNathan A. Pennell MD,.. @n8pennell
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198 Followers 720 Following Postdoctoral Scholar at the Alexandrov Lab @UCSanDiego | PhD, Medicine and Translational Research @OGIPclinic/@UniBarcelona | MS, Civil Engineering @UDC_galSheldon L. Holder @SheldonLHolder
680 Followers 557 Following Assistant Professor of Pathology and Laboratory Medicine | Medical Oncologist | Physician ScientistHematology & Oncology.. @HemOncWomenDocs
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173 Followers 328 Following ABIM 🇺🇸| LMCC 🇨🇦 | Ex-Chief Resident @KUSM_Wichita | Heme/Onc Fellow @Karmanoscancer Institute | #Biomarkers #Precision_Onc @McGillAlumni | @AUBAlumni 🇱🇧|Ilit Turgeman @TurgemanIlit
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94 Followers 47 Following Dr. Maingi is a hem-onc and palliative care physician who works in upstate New York and is the co-chair of ASCO’s sexual and gender minorities task force.Lesley Aitken @lesaitken222
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114 Followers 606 Following 🫁 & Critical Care Fellow, PGY-VI. St. Luke’s University Health Network. Future Interventional Pulmonologist via University of Florida 🐊Eduardo Cronemberger @educronemberger
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142 Followers 32 FollowingRitika Behera, MBBS @Behera_Ritika98
828 Followers 2K Following Actively seeking #postdoc #research opportunities | LTMMC 2023 grad | #USCE at #Yale #Hematology-#Oncology and #Cornell #NephrologyAmerican Lung Cancer .. @alcsiupr
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794 Followers 378 Following Associate Professor, UNC Chapel Hill, Pharmacology Department | Research: #Epigenetics, #Wnt signaling, #Cancer | UT-Austin, UNC, & Johns Hopkins SOM AlumnusKamal Dua @Kam_Dua
1K Followers 1K Following Associate Professor, Pharmacy at the Graduate School of Health University of Technology Sydney Working at the Drug delivery/Biology/Chemistry/Medicine interfaceMakeupBoricua 🤍�.. @Makeupboricua
80 Followers 154 Following From Puerto Rico☀️🏖️🇵🇷/Latina /Amateur Trader/Lung cancer survivor (EGFR 19) 🫁🤍Kristian @Northen_Onc
87 Followers 359 Following Medical Lung Oncology from an European perspective. All perspectives and opinions are my own.Malak Munir @MalakMunirMD
113 Followers 757 Following Medical Intern ⚕ | Aspiring Researcher & Heme/Onc🩸| Interested in Health Disparities, CardioOnc 🫀, Palliative Care 🩺 | Coffee Drinker ☕️ | World Traveler 🌍Kelsey Pan, MD, MPH @KelseyPanMD
301 Followers 267 Following @MDAndersonNews Heme/Onc Chief Fellow via @UFIMRes. Interested in Thoracic OncologyNasser Hanna @hannawants2ELCN
151 Followers 274 FollowingAmy Grove @AmyWyde1340
30 Followers 66 Following Stage 4 squamous non-small cell lung cancer with MET amplification mutationWe are proud to share the accelerated approval by the US FDA of the first targeted medicine for the treatment of patients with relapsed or refractory pediatric low-grade glioma (#pLGG) with a BRAF fusion or rearrangement, or BRAF V600 mutation. Learn more: bit.ly/3xNgk0P
🇺🇸 It was a great day in DC for the #ASCOAdvocacySummit with these phenomenal colleagues from New York. It was a pleasure to meet with congressional staffers as part of such an active and engaged team of physicians. @VamsiVelcheti @jatwanikaran @BobbyDalyMD (missing @MKnoll_MD)
Sunandana Chandra, MD, (@MunTheLoon) and Nisha Mohindra, MD, are on Capitol Hill at #ASCOAdvocacySummit — supporting patients through advocacy for #cancerresearch and access to high-quality cancer care. @ASCO @LurieCancer @NorthwesternMed
Normalize that *healthy* people can still be diagnosed with cancer. Normalize taking a step back from everything else to focus on your health. Normalize respecting the privacy of patients. Normalize that patients on cancer treatment can look normal, or not.
A message from Catherine, The Princess of Wales
18 year stage IV EGFR+ lung cancer survivor, Dann Wonser, is raising funds for our research foundation and these donations will be QUADRUPLED! That means that a donation of $100 = $400! Donate here: fundraise.lungevity.org/index.cfm?fuse…
To say I am & deeply honored to receive @ASCO Patient Advocate Award is an understatement! I wouldn't be the advocate I am w/out the tireless & collaborative efforts of our community to advance research, elevate the patient voice & drive meaningful change. TY from bottom of my❤️
🎉 Along with @ConquerCancerFd, we congratulate the recipients of our 2024 Special Awards! ➡️ brnw.ch/21wI5Wc #ASCO24
So well deserved, @jillfeldman4! Congratulations on the @ASCO Patient Advocate Award! You inspire ALL of us 🤍
To say I am & deeply honored to receive @ASCO Patient Advocate Award is an understatement! I wouldn't be the advocate I am w/out the tireless & collaborative efforts of our community to advance research, elevate the patient voice & drive meaningful change. TY from bottom of my❤️
Our thematic analysis of #priorauth comments finds: Patients feel #priorauthorization is a confusing, opaque process that increases the administrative & psychosocial burdens of cancer care. 🏆Dr @BThomPhD won a #APOS2024 Poster Award yesterday for this #fixpriorauth work.
🏆@AlvaroQuintanal of @MSKCancerCenter shares his experience at #EGFRSummit! #EGFR #NSCLC #LCSM @EGFRResisters
My current Rx based on data from this trial BUT I wouldn’t have qualified (had prev Rx) NOWHERE in r pts hand-picked, closely monitored & so well cared for as in trials! Context/People’s lives essential & #RWD cohorts (analysis separate) to help w/routine clinic Rx decision #LCSM
Real world analysis of pts with #EGFR NSCLC treated with osimertinib who would have been ineligible for the phase III FLAURA trial @LungCaJournal. Nearly half of pts would have been ineligible (mostly PS). mOS for ineligible pts 16m vs 34m for eligible. lungcancerjournal.info/article/S0169-…
Targeting GFPT2 to reinvigorate immunotherapy in EGFR-mutated NSCLC biorxiv.org/content/10.110…
Thank you @LauraJBook for your continued advocacy!! 💜
Today, I am joining advocates from across the country to urge Congress to increase funding for lung cancer research at @GO2forLungCancr #VoicesSummit. I am proud to raise my voice and represent WA state]. Take action: go2.org/advocacy/take-…
More options for our EGFR #lungcancer community: Brigatinib, a newly discovered AXL inhibitor, suppresses AXL-mediated acquired resistance to osimertinib in EGFR-mutated non-small cell lung cancer. Unfortunately subscription required @Nature nature.com/articles/s4140… #LCSM
Members of the CGC Advocacy Panel attended the @CancerGrand Summit. #lungcancer #advocates @LUNGevity @OncogeneCancer @ALKPositiveinc @CR_UK @CancerOG
Link to the webinar: Research Update: EGFR Resisters and @lcrf_org This webcast is an update on the three 2022 EGFR Resisters-funded research projects in collaboration with the Lung Cancer Research Foundation (LCRF) lcrf.zoom.us/rec/play/aOYZ-…
Soaking in some quality time with my fellow #3MusketeersforLCSM and the one and only @jillfeldman4! Moving the field forward with #patienteducation research is our passion! #TTLC24 #lcsm @ADesaiMD @FawziAbuRous @jillfeldman4 @IASLC @LUNGevity
@TerriConneran @KRASKickers kicks off our afternoon session at #TTLC24 with a focus on patient advocacy! “A mutation for me means more than just the name… it’s an identity.” #lcsm
Dr. @ZPiotrowskaMD gave an eloquent and comprehensive talk outlining a blueprint for future work in the field of EGFR therapeutics. 🔥 🔥 🔥 @MGH_WiO #TTLC24 @MGHThoracicOnc @IASLC
@n8pennell @LovaSunMD Hard to argue against using ami + chemo, with a significant improvement in PFS, albeit no OS data yet. Agree that intracranial efficacy and less tox would be ideal! #TTLC24 @IASLC