Environmental Illness Community @kimkramer2012

Discusses environmental illnesses like chemical injury, #fibromyalgia, #aging, #PTSD, #MECFS, #MCAS, #MCS, etc. Follow us for more! eirn.info Edgewater Fl Joined February 2014

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MortenGroupOxford @OxMEDiscovery

4 months ago

Some recent thoughts this end. Could barrier dysfunction be the key driver in ME/CFS and similar conditions? Gut leak in ME/CFS likely increases burden on the immune system. The “blood microbiome” seems more extensive than previously thought.

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Dana Parish @danaparish

5 months ago

Whether Longcovid, MECFS, or chronic Lyme… “Many people have the same symptoms but with a different cause.” - David Putrino There is so much overlap in chronic illness symptoms bc the body can only express itself in so many ways. Treating root cause is often 🔑 to recovery.

PolyBio @polybioRF

5 months ago

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PwME 4 bioMEdical research @ValeBodi

5 months ago

Long-COVID Postural Tachycardia Syndrome: A deep phenotyping study from Stanford LC-POTS was associated with widespread autonomic dysfunction, including orthostatic tachycardia, sympathetic adrenergic hyperactivity, small fiber neuropathy, and dermal P-Syn medrxiv.org/content/10.110…

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Stanford Pain Medicine @StanfordPain

5 months ago

Some used to think fibromyalgia was closely linked to anxiety and depression. But the latest research shows that’s not really the case. Recent data suggests that people with fibromyalgia don’t have higher rates of depression or anxiety than people with other pain problems. What…

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Fibromyalgia Association Canada @fibrocanada

5 months ago

A New Month a New Poll!! 📊 FAC wants to hear from you! FAC has just launched a new poll & your input helps us better understand the needs of our fibromyalgia community & shape future support, education, &advocacy. Click the link to share your voice! fibrocanada.ca/en/informal-re…

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Billy Hanlon @bhanlon15

5 months ago

'Clinical trial underway for potential Long COVID treatment' 'Nova Southeastern University & Schmidt Initiative for Long COVID will study the efficacy of a long-acting antibody for treating Long COVID' 'With funding from SILC..led by Dr. Nancy Klimas..' eurekalert.org/news-releases/…

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Dr Alo, DO, FACC @MohammedAlo

5 months ago

Daily Steps & Non-Alcoholic Fatty Liver Disease 1️⃣ Low physical activity raises NAFLD risk; this study examines how daily step count relates to NAFLD. 2️⃣ Results showed that each 1,000-step increase reduced NAFLD risk by 12% overall and 6% when using imaging, adiposity…

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Mike Hoerger, PhD MSCR MBA @michael_hoerger

5 months ago

Dr. Putrino at @CoRESinai describes his big-picture approach to assessment and treatment planning for #LongCOVID in a way that's readily understandable. Everyone should watch this. 👇 Auto-captioned from the @polybioRF clip.

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MaskTogetherAmerica @TogetherWeMask

5 months ago

NHLBI @nih_nhlbi explains how people with COVID-19 can develop blood clots that can lead to organ damage, heart attack or stroke. bit.ly/NHLBI_C19Blood… Vaccination, masking, ventilation, having activities outdoors & avoiding crowds help reduce the risk. #MaskTogetherAmerica

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🔬 RicardoMontes @_MCRicardo_

5 months ago

Distinct adipose progenitor cells emerging w/age drive active adipogenesis This is the first evidence that our bellies expand w/age due to the stem cell's high output of new fat cells. This can occur even whitout change in diet & exercise. science.org/doi/10.1126/sc… @HealthyFellow

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GC @ThePOTSPostman

5 months ago

What are some lesser-known symptoms you’ve experienced with EDS/POTS/MCAS or any chronic illness, that doctors totally overlooked or said “wasn’t related”but actually was?

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Martin Picard @MitoPsychoBio

5 months ago

In our bodies, a whole universe of energy

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MCAS, PTSD and ME @FatigueMe92484

5 months ago

@PsychiatristCNS I was having a PTSD flare but previous episodes showed neurological/psychiatric episode improved with b12. I tried to get a shot in the hospital after subsequent flare and the nurse thought I was being bullish!

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Billy Hanlon @bhanlon15

5 months ago

CIDRAP: 'Long COVID has unique symptoms, persistence not seen in flu, pneumonia, research suggests' 'The findings were published yesterday in PLOS One' cidrap.umn.edu/covid-19/long-…

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MCAS, PTSD and ME @FatigueMe92484

5 months ago

MECFS won't be a priority!

Dr. Catharine Young @DrCatharineY

5 months ago

MECFS won't be a priority!

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Stella Chadwick | Functional Medicine @stella_chadwick

5 months ago

Psychosis. Tics. Hallucinations. Rage. When a child suddenly changes, it’s often called psychiatric. But sometimes, it’s not. A major new clinical study found: -195 patients with severe psychosis. -164 had autoimmune psychosis. -71% had anti-NMDAR encephalitis. -Nearly…

Jesus Ramirez-Bermudez @JRBneuropsiq

5 months ago

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Sten Helmfrid 🇺🇦 @StenHelmfrid

5 months ago

People should know about ME/CFS, just as MS, Parkinson’s, and diabetes are common knowledge. When ME patients disclose their illness, they are often met with comments such as “I’m also tired”. Patients shouldn’t have to face such ignorance—it’s a severe illness. #MEAwarenessHour

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ME/CFS Science @mecfsskeptic

5 months ago

1) 🎥🍿 There's a new film about ME/CFS and other Post-Acute Infection Syndromes (PAIS). The interesting thing is that it lets doctors with the illness speak about their experiences. youtube.com/watch?v=J0ywwL…

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Ror Preston @RorPreston

5 months ago

Our analysis suggests Long COVID, inc. COVID-triggered ME/CFS, now ranks among the most burdensome diseases in the US — ahead of stroke, diabetes & COPD It’s a rough estimate, but the message is clear: this crisis can’t be ignored. We need to scale research, funding & support

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Michael R Scoma MD @DrMichaelScoma

5 months ago

Administration of antibiotics and probiotics may exert serious unintended consequences in ME/CFS and LC as alterations of the gut microbiome amidst a backdrop of immune dysregulation, autonomic dysfunction, and a vulnerable gut-brain axis may precipitate clinical deterioration.