Sarah Albert @phoenixofashes
Mother of 4 boys, 1 with Down's Syndrome. Husband with M.S. I have M.E/CFS/FMS in very gradual recovery. about.me/phoenixofashes UK Joined May 2009-
Tweets272
-
Followers79
-
Following130
-
Likes12
@gregjfoster hey sorry am fine thanks just been trying to cut back on tablet usage. Not good for the ole brain!
If anyone has strange messages from me ignore them, think ive been hacked!
@drunkitty2000 yeah people keep saying that!
"@OfficialSanta: It's little baby Rudolph!!! #RudolphTheRedNosedReindeer " So cute!
@drunkitty2000 totally with you on that one!
@fragileannie I know the feeling. My couch is a very good friend of mine!
@RichardCann76 yup because next time you never know it might be ok!
@RichardCann76 probably! I attempted a bike ride last year and it nearly killed me, then I was stuck to the sofa for 3 weeks
@RichardCann76 same here, I had a period of 1 year being able to go to the gym with little consequence, that was 10 years ago! Not since.
@RichardCann76 I can't remember either it's been 20 years!
Yellow Warning of Wind for East of England: Yellow Warning of Wind for East of England : Essex, Norfolk, South... bit.ly/1d16XFW
The count down to high tide is now on. #storm #farneislands #seahouses
A strategy for defining and distinguishing ME & CFS - wames.org.uk/cms-english/20…
@LiekeME what are your symptoms? I think I get them too x
@GilesMeehan love that film! Quite depressing tho I need to watch a comedy straight after!
Phoenix Rising @aboutmecfs
6K Followers 3K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF
Geoff 💙 @geoffers1967
2K Followers 3K Following Bit poorly. Campaigning for ME Research/Awareness. Music ⭐️ Films ⭐️ Sport ⭐️ Comedy ❤️ Nieces ❤️ Animals ⭐️ Spurs ⭐️ Thomas Dolby ❤️ Janey ❤️
ME Pyjama Party | ME/... @MEPyjamaParty
143 Followers 594 Following Put on your PJs. Take a photo. Give ME a face. Join the worldwide #MEPJParty 🌍 ME awareness. Everyone welcome. 🫶🏻 Together, we’re giving ME a face.
Spoonie Sally @spoontees
1K Followers 3K Following I am an eds, cfs pots and spoonie. I've decided to create t shirts for the spoonie community.
ME/cvs Vereniging @MEcvsVereniging
2K Followers 288 Following Het officiële twitteraccount van de ME/cvs Vereniging, voor nieuwsberichten en vragen.
#MEAction Network @MEActNet
19K Followers 2K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Kyle Davies @EnergyFlowCoach
3K Followers 4K Following Passionate about helping people break free from chronic fatigue, pain, burnout, anxiety, and depression from the inside out.
I Feel Pretty @youniquebyklo
242 Followers 1K Following Bringing to you a new affordable range of beauty must haves that every make-up addict is going to want to get her hands on... PM me for more info on the range
Clark Ellis @IamClarkEllis
858 Followers 444 Following I write fiction and about ME/CFS. Advocate, autodidact, christian. Interested in everything.
FeelingtheFibro @FeelingtheFibro
465 Followers 354 Following Hey! I'm Abi, I am 18 and have fibromyalgia. I love children and would love to finish my studies and become a primary school teacher, fibromyalgia or not.
Monica S @MissStarr81
277 Followers 2K Following Me: Strength.Hope.Believer. Dreamer. Creativity.Visionary. Friend. Sister. Auntie. Sentimental. #MECFS #CFS #MEACTION MECFS Chronic Fatigue Syndrome. Support.
health for all @pedro_karim
2K Followers 3K Following The difference between a successful person and others is not a lack of strength, not a lack of knowledge, but rather a lack of will.
ME/CFSCoach @simonpimenta
2K Followers 2K Following Mind Body & Wellbeing Coach. Recovered from 8 years #me #cfs #fibromalgia and want to share what I learned and help others
Spoonie Sophia 🌈 @spooniesophia
2K Followers 492 Following Battling chronic Lyme & Co, POTS, Gastroparesis, full body Small Fibre Neuropathy, MCAS and more... currently bedbound 🛌 🙏🏻🌊
Tony Higton @TonyHigton
115 Followers 103 Following Anglican Priest,concerned re need of Revival https://t.co/tmtBgK0zH5, Bible subjects,inc signs of End Times,Return of Christ, https://t.co/6GTK22CBGJ
Quickcard @QuickCardUK
225 Followers 566 Following When it comes to cards, we're the business. One call sorts it all. We specialise in large print orders at trade prices. 020 8648 1714
Adopt CCC for ME @AdoptCCCforME
242 Followers 533 Following ME: debilitating disease mis-named as CFS. 50 international experts say CCC is best description. Pls sign our petition to adopt CCC for ME in N.Ireland
Peter Christopher @peterjcLFC
304 Followers 2K Following
L2 @SpoonMePlz
772 Followers 875 Following Sometimes, you just need a spoon. Trying 2 see the humor in #fibromyalgia one day at a time. Disclaimer: May whine occasionally-it's a process. #Spoonie #beauty
ProHealth @ProHealth
3K Followers 2K Following Our mission is to support sufferers of #Fibromyalgia, #ME #CFS & related disorders by offering world class nutritional supplements
MS WILL LOSE™ @mswilllose
2K Followers 2K Following MISSION to motivate,uplift and inspire people to Keep moving no matter what obstacles you may be facing please check out my Podcast at the link below
MEawareness.com @MEaware
66 Followers 177 Following
The Pillow Fort @ThePillowFortUK
2K Followers 1K Following Cute products, bi-monthly digital magazine, community + blog to make chronic illness (physical and mental) suck less! Run by @marchingstars.
Ali 🦄 @AliW33
1K Followers 1K Following Mummy to a Princess. Love a random act of kindness. Long term sufferer of M.E. Leeds.
Macilla Randolph @macilla2014
66 Followers 475 Following wife. mother. voice of reason. lover of movies. reality tv.
Kathryn Drover, PT, a... @5toolstojoy
550 Followers 1K Following I am a writer. I have created a program to teach people how to heal themselves from chronic lifestyle illnesses. A new approach to healing mind and body.
Abigail N Hamilton @1anhamilton
13 Followers 70 Following
M Rewis @m_rewis
40 Followers 569 Following I am wife and mother. animal lover. love movies especially suspense and horror. of course loud hard rock music.
Kat Stradling @forever_tired
71 Followers 302 Following I have Myalgic Encephalomyelitis (M.E), Fibromyalgia & Psoriatic Arthritis so i sleep a lot, take a lot of morphine and read many books.
DancingScoliosis @ScoliosisDancer
923 Followers 1K Following I'm a dancer with Scoliosis, hip bursitus, IBS, CFS/ME, RA,CM, and endo. Fighting Everyday :) Dancing through the pain. ballet, tap, jazz, lyrical, kickline.
Darryl Partridge @leguponfitness1
3K Followers 4K Following #PersonalTrainer, SGX #Spartan Coach, #adaptive Trainer, BK #Amputee. Owner of Leg Up On Fitness, studio training, virtual training, virtual fitness classes.
Colin-Roy Hunter @criquaer
1K Followers 2K Following Happy queer pantheistic Quaker, despite being disabled by & sufferer from inter alia #MyalgicEncephalomyelitis. Non-partisan. Always follow back #pwME. %)
Sue Ingebretson @SueInge
37K Followers 34K Following Speaker & Holistic #Health Care #Coach Living Well with #Fibromyalgia. #Author of #1 Amazon #ChronicIllness best-sellers #FibroWHYalgia #GetBackintoWhack
mike gargett @MikeGargett
10K Followers 11K Following i belive in the truth but not everyone does which is a shame but it needs to b so true if u want someone xxx
Barefoot Doctor @BarefootDoctor
40K Followers 30K Following The Barefoot Doctor legacy is going strong: the mission is being continued by his sons Joe, Jake and Michael, sharing Ancient Wisdom for Modern Follies.
DoingChronicallyIll @supersickchick
757 Followers 2K Following Writer RE: #care, #chronicillness, #mentalhealth, #bipolar, #anxiety, #mysterydisease, #pots & #mecfs. Writing gritty, raw essays based on personal experience.
Nancy @FibroFlow
2K Followers 1K Following Mother, dancer, desire coach living with Fibromyalgia for 25 years who helps people learn to thrive so they can flow through life. Go for the JOY!!
irene/upa @upasbook
1K Followers 907 Following Fighting BAD MECFS,fibro,insomnia,migraines;now thyroid,POTS. Mom,wife,bookaholic,beauty junkie.Luved to garden,cook.Plz join blog 4 empowering info&laughter.
Mickel Therapy @MickelTherapy1
4K Followers 4K Following A methodical approach to treating Chronic Fatigue Syndrome, ME, Fibromyalgia & more. Available worldwide.
Save A Spoon @Spoonie_Life
6K Followers 5K Following A girl battling #chronicillness & #chronicpain almost all my life: sharing support, tips & general life! #spoonie
Firecracker @Fighting4M_E
2K Followers 969 Following Raising awareness & advocating for all with ME, Haemophilia, POTS, Dysautonomia & EDS. Here to speak up for our beautiful disabled community!
Janelle @janwly
2K Followers 1K Following 21 yrs experience as a #pwME. Science interest. Tweets about #MEcfs, other neglected diseases, disability, research, etc. Follow, RT not= endorsement. she/her
Kati D @a_parrot_or_two
2K Followers 3K Following
#MEActUpUSA @meagent99
4K Followers 3K Following #MEActUp #ME Pts Exposing Fraud Of Govt Cover-Up of #Myalgic Encephalomyelitis Under The Name Of #CFS & Within The #ME Community Under The Name Of Advocacy,,
Stop Sexual Abuse @PassStricterLaw
2K Followers 2K Following Child Advocate, Stop Sexual Abuse At School, Pass Strict Liability Laws, Lobby State to State, Take It to the Hilt
bernie @berndog
355 Followers 26 Following
Lynn+Ben Roe 🎗💙... @Lynn_BenRoe1
3K Followers 2K Following Ben 18 born Down Syndrome diagnosed with 2 diffrent forms of Leukaemia now in heart failure WWE fan. Lynn adopted 3 boys all special needs loves being a mum
Michael Albert @mikealbert001
3 Followers 0 Following
Counselling Training @GrowAsYouTrain
27 Followers 20 Following The Marriotts Counselling & Training Academy - working together to support lifelong learning and growth in our community.
Adriano Verona @AdrianoVerona1
2K Followers 0 Following
Shawn Gwynne @ShawnGwynne
494 Followers 0 Following
Tony Higton @TonyHigton
115 Followers 103 Following Anglican Priest,concerned re need of Revival https://t.co/tmtBgK0zH5, Bible subjects,inc signs of End Times,Return of Christ, https://t.co/6GTK22CBGJ
Mickel Therapy @MickelTherapy1
4K Followers 4K Following A methodical approach to treating Chronic Fatigue Syndrome, ME, Fibromyalgia & more. Available worldwide.
Barefoot Doctor @BarefootDoctor
40K Followers 30K Following The Barefoot Doctor legacy is going strong: the mission is being continued by his sons Joe, Jake and Michael, sharing Ancient Wisdom for Modern Follies.
mike gargett @MikeGargett
10K Followers 11K Following i belive in the truth but not everyone does which is a shame but it needs to b so true if u want someone xxx
Darryl Partridge @leguponfitness1
3K Followers 4K Following #PersonalTrainer, SGX #Spartan Coach, #adaptive Trainer, BK #Amputee. Owner of Leg Up On Fitness, studio training, virtual training, virtual fitness classes.
DancingScoliosis @ScoliosisDancer
923 Followers 1K Following I'm a dancer with Scoliosis, hip bursitus, IBS, CFS/ME, RA,CM, and endo. Fighting Everyday :) Dancing through the pain. ballet, tap, jazz, lyrical, kickline.
M Rewis @m_rewis
40 Followers 569 Following I am wife and mother. animal lover. love movies especially suspense and horror. of course loud hard rock music.
Abigail N Hamilton @1anhamilton
13 Followers 70 Following
Kathryn Drover, PT, a... @5toolstojoy
550 Followers 1K Following I am a writer. I have created a program to teach people how to heal themselves from chronic lifestyle illnesses. A new approach to healing mind and body.
Macilla Randolph @macilla2014
66 Followers 475 Following wife. mother. voice of reason. lover of movies. reality tv.
Jeannette Burmeister @JKBurmeister
3K Followers 699 Following Attorney (California, formerly licensed in Berlin, Germany), successfully sued NIH + HHS for ME-related FOIA violation (incl. all of $140k attorneys' fees)
Janelle @janwly
2K Followers 1K Following 21 yrs experience as a #pwME. Science interest. Tweets about #MEcfs, other neglected diseases, disability, research, etc. Follow, RT not= endorsement. she/her
Save A Spoon @Spoonie_Life
6K Followers 5K Following A girl battling #chronicillness & #chronicpain almost all my life: sharing support, tips & general life! #spoonie
#MEActUpUSA @meagent99
4K Followers 3K Following #MEActUp #ME Pts Exposing Fraud Of Govt Cover-Up of #Myalgic Encephalomyelitis Under The Name Of #CFS & Within The #ME Community Under The Name Of Advocacy,,
Cole Alexander @ColeAlexander25
86 Followers 252 Following Living with M.E. for 25 years and counting. I'm a husband, father of two, poet and a friend.
Dan Neuffer @cfsunravelled
15K Followers 4K Following ME/CFS/Fibro Recoverer, Author and speaker helping people with #MECFS,#Fibro, #POTS #ChronicFatigue #CFIDS,#MCS,#Fibromyaligia see that RECOVERY IS POSSIBLE!
Gina Bailey @ginabailey2
494 Followers 2K Following Author of The Menopause and ME (CFS). Living with ME for 15 yrs. Poet and hypnotherapist. Interested in alternative therapies/natural health/surviving ME/CFS/FM
Gre g @imhete
984 Followers 849 Following I'm a non-bio sort of person myself. Feel free to exchange ideas and express views.. we're all learning! AI says I'm dynamic, so there.
Kati D @a_parrot_or_two
2K Followers 3K Following
Colin-Roy Hunter @criquaer
1K Followers 2K Following Happy queer pantheistic Quaker, despite being disabled by & sufferer from inter alia #MyalgicEncephalomyelitis. Non-partisan. Always follow back #pwME. %)
multi-FLAIR-ious @multiFLAIRious
251 Followers 23 Following multi-FLAIR-ious: To be multifarious with FLAIR! A lover of people, animals, & all things good~Ginger~Glass Art #Safemoon
Rachel M @BlueCoffeeMug
391 Followers 117 Following Living with severe Myalgic Encephalomyelitis. Retired accountant due to severe chronic illness. Homebound hobby photographer. https://t.co/fChGLR9tDG
Laura Tilley @LauraJaneTilley
23 Followers 64 Following Current chair person for Peterborough Area Downs Syndrome Group (PADSG) see our website for more information
Iridescence @ActionNowGal
383 Followers 609 Following Former Entertainment PR and Marketing guru in London, now a 9/11 advocate and hardcore Supernatural fan. Am a Jared girl:) Hardcore Linkin Park fan.
Courtney A Miller @CourtneyA999
293 Followers 221 Following Views are mine alone, and retweets are not necessarily endorsement.
Megan S @MegLiveKen
2K Followers 2K Following Helping others to live #sustainable fulfilling lives with or without #invisibleillness #Spoonie
Kat Stradling @forever_tired
71 Followers 302 Following I have Myalgic Encephalomyelitis (M.E), Fibromyalgia & Psoriatic Arthritis so i sleep a lot, take a lot of morphine and read many books.
irene/upa @upasbook
1K Followers 907 Following Fighting BAD MECFS,fibro,insomnia,migraines;now thyroid,POTS. Mom,wife,bookaholic,beauty junkie.Luved to garden,cook.Plz join blog 4 empowering info&laughter.
supportinginvestinme @arisonned
2K Followers 4K Following SICK WITH M.E SINCE 1996. CAUGHT LYME IN 2014. NO TREATMENT FOR EITHER. EVERYONE DESERVES TREATMENT 💙💚
Nancy @FibroFlow
2K Followers 1K Following Mother, dancer, desire coach living with Fibromyalgia for 25 years who helps people learn to thrive so they can flow through life. Go for the JOY!!










