MEawareness.com @MEaware
Joined February 2014-
Tweets11
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Followers66
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Following177
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Likes1
Scrap the change in mobility rules for PIP that reduce ability to walk threshold from 50m to 20m. you.38degrees.org.uk/petitions/twen… via @38_degrees
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This makes my blood run cold - "medical kidnapping" -another Justine Pelletier case? 2 Sisters Seized By Phoenix hosp inquisitr.com/1524122/two-si…
MEawareness.com retweeted
Support those with M.E & be BLUE! Send me a photo & join the Gallery of Blueness! I'd LOVE to see your blue pics! ♡
MEawareness.com retweeted
The video of song about ridiculous recovery criteria reported on in £5m #PACEtrial now also has 1000+ views youtube.com/watch?v=QbKTBM… #MECFS
MEawareness.com retweeted
On #May12th, Int'l ME Awareness Day, ME experts & patients answer questions about #ME. RSVP: buff.ly/1pSEHzN.
MEawareness.com retweeted
It's @Stroopwaffle's birthday! She's got v severe ME, bedbound, in silence & too ill to reply to tweets. Cd u tweet her a happy/funny pic?
Simply brilliant video - must-view for all Drs -"@RichCarsonsDeal: CBT proven helpful for MECFS? Really? Not really. ow.ly/wgehE"
MEawareness.com retweeted
So sad to hear that Irene, @upasbook has sadly passed away. My thoughts are with her family & friends. kepnerfuneral.com/obituaries/Ire… RIP Irene x
"@MEAssociation: This is a very reliable disability rights handbook, updated annually .@DisRightsUK #mecfs #MyalgicE "
MEawareness.com retweeted
Wyller inadvertently demolishes the 'deconditioning' AND the 'stuck in flight/fight' theories of cause of ME/CFS cortjohnson.org/blog/2014/02/1…
This is a Twitter account still under construction, of sorts, but I hope it will be a place to raise awareness of ME, a neurological illness
Clara Valverde @enfermarebelde
5K Followers 7K Following Sick anarchist. Rebel writer. Retired nursing professor. Canadian expat. #ME/CFS #CriticalGeography #FreePalestine #Feminisms #FrailButFurious #SectBusters
Joanne Mead-Hunt @jomead02
22 Followers 363 Following Addicted to nail art, Fibromyalgia sufferer and fighter
Margaret Rumney @RedRubyGem
535 Followers 339 Following Mother of 32 year old daughter who has severe M.E, she has been ill since the age of 11 & is now mostly housebound. Aiming to raise awareness for M.E
Phoenix Rising @aboutmecfs
6K Followers 3K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
MEcfs together @MEcfsTogether
789 Followers 1K Following I retweet and initiate small community projects and bundle our voices to raise awareness 🇬🇧🇩🇪 / send valuable tweets via DM / #MEcfs #pwME #millionsmissing
Birgit Gustke @BeeGee26168032
2K Followers 914 Following Aktiv für mehr #MECFS #Information, Forschung, Fortbildung, Menschen mit ME/CFS #LongCovid #PCS #PostVAC #MCAS #POTS #FatigatioeV
Information on ME @FletcherLSeagul
75 Followers 71 Following I tweet & retweet information on ME & related illnesses. #pwme #mecfs We need recognition, proper research & treatments that work. (Avoid GET it destroys lives)
Liessa likes to read ... @Liessa_foo
168 Followers 765 Following Keeping up with scientific & other developments regarding ME, Dysautonomia, and other conditions which overlap.
Tapanui 'Flu | @tapan... @TapanuiFlu
2K Followers 3K Following Kiwi Grandmother | New Blogger 2024 | #MyalgicEncephalomyelitis since 1983 | #TapanuiFlu epidemic | Mostly housebound | On welfare | #LongCovid ally.
ME Pyjama Party | ME/... @MEPyjamaParty
143 Followers 594 Following Put on your PJs. Take a photo. Give ME a face. Join the worldwide #MEPJParty 🌍 ME awareness. Everyone welcome. 🫶🏻 Together, we’re giving ME a face.
Bridget @wildlyalive
236 Followers 5K Following
Rachel Ann Barker @rachelmaxfield5
36 Followers 172 Following Im currently struggling through life with M.E/CFS and fibromyalgia. i have a daughter and 2 wonderful step children and a lovely husband
May12.org @May12org
1K Followers 2K Following Supporting #VaccineInjury #Lyme #MyalgicE #GWI #POTS *Complex Immunologic & Neurologic Diseases* #ImmuneDeficiency #ReactivatedViruses #RealScience
Cheryl @beaker1986
493 Followers 853 Following #MEcfs Advocate (dx 1986) Cats & other strays #SaveTheBees. If you want #WorldPeace,make peace in your own life. Hard work, but what else is there?
Tom Kindlon-IrishME @IrishMECFS
1K Followers 1K Following Focuses on Irish news on #MyalgicE/#ChronicFatigueSyndrome, #LongCovid or related (+ some personal news). #MEcfs #LC. Main (international) account: @TomKindlon
John Gabor @JohnGaborME
384 Followers 192 Following Oh! What a tangled web we weave when first we practice to deceive. Sir Walter Scott
ME Awareness Hour @MEawarenesshour
4K Followers 4K Following TIME FOR PEOPLE TO KNOW MORE ABOUT ME #MEawarenesshour wednesdays 8pm-9pm (UK) 21:00-22:00 CEST; 3pm-4pm EST (USA)
ZaherNahle.PhD.MPA @SolvecomplexD
793 Followers 2K Following
sue barber @maplewillow
29 Followers 79 Following
Jade Thomson @JadeThomson17
2K Followers 3K Following M.E severe sufferer, fibro & lyme disease patient. Love all my family and my pooch. Love music, films and chocolate. My son is my world #nevergiveuphope
Jenny Tips for ME �... @TweetTipsforME
3K Followers 3K Following Tips for me, about ME and about tweeting. Was researcher on @chronicinclude. #MEAction volunteer. 🇬🇧 🥄 🏳️🌈 #POTS #EnergyImpairment #ELCI #MillionsMissing
mistress claire @choccylewis
882 Followers 2K Following mum of two,Love them so much! nana of 1 chronic pain fibromyalgia ME , emdrometrous, osteoporosis , anorexia nervosa just want to live instead of suffering.
C W @retrochristine
375 Followers 567 Following Mainly on twitter to raise awareness of ME and for political tweets.
LearnButeykoOnline @LearnButeykoNL
377 Followers 2K Following Maak #chronische ziektes ongedaan met de traditionele buteyko methode.o.a.#astma #migraine #depressie #diabetes2 etc. https://t.co/gkEzf2HRql
RecosiTech @RecosiTech
213 Followers 1K Following RecosiTech - Inclusion through Technology. We help put technology into the hands of charities and individuals that need it. Part of http://t.co/GUOgpJJ7Ta
Polly Gilreath @PollyGilreath
837 Followers 820 Following #MyalgicE #ME #CFS #Fibromyalgia #POTS need more funding now! Feminist Grandma. Chronic Illness. Prisma pencil art.
Catherine Ann @CFS_MEsupport
55 Followers 94 Following I've just started a blog http://t.co/H2WmzWRSbD looking at living with Chronic Fatigue Syndrome
Naomi Bales @NaomiBales
503 Followers 2K Following Musician - Primarily Bass Trombone but also Piano - composer, performer, student, wife, and mother. Music is my passion.
Mortality Study @DePaul_MECFS
266 Followers 252 Following DePaul University is studying ME/CFS-related deaths. You can contact the study via twitter, email ([email protected]) or phone (773-325-1164)
Nicholas @Nicholas_pwme
657 Followers 1K Following 50s, Severe ME/CFS 23+yrs;95% bedbound. A dog, a yacht and a wide open space=🙂.🇬🇧♥️🇪🇺🌍🌌🦋https://t.co/yhmLaD7zU0
Louise Ramage @louise_ramage
406 Followers 451 Following Have myalgic encephalomyelitis & my hope is for awareness for all ~ Dr's as well as public. A misunderstood, under studied, debilitating illness!
Geronimo 555-137-369-... @2012ICCFORME
618 Followers 1K Following VProud Dad/Hubs10yr #SevereME #FM #MCS Result= #Sjogrens #SLE “Eat,sleep,relax,protect & forget”Dr DiMarzo #MMJ #CBD #QuantumHealing #SacredG Many Interests😊
MeAndAmyJane @MeAndAmyJane
651 Followers 483 Following A hopeful insight into life with ME, dx: 04 alongside #BPD SH, Autism, anxiety & depression. Fighting to stay positive & post about the light in the dark x
Lawrence Perkins @wizardlawrence
211 Followers 1K Following I don't know Twitter very well, so if my message seems like spam, my apologies. I'm sending this to those who MAY benefit from my situation with CFS et al...
mittlivmedme @mittlivmedme
123 Followers 249 Following Jag är en helt vanlig tjej som vill dela med mig om mitt liv med den neurologiska sjukdomen myalgisk encefalomyelit, Me/Cfs.
#MEAction Network @MEActNet
19K Followers 2K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Forgotten Plague @forgottenplague
401 Followers 64 Following Forgotten Plague: M.E. and the Future of Medicine #mecfs #MyalgicE
Chris✞chronicpainDA... @ChronicPainDad
22K Followers 21K Following Raising Awareness for #Chronicillnesses🎗Supporting all in #Chronicpain I’m in agony 24/7 but I’ll #NeverGiveUp #StayStrong #YouMatter ✝️ https://t.co/bW802UapEX
Erica Verrillo @EricaVerrillo
5K Followers 2K Following Author of #fantasy & medical books. Certain people should probably avoid meeting me in a dark alley, but otherwise harmless. #MECFS #writer
supportinginvestinme @arisonned
2K Followers 4K Following SICK WITH M.E SINCE 1996. CAUGHT LYME IN 2014. NO TREATMENT FOR EITHER. EVERYONE DESERVES TREATMENT 💙💚
Sally Burch @KeelaToo
2K Followers 2K Following Blogs at Just ME https://t.co/eODR5tncDW for #pwme #MyalgicE #MEcfs. Previously a biology lecturer in FE. Love my family & my dogs!
Adopt CCC for ME @AdoptCCCforME
242 Followers 533 Following ME: debilitating disease mis-named as CFS. 50 international experts say CCC is best description. Pls sign our petition to adopt CCC for ME in N.Ireland
TBMEDG @TBMEDG
524 Followers 735 Following Welcome to the sparkling new and different page for people with ME living in Bristol.
MEcuperate @JennyBarber11
400 Followers 373 Following 💙ME/CFS Mum of 4 👩🎓MSc Psychology student ✨learning how to help myself and others live a fulfilling life.
Plague: The Book @Plague050614
341 Followers 531 Following
mecfsblogger @mecfsblogger
345 Followers 527 Following Honest & informative,questioning stuff in the #MECFS #SEID community, deciphering research, exploring what helps & blogging about my voyage to recovery.
Katherine Reynolds @KReynoldswriter
454 Followers 714 Following
Jess M👩🏼🦽 @wheeliejess
424 Followers 487 Following Follower of Jesus, 33, tea and coffee addict, Mum to Evie, cat mum, 'spoonie'. Married to @gilesmeehan!
Erica Verrillo @EricaVerrillo
5K Followers 2K Following Author of #fantasy & medical books. Certain people should probably avoid meeting me in a dark alley, but otherwise harmless. #MECFS #writer
Jenny Tips for ME �... @TweetTipsforME
3K Followers 3K Following Tips for me, about ME and about tweeting. Was researcher on @chronicinclude. #MEAction volunteer. 🇬🇧 🥄 🏳️🌈 #POTS #EnergyImpairment #ELCI #MillionsMissing
DoubleDProductions @WHAT_ABOUT_M_E
676 Followers 626 Following WHAT ABOUT ME? is a film reporting on #MECFS identifying the neglect of 20 million sufferers worldwide. http://t.co/xXmvBZjWaK
Catherine Ann @CFS_MEsupport
55 Followers 94 Following I've just started a blog http://t.co/H2WmzWRSbD looking at living with Chronic Fatigue Syndrome
Naomi Bales @NaomiBales
503 Followers 2K Following Musician - Primarily Bass Trombone but also Piano - composer, performer, student, wife, and mother. Music is my passion.
CFS Solutions of WM @cfssolutionswm
342 Followers 145 Following CFS Solutions of West Michigan provides help, hope and positive support through education and advocacy for people with chronic fatigue syndrome and other NEIDs.
Geronimo 555-137-369-... @2012ICCFORME
618 Followers 1K Following VProud Dad/Hubs10yr #SevereME #FM #MCS Result= #Sjogrens #SLE “Eat,sleep,relax,protect & forget”Dr DiMarzo #MMJ #CBD #QuantumHealing #SacredG Many Interests😊
ME Survivor @MECFSsurvivor
196 Followers 154 Following 27 year old femle with ME/CFS and chronic pain - creative outlet for positives and venting frustrations of these illnesses!
Charlotte Amelia @inspireMEstrong
787 Followers 726 Following 24yr old Hypothyroidism. Gluten free, vegetarian & minimal meds. On the road to good health, mind and body. Mummy to Douglas. Love living my life, my way✨
Medway M.E Friends @medwayMEfriends
375 Followers 381 Following Friendship & support group for those affected my M.E, Fibro & related conditions, in Medway, Kent & surrounding areas. Tweets by @PixieMoo
Mortality Study @DePaul_MECFS
266 Followers 252 Following DePaul University is studying ME/CFS-related deaths. You can contact the study via twitter, email ([email protected]) or phone (773-325-1164)
Liessa likes to read ... @Liessa_foo
168 Followers 765 Following Keeping up with scientific & other developments regarding ME, Dysautonomia, and other conditions which overlap.
C W @retrochristine
375 Followers 567 Following Mainly on twitter to raise awareness of ME and for political tweets.
Iridescence @ActionNowGal
383 Followers 609 Following Former Entertainment PR and Marketing guru in London, now a 9/11 advocate and hardcore Supernatural fan. Am a Jared girl:) Hardcore Linkin Park fan.
Justice for Karina H @Justice4KarinaH
449 Followers 297 Following This is the new official twitter address for Justice for Karina Hansen. Please see our Facebook page for updates, ME education, artwork and more! #MEWarrior
L Meehan @LMeehan93003
51 Followers 46 Following
Holly @FirstGrace28
461 Followers 960 Following ❤ for community advocacy activism. Love family. Reading & Music essential. Beach = happy place. #MillionsMissing #pwME OPINIONS ENTIRELY MY OWN!
ME&Me @CFSME_Me
137 Followers 51 Following ME is mystery to medical science yet.Living life full is an unachievable dream. I tweet to share my exp. & to urge for honest research to find cure for ME.
Karen Ironside @kironside78
129 Followers 49 Following Empowering young people to shape their own futures. Partnerships Director at @caudwellyouth founded by @johndcaudwell
Polly Gilreath @PollyGilreath
837 Followers 820 Following #MyalgicE #ME #CFS #Fibromyalgia #POTS need more funding now! Feminist Grandma. Chronic Illness. Prisma pencil art.
Forward From Fatigue @FFFatigue
60 Followers 71 Following A grouping of therapists with specific interest and expertise in helping people with fatigue conditions such as Fibromyalgia, ME and Chronic Fatigue Syndrome
Ami Hallgarth @AHallgarth
122 Followers 390 Following
ME Society Edmonton @MEEdmonton
200 Followers 95 Following
thebigsleepforme @thebigsleep4me
637 Followers 566 Following A fun inclusive fundraising and awareness event helping @Invest_in_ME find a cure for ME. #MECFS #NeuroME #Spoonie
Solve ME/CFS Initiati... @PlzSolveCFS
12K Followers 4K Following Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCjKw
Rachie B @_Rachie_B
492 Followers 696 Following Far from what I once was, but not yet what I am going to be 🐛 (she/her) #fuckthetories
MEmilitant @MEMilitant1
780 Followers 597 Following Saddened by former #PACEtrial defenders evading debate. Apologies are owed. PS: My handle shouldn't validate the prejudices it was poking fun at.
Nicholas @Nicholas_pwme
657 Followers 1K Following 50s, Severe ME/CFS 23+yrs;95% bedbound. A dog, a yacht and a wide open space=🙂.🇬🇧♥️🇪🇺🌍🌌🦋https://t.co/yhmLaD7zU0
Alice @slowlymendingme
174 Followers 212 Following 22 year old graduate, blogger, cake lover and ME/CFS sufferer
Emily Craven @artifactsofme
573 Followers 181 Following #MEcfs. Research, education, understanding critically needed. #spoonie #chronicillness #SevereME
Carol Callow @Loobyloo1us
380 Followers 415 Following On Twitter to support my daughter Sally who is the founder of @MEFoggyDog and MD of @StripyLightCIC. I'm the mum of an #MECFS patient. #pwme #myalgicE
MeAndAmyJane @MeAndAmyJane
651 Followers 483 Following A hopeful insight into life with ME, dx: 04 alongside #BPD SH, Autism, anxiety & depression. Fighting to stay positive & post about the light in the dark x
Louise Ramage @louise_ramage
406 Followers 451 Following Have myalgic encephalomyelitis & my hope is for awareness for all ~ Dr's as well as public. A misunderstood, under studied, debilitating illness!
Paradigm Change @ParadigmChange1
384 Followers 51 Following Lisa Petrison of Paradigm Change and the Mold Avoiders FB group tweets about mold-related illness and ME/CFS. #moldillness #moldavoidance #mold #mecfs
Jack Pack @JACKPACK_UK
14K Followers 983 Following Martin, Joe, Sean and Chris. British Harmony Swing Group iTunes:https://t.co/Q1FKykSrjN Amazon:https://t.co/ZAYsp6pG2R [email protected]
Derren Brown @DerrenBrown
1.8M Followers 65 Following Prince of Eternia and Defender of the Secrets of Castle Grayskull. Dislikes mushrooms.
#MEAction Network @MEActNet
19K Followers 2K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Thrive Show @thrive_show
758 Followers 2K Following A conversation on living well with chronic illness. Event calendar: http://t.co/pAhwxt0H6o Facebook: http://t.co/TTqZ3KoJXT. Hosted by @jenbrea
Chris✞chronicpainDA... @ChronicPainDad
22K Followers 21K Following Raising Awareness for #Chronicillnesses🎗Supporting all in #Chronicpain I’m in agony 24/7 but I’ll #NeverGiveUp #StayStrong #YouMatter ✝️ https://t.co/bW802UapEX
All About Tuscany @AboutTuscany
8K Followers 454 Following All the news, events, and recipes about the best place in the world!
Visit Tuscany @VisitTuscany
43K Followers 3K Following The official account of traveling, living and loving #Tuscany (#Italy)! #instatuscany #IlikeItaly
AroundTuscany @AroundTuscany
8K Followers 1K Following The official Twitter of all the best places, nature, parks, mountains, cities and itineraries you can find in Tuscany.You might like
Pat H 💙
@pathcath
580 Followers
Briele Hap.
@HBriele
360 Followers