Margaret Rumney @RedRubyGem
Mother of 32 year old daughter who has severe M.E, she has been ill since the age of 11 & is now mostly housebound. Aiming to raise awareness for M.E Joined June 2012-
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Margret Williams has written to Natasha Devon responding to Simon Wessely's claim that "he's never suggested that ME or Chronic Fatigue Syndrome are non diseases"
A fantastic segment on the #GreatestMedicalScandal Full segment (44 mins edited) LBC call in with Natasha Devon discussing #MECFS, Simon Wessely, George Monbiot's recent article, the history of ME and the impact of Graded Exercise and CBT. youtu.be/g8jYj7dIM7w?si…
Day 3 the Telegraph (Full article) NHS staff treated woman who died from ME ‘as if she was to blame’ archive.ph/2024.07.24-193…
Day 3 The Independent “it would appear a considerable proportion of the staff at the Royal Devon and Exeter Hospital, including some consultants, still hold an outdated understanding that ME/CFS has psychological causes.” independent.co.uk/news/uk/exeter…
Day 3 The Times A Harley Street consultant warned an NHS chief executive that a young patient with ME who was at risk of death was being failed by hospital staff who held “outdated attitudes” that her condition was self-inflicted, an inquest has heard. archive.ph/2024.07.24-141…
Sean O'Neill on BBC Radio 4 Today talking about his daughter Maeve Boothby-O'Neill who died of Severe ME in October 2021 and the upcoming inquest which starts on Monday to examine failings in her care. Full Interview (6 mins 30) youtu.be/8o6NItkBSJI?si…
Trigger Warning - death of a young woman A lack of NHS treatment for people with myalgic encephalomyelitis (ME) is set to be interrogated at an inquest into the death of a 27-year-old woman.. ow.ly/JuHG50SGwIl #MyalgicEncephalomyelitis #VerySevereME
Trigger Warning - death of a young women @TimesONeill talks movingly to Emma Barnett about the death of his daughter, Maeve Boothby O’Neill, from ME and her upcoming inquest. His interview around 7.40am. ow.ly/sCRh50SGwMb #MyalgicEncephalomyelitis #VerySevereME
An excellent letter from a friend to Sajid Javid prior to the debate he’s heading on #ME next week. It could serve as a template for anyone that wishes to write to him or any MP. email address below. drive.google.com/file/d/1oZlv8C…
Dragons' Den entrepreneur accused of 'selling snake oil' mol.im/a/12995703 via @Femail
. @itvnews Dragons' Den: ME charities criticise BBC show for 'promoting unproven treatment' "ME charities, including the ME Association, have criticised Dragons' Den for promoting an "unproven treatment" for the condition." itv.com/news/2024-01-2… #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #BBC #DragonsDen #AcuSeeds
@biztradegovuk Post Office Scandal Full Compensation and accountability - Sign the Petition! chng.it/55z2wddh via @UKChange
Hold the Met Police criminally accountable for the barbaric killing of two leashed dogs - Sign the Petition! chng.it/JPrGbwFK via @UKChange
Petition: Call an immediate general election to end the chaos of the current government petition.parliament.uk/petitions/6197…
New study reveals first genetic links in ME and chronic fatigue syndrome labiotech.eu/trends-news/pr… via @Labiotech_eu
@Haggis_UK @CaroleBruce17 If she thinks future flights will be full that must mean her plan for it to work as a deterrent must be failing
'If they don't stay in the UK they get deported somewhere that you're saying is a safe place with a good future. I'm not sure where the deterrent is?' @susannareid100 quizzes Foreign Secretary Liz Truss
For someone with ME, going out for coffee can be a multi-day endeavour. Rest days before and after, likely in bed. Of course, your friends only see the small bit in the middle at the cafe with you - the bit where you look fine. #MEAwarenessHour
Phoebe Boag @PhoebsBo
3K Followers 3K Following Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. She/her.
ME Foggy Dog @MEFoggyDog
7K Followers 4K Following Working to improve the quality of life of M.E. patients using every available means and opportunity #SocialEnterprise #pwME Linktree - https://t.co/TNEwofcNnm
Dan 🦠➡️🧠�... @Dan_Wyke
14K Followers 5K Following M.E. awareness; person-centred counsellor (not practicing); recovering poet (Rack & Waterloo Press)
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
ME Association @MEAssociation
19K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
Cort Johnson @CortJohnson
11K Followers 1K Following Founder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus years
Dress for ME Charity ... @DressFor_ME
3K Followers 4K Following I am @JenGovey & use my powers of #cosplay to raise money for @invest_in_ME Take the #DressForME challenge! https://t.co/jOqrVcbVKb 😍 #pwME She/they
sean stidston @seanstidston
1K Followers 3K Following
Mario Rodriguez @rodriguez_marir
107 Followers 578 Following Model Entrepreneur Owner of @pm85agency Actor
Monica Kingsman @MonicaqwKingsma
48 Followers 1K Following Lured the best beauties from all US states 🙈 Ready for a 1 on 1 meeting See nude photos before a date! Watching this https://t.co/4KWIXQDGnq
Laurie Carey @LaurieebCarey
38 Followers 1K Following Found different beauties from all US states 😍 They are ready to meet Some have naked profile photos! Watching this https://t.co/zxnxgOzyi0
Elizabeth Ansell @elizansell
866 Followers 2K Following Founder + Executive Director @njfatigue. Previously at Showtime and ABC News, among other places. Quit job due to #MECFS. This is #NotJustFatigue.
UKDogOwner @UKDogOwner
2K Followers 2K Following UK Dog owner is the number one resource for all UK dog owners. #DogTrainingAdvice, independent dog toy #reviews, vet listings and more available daily. #Dogs
Lou @Lucy_x_Lou_
283 Followers 490 Following
Cheree Byrd @cheree_byrd
1 Followers 127 Following
Modou @Humble_Brix
220 Followers 3K Following Be devoted to one another in love. Honor one another above yourselves.And over all these virtues put on love, #love#humanity#respect#care#unity#peace❤️🤲🙏🤍🖤
Bridget O'Shea @Bridget_OShea
3K Followers 2K Following Certified medical #writer, enthusiastic #journalist, cat mom, @UChicagoProEd, ME/CFS patient. Freelance journalist. Available for medical writing and editing.
E ❀ @farbeyondtired
449 Followers 246 Following Severe ME for 15 years, hEDS and co• 28y/o • somewhere to share my thoughts when I have enough energy/brain power to do so.
Michael Davidson @Michaelsi82
51 Followers 178 Following he/him lover of fitness, travel, living in the moment! #NoToRacism
MattBlake27 @matt_blake27
204 Followers 765 Following Developer of Emerge Pacing Free App for ME/CFS and Long Covid #pwme
Laura ✨ @lau_danielle99
123 Followers 424 Following BA English Grad@UoN; TA; Mental health advocate; CFS/ME fighter; Book worm and writer; Curious about psychology & animals
Carol L. Binks @carolbinks
3K Followers 2K Following Healing myself. Supporting others with neuroendocrine/immune system illness commonly known as #ME. Sharing research. Denouncing unscientific claptrap. #MCAS
Buddy Life Magazine @BuddyLifeMagzn
3K Followers 2K Following Buddy Life If dogs could read, we would be bestsellers! A must read quarterly for all canine companions and in print since Oct 2009.
AdzBoy72 @BoyleADAM3
1K Followers 2K Following Mental Health Survivor & Mentor/ Let's Talk About It/#ItsOkToNotBeOk#CFPS Dedicated to MH, addiction, chronic fatigue pain syndrome/SouthamptonFC
Carol Collins @CarolCo36282141
40 Followers 415 Following
Sue Worrall @OffBye24
143 Followers 258 Following Owner of a body broken by ME. Campaigning for change. Love cakes I shouldn't eat! Longs to garden and to walk a coast path again https://t.co/OAKP8jeiWW
Canny Canines @cannycanines
84 Followers 65 Following Dog Training activities in the Hexham area. Agility, Gun dog, Flyball, Obedience, Puppy Training & Socialisation, 1-1 training and behaviour. Dog food treats
Helen Wellie @HelenKe26588406
350 Followers 1K Following My own views are my own. always be kind to others. Post covid sufferer since march 2020. Better after 2nd vaccine april 2021. semirecovered! RN can't work now!
Royal Free 1955 @RFH1955
3K Followers 2K Following ME/CFS vault. Research @CiaranJ_Farrell/@Needles_Toosay, curator @Needles_Toosay. Our research, if not it's credited. Reposts not necessarily endorsements etc.
ME since 1982 #longha... @me_1982
847 Followers 994 Following Bad ME since November 1982. Symptoms fluctuated but entire life ruined. Now #longcovid endurers have similar problems. Unite! Much swearing when frustrated!
Kirstie Sivapalan @KirstieSivaP
3K Followers 2K Following #pwME #LongCovid 💙 RTs mainly as, apart from a few good people, this place is a toxic mess. Find me in the blue place
Beth Paint @CraftyMissB
6K Followers 3K Following I'm Beth, I make art. Politically adrift #pwme no DMs
#MEAction Network UK @MEActNetUK
7K Followers 579 Following #MEAction UK focuses on campaigning and advocacy in the UK a part of the charity MEAction UK.
Lucy Ainsley @Mummy2rascals
259 Followers 710 Following
Lu @LuPwME
2K Followers 2K Following Moderate ME/CFS patient. One of the #MillionsMissing since 2016. Animal/nature/wildflower lover. Miss walking, writing and cooking (lost to this illness).
q no me encuentre @mercysola_mercy
1K Followers 5K Following Muerta en un mundo de vivos. FM,SFC/ ViDolor Encefalomelitis mialgica ,Sínd. Cerebeloso Prog .. Esclerosis Múltiple,Depre severa..etc http://xn--crnica-cxa.n
AmbrosineShitrit🇮�... @AmbrosineShitr2
3K Followers 7K Following Founder @antisemitismeye still in Music industry 1984,violinist,political speaker,#Zionist,#MEcfs,🐈,#Jewish,Likudnikit, Stamford Hill #Pfizerinjured EM4965,
Robert S Farmer MD @RobertFarmerMD
280 Followers 2K Following Curing "incurable" diseases such as Parkinson's, chronic pain, diabetes, autism, osteoporosis, gluten allergy, et al, neuro dis., "autoimmune", MS, IBS/IBD etc.
Henry Anderson @macanders
2K Followers 2K Following #pwme Mild-mannered author. Also creator of new (free) writing course “The Writer’s Code”. https://t.co/OZed3zvopu
h hi kngf @ilyKrab
26 Followers 538 Following
geoffrey keith brown @Millerswharf1
202 Followers 391 Following I have had M.E since 1988 sudden onset initially very serious for 6 months life-threatening according to Drs , improved for a while now back to severe
⭕️MECFS/LC⭕️E... @Arizona10238417
2K Followers 4K Following Wer möchte kann von Amazon kleine Gutscheine an [email protected] für Kuscheldecken, Wärmekissen, usw. geben. Vielen ❤️ Dank
Tilman Andris @TilmanAndris
3K Followers 5K Following Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
tjp6000 @tjp6000
146 Followers 2K Following Health Professional until chronic illness struck. #ME #Myositis #Fibromyalgia #POTS #sleep apnea 💕
#MillionsMissingDenma... @MillionsMissin2
2K Followers 4K Following
Inga - CripicalThinki... @CripicalThought
703 Followers 3K Following @UniversityLeeds @SSPLeeds @CDSLeeds #disabled activist & dreamer, neuroqueer, support ⚧ rights; pn: she views my own #CerebP #MECFS 🛌 #ADHD 🧠
Isabella Unsleber @IUnsleber
350 Followers 5K Following RT ohne Kommentar ≠ schweigende Zustimmung zum jeweiligen geposteten Inhalt
Alex Aldridge @CFSVitalist
343 Followers 493 Following Editor of Humans of ME / CFS | Advocacy and Support for the Millions Missing
Phoenix Rising @aboutmecfs
6K Followers 3K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
PolyBio @polybioRF
14K Followers 2K Following 501(c)3 transforming how LongCovid, ME/CFS, Lyme+ and Alzheimer’s are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Andrea Anderson @aander1987
7K Followers 5K Following National advocate caring for those with chronic, severe, long-standing pain - for patients, clinicians, researchers & scientists.
Childless Cat Ladies ... @Charkypop
393 Followers 2K Following Type 1 diabetic, Hypothyroid, Addison’s Disease, Anemia, POTS/Dysautonomia, ME/CFS? Life interrupted. Looking for answers....So many questions
Rose @sleepitea
308 Followers 730 Following 20-something 🏴 living with hEDS, ME/CFS etc 🏩 neurodivergent 🍭 lover of animals and nature 🐙🌵
Anil van der Zee © @AnilvanderZee
11K Followers 897 Following Former professional ballet dancer | Bed- and wheelchair bound M.E. patient | Using ✖️ to raise awareness for #pwME | #IACI #art2cureME #pwme #millionsmissing
Janet Dafoe @JanetDafoe
17K Followers 231 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Tom Kindlon @TomKindlon
16K Followers 627 Following With ME 37 years (32 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 29 yrs
Bhupesh K Prusty @BhupeshPrusty
16K Followers 65 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Hillary Johnson Autho... @oslersweb
5K Followers 1K Following Investigating ME for 40 years. The Why "Indispensable" Osler's Web “A relentless, highly persuasive expose" "Groundbreaking" "A major documentary account"
Sten Helmfrid 🇺�... @StenHelmfrid
8K Followers 188 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Dr Keith Geraghty @keithgeraghty
8K Followers 495 Following Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based researcher & chartered psychologist |@FBMH_UoM, @PrimaryCareMcr
ME Foggy Dog @MEFoggyDog
7K Followers 4K Following Working to improve the quality of life of M.E. patients using every available means and opportunity #SocialEnterprise #pwME Linktree - https://t.co/TNEwofcNnm
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Whitney Dafoe @DafoeWhitney
12K Followers 96 Following Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
ME/CFS News @MECFSNews
14K Followers 669 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Michael VanElzakker @MBVanElzakker
10K Followers 264 Following Neuroscience researcher @MGHMartinos / @HarvardMed and @PolyBioRF, researching #MEcfs, #LongCOVID, & #PTSD. (all opinions are my own)
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Science for ME online... @s4me_info
5K Followers 261 Following We are an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
ME Association @MEAssociation
19K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
Cort Johnson @CortJohnson
11K Followers 1K Following Founder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus years
Laura Kuenssberg @bbclaurak
1.3M Followers 2K Following Order PAY ATTENTION here! https://t.co/8roXSc0PoH
Cheryl @beaker1986
493 Followers 853 Following #MEcfs Advocate (dx 1986) Cats & other strays #SaveTheBees. If you want #WorldPeace,make peace in your own life. Hard work, but what else is there?
RSPCA (England & Wale... @RSPCA_official
244K Followers 5K Following We're currently focusing on our other socials and will only be moderating DMs here. Find out how best to help an animal you're worried about via our website 👇
People Selling Mirror... @SellingAMirror
205K Followers 760 Following Sometimes when people sell mirrors online, they can't figure out how to get out of the way. Gone to Bluesky.
Carol L. Binks @carolbinks
3K Followers 2K Following Healing myself. Supporting others with neuroendocrine/immune system illness commonly known as #ME. Sharing research. Denouncing unscientific claptrap. #MCAS
Buddy Life Magazine @BuddyLifeMagzn
3K Followers 2K Following Buddy Life If dogs could read, we would be bestsellers! A must read quarterly for all canine companions and in print since Oct 2009.
Planty Treats @100plantbased
26K Followers 643 Following Food, Supplements and Lifestyle for Your Daily Performance in Life
Modern Dog magazine @ModernDogMag
169K Followers 2K Following Modern Dog magazine - the best dog magazine ever! Sister to @moderncatmag Instagram: modern_dog_mag
K9 Magazine @K9Magazine
33K Followers 12K Following If #dogs could read they'd read K9 Magazine. The lifestyle magazine for modern dog lovers. If you R/T our stuff, we'll probably follow you :)
The Good Dog Guide @TheGoodDogGuide
38K Followers 1K Following UK's #dogfriendly information website for all pet services, products, holiday accommodation, pubs, eateries, beaches, walks & more! List your business for free
OUR DOGS @OURDOGSNEWS
12K Followers 2K Following OUR DOGS is THE dog paper for dog people...WE KNOW the world of dogs and have been covering the scene since 1895! Join us in print and online.
Dogs Trust 💛🐶 @DogsTrust
308K Followers 15K Following We're the UK's largest dog welfare charity 🐾 #ADogIsForLife, not just for Christmas® 🎄
The Kennel Club @TheKennelClubUK
66K Followers 37 Following We're the UK's largest non-profit organisation dedicated to the welfare of dogs! Organisers of the world’s greatest dog show @Crufts 🐶💚🐩
🐩Dogs in the News @DogsInTheNews
20K Followers 217 Following Fetching you all the latest canine headlines.
Dogs Today @Dogs_Today
50K Followers 3K Following The ethical pet magazine for people who really care about dogs. Contact the editor - [email protected] Instagram: officialdogstoday
Your Dog Magazine @yourdog
39K Followers 638 Following Britain's best-selling dog magazine and membership, with offers and discounts on over 300 dog-friendly holidays and attractions in the UK! 🐶❤️🐾 #dogsarefamily
Sue Worrall @OffBye24
143 Followers 258 Following Owner of a body broken by ME. Campaigning for change. Love cakes I shouldn't eat! Longs to garden and to walk a coast path again https://t.co/OAKP8jeiWW
Pen Farthing @PenFarthing
118K Followers 18 Following Former Royal Marine Commando l Author of Sunday Times Best Seller One Dog at a Time | OperationArk published July 2024 @CNNHeroes 2014
Stacey Evans @SickLooksLikeMe
135 Followers 320 Following Leading a campaign to completely change the treatment & perception of ME sufferers across the UK - aimed at the people in power. 'FB page - Take Notice of M.E
Marina Hyde @MarinaHyde
472K Followers 3K Following Writer https://t.co/LPjvphY93r and host of @AlwaysOnMarina and The Rest is Entertainment. Insta: @itsmarinahyde. : https://t.co/D8ah6DQ6W3
Tom Chivers @TomChivers
54K Followers 1K Following "Far too nice to be a journalist", according to Terry Pratchett. chiversthomas(a)gmail. Third book, Everything is Predictable, out now!
John L Whiting @John_CFS
2K Followers 304 Following Physician, expertise in Myalgic Encephalomyelitis
Helen Wellie @HelenKe26588406
350 Followers 1K Following My own views are my own. always be kind to others. Post covid sufferer since march 2020. Better after 2nd vaccine april 2021. semirecovered! RN can't work now!
Tina Rodwell #TeamPat... @TinaRodwell1
3K Followers 3K Following They called us activists 🤦♀️ I wear that slanderous name calling with pride for all the #MEheroes out there Fighting for my #MEhero son #TeamPatient💚
Doctors with M.E. @DoctorsWithME
5K Followers 291 Following The global professional association for medical practitioners, scientists and researchers in the field of #MECFS, #LongCovid and related postviral disease
Royal Free 1955 @RFH1955
3K Followers 2K Following ME/CFS vault. Research @CiaranJ_Farrell/@Needles_Toosay, curator @Needles_Toosay. Our research, if not it's credited. Reposts not necessarily endorsements etc.
Dr Hng + Friends @DoctorwithME
2K Followers 1K Following Author of "Doctor with M.E." Founder of Doctors with M.E. (DwME), international professional association. Views our own (me + friends) not DwME.
ME since 1982 #longha... @me_1982
847 Followers 994 Following Bad ME since November 1982. Symptoms fluctuated but entire life ruined. Now #longcovid endurers have similar problems. Unite! Much swearing when frustrated!
Beth Paint @CraftyMissB
6K Followers 3K Following I'm Beth, I make art. Politically adrift #pwme no DMs
Lucy Ainsley @Mummy2rascals
259 Followers 710 Following
MEawareness.com @MEaware
66 Followers 177 Following
ME CFS FOUNDATION SOU... @mecfs_sa
2K Followers 3K Following We aim to raise awareness, dispel the myths and misconceptions surrounding #MECFS. Comprehensively support affected #pwme and form alliances with 3rd parties.
ME/CFS HEALTH @mecfshealth
361 Followers 813 Following Talks by health professionals, patients and advocates about ME/CFS. ME/CFS is short for Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome.
Neil Cole @classicscifimu1
136 Followers 191 Following WELCOME TO NEIL COLE'S ADVENTURES IN SCIENCE FICTION: MUSEUM OF SCI-FI. As seen on Netflix Amazing Interiors 01434 618655
Alex Aldridge @CFSVitalist
343 Followers 493 Following Editor of Humans of ME / CFS | Advocacy and Support for the Millions Missing
#MillionsMissingDenma... @MillionsMissin2
2K Followers 4K Following
tjp6000 @tjp6000
146 Followers 2K Following Health Professional until chronic illness struck. #ME #Myositis #Fibromyalgia #POTS #sleep apnea 💕
Tilman Andris @TilmanAndris
3K Followers 5K Following Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
geoffrey keith brown @Millerswharf1
202 Followers 391 Following I have had M.E since 1988 sudden onset initially very serious for 6 months life-threatening according to Drs , improved for a while now back to severe
Lu @LuPwME
2K Followers 2K Following Moderate ME/CFS patient. One of the #MillionsMissing since 2016. Animal/nature/wildflower lover. Miss walking, writing and cooking (lost to this illness).





