MattBlake27 @matt_blake27

Developer of Emerge Pacing Free App for ME/CFS and Long Covid #pwme Joined March 2022

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MattBlake27 @matt_blake27

4 years ago

I'm looking for someone to do some contract work promoting the emerge pacing app on social media. Good social media skills and knowledge of ME/CFS needed. Email me at [email protected] #pwME #MECFS

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MattBlake27 @matt_blake27

4 years ago

How long did it take for you to realise that you had ME/CFS #pwme

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MattBlake27 @matt_blake27

4 years ago

Need to slow down as heading into negative energy balance #pwme Emerge Australia Pacing App #mecfs

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MattBlake27 @matt_blake27

4 years ago

#mecfS #mecf #CFS #chronicfatigue #LongCovid #postviralfatigue #PEM

MattBlake27 @matt_blake27

4 years ago

#mecfS #mecf #CFS #chronicfatigue #LongCovid #postviralfatigue #PEM

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I've just released, in conjunction with Emerge Australia, the new improved version of my free Pacing app.This app is designed to help you better manage your energy and experience less Post Exertional Malaise (PEM). Available in apple and Google AppStores.

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Billy Hanlon @bhanlon15

14K Followers 13K Following ME/CFS | Long COVID | IACC | bhanlon15.bsky

I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling

John K @j_b_kennedy

17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling

Myalgic Encephalomyelitis ME + POTS 39 yrs
Donor to @mecfsbiobank for 10 years & @DecodeMEstudy
Please watch https://t.co/pUUJO34e5k
#pwME

Katy B @KatyBruce108

6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME

Certified medical #writer, enthusiastic #journalist, cat mom, @UChicagoProEd, ME/CFS patient. Freelance journalist. Available for medical writing and editing.

Bridget O'Shea @Bridget_OShea

3K Followers 2K Following Certified medical #writer, enthusiastic #journalist, cat mom, @UChicagoProEd, ME/CFS patient. Freelance journalist. Available for medical writing and editing.

#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover

Sarah O'Connell @SarahOC_MECFS

4K Followers 5K Following #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover

On medical leave due to a debilitating chronic illness. Surviving Not Living. Sick Not Tired. #MECFS We just want our lives back. Posts are not medical advice.

Nina A Tomei, MD @doctormom63

4K Followers 1K Following On medical leave due to a debilitating chronic illness. Surviving Not Living. Sick Not Tired. #MECFS We just want our lives back. Posts are not medical advice.

Long Covid long-hauler since January 2021 ❤️ #POTS. Advocate for Long Covid. Management Consultant @EY Animal Welfare Volunteer @Assisi Animal Sanctuary🐈

Elizabeth Smith #FBLC @IssyDublinNewAC

238 Followers 1K Following Long Covid long-hauler since January 2021 ❤️ #POTS. Advocate for Long Covid. Management Consultant @EY Animal Welfare Volunteer @Assisi Animal Sanctuary🐈

Covid Castaways focuses on helping those w/ #LongCOVID & COVID #VaccineInjury. LC - 3/2020. 💚💜Chronic disease & chronic pathogen advocate.

Covid Castaways @CovidCastaways

5K Followers 4K Following Covid Castaways focuses on helping those w/ #LongCOVID & COVID #VaccineInjury. LC - 3/2020. 💚💜Chronic disease & chronic pathogen advocate.

I have ME and Fibro since 2003. I run a support group for us with chronic fatigue conditions. We are based in |pswich, Suffolk. Follow us on our journey!

CFS Unite @CFSUnite

959 Followers 628 Following I have ME and Fibro since 2003. I run a support group for us with chronic fatigue conditions. We are based in |pswich, Suffolk. Follow us on our journey!

👋 Ciao.. bald Wech... @Hopps25

2K Followers 4K Following „In Krisenzeiten suchen Intelligente nach Lösungen, Idioten suchen nach Schuldigen“ Loriot

OomaVerse at bluesky @Troevs

408 Followers 552 Following pwME. Disabled. Slightly anonymous in order to be free. Bluesky OomaVerse

Gabrielle Shakti @GabrielleShakti

286 Followers 758 Following Ex-⚗️🔬📈🗂, #PostVac Asthma+ #MCAS, #CFS 2000, #Autoimmun, #MS 2021 ... noch interessiert/still interested🧐🤠

Scott McGillivray @dan_robin21

241 Followers 988 Following Fan Page Public figure The guy from that @hgtv show. https://t.co/ThBb7Sx40I

Physician, COVID-19 Autoimmunity, Everything COVID-19 https://t.co/p9RVyyKAA5, Long Covid Analysed https://t.co/MP7tucQBHM, Dementia Authority

Dr Philip A McMillan @philamillan

3K Followers 1K Following Physician, COVID-19 Autoimmunity, Everything COVID-19 https://t.co/p9RVyyKAA5, Long Covid Analysed https://t.co/MP7tucQBHM, Dementia Authority

Phoebe Boag @PhoebsBo

3K Followers 4K Following Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. She/her.

FND Warrior 💪🇬🇧 Down, but not out!
Bringing more awareness to the debilitating effects of Functional Neurological Disorder (FND)
Coffees warmly welcomed 👇

Fightback Against FND @FndFightback

1K Followers 4K Following FND Warrior 💪🇬🇧 Down, but not out! Bringing more awareness to the debilitating effects of Functional Neurological Disorder (FND) Coffees warmly welcomed 👇

💙 BC Survivor, Music, Lake & Dog Lover #meshinjured Diagnosed w/#MECFS, MCAS, Fibro, CRPS, PA, Sjogren’s,Hashimoto’s, Lupus & CIRS from J&J Prolene mesh.

Heather Hayes @hhayes91

1K Followers 6K Following 💙 BC Survivor, Music, Lake & Dog Lover #meshinjured Diagnosed w/#MECFS, MCAS, Fibro, CRPS, PA, Sjogren’s,Hashimoto’s, Lupus & CIRS from J&J Prolene mesh.

Fundraising for @Invest_in_ME charity Centre of Excellence @CofEforME programme of biomedical research and medical education for M.E. #MyalgicEncephalomyelitis

Let's Do It for ME! @LetsDoIt4ME

5K Followers 3K Following Fundraising for @Invest_in_ME charity Centre of Excellence @CofEforME programme of biomedical research and medical education for M.E. #MyalgicEncephalomyelitis

Sharing CFS and Long Covid recovery stories on my blog & YouTube @ Heal With Liz. Mom of toddlers and Her Majesty, Baby Sister. Mirror dancer.

Liz Carlson @usabilityliz

2K Followers 1K Following Sharing CFS and Long Covid recovery stories on my blog & YouTube @ Heal With Liz. Mom of toddlers and Her Majesty, Baby Sister. Mirror dancer.

ME/CFS. Determined father. Physics graduate, science nerd, LFC fan.

Self-published children's book author.

https://t.co/7r8oTliM40

Paul Mc Daid @paulthedaid

1K Followers 1K Following ME/CFS. Determined father. Physics graduate, science nerd, LFC fan. Self-published children's book author. https://t.co/7r8oTliM40

Aspiring Author ✍🏼📖 |Singer/Actress, Trainee Therapist on hold due to #MECFS ♿️ for 6 years | #POTS / #IST✨Spiritual Awakening. Lessons from the void. 💖

Emma, thechronicsurvi... @chronicsurv1vor

56K Followers 43K Following Aspiring Author ✍🏼📖 |Singer/Actress, Trainee Therapist on hold due to #MECFS ♿️ for 6 years | #POTS / #IST✨Spiritual Awakening. Lessons from the void. 💖

Long Island Librarian @MogandJenny

629 Followers 1K Following Public Librarian

#Nonprofit #research laboratory providing #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses.

Workwell Foundation @4Workwell

3K Followers 1K Following #Nonprofit #research laboratory providing #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses.

Steven @Steven64038004

20 Followers 474 Following

Albright Megan @AlbrightMegan2

62 Followers 126 Following

#MyalgicEncephalomyelitis #MECFS
@ME_CFS Many think caused by chemical poisoning/chlorine #ChronicFatigueSyndrome is severe muscle/nerve pain
Like #LongCovid

M.E. Chronic Fatigue ... @ME_CFS

8K Followers 9K Following #MyalgicEncephalomyelitis #MECFS @ME_CFS Many think caused by chemical poisoning/chlorine #ChronicFatigueSyndrome is severe muscle/nerve pain Like #LongCovid

ME since 2009 -Bell 20- I want my life back!
#mecfs
#POTS
#lipoedema
#acneinversa
#SFN
#Fibro
#HDS
#ADHD
#MultipleChronischeViren
#EBV
#CMV
#HPV6

Kerstin @Kerstin_mecfs

693 Followers 1K Following ME since 2009 -Bell 20- I want my life back! #mecfs #POTS #lipoedema #acneinversa #SFN #Fibro #HDS #ADHD #MultipleChronischeViren #EBV #CMV #HPV6

Andrea Joliat @AndreaJoliat

1K Followers 1K Following Advocate for research and support for all who suffer from the neglected illness MEcfs. Including my son.

CBME is a support group based in #Cambridge UK for people with #MECFS, #MyalgicE , #CFS, #PostViralFatigue, #Fibromyalgia, including #pwME caused by #LongCovid

Cambridge ME group @CBMEgroup

2K Followers 2K Following CBME is a support group based in #Cambridge UK for people with #MECFS, #MyalgicE , #CFS, #PostViralFatigue, #Fibromyalgia, including #pwME caused by #LongCovid

Claire Coast @Clairecoast

1K Followers 1K Following #LongCovid #FBLC Never ‘mild’

Charlotte @CharlotteMECFS

239 Followers 776 Following

Longcovid Advocate �... @LCadvocacyIRL

804 Followers 1K Following Long Covid Advocacy IRL #pwlc Advocating and raising awareness for #LongCovid in Ireland 🇮🇪 #FBLC

I am a cat with a purpose! I am here to help my human friends advocate and bring awareness to TMJ disorders. We need scientific research! No DM 🚫. 🐈🐱

Snowy the AdvoCAT �... @TMJAdvoCAT

569 Followers 2K Following I am a cat with a purpose! I am here to help my human friends advocate and bring awareness to TMJ disorders. We need scientific research! No DM 🚫. 🐈🐱

Non-Profit. We magnify your health journey to help others. https://t.co/7VLiqMV99u Sharing your story can heal: contact@healthfulheroes.com.

HealthfulStories @HealthfulStori1

911 Followers 5K Following Non-Profit. We magnify your health journey to help others. https://t.co/7VLiqMV99u Sharing your story can heal: [email protected].

Mellifluous 💙 #Res... @YooHooHippyLady

2K Followers 2K Following When the Power of Love Overcomes the Love of Power the World Will Know Peace- Jimi Hendrix 🐾🐈 💙🩵💙 #DisabilityRights

Patient advocate. Founder of https://t.co/UKbDeLXQM0. Sharing individual health stories to inform and empower all those living with illness.

Manny Duenas @mannyfromguam

226 Followers 718 Following Patient advocate. Founder of https://t.co/UKbDeLXQM0. Sharing individual health stories to inform and empower all those living with illness.

Michelle Sosa @sosa_michelle

61 Followers 318 Following

Elizabeth Smith #FBLC... @IssyDublin

1K Followers 1K Following Long Covid long-hauler since January 2021 ❤️ #POTS. Advocate for Long Covid. Management Consultant @EY Animal Welfare Volunteer @Assisi Animal Sanctuary🐈

The Chemical Sensitiv... @podcastingmcs

867 Followers 4K Following Podcast amplifying voices of people with Multiple Chemical Sensitivity (MCS) and research about the illness. Subscribe where you get your podcasts! 🎙️🎧✨

ME Awareness Australi... @MEAllianceAu

824 Followers 2K Following Why didn’t MECFS Vic/Emerge update 2002 Australian CFS guidelines recommending GET & CBT when they agreed to in 2014?

A documentary that seeks to shine a light on and tell the stories of those suffering with myalgic encephalomyelitis and Long COVID.

Movie About M.E. @Movie_About_ME

383 Followers 2K Following A documentary that seeks to shine a light on and tell the stories of those suffering with myalgic encephalomyelitis and Long COVID.

Alice Maria @alice_maria28

408 Followers 563 Following #pwME and long time sufferer of #endometriosis 🌻 #adeno & #crohns Dog nerd 🐕 #adoptdontshop #myalgicencephalomyelitis

CHRONIC @chronic_action

1K Followers 5K Following Arts, Comedy & Science Social Justice Campaign • Chronic Illness, Chronic Pain & Disability

Bavardlyn @bavardlyn

868 Followers 1K Following Opinions my Own. Just doing the best I can with what I’ve got! #pwME https://t.co/tzDK62KM4z

Former musician mostly housebound with #ME. BA in Music. BA in Theatre. 3/4 of a MA in Theatre, had to stop due to MECFS. I write. Languages. Genealogy.

Lene Benedicte @BenedicteLene

1K Followers 791 Following Former musician mostly housebound with #ME. BA in Music. BA in Theatre. 3/4 of a MA in Theatre, had to stop due to MECFS. I write. Languages. Genealogy.

Mutter&Sohn mit #MECFS
Für Forschung+Versorgung!!
https://t.co/cRt5QZI4fm
https://t.co/Ea1dwapxeQ
https://t.co/wby8wS0cUm
https://t.co/xXbjPOIQMJ

M. Kremzow @KremzowM

267 Followers 286 Following Mutter&Sohn mit #MECFS Für Forschung+Versorgung!! https://t.co/cRt5QZI4fm https://t.co/Ea1dwapxeQ https://t.co/wby8wS0cUm https://t.co/xXbjPOIQMJ

Fun-loving compassionate soul♥ Proud Mom of 2 boys 💙#MastCellWarrior #MEWarrior #FibromyalgiaWarrior #EndometriosisWarrior #SpinalstenosisWarrior #EDSWarrior

Coralie C. Burnell @CCBurnell1

1K Followers 2K Following Fun-loving compassionate soul♥ Proud Mom of 2 boys 💙#MastCellWarrior #MEWarrior #FibromyalgiaWarrior #EndometriosisWarrior #SpinalstenosisWarrior #EDSWarrior

#MyalgicE Patient Advocacy 4 better treatment & cure. UR life/dreams are gone before ur eyes! Federal Advocacy Research Education & Funding #Dysautonomia

Its ME Matina @justask

2K Followers 2K Following #MyalgicE Patient Advocacy 4 better treatment & cure. UR life/dreams are gone before ur eyes! Federal Advocacy Research Education & Funding #Dysautonomia

Henry Anderson @macanders

2K Followers 2K Following Mild-mannered author of several novels. Chronically hopeful. https://t.co/LmWv26cywx

Kiwi Grandmother | New Blogger 2024 | #MyalgicEncephalomyelitis since 1983 | #TapanuiFlu epidemic | Mostly housebound | On welfare | #LongCovid ally.

Tapanui 'Flu | @tapan... @TapanuiFlu

Engineer and the thing that is broken is ME
@foulger@mastodon.org.uk

James Foulger @jifoulger

2K Followers 2K Following Engineer and the thing that is broken is ME @[email protected]

Callum O'Dwyer @callumjodwyer

4K Followers 4K Following Comms in Politics 📣 | #LongCovid since 23/03/20 🎡| Sometime Poet 🎤 | Recovering Engineer 🔧 |

Peter Neehus @PeeNee2

Nick Else @nick2155

848 Followers 3K Following ME/POTS/FIBRO/PVFS - Mod/Admin for Millions Missing Voice Global #InstitutionalisedDiscrimination #MECFS #LongCovid

A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.

Bhupesh K Prusty @BhupeshPrusty

15K Followers 65 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.

Dan Wyke 🦠➡️�... @Dan_Wyke

13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)

ME/CFS News @MECFSNews

14K Followers 684 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.

Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked

Hannah Davis @ahandvanish

56K Followers 4K Following Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked

Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬

Wading through treacl... @kimisgubbed

3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬

Billy Hanlon @bhanlon15

14K Followers 13K Following ME/CFS | Long COVID | IACC | bhanlon15.bsky

Ex- Filmmaker || Stop denial of #ComplexChronicIllness || #SmallFiber #POTS #MCAS #CCI #Lyme #FQToxicity #FlagylToxicity #hEDS #ME ||

Sibylle Dahrendorf �... @sibylle_berlin

7K Followers 3K Following Ex- Filmmaker || Stop denial of #ComplexChronicIllness || #SmallFiber #POTS #MCAS #CCI #Lyme #FQToxicity #FlagylToxicity #hEDS #ME ||

John K @j_b_kennedy

17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling

Eric Topol @EricTopol

679K Followers 607 Following physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP and Ground Truths: https://t.co/YhatcBT0hA

Katy B @KatyBruce108

6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME

With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs

Tom Kindlon @TomKindlon

15K Followers 622 Following With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs

Dr. Daniel Loy @loy_daniel_de

6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.

Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...

Janet Dafoe @JanetDafoe

16K Followers 224 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...

Adam @ABrokenBattery

8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.

Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.

Sten Helmfrid 🇺�... @StenHelmfrid

7K Followers 190 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.

We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII

Prof. Akiko Iwasaki @VirusesImmunity

213K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII

💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim

Carole Bruce @CaroleBruce17

7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim

Martin @pausedME

8K Followers 494 Following #MECFS-activist⎮#Lawyer by profession: Legal consulting for digital creators and influencers | #Musician by passion

Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI

#art2cureME #pwme #millionsmissing

Anil van der Zee © @AnilvanderZee

10K Followers 862 Following Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI #art2cureME #pwme #millionsmissing

30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨

Lizzy H @hopefullizzy

7K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨

ME/CFS Science @mecfsskeptic

4K Followers 464 Following In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

Longcovid Advocate �... @LCadvocacyIRL

804 Followers 1K Following Long Covid Advocacy IRL #pwlc Advocating and raising awareness for #LongCovid in Ireland 🇮🇪 #FBLC

Charlotte @CharlotteMECFS

239 Followers 776 Following

Marina Hyde @MarinaHyde

483K Followers 3K Following Guardian columnist. Co-host of The Rest Is Entertainment podcast.

Tanja S 🇪🇺❤�... @tanja_mecfs

428 Followers 231 Following Atheistin, #MECFS, Minimalistin, Ordnungsfan, ausgeprägter Sinn für Gerechtigkeit

SPD Bundestagsabgeordneter, Vorsitzender Ausschuss Forschung, Technologie und Raumfahrt, Bundesgesundheitsminister a.D., der hier selbst und privat tweetet.

Prof. Karl Lauterbach @Karl_Lauterbach

1.2M Followers 324 Following SPD Bundestagsabgeordneter, Vorsitzender Ausschuss Forschung, Technologie und Raumfahrt, Bundesgesundheitsminister a.D., der hier selbst und privat tweetet.

M. Kremzow @KremzowM

267 Followers 286 Following Mutter&Sohn mit #MECFS Für Forschung+Versorgung!! https://t.co/cRt5QZI4fm https://t.co/Ea1dwapxeQ https://t.co/wby8wS0cUm https://t.co/xXbjPOIQMJ

Markus Ermert @ErmertMarkus

317 Followers 205 Following Glücklich verheiratet. Stolzer Vater. Kind Gottes. MECFS (hatte) vieles über den Haufen geworfen

Myalgische Enzephalomyelitis (ME) ist eine verheerende körperliche Erkrankung, die bisher unzureichend erforscht ist.

ME-Aktuell.de 👨‍... @meaktuell

1K Followers 516 Following Myalgische Enzephalomyelitis (ME) ist eine verheerende körperliche Erkrankung, die bisher unzureichend erforscht ist.

👋 Ciao.. bald Wech... @Hopps25

2K Followers 4K Following „In Krisenzeiten suchen Intelligente nach Lösungen, Idioten suchen nach Schuldigen“ Loriot

physician-researcher, paediatrician, ME/CFS since 2016. This account is about ME/CFS (may also visit: @kinderverstehen: on child development (German)

Herbert Renz-Polster @RenzPolster

9K Followers 692 Following physician-researcher, paediatrician, ME/CFS since 2016. This account is about ME/CFS (may also visit: @kinderverstehen: on child development (German)

Robert-Martin Montag @RMMontag

1K Followers 212 Following 🗽Im Zweifel für die Freiheit 💛 👨🏼‍⚕️Gesundheitspolitik

#ME Patient with the hope and confidence for a wonder ❤

Millions are missing, but we change it!

#MyalgicE #millionsmissing

Yvonne Arnold @TimeforWonders

230 Followers 228 Following #ME Patient with the hope and confidence for a wonder ❤ Millions are missing, but we change it! #MyalgicE #millionsmissing

Its ME Matina @justask

2K Followers 2K Following #MyalgicE Patient Advocacy 4 better treatment & cure. UR life/dreams are gone before ur eyes! Federal Advocacy Research Education & Funding #Dysautonomia

Isa Bel @IsaBel40831945

208 Followers 416 Following #MECFS

Dr. Lang Covid #FBLC @DrLangCovid

535 Followers 1K Following Existing with #LongCovid. Tweeting in Dutch and English.

Callum O'Dwyer @callumjodwyer

4K Followers 4K Following Comms in Politics 📣 | #LongCovid since 23/03/20 🎡| Sometime Poet 🎤 | Recovering Engineer 🔧 |

Brent Forman @JoeBlow604

519 Followers 686 Following Living with Myalgic Encephalomyelitis since 2011. I tweet about ME #pwme

PT researcher/Senior Lect @LivUni co-founder @physiosforme | PhD | neuro rehab/ex physiology/fatigue/ME/Longcovid/EDI/all views my own
she/her

Dr Nicola Clague-Bake... @ClagueNjc36

4K Followers 2K Following PT researcher/Senior Lect @LivUni co-founder @physiosforme | PhD | neuro rehab/ex physiology/fatigue/ME/Longcovid/EDI/all views my own she/her

#ME💙F.M.💜I.B.S. Glaucoma💚B12💉Addison Biermer
🇳🇱 NL advocate for biomedical research💰and understanding. Life should't be so hard as it is for some👣

Petra💎#AllTogether... @Petra_ikhebME_

1K Followers 555 Following #ME💙F.M.💜I.B.S. Glaucoma💚B12💉Addison Biermer 🇳🇱 NL advocate for biomedical research💰and understanding. Life should't be so hard as it is for some👣

Movie About M.E. @Movie_About_ME

383 Followers 2K Following A documentary that seeks to shine a light on and tell the stories of those suffering with myalgic encephalomyelitis and Long COVID.

Charles Turner @kafkaboots

2K Followers 4K Following Losing my life to a contested illness one day at a time. Deep af

Mavie @2_set_ME_free

480 Followers 1K Following one of the #millionsmissing with #severeME

LivaLavida Long-Covid @LivaLavidaLCov

157 Followers 122 Following Ireland ☘️❤️ - Education 👨🏻‍🏫 Year 3 living the crazy long covid life.🤯🥴 🤷🏻‍♂️Research/Investigate/Treat 🤷🏻‍♂️

Peter Neehus @PeeNee2

26, world champion gymnast turned sick person w/ #MyalgicEncephalomyelitis. The account where I accept it + vent, thank you for listening 😇 #mecfs #pwme

Georgia Elle @_memyselfandwhy

1K Followers 297 Following 26, world champion gymnast turned sick person w/ #MyalgicEncephalomyelitis. The account where I accept it + vent, thank you for listening 😇 #mecfs #pwme

Dawn K💙#FBLC @Dawn_knight1

596 Followers 814 Following ❤️NHS #mecfs #goodmentalhealthforall #menopausematters #LongCovid

#MECFS #severeME #MCAS #severeMCAS nichtlängenabhängige #SFN #POTS #Sjögren etc seit Feb 2021 dank #COVID

Darf ich Max Ernst zitieren?

Ulli Brand- Ich behin... @radineulla

4K Followers 2K Following #MECFS #severeME #MCAS #severeMCAS nichtlängenabhängige #SFN #POTS #Sjögren etc seit Feb 2021 dank #COVID Darf ich Max Ernst zitieren?

Suzie Bird @musicsuzie

180 Followers 736 Following ME/CFS warrior: Proud mama; musicals geek; quirky bird; living life the best I can

Kati D @a_parrot_or_two

2K Followers 3K Following

Kerstin @Kerstin_mecfs

693 Followers 1K Following ME since 2009 -Bell 20- I want my life back! #mecfs #POTS #lipoedema #acneinversa #SFN #Fibro #HDS #ADHD #MultipleChronischeViren #EBV #CMV #HPV6

Peanut @MrsProctor2010

1K Followers 1K Following 1st wave longhauler, 80% recovered. Spending my days quizzing. #LongCovid #MEcfs #CovidIsNotOver

Nick Else @nick2155

848 Followers 3K Following ME/POTS/FIBRO/PVFS - Mod/Admin for Millions Missing Voice Global #InstitutionalisedDiscrimination #MECFS #LongCovid

Tapanui 'Flu | @tapan... @TapanuiFlu

James Foulger @jifoulger

2K Followers 2K Following Engineer and the thing that is broken is ME @[email protected]

Tess Falor, Ph.D. | R... @tessfalor

10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome

Coralie C. Burnell @CCBurnell1

1K Followers 2K Following Fun-loving compassionate soul♥ Proud Mom of 2 boys 💙#MastCellWarrior #MEWarrior #FibromyalgiaWarrior #EndometriosisWarrior #SpinalstenosisWarrior #EDSWarrior

Lene Benedicte @BenedicteLene

1K Followers 791 Following Former musician mostly housebound with #ME. BA in Music. BA in Theatre. 3/4 of a MA in Theatre, had to stop due to MECFS. I write. Languages. Genealogy.

Juli Maëlle 🍋 @julimaelle

7K Followers 3K Following Ex-Fotografin 📸 & Musikerin 🎶, jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie. Leidenschaft still on. #noAfD #wirsindmehr

Oxfordshire ME Group ... @OmegaOxon

231 Followers 383 Following Self-help group for people with ME/CFS based in Oxfordshire

Lieke @LiekeME

1K Followers 651 Following I'm Lieke from the Netherlands, ME/MCS patient 28 yrs, mostly bedbound 21 yrs. #MyalgicE

Incisive Editing Services #GoodTwitter
MECFS amateur sleuth in The Falls Mysteries
Seeking Steampunk? @JayneBarnard1
Linktree https://t.co/gayCHoxLmF

JE Barnard @J_E_Barnard

3K Followers 3K Following Incisive Editing Services #GoodTwitter MECFS amateur sleuth in The Falls Mysteries Seeking Steampunk? @JayneBarnard1 Linktree https://t.co/gayCHoxLmF

Trying to live with Myalgic Encephalomyelitis. Campaigner for legal cases against PACE and Researcher into biomedical treatments. #MEcfs #pwMe #MyalgicE

charlotte goldsmith @CharMyalgic

609 Followers 1K Following Trying to live with Myalgic Encephalomyelitis. Campaigner for legal cases against PACE and Researcher into biomedical treatments. #MEcfs #pwMe #MyalgicE

STEM Ed researcher @UniEdinburgh (part-time). Physicist, digital education, bird photographer, #mecfs Author of 25 Birds: https://t.co/DcN0WiZVAy

Anna Wood @Annakwood

3K Followers 2K Following STEM Ed researcher @UniEdinburgh (part-time). Physicist, digital education, bird photographer, #mecfs Author of 25 Birds: https://t.co/DcN0WiZVAy

Former investment manager international private banking. Disabled by M.E. and forced to retire after 15 year career. Tweet latest news relating to #MECFS.

Russell Fleming @Firestormmer

1K Followers 845 Following Former investment manager international private banking. Disabled by M.E. and forced to retire after 15 year career. Tweet latest news relating to #MECFS.

💙🌻🦸🏻🕊 ... @MTWoltering

914 Followers 1K Following @mtwoltering on 🦋 ||| Betrokken 💜💃🏻🕺🏽 zelfstandig ondernemer (hopelijk ooit weer)💡🌎👩🏻‍💻🌿🦜 #LongCovid #SevereME+ advocate @🛏

Former mathematician. Life came to a sudden halt due to #LongCovid/ME. Politics & policy, @longcovidnl.

Tweets in Dutch and English.

Rien de Böck @riendebock

2K Followers 2K Following Former mathematician. Life came to a sudden halt due to #LongCovid/ME. Politics & policy, @longcovidnl. Tweets in Dutch and English.