Long Covid ME/CFS @LCMECFS
Diagnosed with #MECFS, #POTS, #Dysautonomia and #Polyarteritisnodosa. #Apheresis #SteroidPulse #IVIG #Rituximab #Rozanolixizumab #BC007 Joined August 2017-
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Long Covid ME/CFS retweeted
UPDATE: Norwegian ME CFS daratumumab trial - Trial 80% funded, $500k needed - 1st participant will receive the drug next week! - 300 people have applied for the study's 66 spots English Funding page for donations. 👇🏻 N/1
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Why scientists are rethinking the immune effects of SARS-CoV-2 | The BMJ bmj.com/content/390/bm…
Long Covid ME/CFS retweeted
COVID causes depletion of T & B (CD19) cells, according to a BMJ article. It also causes CD8 T cell exhaustion and reactivation of infections like VZV (chickenpox/shingles) and EBV (mono). I've experienced this immune deficiency and dysfunction from COVID since 2020. #COVAIDS
Clinical trials are testing cancer drug rapamycin for Long COVID and ME - The Sick Times thesicktimes.org/2025/07/29/cli…
Study Details | A Proof-of-concept Study to Evaluate the Efficacy and Safety of Rozanolixizumab to Treat Adult Study Participants With Severe Fibromyalgia Syndrome | ClinicalTrials.gov clinicaltrials.gov/study/NCT05643…
PolyBio and WE&ME supported study identifies two distinct ME/CFS subtypes - PolyBio Research Foundation polybio.org/polybio-and-we…
New Data Reveals Two Distinct Immunotypes of ME/CFS - AAI News news.aai.org/2025/05/21/two…
Long Covid ME/CFS retweeted
A new clinical trial for Long COVID at @CoRESinai! If you are in the NYC area and interested in our Sirolimus clinical trial, please email [email protected] 🙏🏼
A new clinical trial for Long COVID at @CoRESinai! If you are in the NYC area and interested in our Sirolimus clinical trial, please email [email protected] 🙏🏼
BCG vaccine protects against long COVID development, finds study medicaldialogues.in/medicine/news/…
Autoantibodies to Arginine-rich Sequences Mimicking Epstein-Barr Virus in Post-COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | medRxiv medrxiv.org/content/10.110…
Safety, tolerability and clinical effects of BC007 (Rovunaptabin) on fatigue and quality of life in patients with post-COVID syndrome (reCOVer): a prospective, exploratory, randomised, placebo-controlled, double-blind, crossover phase IIa clinical trial medrxiv.org/content/10.110…
Long Covid ME/CFS retweeted
Promising results for #BC007 in #LongCovid: the independent reCOVer study (Erlangen Univ.) shows significant improvements in fatigue and quality of life for a subgroup with autoantibodies (GPCR-fAAbs). Unlike Berlin Cures’ halted trial, reCOVer targeted a specific autoimmune…
Long Covid ME/CFS retweeted
#bc007 works! But only for those with autoimmune issues. Berlin Cure’s study failed because of poor participant selection. Personally I improved IMMENSELY from this medication and demand our health institutions and govt work to make it accessible ! #longcovid @KarlLauterbachk
New Evidence Supports Autoimmunity as One of Long COVID’s Underlying Drivers < Yale School of Medicine medicine.yale.edu/news-article/n…
Rogue antibodies may cause some long COVID symptoms sciencenews.org/article/rogue-…
Does anyone get polyarteritis nodosa after having ME/CFS?
Long Covid ME/CFS retweeted
A new frontier: we have treated the first Multiple Sclerosis patient in the US with CAR-T immunotherapy (CD-19) in our Phase 1 Clinical Trial @Stanford_Neuro @SCCR_Stanford
Blood transcriptomic analyses reveal persistent SARS-CoV-2 RNA and candidate biomarkers in post-COVID-19 condition - The Lancet Microbe thelancet.com/journals/lanmi…
Found: the dial in the brain that controls the immune system nature.com/articles/d4158…
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Sibylle Dahrendorf �... @sibylle_berlin
7K Followers 3K Following Ex- Filmmaker || Stop denial of #ComplexChronicIllness || #SmallFiber #POTS #MCAS #CCI #Lyme #FQToxicity #FlagylToxicity #hEDS #ME ||
GeoCK @GeoEduOne
6K Followers 863 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Brian Fog @useless_priest
8K Followers 5K Following Mild LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
Pam Bishop, PhD @pame... @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Bridget O'Shea @Bridget_OShea
3K Followers 2K Following Certified medical #writer, enthusiastic #journalist, cat mom, @UChicagoProEd, ME/CFS patient. Freelance journalist. Available for medical writing and editing.
Long Covid Advocacy �... @LongCovidAdvoc
14K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #pedanticzebra book club. 🛍️ https://t.co/8JlRWqxASF
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Long Covid News #pwLC... @LongCovidNews
3K Followers 743 Following Here for working treatments & cures. #MillionsMissing #POTS #MECFS #LongCovid - Cov Jan 21, LC since March 21. I am unvaccinated. Business owner. Barely coping.
Daniel Moore @Talmandaniel
5K Followers 4K Following Founder of Northern Life Stories, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Prof Doug Kell CBE #F... @dbkell
14K Followers 10K Following I tweet in a personal capacity. ENTJ. CBE. Against brexit/Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice
Paula Knight @Paula_JKnight
6K Followers 4K Following Author Artist THE FACTS OF LIFE (Myriad) Kidlit books x3 author. Words and pictures. Disabled. Bedridden 7yr v severe M.E. IG: @paulajkstudio
Gwen B. with LC🦩�... @PenGwenWithLC
7K Followers 5K Following P/w Long Covid, writer, nerd, loudmouth, green thumb, artist, queer, ND, & Disability Extremest! No alt text= no RT. Dont tag me, ask to be added to the GC
LongCOVIDWARRIOR @Bodalicious1
2K Followers 5K Following Struggling with #longcovid after a ‘mild’ infection during March 2020 first wave. Sharing news and remedies for holistic recovery. Love small furry animals.
IfonlyIwasinbettersha... @IfonlyIwasingo
0 Followers 8 Following
Alex @alexrice6975
321 Followers 2K Following
Larissa @Whuiarha5286
45 Followers 2K Following The most alluring thing a woman can have is confidence.
Kiran Mehta @Blidie253564
28 Followers 2K Following
Lenora @Ohifie493
52 Followers 2K Following Confidence is not “they will like me.” Confidence is “I’ll be fine if they don’t.”
Kralow @thomasw246
99 Followers 3K Following Years in the Trading game withProfits 📊🚨💰. Markets Investments👨💻.@TKralow
Cristina🍉 @CristinaAmazon
2K Followers 7K Following *Not a streamer, nor content creator. Gloria al bravo pueblo.✊🏼 Long-time Florida resident.
Veranderland @Veranderlant
549 Followers 2K Following If I ask you to name all the things you love. How long would it take, before you name yourself? Always busy curing myself of ME/CFS, cause nobody else will.
Send | Unsend (Sophia... @SendUnsend
420 Followers 624 Following Indescribable scribe & babbler | Work in higher education | March 2020 #LongCovid hauler | Covid cautious | She/her https://t.co/WwFclMBM3Y
Carol Riseing @rise30241
2 Followers 129 Following
Steph Sits (formerly ... @SitsSteph
1K Followers 3K Following I have #disabilities & I'm a #covid-conscious supporter of #democracy, #MentalHealth, #HumanRights, #AnimalRights & Skittles. Embrace #diversity
Rachel ♿ 🌍 🇪�... @ChasingGlimmers
20K Followers 22K Following Northumbrian. Severe M.E Sufferer. SEND Mam. Disability Rights Advocate. Opinions Own. Writer @TheCanaryUK Blogger @wearecarers
Nick Turse @nickturse
21K Followers 9K Following Fellow: @theintercept Words: @nytimes @latimes @harpers @guardian @TeenVogue @RollingStone @YahooNews @vice @time Leaked docs: [email protected]
Garabonc @atilaitala
59 Followers 810 Following
Eliza @elizaclove
892 Followers 162 Following 28 🇬🇧 😷 M.E + Long Covid since hospitalised with Covid in 2023. I’m using this account to vent and find friends with my condition.
DUDE_NUKESEM @DUDE_NUKESEM
110 Followers 207 Following Covid has changed my life and not for the better. 4 years of suffering from Long Covid but not giving up. Diehard day one fan of AEW.
Steffi @MECFSHawaii
187 Followers 814 Following Patient Advocate / pwLC / 25y Caregiver to pwME 🦓🦒 #MECFS #POTS #MCAS #LongCOVID #MEActionHawaii
mecfs quotes @mecfs_quotes
46 Followers 19 Following 💙🦋Gentle quotes for ME/CFS & chronic illness patients. A quiet place for comfort, strength & understanding. 🦋💙
Darren Whitley @DarrenWhitley69
159 Followers 3K Following
Bella Dubrov @BellaDubrov
46 Followers 6K Following
POTSgirlie @POTSgirlie
2 Followers 20 Following 31 F | Fighting POTS one heartbeat at a time 🫀 | Spoonie life 🥄 | Coffee lover ☕ | Advocating for invisible illness awareness 💪 #ChronicIllness #POTSWarrior
Charlie V. Knight @MedPoliticsCV
18 Followers 181 Following Sur la ligne de front contre le COVID-19 et le Long COVID. 🍁 Politique et santé. 🧬
Mid and South Essex L... @MSELongCOVID
78 Followers 352 Following We are a team of health professionals delivering treatment that aims to help people’s recovery and help them manage their Long COVID. Tweets by Rachel
Cass OFee 🇺🇦�... @MamaCassOFee
788 Followers 3K Following Writer & Voracious Learner. Lost 400lbs & BEAT cancer! Photography & Science fan. #DisabledLife #pwME #BLM #MedicalValkyrie #CannabisIsMedicine She/They
K @kitkat_2341
37 Followers 211 Following came for the cat memes, stayed for the ME/CFS wisdom/news/community 💙 mostly just lurking 🪫
Anwar Ahmed @AnwarAhmed1713
78 Followers 400 Following
susan pountney @susanpountney
971 Followers 3K Following I have ME/CFS, Fibromyalgia, PsA, and I'm old. Lived in Canada, USA and France. Divorced wife of a Dairy Farmer (Retired) , was a Monkman, proud Mother of Jon.
Penny Bonds @pbonds747
1K Followers 869 Following I am a Christian, Conservative Southern Lady; 26+ yrs married. I Love Nature. ME/CFS & LC Any tweets are of my opinion and are not intended as medical advice.
CovidConscientiousCon... @CovidConscience
465 Followers 2K Following
MAbsForCanadaNOW @MAbsForCanada
336 Followers 356 Following Advocating for access to monoclonal antibodies against COVID-19 in Canada. Sign the petition. #COVID19IsNotOver | #MAbsForCanadaNOW
elizabeth Cameron @elizabethC60316
35 Followers 673 Following
well...this. is. awkw... @Chi__RealEstate
1K Followers 5K Following Non-conforming, Still Social-Distancing, N-95 Mask Wearing, Book & Documentary Loving Introvert. #CovidisAirborne, #Maskup, #CleanAir, #BeKind, #RESIST 😷😷😷
BullMarketPicks🇺�... @Qaqor8375942
31 Followers 2K Following 15-30% Monthly | 2 High-Conviction Stocks.Short-Term Gains: 15-20% in Days/Weeks.DM "JOIN" for WhatsApp Alerts. Live Trade Signals • Market Analysis
Nav Shaikh @shaikh_nav
435 Followers 3K Following Confirmed Diagnosis: -M.E.(cfs) 2004 -M.C.T.D. -Lifelong Lupus(SLE) -Primary Raynaud’s -G.E.R.D. -Klinefelter Syndrome -P.E.G. feeding tube (July 2023) & more!!
Apurba Aryan @ary_yandoctorX
33 Followers 908 Following
Treatment Of Pneumoni... @ForPneumonia
21 Followers 1K Following Treatment for pneumonia and pneumonia caused autoimmunity, cytokine Storm, asthma, sinus, sepsis, cold, IBD & IBS, bronchitis. please click on the given link
Martha-JD, MBA, PCC-�... @mryoung151
9K Followers 6K Following Sars2 is airborne & CAUSES Covid /Long COVID. Science saves lives. Covid/LC prevention/research/treatments. Healing, Politics/Bus/Psychopathic Leaders.
Dr Claire Taylor @drclairetaylor
65K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|long Covid clinic🏴Views my own
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Shaney Wright @ShaneyWright
17K Followers 447 Following @WestHam Fan ⚒ 🏴 | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Bhupesh K Prusty @BhupeshPrusty
15K Followers 66 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
LongCovidPharmD @organichemusic
35K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS researcher & clean air advocate. Here to share & learn. Tweets not medical advice. https://t.co/lKQezPwtQs
Sibylle Dahrendorf �... @sibylle_berlin
7K Followers 3K Following Ex- Filmmaker || Stop denial of #ComplexChronicIllness || #SmallFiber #POTS #MCAS #CCI #Lyme #FQToxicity #FlagylToxicity #hEDS #ME ||
GeoCK @GeoEduOne
6K Followers 863 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Martin @pausedME
8K Followers 495 Following #MECFS-activist⎮#Lawyer by profession: Legal consulting for digital creators and influencers | #Musician by passion
Dr Asad Khan FRCP FRA... @doctorasadkhan
27K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Resia Pretorius @resiapretorius
28K Followers 259 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Brian Fog @useless_priest
8K Followers 5K Following Mild LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
Dr. Alice 💕 @calirunnerdoc
27K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs 4 MED ADVICE! SARS-CoV-2=persistent vascular virus.Views expressed are my own,not my employers.
Dr Elisa Perego @elisaperego78
35K Followers 1K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Christoph Ströck @cstroeckw
8K Followers 611 Following Soon, people will look back in disbelief at what has happened to patients with ME/CFS | Godspeed 🙇🏼
Naomi Harvey PhD #Wea... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Dr. Daniel Loy @loy_daniel_de
6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
Sawyer @SawyerBlatz
14K Followers 193 Following #LongCovid since Nov ‘22. Previously: running, iOS dev, photography.
Candace D. @DiaryofaSickGrl
16K Followers 2K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Gary Anderson @G_A_grandsong
2K Followers 7K Following #LongCovid #MECFS - Another Long Covidian pursuing science in service of the ‘heart.’ 🫶🏼🌹
Penny Bonds @pbonds747
1K Followers 869 Following I am a Christian, Conservative Southern Lady; 26+ yrs married. I Love Nature. ME/CFS & LC Any tweets are of my opinion and are not intended as medical advice.
Veranderland @Veranderlant
549 Followers 2K Following If I ask you to name all the things you love. How long would it take, before you name yourself? Always busy curing myself of ME/CFS, cause nobody else will.
Guus @guustweet
4K Followers 1K Following #LongCovid since jan’21 ♿️ - tweets with brain fog, so pls bear with me - 📣 tries to advocate @NietHersteld - eager to learn - she/her - tweets in 🇬🇧 & 🇳🇱
Arf-PEM-Jansen 🪫 @dokter_Arf
853 Followers 958 Following 17 years ME CFS + LC = a clusterf*ck 🤷🏼♂️ Stoic Zen Buddhist trying to Master the Art of PEM Suffering 🧘🏼 Support Biomedical 🔬 Cure ALL Patients
Silvia @Bonnie_With_ME
64 Followers 141 Following ME/CFS BELL 30, Brustkrebsüberlebende, Mom of two, 🇩🇪&🇪🇸
Amy Mitchell @amymitchellart
4K Followers 2K Following Artist & Pet Sitter 🐈 LCAP Activist ✊️ Advocate for Lyme, MCAS, CVID, APS1, POTS, gluten ataxia, #longcovid https://t.co/iKR4aqhKtW 💜 https://t.co/PeOMd0jBUs
Florian @MEasy____
85 Followers 220 Following Bekämpfe mild/mod. ME/CFS seit Ende 2024. Werde gewinnen. Weil Wissenschaft. P.S.: Bleibt Bett, wenn krank. Bitte.
TTOR @VPAV8
144 Followers 540 Following (FR) Anti #LongCovidKids #LongCovid #PACS #MECFS #ChronicLyme #PAIS #MS
MIRAME ARTS @MIRAME_ARTS
1K Followers 138 Following Verein von #MECFS- und #LongCovid-Patienten und Unterstützern. Wir produzieren Medien und Events,um Fehlbehandlungen zu stoppen. Spenden: siehe -linktr.ee-
Joao @JoaoWalker79
178 Followers 442 Following Long Covid / ME/CFS / cycling / anti-fascism / und anderes
NichtGenesen @NichtGenesen
3K Followers 427 Following Wir geben #LongCovid, #MECFS & #PostVac ein Gesicht!
Eliza @elizaclove
892 Followers 162 Following 28 🇬🇧 😷 M.E + Long Covid since hospitalised with Covid in 2023. I’m using this account to vent and find friends with my condition.
mecfs quotes @mecfs_quotes
46 Followers 19 Following 💙🦋Gentle quotes for ME/CFS & chronic illness patients. A quiet place for comfort, strength & understanding. 🦋💙
pollypocket66 @pollypocket5000
263 Followers 468 Following ME and fibromyalgia sufferer for over 20 years-if you want to claim it doesn’t exist or all in my head you will be blocked😉
Antoine | V.Severe ME... @JeunePOTS
427 Followers 156 Following 27 y. Former company lawyer. Life decimated by severe #MECFS, #LongCovid and #POTS since December 24 Previously big 🎮 and ⚽ fan, now stuck in bed doing nothing
Swiftsandswallows @Swiftsswallows
1K Followers 2K Following @swiftsandswallows.bsky.social My daughter had Severe ME/POTS & MCAS and died in 2024 I am also a parent and carer of a younger daughter with ME & POTS
Darren Randon @DarrenRandon
423 Followers 586 Following Community Builder - Creative Facilitator He/Him/His All views here are my own #pwME
Rachel Gross, MD, MS @RachelGrossMD
311 Followers 590 Following Pediatrican focused on preventive care and health equity; @nyulangone; @pophealthnyc; early child obesity prevention; #LongCOVID in children; tweets my own
K @kitkat_2341
37 Followers 211 Following came for the cat memes, stayed for the ME/CFS wisdom/news/community 💙 mostly just lurking 🪫
MissingDOCTORSandPSYC... @MEDocsPsytheras
824 Followers 304 Following Austausch für Mediziner*innen, Apotheker*innen und Psychotherapeut*innen, die von ME/CFS, LongCovid, PostVac oder ähnlichen Erkrankungen betroffen sind.
Dominic with ME/CFS @dog178234
337 Followers 726 Following
MAbsForCanadaNOW @MAbsForCanada
336 Followers 356 Following Advocating for access to monoclonal antibodies against COVID-19 in Canada. Sign the petition. #COVID19IsNotOver | #MAbsForCanadaNOW
Michael Alexander @Michaeltikus
1K Followers 3K Following I like animals 🐙 Covid? Not so much. Views my own. @Long_Covid @RenegadeRes @WeCrunchME @OneSpoonProject
Adam @AdamIRL73
2K Followers 2K Following ME/POTS/Fibro and more. Former Mortgage Development Manager. Retired due to ill health. Part of DecodeME. TAX WEALTH.💚 #BackZack @greenparty member
Awairwolf @awairwolf
486 Followers 811 Following Aware of the air. Lone wolf when it comes to masking (hopefully not for long). Long Covid & Climate Change Awareness. #covidisnotover #climatechangeisreal
RemissionBiome MECFS/... @remissionbiome
10K Followers 990 Following Project run by @renegaderes, a non-profit 501c3 focused on #MECFS & #LongCovid • https://t.co/kbmqa2yImN • https://t.co/IkTfALVBWC💙 Donate now ▶️ https://t.co/yNyiFapV80
EndMalnutritioninME @MalnutritionME
533 Followers 685 Following Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. https://t.co/fOkzoiJqv2
Pinakoolada @pinakooklada
2K Followers 375 Following 20s | LC since 01/2021 | #notrecovered | #fckafd | moderate-severe MECFS | 🍉🇺🇦🏳️🌈
Chris 🏳️🌈 @ungenesbar
2K Followers 711 Following LongCovid & ME/CFS advocate & activist // Project Manager @MECFSResearch Foundation // Co-Founder @U2Fight_World // creator of https://t.co/MkjlN3XmQF // gay
Imogen @inadarkroom247
1K Followers 363 Following 26, UK and Dying from covid induced very severe ME. POTS + MCAS. Too severe to post much anymore
LongCovidJourney.com @Longcovidjourne
144 Followers 276 Following Sharing insights, resources, and experiences on Long COVID recovery and research. Visit https://t.co/Pu5iJR1fTO for more. #cleanair, #covid #LongCovid
Vijay Iyer PhD @vijayiyer312
4K Followers 2K Following Patient advocating science for #mecfs & #dysautonomia (incl via #longcovid & #postvac).👷🏾♂️Support #neuroscience users & use cases of @MATLAB. Tweets my own.
#TheNicotineTest -- C... @TheNicotineTest
6K Followers 622 Following A Patient-Led, Citizen Science Project. Low-Dose Nicotine Patch data collection/sharing for #LongCovid, #MECFS/post-viral disease. Admin: @Canal1point5
Tina Katsaros @tinakatsaros
1K Followers 250 Following PhD candidate researching ME/CFS at La Trobe University
Caroline Ströck @CarolineStroeck
821 Followers 131 Following marketing artist at Ströck • RINGANA ambassador • fundraising for @weandmecfs foundation • spreading awareness for #MECFS •
Robert 😷 Long COVI... @Rob_DeRosa
1K Followers 2K Following 🇨🇦🇺🇸 CAN/USA | Former 🇯🇵 & 🇸🇬 | Int’l educator 📚 | MPP 🎓 | Patient Rep & Advocate | Disabled by #LongCOVID #MECFS #POTS since Feb 2020 🦠 | 🏳️🌈
🇫🇷Alex @alexandrer81988
712 Followers 1K Following Passé par dauphine mais tombé malade covid long en 2021 sévèrement neurologique ... donc viré Merci à la médecine et la France 0 progrès en virologie.
Robert Chapman 💙 @RbrtChpmn
180 Followers 939 Following Life is for others. Existence ruined by illness. #pwME #MECFS #longCOVID #hypothyroidism
T @Yrrepmot
894 Followers 2K Following Barely living with #MECFS, and #ComplexChronicIllness including #PAIS #IACCs #CIRS #EDS #POTS #PSSD #TooTiredToThink #MUFC #Socialism
Daniel Missailidis, P... @DanMissailidis
4K Followers 632 Following Researching the cell biology of PD, ME/CFS & Long COVID at La Trobe Uni in Melbourne, Aus. Papers: https://t.co/JMi5U6cBLI
Vicky James @bowditch71
2K Followers 2K Following raising awareness, losing friends #longcoviddaughter #cleantheair #corbynwasright she/her/elle
Schnickelfritz @KSchnickelfritz
655 Followers 555 Following Bedbound knitter with a chocolate habit and bird obsession. #ME #POTS #LC #Lyme
CrunchME @wecrunchme
1K Followers 43 Following Data-informed advocacy to accelerate research on ME/CFS, Long COVID, and other infection-associated chronic conditions (IACCs) 💙
Djeber GZ @DjeGZ3
171 Followers 125 Following 33 ans, PhD. Je vis avec un #LongCovid sévère – #MECFS #MCAS #POTS. Chronique, invisible, combat quotidien. Milite pour reconnaissance, recherche & soins.
WACM @_VFK_DAA
522 Followers 1K Following LC is unique due to its chronic inflammation of the vessels (vasculitis). Just because some symptoms are shared, it doesn't mean the conditions are the same.Trends for United States
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