raising_rareness (Lyndsey Walsh) @raisingrareness
Mum of 3 Raising awareness of rare diseases & conditions #2q24.2 Advocating for my daughter & Rare Community 💗 #AAC MA Archaeology UCC Opinions my own Ireland Joined May 2022-
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Thank you to @ronancollins7 for acknowledging the critical role HSCPs play in acute stroke care and highlighting how challenging conditions are. As the first and only Speech and Language Therapist working in Ireland’s largest hospital’s stroke unit - I feel seen 🙌🏻
Thank you to @ronancollins7 for acknowledging the critical role HSCPs play in acute stroke care and highlighting how challenging conditions are. As the first and only Speech and Language Therapist working in Ireland’s largest hospital’s stroke unit - I feel seen 🙌🏻
How cruel to treat a pupil & family like this. Reasonable accommodation to just give the family time to sort a replacement. Or better still leave the child wear whatever shoes & clothes are comfortable. #LessRigidMoreAccommodating #KnowBetterDoBetter
How cruel to treat a pupil & family like this. Reasonable accommodation to just give the family time to sort a replacement. Or better still leave the child wear whatever shoes & clothes are comfortable. #LessRigidMoreAccommodating #KnowBetterDoBetter
Following a meeting with the newly appointed Minister for Special Education, FCI has been asked to seek the views of #familycarers on what you believe the department's priorities should be in the area of special education. Please see below. surveymonkey.com/r/2JXP8PN
You know what needs a big overhaul? Health conferences. They've regressed big-time since 2020. Back to being elite events, flying in big-name speakers giving canned talks, in-person only, little patient representation. /1
Check out this exciting event coming up next month 🙌 Book tickets here - eventbrite.com/e/dravet-syndr… #DravetSyndromeIreland #RareCommunity
Check out this exciting event coming up next month 🙌 Book tickets here - eventbrite.com/e/dravet-syndr… #DravetSyndromeIreland #RareCommunity
✨Registration for our webinar on Coordination of Care for #RareDisease is now OPEN! 🥳 Register below👇🧬 Stay tuned to find out about our exciting line-up of speakers 🤫🤫 @eurordis @GeneticAll_UK @22Q11_Ireland Register here: ucd-ie.zoom.us/webinar/regist… ✨
Thanks @GavBecton for coming along to advocate for families impacted by #HuntingtonsDisease. The HSE moratorium delays recruitment for a HD Nurse, already funded. Specialist services are vital for HD families who struggle with this complex neurodegenerative disease.
Thanks @GavBecton for coming along to advocate for families impacted by #HuntingtonsDisease. The HSE moratorium delays recruitment for a HD Nurse, already funded. Specialist services are vital for HD families who struggle with this complex neurodegenerative disease.
Powerful…. It’s so important that we hear the concerns of the healthcare professionals. And ultimately act… Again we hear the issues regarding the shortages of Speech & Language Therapists. It’s a combination of factors why they’re leaving. #Burnout #NoToMoratorium
Powerful…. It’s so important that we hear the concerns of the healthcare professionals. And ultimately act… Again we hear the issues regarding the shortages of Speech & Language Therapists. It’s a combination of factors why they’re leaving. #Burnout #NoToMoratorium
Why did @AnneRabbitte @BernardGloster stand in front of us 7 months ago and ask us to buy in? Why am I, as a family rep on the service improvement programme board, pushing myself physically, mentally and financially to engage in this when it's just another political football?
All systems go, as we prepare for the very first ECR forum @QUBelfast on the 10th of May! Have you submitted your #RareDisease research yet? 💫
All systems go, as we prepare for the very first ECR forum @QUBelfast on the 10th of May! Have you submitted your #RareDisease research yet? 💫
Gareth Noble @GarNob
17K Followers 4K Following Children’s rights and education law solicitor. Partner in Human Rights firm KOD Lyons. Liverpool FC fan. Stella Maris soccer coach. [email protected]
Access For All Irelan.. @AccessForAll7
8K Followers 3K Following Non profit disability activists. We are looking for equality, inclusion. #NothingAboutUsWithoutUs it is society that disables us! [email protected]
22Q11 Ireland @22Q11_Ireland
5K Followers 5K Following Parent group raising awareness of #22q Working toward integrated care for 22qDS & individually rare collectively common #RareDiseases. Tweets AnneL CHY 17647
Tracy 💜 ☮️📸.. @AddressingLife
10K Followers 6K Following Grieving mom of Brendan Bjørn & devoted mom to D; Writer; Disability Advocate. Former Carer, School Counselor & Child/Family Therapist. BA & MA in Counseling.
Involve Autism: D6/D6.. @involve_d6_d6w
3K Followers 5K Following Parents’ Support Group, providing support, whilst advocating for our children & promoting inclusion & acceptance. “A Voice For Autism In Our Local Community”
Dr Tom Clonan @TomClonan
25K Followers 7K Following Senator | TCD | Whistleblower Sexual Violence Armed Forces | Disability | Care | Housing Health Homes | Chair @DogsForDisable1 | No DMs [email protected]
Dr. Lhara Mullins @LharaMullins
9K Followers 6K Following Lecturer in Health Promotion & busy Mom of 4. Author & professional multitasker. Autism/Neurodiversity CPD Training. Prolific user of exclamation marks!!!
Rachel Martin @fussireland
1K Followers 892 Following Children & young adults with disabilities in Ireland are facing long waitlists/no services/no support. Time to rally. #letsmakeafuss
RARE Ireland @rareireland
1K Followers 3K Following We are a parent led charity organisation founded since 2017 providing support for families of children with rare conditions in Ireland-RCN 20206340 #rareireland
Inclusion Ireland @InclusionIre
15K Followers 1K Following The National Association for People with an Intellectual Disability. A RT/Fav is not necessarily an endorsement. Acc operated Mon-Fri 9am-5pm. CHY No. 7709.
DFI @DisabilityFed
9K Followers 3K Following National support organisation for voluntary #disability groups. RT is not necessarily an endorsement. Also at https://t.co/iPZEFe7kHT and https://t.co/26aVnTTvCY
Rainbow Club Cork @Rainbowclubcor2
1K Followers 805 Following Rainbow club cork Centre for autism providing supports and services to families. Giving access to social groups, therapies, courses, sports & other activities
SpecialSchools&Classe.. @irl_open
1K Followers 1K Following Parents group in Ireland whose children attend special needs schools and classes, who are focussed on ensuring appropriate provision is made for our children.
Niamh Fitzpatrick @NFitzPsychology
60K Followers 32K Following Psychologist: 💔Grief 💚Mental Health 🏆Sport. Author:📚Tell Me The Truth About Loss. Formerly:🎙️Agony Aunt Today FM ☘️Irish Olympic Team Psychologist
Aisling McNiffe 🇵�.. @McNiffecent
4K Followers 5K Following Mum of 2,Carer/passionate advocate,raising awareness of Disability esp severe/profound,Rare disease. #Connolly4Kids! We have a Health Crisis! #HealthFirst
Edwina McElhinney @mc_elhinn1
375 Followers 466 Following Tipperary F.U.S.S activist. Autism, disability and carer advocate.
Neurodiversity Irelan.. @NeurodIreland
3K Followers 4K Following National Charity promoting awareness of neurodiversity and inclusion of neurodivergent kids and young people in Ireland 🌈 RCN20206465 CHY23074
Faye Hayden- Bedtime .. @FayeHayden18
1K Followers 3K Following Upset by injustice determined to do something about it. Advocate for the undervalued, NOISI co-chair/Mum/Woke/SocDem💜 Always hungry/late/tired/talking!ADHDer🌈
darren milne @darmilne
662 Followers 1K Following Man Utd supporter,will fight to the death for my family,very very happy 😊
The Struggle Is Wheel @struggleiswheel
3K Followers 999 Following Highlighting our own experiences of ♿adventures & ableism as a couple in Ireland 🧭 Spinal Cord Injury
Huntington's Disease .. @HDAI_ie
3K Followers 5K Following HDAI RCN 20025656. Sharing news on Huntingtons Disease /connecting to the international HD community. RTs not endorsements. https://t.co/pPoXkLELx2 / https://t.co/z0BAD0VUeS
Niamh O'Donoghue @NiamhODonoghu10
54 Followers 444 Following
Angel Weaver @AngelWeave86853
118 Followers 3K Following
Kathleen Martinez @KathleenMa88593
62 Followers 3K Following
Ellie-may Rizzotto @RizzottoEl80688
98 Followers 5K Following
Felicita Shbi @FelicitaSh4577
91 Followers 5K Following
edel abberton @AbbertonEdel
386 Followers 817 Following She/her. Parent,Carer,volunteer advocate,Charity founder, RGN.
Jen Dalton @JenDalton2
2K Followers 3K Following General curmudgeon and complainer. EMT, disability rights, equality and equity
Gerard Crotty 🇺�.. @gmcrotty
29K Followers 32K Following Blood doctor (consultant haematologist). https://t.co/gDOLTsUPvV Past President of IHCA. Personal views. Retweets are not endorsements. #QI
Glendora Mckitrick @GlendoraMc59511
79 Followers 5K Following
Notes to my boy ✉�.. @notestomyboy
4K Followers 2K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
Alice O'Donnell @AliceODonnell10
3K Followers 5K Following Neuroaffirmative Life Coach, Teacher, I.N.T.O Education Committee Rep for District 8, Peace Commissioner, member of @KWETB Chairperson of Greystones CNS
Maynooth Autism Frien.. @maynoothaft
122 Followers 287 Following
Robin Foxworth @foxwort_robi
53 Followers 5K Following
Pixie Arico @AricoPix
52 Followers 5K Following
Andrew Kirrane / Inwo.. @AndrewKirrane
1K Followers 4K Following Wood Technology & Construction Studies 🌳 Woodcarving & Woodwork Classes 🌳 Find me on ~ Facebook & Instagram (photos) #inwoodfurnituredesign
Han Cerasuolo @CerasuoH
48 Followers 5K Following
Aurora Pomerance @AuroraP90297
50 Followers 5K Following
Myung Langen @LangenMyun5772
70 Followers 5K Following
Lillie Tackett @LillieTack16439
71 Followers 5K Following
Dr Kimberley Kendall @DrKimMKendall
279 Followers 492 Following Psychiatrist 🧠, mental health clinical informatics 🖥️ and genetics researcher 🧬 @CNGGCardiff. #genetics #psychiatry #psychosis
Nona Deralph @NoDeralp
41 Followers 5K Following
Ellia Cockerill @cockeri_elli
71 Followers 5K Following
Katheryn Rybij @kather_ry
83 Followers 5K Following
Hailee Senich @HSenich19467
33 Followers 5K Following
Zoe Trush @tru_trush
95 Followers 5K Following
Desirae Holdman @desira_holdm
52 Followers 5K Following
Elsie-mae Delonge @DelonElsie
60 Followers 5K Following
Cheshire Ireland @IrelandCheshire
507 Followers 613 Following Cheshire Ireland provides a range of support services to people with both physical, sensory and neurological conditions in their own homes & residential centres
Claudette Archambeau @ClaudetteA28906
100 Followers 5K Following
Hannah Tugman @HannTugm
62 Followers 5K Following
Winnie Mcphail @McphailWin61770
69 Followers 5K Following
lisa chapman @CommonSenseSLT
3K Followers 2K Following Mum to ND kids, Lead SLT in Shrops CAHMS @mpftnhs, SI-SALT Advanced Practitioner. Former teacher. Interested in SI, SLCN & ND 🤩 All views my own. She/her
Catriona Galster @catrionagal
100 Followers 160 Following
Joan Carthy @Joan3103
85 Followers 275 Following All views are my own, Disability Activist Irish Wheelchair Association National Advocacy Manager; MA Public Advocacy & Activism BA Counselling & Psychotherapy
Arianna Deluca @deluca_ari12524
35 Followers 5K Following
Thresa Lumbley @lumb_thre
81 Followers 5K Following
Della Crape @DCrape70085
66 Followers 5K Following
Lula Posso @LulaPosso44007
69 Followers 5K Following
Louis Dunk @dunk_louis38407
39 Followers 5K Following
Leesa Kohara @LKohara91549
29 Followers 5K Following
Kira Molano @KiraMolano82208
60 Followers 5K Following
Alma Tamburino @AlmaTambur66319
38 Followers 5K Following
Hannah-leigh Brieger @brieger_lei
30 Followers 5K Following
Eve smith @evemdsmith_eve
728 Followers 994 Following Paediatric rheumatologist, University of Liverpool, EATC4Children, Alder Hey. Interested in everything lupus, & raising awareness of paed rheum @WORDDay_org
Louise @Louise_ASN
14 Followers 186 Following ASNP @Lockhart_campus with a passion for total communication ❤️ #VoiceForAll
Gareth Noble @GarNob
17K Followers 4K Following Children’s rights and education law solicitor. Partner in Human Rights firm KOD Lyons. Liverpool FC fan. Stella Maris soccer coach. [email protected]
Access For All Irelan.. @AccessForAll7
8K Followers 3K Following Non profit disability activists. We are looking for equality, inclusion. #NothingAboutUsWithoutUs it is society that disables us! [email protected]
22Q11 Ireland @22Q11_Ireland
5K Followers 5K Following Parent group raising awareness of #22q Working toward integrated care for 22qDS & individually rare collectively common #RareDiseases. Tweets AnneL CHY 17647
RTÉ News @rtenews
1.4M Followers 307 Following RTÉ News and Current Affairs - Irish and International News
Tracy 💜 ☮️📸.. @AddressingLife
10K Followers 6K Following Grieving mom of Brendan Bjørn & devoted mom to D; Writer; Disability Advocate. Former Carer, School Counselor & Child/Family Therapist. BA & MA in Counseling.
Anne Rabbitte TD @AnneRabbitte
12K Followers 8K Following Minister of State for Disability in the Dept of Health & Dept of Children, Equality, Disability, Integration and Youth. Fianna Fáil TD for Galway East.
Involve Autism: D6/D6.. @involve_d6_d6w
3K Followers 5K Following Parents’ Support Group, providing support, whilst advocating for our children & promoting inclusion & acceptance. “A Voice For Autism In Our Local Community”
Dr Tom Clonan @TomClonan
25K Followers 7K Following Senator | TCD | Whistleblower Sexual Violence Armed Forces | Disability | Care | Housing Health Homes | Chair @DogsForDisable1 | No DMs [email protected]
Dr. Lhara Mullins @LharaMullins
9K Followers 6K Following Lecturer in Health Promotion & busy Mom of 4. Author & professional multitasker. Autism/Neurodiversity CPD Training. Prolific user of exclamation marks!!!
Rachel Martin @fussireland
1K Followers 892 Following Children & young adults with disabilities in Ireland are facing long waitlists/no services/no support. Time to rally. #letsmakeafuss
RARE Ireland @rareireland
1K Followers 3K Following We are a parent led charity organisation founded since 2017 providing support for families of children with rare conditions in Ireland-RCN 20206340 #rareireland
Inclusion Ireland @InclusionIre
15K Followers 1K Following The National Association for People with an Intellectual Disability. A RT/Fav is not necessarily an endorsement. Acc operated Mon-Fri 9am-5pm. CHY No. 7709.
Lorraine Dempsey @LorDempsey
5K Followers 2K Following CDNT Family Forums Facilitator. Ex CEO @Inclusionire Trigeminal Neuralgia .50% Moroccan.Ex RGN. Widowed too soon #UNCRPD #Advocacy
DFI @DisabilityFed
9K Followers 3K Following National support organisation for voluntary #disability groups. RT is not necessarily an endorsement. Also at https://t.co/iPZEFe7kHT and https://t.co/26aVnTTvCY
Mark Smyth @psychpolis
15K Followers 9K Following Chartered Clinical Psychologist, Clinical Lead @RugbyPlayersIRE; 👮🏼♂️, 2020 President @PsychSocIreland Dad of 3, GAA coach, #LFC
Gavan Reilly @gavreilly
229K Followers 9K Following Political correspondent @virginmedianews • 1/3 of #TheGroupChat podcast, Wednesdays at 11pm on Virgin Media One • Columnist @meathchronicle and @TheSundayIndo
Rainbow Club Cork @Rainbowclubcor2
1K Followers 805 Following Rainbow club cork Centre for autism providing supports and services to families. Giving access to social groups, therapies, courses, sports & other activities
SpecialSchools&Classe.. @irl_open
1K Followers 1K Following Parents group in Ireland whose children attend special needs schools and classes, who are focussed on ensuring appropriate provision is made for our children.
PJ Gallagher @pjgallagher
155K Followers 2K Following On @radionova100 every morning from 6am to 10am. I don’t read DM’s. https://t.co/vgTNxF2soK here for bikes, bohs, dogs and Dubs.
Charlie Bird @charliebird49
69K Followers 36 Following Journalist and Broadcaster. On April 2nd I am climbing Croagh Patrick for Pieta House and the Irish Motor Neurones Association.
Dominika Lisiecka, Ph.. @DominikaLis007
531 Followers 431 Following Lecturer@Munster Technological University; Clinical Director @ Kerry SLT Clinic
Dravet Syndrome Irela.. @Dravet_Ireland
26 Followers 57 Following Established in 2020, we are a volunteer-run charity. Our mission is to support families and improve outcomes for individuals affected by Dravet Syndrome.
Cathy Gibbons @MedgibbonsCathy
2K Followers 591 Following Paediatric Consultant Intensivist - CHI@Temple Street,Clinical Lead Irish Paediatric Acute Transport Service - nearly full time singer/choral music nut
Gavan Becton @GavBecton
2K Followers 2K Following Editor @ Meath Chronicle. Solidarity with sufferers and families impacted by HD & neurology/neurodegenerative conditions
Niamh O'Donoghue @NiamhODonoghu10
54 Followers 444 Following
David Gilbert 🇪�.. @DavidGilbert43
8K Followers 5K Following Poetry - Birds and Trees - Football #lufc - Justice
Jen Dalton @JenDalton2
2K Followers 3K Following General curmudgeon and complainer. EMT, disability rights, equality and equity
Gerard Crotty 🇺�.. @gmcrotty
29K Followers 32K Following Blood doctor (consultant haematologist). https://t.co/gDOLTsUPvV Past President of IHCA. Personal views. Retweets are not endorsements. #QI
Notes to my boy ✉�.. @notestomyboy
4K Followers 2K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
Orlaith Maher-Lalor @LalorMaher33771
84 Followers 60 Following
Maynooth Autism Frien.. @maynoothaft
122 Followers 287 Following
Andrew Kirrane / Inwo.. @AndrewKirrane
1K Followers 4K Following Wood Technology & Construction Studies 🌳 Woodcarving & Woodwork Classes 🌳 Find me on ~ Facebook & Instagram (photos) #inwoodfurnituredesign
CRAE @CRAE_IOE
11K Followers 3K Following Centre for Research in #Autism & #Education (CRAE) at IOE, @UCL's Faculty of Education and Society, @UCL_IOE_PHD, @IOE_London.
Hildegarde Naughton @1Hildegarde
9K Followers 2K Following Minister of State at the Department of An Taoiseach & Government Chief Whip. Minister of State with responsibility for Special Education & Inclusion.
ISupport @lSUPP0RTrights
417 Followers 278 Following iSUPPORT: International collaborative standards to SUpport Paediatric Patients during clinical prOcedures, Reducing harm and establishing Trust
Meath HSE Speech and .. @MeathSLT
261 Followers 224 Following Facebook: https://t.co/nrhKjCOkup… Instagram: @meathslt YouTube: https://t.co/6NbDKkZMHm…
Kevin Shortall @KevinShortall5
2K Followers 938 Following Principal @staidanscs. Don't be wishing for the students you want, become the teacher they need! Ideas and education.
Health Promotion at U.. @GalwayHPRC
2K Followers 1K Following News and updates from the Health Promotion Research Centre - a WHO Collaborative Research Centre at the University of Galway, Ollscoil na Gaillimhe
HealthBehaviourUniver.. @hbcrg
3K Followers 1K Following Health Behaviour Change Research Group, University of Galway, Galway.
HRB PrimaryCare CTNI @pmrycaretrials1
2K Followers 943 Following Improving health & health care in the community through research. Clinical trials. Public & Patient Involvement in research.
Dr Kimberley Kendall @DrKimMKendall
279 Followers 492 Following Psychiatrist 🧠, mental health clinical informatics 🖥️ and genetics researcher 🧬 @CNGGCardiff. #genetics #psychiatry #psychosis
KarenHorridge💙 @KarenHorridge
641 Followers 339 Following Mother, visiting professor of childhood disability & development, University of Sunderland. Retired NHS children’s doctor. All views my own
Bernard Dan @ProfBernardDan
2K Followers 100 Following Paed neurologist & rehab. Professor Neuroscience & Dev Psych @ULBruxelles; Editor-in-Chief Dev Med Child Neurol @mackeithpress; Chair EACD @EACDtweet
Mac Keith Press @mackeithpress
2K Followers 746 Following Publisher of the journal Developmental Medicine & Child Neurology (DMCN) and related books since 1959. EiC: @ProfBernardDan Join us: https://t.co/NOkLR4PjdH
htaAlerts @htaAlerts
2K Followers 2K Following Health Technology Assessment alerts including the socioeconomic impact of new healthcare technologies in society. Content curated by @Syenza_Corp
Cheshire Ireland @IrelandCheshire
507 Followers 613 Following Cheshire Ireland provides a range of support services to people with both physical, sensory and neurological conditions in their own homes & residential centres
Joan Carthy @Joan3103
85 Followers 275 Following All views are my own, Disability Activist Irish Wheelchair Association National Advocacy Manager; MA Public Advocacy & Activism BA Counselling & Psychotherapy
glippett @glippettsci
40 Followers 191 Following
Catriona Galster @catrionagal
100 Followers 160 Following
Dr. Christine Gibson @GibtrotterMD
3K Followers 3K Following author : GP psych : health equity : social innovation : trauma and resilience. Climate action. Storyseeking. tiktoktraumadoc (she/her) on 🧡Treaty 7 *ideas mine
Tom Honan @tom_honanphotos
2K Followers 1K Following Photographer working with @irishtimes @dmgmedia_Irl
Aedin Culhane (@Aedin.. @AedinCulhane
4K Followers 3K Following Prof @MedicineAtUL, @LDCRC_UL Computational Oncology #bioinformatics, R @bioconductor, @eHealth4Cancer. Formerly @HarvardBiostats @DanaFarber. Tweets are my own
Eve smith @evemdsmith_eve
728 Followers 994 Following Paediatric rheumatologist, University of Liverpool, EATC4Children, Alder Hey. Interested in everything lupus, & raising awareness of paed rheum @WORDDay_org
Health Services Chang.. @HSEchange_guide
6K Followers 4K Following Person Centred Change Guide providing Health Services with practical resources to develop capacity for change & service integration RT not endorsement @HSELive
helen cahill @helenj_99
242 Followers 216 Following Clinical Research Assistant, Autism and Rare Neurodevelopmental Disorders Research Group, Trinity College Dublin @AutismTCD @R2d2Mh @TCDTMI
Dr. Niamh Cummins @CumminsNM
4K Followers 5K Following Public Health & Mobile Integrated Care 🚑🏥 @IPERN999 @EMergeUL #EDI #EndTheStigma #DisabilityRights Sports enthusiast & proud Mammy!
Upfront with Katie Ha.. @RTEUpfront
71K Followers 2K Following Mondays on TV, in your social feeds throughout the week, and wherever you get your podcasts.
Mary Curtin @Marytcurtin
3K Followers 3K Following Midwife, PhD candidate: #Humanisation in Childbirth, ~own opinions~
Dr Mary McAuliffe @MaryMcAuliffe4
22K Followers 10K Following UCD Gender Studies. Historian / ‘The Diaries of Kathleen Lynn: A Life revealed through Personal Writing’ @UCDPress /feminist / views my own / (she/her)/woke
Ann Walsh @annwalshgreen
623 Followers 832 Following Ecopsychology, Doctoral Researcher Maynooth University, Loch Garman Abú
Aoife Murphy @AoifeMurphy40
65 Followers 516 Following Solicitor. ⚖ Ex Cabin Crew. 💄Iarlaith’s Mam - our PKU Hero. 💙 #grateful Instagram: aoife_ni_mhurchu All views are my own.
Kristie Patten @Kpk3P
800 Followers 701 Following Counselor to the President NYU II Professor @NYU_OT II Principal Investigator @asdnestnyu II tweets = my own
Sam Kenny @Sammlesie
1K Followers 2K Following Mam of 4, family carer, accidental advocate and campaigner. she/her. mastodon: https://t.co/TNv3P56XIB
Sensational Learning .. @senlearnuk
2K Followers 3K Following Home Educating mother of one special Penguin ✨ #homeschooling #autism #LD #alifeworthliving #daysout #AAC #differentnotless #photography
Dr Robert Bohan @RobertBohan
303K Followers 268K Following Irish contemporary artist, doctor of science & history, statistician | #Art | Drawing & Painting | He/Him | Buy here: https://t.co/kxfwp60F5o
Siobhan Malone Mc Bar.. @sibhmalone
130 Followers 828 Following •Muscular Dystrophy-LGMD•TNBC-Breast Cancer Survivor•Galway Girl•Learning to love the new me•My life,my thoughts•Supports voluntary Assisted dying legislation!
Dr Margaret Kennedy @Margare79112725
40 Followers 73 Following Irish, Feminist, Social Justice & disability activist, former social work lecturer. age 71 with rare neuro-muscular disease. fighting for full equaiity - FULL
INFOMAR @followtheboats
5K Followers 2K Following INFOMAR is a Government of Ireland programme to map all of Ireland's Seabed. It is funded by @Dept_ECC and carried out by @GeolSurvIE and @MarineInst
Prof Ronan Collins, National Clinical Lead for Stroke, delivers some frightening figures to us at today's Oireachtas meeting. Stroke will increase by 60% over the coming years, and 1 in 4 of us will get a stroke. This is a fact. We need to act today #patientsdeservebetter
We were delighted to have Prof Ronan Collins, National Clinical Lead for Stroke, join us at Leinster House as we addressed Oireachtas members. 1 in 4 of us will get a stroke - this harsh reality is a fact. We need to act now and tackle this oncoming crisis #patientsdeservebetter
I was very grateful to @ronancollins7 passionate & plain talking assessment of the current situation for neurological patients at the @naiireland session #patientsdeservebetter but so do the therapists working in the system.
PLEASE LISTEN 🧵 This is Prof Ronan Collins @ronancollins7 (National Clinical Lead Stroke) scathing criticism of Dept of Health/@HSELive treatment of 850,000 people in Ireland living with neurology/neurodegenerative conditions and the moratorium on recruitment …
Finally someone is talking about the numerous therapists who choose to work in Australia for better conditions and the resulting recruitment challenges. Thank you @ronancollins7 for highlighting this issue.
PLEASE LISTEN 🧵 This is Prof Ronan Collins @ronancollins7 (National Clinical Lead Stroke) scathing criticism of Dept of Health/@HSELive treatment of 850,000 people in Ireland living with neurology/neurodegenerative conditions and the moratorium on recruitment …
Thank you to @ronancollins7 for acknowledging the critical role HSCPs play in acute stroke care and highlighting how challenging conditions are. As the first and only Speech and Language Therapist working in Ireland’s largest hospital’s stroke unit - I feel seen 🙌🏻
PLEASE LISTEN 🧵 This is Prof Ronan Collins @ronancollins7 (National Clinical Lead Stroke) scathing criticism of Dept of Health/@HSELive treatment of 850,000 people in Ireland living with neurology/neurodegenerative conditions and the moratorium on recruitment …
If you have any interest in the Irish health service, please listen to this heartfelt, honest and fair description of some of our major issues.
PLEASE LISTEN 🧵 This is Prof Ronan Collins @ronancollins7 (National Clinical Lead Stroke) scathing criticism of Dept of Health/@HSELive treatment of 850,000 people in Ireland living with neurology/neurodegenerative conditions and the moratorium on recruitment …
I will never name a school or parents (unless the story is already in the public domain) as this could identify a young person. If that means you think I'm lying, so be it. I don't know why you think I would be motivated to lie about something like this. I'm not trying to…
@naomicfisher @jenhawk6248 Lies lies lies, you don’t name the school and I can tell you (16 years in teaching) no school I have ever been in would do his (trust or otherwise)
Another day and another shoe story. This parent told me that her son came home on Wednesday with a broken shoe and clearly needed a new pair. Both parents work full time and don’t drive so couldn’t get new shoes immediately – he wears specific shoes as those are the only ones he…
Following a meeting with the newly appointed Minister for Special Education, FCI has been asked to seek the views of #familycarers on what you believe the department's priorities should be in the area of special education. Please see below. surveymonkey.com/r/2JXP8PN
Did you know there's a type of anxiety specific to autism that isn't explained by any of the anxiety disorders currently included the DSM? Researchers are referring to this type of anxiety as "Distinct anxiety" because it's distinct to autism and tied to autistic traits.
Check out this amazing video by Megan aged 10 who is raising awareness for Undiagnosed Children’s Day today! 👀 🧬 🦢
A video for #undiagnosedchildrensday by Megan aged 10. #genomics #genomicsedu #patientvoice #expertbyexperience #disability #foreveryone @SWAN_UK @genomicsedu @GenomicsEngland
You know what needs a big overhaul? Health conferences. They've regressed big-time since 2020. Back to being elite events, flying in big-name speakers giving canned talks, in-person only, little patient representation. /1
We are very excited to host our 2024 Symposium for parents and caregivers on 25th May. It is now open for bookings eventbrite.com/e/dravet-syndr…
All of this … every single word of it is the absolute truth…
PLEASE LISTEN 🧵 This is Prof Ronan Collins @ronancollins7 (National Clinical Lead Stroke) scathing criticism of Dept of Health/@HSELive treatment of 850,000 people in Ireland living with neurology/neurodegenerative conditions and the moratorium on recruitment …
🚨 A vital watch - powerful advocacy from @ronancollins7
Incredible advocacy from Prof Ronan Collins. He names risks to patients, burnout, moral injury. ‘People are going to work every day and leaving work not being able to do the job they were hired to do'. A vital message that must be amplified … @ronancollins7
Prof Collins as always an advocate for stroke services and HSCPs has a lot to say about the HSE recruitment freeze. When is this madness going to end? Patient suffer, staff suffer, staff burnout, patients suffer more.
PLEASE LISTEN 🧵 This is Prof Ronan Collins @ronancollins7 (National Clinical Lead Stroke) scathing criticism of Dept of Health/@HSELive treatment of 850,000 people in Ireland living with neurology/neurodegenerative conditions and the moratorium on recruitment …
✨Registration for our webinar on Coordination of Care for #RareDisease is now OPEN! 🥳 Register below👇🧬 Stay tuned to find out about our exciting line-up of speakers 🤫🤫 @eurordis @GeneticAll_UK @22Q11_Ireland Register here: ucd-ie.zoom.us/webinar/regist… ✨
Come and join this free online webinar focused on co-ordination of care with a focus on #RareDiseases great line of speakers @eurordis @GeneticAll_UK @22Q11_Ireland Great learning opportunity @cpcconf2024 @rare_trial @RareDiseasesIE @rareireland Don’t forget to register 😉
✨Registration for our webinar on Coordination of Care for #RareDisease is now OPEN! 🥳 Register below👇🧬 Stay tuned to find out about our exciting line-up of speakers 🤫🤫 @eurordis @GeneticAll_UK @22Q11_Ireland Register here: ucd-ie.zoom.us/webinar/regist… ✨
Wow this really is the best best news❣️ A massive thank you to all the parents, teachers, SNAs & Principal Orlagh who fought so hard for this new school & a special shout out to @prioritisekolbe who is a fantastic advocate & spokesperson 💞 Well done all 🙌
‼️‼️ Everything is in order and we will be issuing the Letter of Acceptance to the builders next week🤞🏻🥳 Once this letter is issued the builders have 20 days to be onsite. 👷♂️👷♀️👏🏻 Thank you to everyone for all your patience, your persistence and hard work during all of this. ☺️
On this day last year my husband who had lived with Alzheimer's for almost 14 years passed away. He is missed every day. Though his memory was not as ours, we remember every little detail of his life and miss his fun, kindness and music.
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