Strawfie Challenge @strawfie
A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK) breathewithme.org Joined June 2015-
Tweets66K
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📝I'm gathering stories of access barriers. Please contact me if you have any issues accessing [basic edition] Reasonable Adjustments when voting. 🗳 Of course- on the day- do prioritise contacting Returning Officer!🙏 Lets keep putting pressure on the govt to improve! 💫
🎯The wider goal is to ensure that these #CleanAir Reasonable Adjustments are rolled out nationally in time for the General Election.
Reasonable Adjustments that continue to be on agenda as vital public service #CleanAir upgrades: ✅️ Portable HEPA air filters ✅️ Architectural tweaks for future commissioned public buildings ✅️ Updated Accessibility guidance on national level
Reasonable Adjustments that will be trialled at select locations on 2nd May as part of continued talks: ✅️ Auditing CO2 via public monitor as proxy for air quality ✅️Free masks for anyone who wants them when voting indoors
🗳🇬🇧 Regardless where in the UK you are, if you are voting in person, it's worth enquiring if these bare minimum Reasonable Adjustments can be made available. #CleanAir is being discussed behind the scenes on a national level. Start the conversation on the ground 📢
🗳💫 Reasonable Adjustments for Voting for Clinically Vulnerable People and beyond: ✅️Ventilated indoors (open doors & windows). 🪟🌀🚪 ✅️No indoor demask requirement! ✅️Outdoor ID check w/ staff 😷 (see a mask, wear a mask). *The bare minimum edition*
📢 This 2nd May local election 🗳🇬🇧 If you are based in Hampshire (esp Eastleigh) & voting in person, please look out for very newly negotiated Voting Reasonable Adjustments⤵️ #ClinicallyVulnerable With this just being the start of a wider national #CleanAir revolution 🎉 🧵
My son has type 1 #diabetes & #cysticfibrosis every day he's kept alive & well by #NHS meds & care. We're hugely appreciative but terrified at what we've witnessed has been done to the service & workforce. We must all fight for it before it's destroyed
My son has type 1 #diabetes & #cysticfibrosis every day he's kept alive & well by #NHS meds & care. We're hugely appreciative but terrified at what we've witnessed has been done to the service & workforce. We must all fight for it before it's destroyed
If you are here please sign our petition on clean air in health
If you are here please sign our petition on clean air in health https://t.co/yvFGKIA6KJ
I’m URGING the media to actually hire disabled writers and journalists to analyse and scrutinise the gov benefits announcements instead of just publishing verbatim. I’m available and I know other incredible journos such as @HollieAnneB and @TinyWriterLaura are too
@cv_cev I sometimes talk to them. Most people are grateful for the info, saying they had no idea. One asked me recently how people who aren’t on social media are supposed to know these things or keep up to date. Shocking failure of public health.
Introduce new air quality and PPE rules for health and social care settings petition.parliament.uk/petitions/6545…
Introduce new air quality and PPE rules for health and social care settings petition.parliament.uk/petitions/6545…
"Does the PM not realise that his language increases prejudice against disabled people and contributes towards the escalation of hate crime?" @johnmcdonnellMP asks. Mel Stride: We have a prime minister who cares deeply.
“WHO has a responsibility to engage seriously with the science of airborne infection control and make recommendations that minimize the spread airborne disease- not recommendations that seek instead to minimize its own embarrassment and responsibility.” 1/ thegauntlet.news/p/the-whos-cla…
I'm in there too #Teamcf
The child goes to A&E for measles - the hospital gives him Covid and Pneumonia as well and he almost dies. Why are we accepting this? Clean air and masking in hospitals!!! Mortality rate from hospital acquired Covid is 10%. @wesstreeting @Keir_Starmer @NHSuk @CMO_England
The child goes to A&E for measles - the hospital gives him Covid and Pneumonia as well and he almost dies. Why are we accepting this? Clean air and masking in hospitals!!! Mortality rate from hospital acquired Covid is 10%. @wesstreeting @Keir_Starmer @NHSuk @CMO_England
No. <rage> There have not been 900 cases of measles recorded this year in the UK. THERE HAVE BEEN NEARLY 5,000 REPORTED CASES. There have been 900 *LAB CONFIRMED* cases. YOU DON'T NEED A LAB TEST TO RECOGNISE AN ELEPHANT.
No. <rage> There have not been 900 cases of measles recorded this year in the UK. THERE HAVE BEEN NEARLY 5,000 REPORTED CASES. There have been 900 *LAB CONFIRMED* cases. YOU DON'T NEED A LAB TEST TO RECOGNISE AN ELEPHANT.
Wearing a mask should be no different from wearing any other item of clothing - nobody else's business. Except it is more than just clothing... it is PPE!
Wearing a mask should be no different from wearing any other item of clothing - nobody else's business. Except it is more than just clothing... it is PPE!
Report about #measles on @itvnews this evening. Poor little Ezra - measles, #covid and pneumonia. Please, please sign & share to protect our children ⬇️ PETITION petition.parliament.uk/petitions/6545… #cleanair #covidisairborne #covidIsNotOver @cv_cev @ELHopkins @Saffiya_Khan1 @1goodtern
Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Chris Riches @ChrisMRiches
1K Followers 792 Following @Daily_Express NW Correspondent, CF & PKU Campaigner, 2020 Society of Editors 🏆& 2020 Press Gazette Campaign Journalist of the Year 🏆. ❤️Spurs. Opinions own.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Ben Oxlade @BenOxlade1
21K Followers 5K Following Husband, Father to a #CFWarrior and a manic toddler! Contract & Quality Manager - EHAP (Adults), views expressed are my own. #TeamBradford #SWFC
Vertex Save Us @VertexSaveUs
849 Followers 698 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Lisa (she/her) 🏳�.. @Sandyboots2020
46K Followers 24K Following Covid is Airborne, Clean Air for All, #DavosSafe, Dyslexic, Refugees Welcome, Feminist, Socialist, #CeaseFireNow No DMS -it’s Twitter not Tinder
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
Tanya Koorts @TanyaKoorts
308 Followers 441 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
Josh Llewellyn-Jones .. @JoshLJ24
4K Followers 794 Following Endurance Athlete & WR Holder with Cystic Fibrosis 🚀 Performance Coach 🔸 Lift Club Enquiries- [email protected] [email protected]
Catherine Meredith @873Meredith
2K Followers 5K Following Organ Donation. CF. CKD. NHS. Population. Environment. Animal Welfare. Plant based. Ban Intensive Farming, Fur, Foie Gras.
Esther @ELHopkins
12K Followers 11K Following Composer. Interested in #CleanAir #Wildlife #ClimateChange
Jo Davidson @CFcarer
2K Followers 2K Following Thinking of the thousands who are still waiting for #Kaftrio etc...#NoOneLeftBehind. Tweet abt CF, Strictly & general stuff. Unison✊
Karam Bales @karamballes
19K Followers 10K Following Counter Disinformation Project, Former NEU and ATL executive, @Unify1Edu Officer, Freelance journalist & researcher @bylinetimes @whowhatwhy Public speaker
Clinically Vulnerable.. @cv_cev
14K Followers 12K Following 𝗖𝗼𝗿𝗲 𝗣𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁 in the 𝗨𝗞 𝗖𝗼𝘃𝗶𝗱-𝟭𝟵 𝗜𝗻𝗾𝘂𝗶𝗿𝘆 JOIN us on FB 📸cv_cev 🟦☁️@cvcev.bsky.social
Normal Life @NormalLife7
2K Followers 300 Following Content creator with Cystic Fibrosis and a bit of moaning on the side.
Dame Sa 🐝 3.5% @LongCovidHell
8K Followers 7K Following Anti Covid and anti Tory. Raising awareness for #LongCovid. I suffered heart, lung & eye damage from a 2020 Covid infection. #FBLC #CleanAir #CovidisAirborne
helen essex 🇺🇦�.. @helenessex2
2K Followers 2K Following #CleanAirClassrooms #CovidIsAirborne single mum into #LoveNotHate despairing of the libertarian take over. clinging on to humour & humanity #Ydbaai
Long Covid Kids - #Lo.. @LongCovidKids
30K Followers 4K Following UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tI
Ruth Brooker @erbrooker
4K Followers 1K Following Teller of Stories. Drinker of wine. Parent to two small boys & trying not to lose my brains. Travel by bike. Magazine writer on pause. #cleanairclassrooms
mahdi @mahdi43226979
13 Followers 263 Following
royal event decoratio.. @RoyalAnd52301
25 Followers 207 Following
Prof Julia Lawton @Prof_J_Lawton
1K Followers 1K Following I am not here to self promote; I just want to connect with like-minded people who take (long) covid seriously and to keep up to date with the evidence base
Ma vie de zèbre • .. @ADanGrenier
3K Followers 4K Following @adangrenier.bsky.social Patiente-partenaire & communicatrice en maladies rares 🦓 #COVIDisAirborne #LesVulnérablesComptentAussi
crr @crr7310
668 Followers 1K Following
Ebrima Drammeh @EbrimaEb32225
326 Followers 4K Following
Essential Drugs @essential_drugs
10K Followers 9K Following Improving access to medicines that are cost-effective and affordable for the basic health needs of all in society. Content curated by @Syenza_Corp
Jessica nayei @nayei70912
0 Followers 39 Following
_oriole_ @oriole152686
20 Followers 2K Following
Pizza_Lover @PizzaLover30236
40 Followers 2K Following
María @maria_p_14
215 Followers 2K Following
rob @rob__i
2K Followers 2K Following PhD since 2016 Ill since May 2021 Recovery log: https://t.co/ccKnFAcEvJ
Spiritual Open Seer @doputonakofe
113 Followers 3K Following
Safe Inside - Clean T.. @SafeInside2024
681 Followers 1K Following Building a database of places with clean air protocols https://t.co/FXLlVEfc4I please read, like and repost pinned tweet to help spread the word.
Zoe Mills @MillsZoeHarber
710 Followers 3K Following
Marion Ferguson @Marion_Super
390 Followers 260 Following 'Mum to 4 great people and granny to Seven little people. I raise awareness for CF & campaign for access to life saving medicines.
Gammondude @gammondude
120 Followers 951 Following
Martin RJ Ⓥ Fürhol.. @martinfuerholz
2K Followers 3K Following Hacker, Software Tester, Programmer. Security Test Team Lead since 2018, at the world's leading crowdtesting provider. Try everything. Be woke.
Adam Chadwick @AdzzChadders99
225 Followers 1K Following
Robert Sandler @RobertDSandler
89 Followers 226 Following Registar in #Rheumatology and General Medicine. PhD student at Uni of Sheffield (ScHARR). Research in Learning Health Systems and Cystic Fibrosis.
dimpwaybread @dimpwaybread
111 Followers 843 Following
BUCHANAN: Dublin Time.. @RobLooseCannon
17K Followers 16K Following Drinker with a writing problem. #Irish #news #poetry #history #politics #Dublin Married to @alanlambodublin https://t.co/v0q7LvJBQ8
Dr Sally Witcher @SalWitcher
5K Followers 2K Following Working for a safe fully #InclusiveNewNormal and not planning to stop any time soon. Founder @InclusiveNew. #Masketeer
StrongerTogether #Pro.. @StTogether1
4K Followers 6K Following Race: #Human Location: #PlanetEarth Education: #HeartAndMind Prevent #Covid Prevent #LongCovid Protect Public Health #MakeTheUKLovelyAgain 💖
Adrian 🇨🇦🇭�.. @adrianmk
432 Followers 933 Following GR/PR in life sciences. Passionate about improving care for rare diseases like #cysticfibrosis. Father of 2. Tweets & views are my own.
Godfirst @licky_10
780 Followers 3K Following
Carrot cottage rabbit.. @carrotcottagerr
807 Followers 762 Following We are here for the sole purpose of saving rabbits from people. https://t.co/SmfKotmLSD
catriona @catrion00724973
228 Followers 2K Following
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Eileen Molloy @dirtybird12345
244 Followers 396 Following
BlueOverFlorida (X) @friendinmiami
1K Followers 4K Following
desiree @desilynn222
0 Followers 44 Following
Becca B @beccab_official
16K Followers 10K Following from the uk absolute nutter love living life to the max! Goalkeeper for both chesterfield and blidworth ladies 👏🏻⚽️🧤
Amyedita @EdithQu10878923
289 Followers 853 Following
mamadou1420😭 @BarryYanku46723
350 Followers 4K Following god created all people valuable and worthy of love Jesus even tells us that the Greatest commandment is to love one another 🙏🏼😭❤💢
Dim Yma: Re-Think Hom.. @dim_yma
18K Followers 13K Following Evidence-backed interventions to end precarious living. Exposés on root causes of homelessness. Challenging forces perpetuating poverty. Charity No: 1205151
Cindy Brooks @CindyFBrooks
745 Followers 2K Following Research Fellow @unisouthampton and @arc_wessex Sociologist, Artist and Musician #equality #co-creation #innovation #art #music #nature
AirSpot Health @airspothealth
669 Followers 2K Following Our smallest fresh air monitor! Combines with the AirSpot App to help optimise your AirHealth.
Kirst @kirstler31
2K Followers 939 Following Severe #MECFS 🛌 #LongCovid - March 2020 #PostVac #POTS #Renegade50 💫 @RemissionBiome
Susan McGavin @McgavinSusan1
2 Followers 39 Following
Dr. Elisabeth Alice @elisabethalicee
1K Followers 3K Following She/They. PhD in Critical Disability Studies. #CovidIsNotOver, pandemic protections are an access issue. @[email protected] @elisabethalicee.bsky.social
FP @braver10percent
181 Followers 457 Following
Rob McLeod 💙🌎�.. @PassivhausPlus
3K Followers 5K Following Professor of Building Physics & Sustainable Design. CEng. FIMechE. Xs about built environ & humanitarian issues. Co-author #PassivhausDesignersManual #Ventilate
Sam🐟❤🌈😷�.. @CounsellingSam
43K Followers 42K Following #LongCovid #POTS #actuallyautistic #POC lover of beauty and art, hater of bigotry and racism Pro-EU. #FreePalestine No #Ableism Country Not Party No Freeports
Valerie Jay @ValerieJay16
3K Followers 1K Following A concerned parent living in a pandemic, scrolling Twitter, following doctors and scientists and academics.
Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Chris Riches @ChrisMRiches
1K Followers 792 Following @Daily_Express NW Correspondent, CF & PKU Campaigner, 2020 Society of Editors 🏆& 2020 Press Gazette Campaign Journalist of the Year 🏆. ❤️Spurs. Opinions own.
Cystic Fibrosis Found.. @CF_Foundation
31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Dr. Deepti Gurdasani @dgurdasani1
143K Followers 6K Following Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
Trisha Greenhalgh @trishgreenhalgh
181K Followers 5K Following Professor of Primary Health Care, Oxford. Independent SAGE. Views my own. Gravitating to BlueSky - find me https://t.co/kLX18DAWAa
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Ben Oxlade @BenOxlade1
21K Followers 5K Following Husband, Father to a #CFWarrior and a manic toddler! Contract & Quality Manager - EHAP (Adults), views expressed are my own. #TeamBradford #SWFC
Vertex Save Us @VertexSaveUs
849 Followers 698 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Lisa (she/her) 🏳�.. @Sandyboots2020
46K Followers 24K Following Covid is Airborne, Clean Air for All, #DavosSafe, Dyslexic, Refugees Welcome, Feminist, Socialist, #CeaseFireNow No DMS -it’s Twitter not Tinder
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
Tanya Koorts @TanyaKoorts
308 Followers 441 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
Josh Llewellyn-Jones .. @JoshLJ24
4K Followers 794 Following Endurance Athlete & WR Holder with Cystic Fibrosis 🚀 Performance Coach 🔸 Lift Club Enquiries- [email protected] [email protected]
Catherine Meredith @873Meredith
2K Followers 5K Following Organ Donation. CF. CKD. NHS. Population. Environment. Animal Welfare. Plant based. Ban Intensive Farming, Fur, Foie Gras.
Esther @ELHopkins
12K Followers 11K Following Composer. Interested in #CleanAir #Wildlife #ClimateChange
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
Jo Davidson @CFcarer
2K Followers 2K Following Thinking of the thousands who are still waiting for #Kaftrio etc...#NoOneLeftBehind. Tweet abt CF, Strictly & general stuff. Unison✊
Karam Bales @karamballes
19K Followers 10K Following Counter Disinformation Project, Former NEU and ATL executive, @Unify1Edu Officer, Freelance journalist & researcher @bylinetimes @whowhatwhy Public speaker
Clinically Vulnerable.. @cv_cev
14K Followers 12K Following 𝗖𝗼𝗿𝗲 𝗣𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁 in the 𝗨𝗞 𝗖𝗼𝘃𝗶𝗱-𝟭𝟵 𝗜𝗻𝗾𝘂𝗶𝗿𝘆 JOIN us on FB 📸cv_cev 🟦☁️@cvcev.bsky.social
Pallavi Devulapalli @doctorpallavi
2K Followers 702 Following #NHS GP #GreenParty Health, Public Health & Social Care Spokesperson #DistrictCouncillor Promoted by Pallavi Devulapalli (Green Party) c/o PO Box 78066, London
Kristie De Garis @KristieDeGaris
3K Followers 3K Following Writer // Photographer // Drystone Waller // Scotland Pronouns - She/Her #CovidIsNotOver #ClimateEmergency
Long Covid is Real @brailemom
844 Followers 787 Following Freelance copyeditor with Long Covid. Also Mom of teen with Long Covid. She/her. Covid deniers & anti-maskers get blocked :-) brailemom in the Blue sky.
Prof Julia Lawton @Prof_J_Lawton
1K Followers 1K Following I am not here to self promote; I just want to connect with like-minded people who take (long) covid seriously and to keep up to date with the evidence base
Dominic Martin @DominicDWMartin
156 Followers 308 Following Former Diplomat. Transparency International UK. Barnes Cricket Club. Follow @DominicMartinLD for tweets in my capacity as Chair of Islington Liberal Democrats.
Clean Air Club @Clean_Air_Club_
11K Followers 572 Following Ensuring accessible and cleaner air for the Chicago arts scene. We provide air purifiers for artists and touring musicians, free of charge.
Dr Sally Witcher @SalWitcher
5K Followers 2K Following Working for a safe fully #InclusiveNewNormal and not planning to stop any time soon. Founder @InclusiveNew. #Masketeer
Patient-Led Research .. @patientled
27K Followers 615 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Gez Medinger @gezmedinger
20K Followers 720 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Best for Britain @BestForBritain
195K Followers 6K Following Fixing the problems Britain faces after Brexit. Change Minds → Change Politics ▪️CEO: @pimlicat ▪️Guest tweets: @sturdyAlex ~AA ▪️Insta: @bestforbritain
Rights For Residents @rightsforresid2
6K Followers 6K Following Grassroot campaign fighting for rights of those in care #CareSupporter #GloriasLaw #RightsForResidents FB: https://t.co/tSUgJJM6z2
UAEM @uaem
5K Followers 1K Following Universities Allied for Essential Medicines: Students fighting for health equity + justice through equal #Access2Meds.
Safe Inside - Clean T.. @SafeInside2024
681 Followers 1K Following Building a database of places with clean air protocols https://t.co/FXLlVEfc4I please read, like and repost pinned tweet to help spread the word.
Michael Rosen 💙�.. @MichaelRosenYes
319K Followers 6K Following You can order a copy of the paperback of 'Getting Better' here: https://t.co/GZPAwh66Qy
Rosemary #FBPPR #FBPE.. @rosavita
4K Followers 5K Following Gran hoping Labour wake up and form a progressive alliance, oust the Tories at next GE and introduce PR.
ME Foggy Dog 💙 @MEFoggyDog
7K Followers 4K Following Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - https://t.co/TNEwofcNnm
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Carrot cottage rabbit.. @carrotcottagerr
807 Followers 762 Following We are here for the sole purpose of saving rabbits from people. https://t.co/SmfKotmLSD
Dr. Jane Goodall & th.. @JaneGoodallInst
1.4M Followers 808 Following Official Dr. #JaneGoodall & the Jane Goodall Institute. Fb: https://t.co/iHgE9s49Vc & https://t.co/neTpxGCb9l. TikTok & IG:@janegoodallinst
Dim Yma: Re-Think Hom.. @dim_yma
18K Followers 13K Following Evidence-backed interventions to end precarious living. Exposés on root causes of homelessness. Challenging forces perpetuating poverty. Charity No: 1205151
Dominic Martin @DominicMartinLD
228 Followers 177 Following Lib Dem Prospective Parliamentary Candidate for East Hampshire. Promoted by East Hampshire Liberal Democrats, Woodbine Cottage, Hawkley Road, Liss, GU33 6JP
Kirst @kirstler31
2K Followers 939 Following Severe #MECFS 🛌 #LongCovid - March 2020 #PostVac #POTS #Renegade50 💫 @RemissionBiome
Bill Clayton @clanman3
1K Followers 681 Following @Clanman@mastodonapp. Running The York ME Community & York Access Hub.
Sam🐟❤🌈😷�.. @CounsellingSam
43K Followers 42K Following #LongCovid #POTS #actuallyautistic #POC lover of beauty and art, hater of bigotry and racism Pro-EU. #FreePalestine No #Ableism Country Not Party No Freeports
Long Covid Support �.. @long_covid
32K Followers 2K Following UK Charity • Support • Advocacy • Research Involvement • Awareness • Education • Keeping people with #LongCovid at the centre. #CureLongCovid
Long Covid Patient Ac.. @LC_UK_Action
4K Followers 2K Following @[email protected] https://t.co/DlgXF9BQSe
COVID Safety For Scho.. @CovidSafetyEd
2K Followers 434 Following Educational resources for schools to help them keep students and staff safe during the COVID pandemic
The Long Covid Sessio.. @SessionsTlc
7K Followers 1K Following Longest running Podcast on #LongCovid. In depth interviews with the world’s leading doctors and scientists trying to work on the pandemic’s long tail.
LongCovidNurses&Midwi.. @LCNMUK
3K Followers 886 Following Nurses & Midwives navigating #LongCovid. Equitable & effective support in the workplace. Retweets/likes do not equate to endorsement. Email [email protected]
Perrie HQ @PerrieHQ
12K Followers 44 Following The official Perrie HQ account 🖤 Forget About Us. Out Now 🩵
Long Covid Scotland �.. @LongCovidScot
5K Followers 1K Following Long Covid Scotland is a charity & action group led by & advocating for people living with Long Covid.
PAN UK @PAN_UK
9K Followers 4K Following Pesticide Action Network UK. Tackling the environmental and human health problems caused by pesticides and promoting safe and sustainable alternatives.
Dr Rebecca Healey @beccyjanehealey
2K Followers 1K Following NHS Doctor on pause #LongCovid | Registered Nutritionist (Public Health) | #CovidIsAirborne | We need #cleanair yesterday.
Doctors in Unite @DoctorsInUnite
5K Followers 4K Following The UK’s oldest medical trade union. Standing up for doctors, fighting for the NHS. A proud member of Unite and the TUC ✊
Lola P. Germs @LolaGerms
3K Followers 137 Following pandemic communicator 🦠 check my link tree and insta for more resources
@NorfolkBea #Wildcast.. @NorfolkBea
7K Followers 4K Following 👉🏻https://t.co/2gKLFOtCgE Make hedgehog surveys & mitigation measures compulsory for all new developments
Long Covid SOS @LongCovidSOS
27K Followers 941 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
Andrea Barrett @andreabarrett__
2K Followers 4K Following Artist-Activist 🎨🛡 Patient Rep for NHSBT🫀🫁💙 Co-Ordinator @HeartOfThe_Arts 🎗💕 Also:🐈🌲 #HeartTransplantRecipient #EBV #CancerSurvivor #LongCovid #AuDHD
Nate Bear @NateB_Panic
28K Followers 1K Following Disease, covid, ecology, empire, other stuff. I write about these things at the link below. Email me tips: [email protected]
Charles #ImWithNye fo.. @waltz_tales
3K Followers 5K Following 🚨THERE IS A LONG COVID CRISIS IN THE PERFORMING ARTS🚨https://t.co/BojFnh6Ip0 Founder: #ProtectTheHeartOfTheArts 💕@HeartOfThe_Arts
docjon 💙 @docjon55
2K Followers 909 Following Retired GP. Covid-19 shines a bright light on all the divisions in society; lets address them together. ※ NO JUSTICE, NO PEACE ※
Joseph Healy @Verde1957
2K Followers 1K Following Member @ac_resist & @tf_politics . Member UNITE London/National LGBT Committees and Ecosocialist. Love opera and cats Hate Tories & Homophobes
Dame Sa 🐝 3.5% @LongCovidHell
8K Followers 7K Following Anti Covid and anti Tory. Raising awareness for #LongCovid. I suffered heart, lung & eye damage from a 2020 Covid infection. #FBLC #CleanAir #CovidisAirborne
Pete 😷 #COVIDisAir.. @PeteUK7
24K Followers 9K Following Chemistry. ChemEng. UK DIY filter team. Use shared air mitigations. High quality FFP2/3/N95 masks, ventilation, effective air filtration. #Spaceshost
LET'S AIR / NOUS AÉR.. @nousaerons
5K Followers 452 Following A group and an initiative advocating for effective ventilation. Our infographics in English : https://t.co/mNuTF6nlD8 Also on Mastodon, BlueSky.
Janet Newsham #NotJus.. @jnewsham
2K Followers 4K Following Coordinator at Greater Manchester Hazards and Chair Hazards Campaign, fighting for justice, safety and good health for all. Everyone deserves decent work.
Cornish Dwarf @CornishDwarf
3K Followers 5K Following Yes, it’s political. Everything is political. Humanist. Remainer. Snowflake & proud. I am quite sweary.
Geoff Cooper @CooperGeoff
660 Followers 784 Following Lib Dem PPC: Romsey & Sot’on North | Commercial expert | Cllr | Family man | Actor/Dancer (years ago). Promoted by the Liberal Democrats, 1 Vincent Sq, SW1P 2PNDisclaimers: ♿️ These Reasonable Adjustments (esp basic list) are not all encompassing. They are with Clinically Vulnerable people in mind. Access needs are varied & wide ranging. ⚖️ My legal case is ongoing & at this time I believe all the above is fine to share publically.
📝I'm gathering stories of access barriers. Please contact me if you have any issues accessing [basic edition] Reasonable Adjustments when voting. 🗳 Of course- on the day- do prioritise contacting Returning Officer!🙏 Lets keep putting pressure on the govt to improve! 💫
🎯The wider goal is to ensure that these #CleanAir Reasonable Adjustments are rolled out nationally in time for the General Election.
Reasonable Adjustments that continue to be on agenda as vital public service #CleanAir upgrades: ✅️ Portable HEPA air filters ✅️ Architectural tweaks for future commissioned public buildings ✅️ Updated Accessibility guidance on national level
Reasonable Adjustments that will be trialled at select locations on 2nd May as part of continued talks: ✅️ Auditing CO2 via public monitor as proxy for air quality ✅️Free masks for anyone who wants them when voting indoors
🗳🇬🇧 Regardless where in the UK you are, if you are voting in person, it's worth enquiring if these bare minimum Reasonable Adjustments can be made available. #CleanAir is being discussed behind the scenes on a national level. Start the conversation on the ground 📢
🗳💫 Reasonable Adjustments for Voting for Clinically Vulnerable People and beyond: ✅️Ventilated indoors (open doors & windows). 🪟🌀🚪 ✅️No indoor demask requirement! ✅️Outdoor ID check w/ staff 😷 (see a mask, wear a mask). *The bare minimum edition*
📢 This 2nd May local election 🗳🇬🇧 If you are based in Hampshire (esp Eastleigh) & voting in person, please look out for very newly negotiated Voting Reasonable Adjustments⤵️ #ClinicallyVulnerable With this just being the start of a wider national #CleanAir revolution 🎉 🧵
I got to the water this morning! 😍 I started Levothyroxine 14 days ago & it has def eased the morning muscle/joint pain & some of the fatigue. It was less than 1,000 steps but I’ll take it! HR still 120/30 though. Anyway, thought I’d share some birdsong & sparkly water with you
My son has type 1 #diabetes & #cysticfibrosis every day he's kept alive & well by #NHS meds & care. We're hugely appreciative but terrified at what we've witnessed has been done to the service & workforce. We must all fight for it before it's destroyed
"The NHS has been my lifesaver, but how much longer will it last?" Read @erpfiester's latest blog on her health experience amid an NHS in crisis. We urgently need a stronger, better-funded NHS. Our health can't wait! #SaveOurNHS justtreatment.org/news/2024/4/30… @t1international
If you are here please sign our petition on clean air in health
In Belfast at the @unisontheunion @UNISON_HS Health and Safety Conference 2024. Now listening to Nat h&s officer talk about violence faced by unison members. Just heard from fabulous NI reg sec Patricia McKeown talk about high levels of ptsd and suicides because of past conflict
I’m URGING the media to actually hire disabled writers and journalists to analyse and scrutinise the gov benefits announcements instead of just publishing verbatim. I’m available and I know other incredible journos such as @HollieAnneB and @TinyWriterLaura are too
@cv_cev I sometimes talk to them. Most people are grateful for the info, saying they had no idea. One asked me recently how people who aren’t on social media are supposed to know these things or keep up to date. Shocking failure of public health.
@DSEDunn I'll let my little sister know, she's the one wearing them. She'll be thrilled. I'm the bigger one in the photo :)
This is Jerry - a rescue dog. I love that his brown eyes ‘pop’ against his black and white fur. Artists often find fault in their drawings, but I have to say I’m really proud of this one! I hope you love him too🥰 Please feel free to reshare 😊
I want to publicly apologize to my dog for yelling at him at 2AM for barking and waking the neighbors. It looks like they were being burglarized and that is why he was on the fence line panicking. His barking alerted them and they called the police, nothing was taken.
This is my little boy Sid, it is his 5th birthday today! He is autistic and non-verbal. He was seen piecing together these alphabet blocks - we couldn’t be prouder of him! Go the Sid, happy birthday Son xx
"Does the PM not realise that his language increases prejudice against disabled people and contributes towards the escalation of hate crime?" @johnmcdonnellMP asks. Mel Stride: We have a prime minister who cares deeply.
“WHO has a responsibility to engage seriously with the science of airborne infection control and make recommendations that minimize the spread airborne disease- not recommendations that seek instead to minimize its own embarrassment and responsibility.” 1/ thegauntlet.news/p/the-whos-cla…
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