Cystic Fibrosis Trust @cftrust
We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays. cysticfibrosis.org.uk United Kingdom Joined February 2009-
Tweets33K
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Followers28K
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Today our Head of Policy and Public Affairs, Ben Kind, has responded to reported PIP changes with the following statement.
Congratulations Joshua! It was a pleasure to supervise this project supported by funding from @cftrust. A well deserved award from @RoyalSocBio
Congratulations Joshua! It was a pleasure to supervise this project supported by funding from @cftrust. A well deserved award from @RoyalSocBio
London Marathon 2024 ⭐ Thank you to the runners, the supporters, the cheerers, to everyone who united with us for a life unlimited at this year's London Marathon! You have so far raised over £400,000 for #TeamCF! 💛🏅✨
If you're a young person with CF you may have talked about moving from paediatric to adult care. "Transition" is the medical term for this move and we want you to feel listened to and empowered. Visit our website to download the resources. 🔗 ow.ly/2Zzf50RnEhj
Has your partner taken part in a clinical trial? We want to understand the positives and challenges of supporting a partner during a trial so we can help others to know what to expect. If you’d be happy to share your experiences, please email [email protected].
Great to be working alongside Lucy Allen @cftrust and @lifearc1 at #LATSS2024 to promote cross sector collaboration and partnership. Very inspirational.
London Marathon was only the start for Sophie, today she is running her 3rd of 36 marathons in 36 days! 💛 Find out more ➡️ bit.ly/44eaVfb
London Marathon was only the start for Sophie, today she is running her 3rd of 36 marathons in 36 days! 💛 Find out more ➡️ bit.ly/44eaVfb
Did you know we have set up a dedicated area for people in or about to go through the transplant journey? Our online community is a safe, welcoming space to ask questions, share experiences and support each other. Join today by visiting our website. ➡️ forum.cysticfibrosis.org.uk
Absolutely incredible! Well done to everyone involved and thank you for your support! 💛
Absolutely incredible! Well done to everyone involved and thank you for your support! 💛
On Thursday this week, our research team have a stand at the @ABPI_UK conference. Please come along and say hello to find out how we can support your research and move your projects closer to the clinic #ABPIconf24
Good luck for tomorrow to all of our London Marathon runners!! Our staff teams are excited to cheer you on today! #TeamCF 🏃♀️ If you're itching to get your running shoes on for next year's marathon, the 2025 London Marathon ballot is now open! ➡️ ow.ly/nCxW50Rh1By
Thank you Peter for looking after us this morning on our @CrossCountryUK train to Manchester. We start our 54 mile walk for @cftrust at 12! Yabadabadoooooo! 🦕 justgiving.com/page/stephsfoo…
Good to see an article about the Right To Breathe campaign with @VertexSaveUs co-founder @gayle_pledger in @cftrust magazine #CFLife Fascinating read about how a grass roots organisation is making change happen for CF patients around the world Read here: cysticfibrosis.org.uk/the-work-we-do…
Ahead of the London Marathon this weekend, we chatted to #TeamCF runner Tom to hear all about his reasons for running, inspiring others, and what a life unlimited means to him. 🏃 Go Tom! ➡️ cysticfibrosis.org.uk/news/i-want-to… #LondonMarathon2024 #CysticFibrosis #CFNews #MentalHealth
The latest findings from our annual CF service staffing tool show that clinical teams across the UK face a number of staffing challenges, but also continue to adapt and innovate to deliver the best possible care. Read our full report here ➡️ ow.ly/vJJ350Rhovv
Researchers at the University of Liverpool have been investigating the use of ‘phages’ to treat bacterial infections, such as serious, hard-to-treat lung infections caused by Pseudomonas aeruginosa. Read the article to learn more. #CFNews ➡️ ow.ly/o4P050Rh1tc
This week we’re meeting some of our amazing London Marathon runners ahead of the big race on Sunday. 👋 Say hello to Nell, who shares her motivations for taking part in the London Marathon and why she’s determined not to let CF hold her back. ow.ly/W8MN50RgTXF
🟡 We held a virtual symposium on infection diagnostics in #CysticFibrosis with a diverse group of stakeholders to discuss challenges & opportunities in the evolving landscape of CF. Read more: ow.ly/mjt850Rh5Iz @MedDiscCat | @cftrust | @lifearc1 | @NIHR_NCL_MIC
Meriyem wanted to remember her “one in million” sister, Zulfiye. Just months before her double lung and liver transplant Zulfiye climbed the O2, raising funds and awareness. Contact our In Memory Officer to share your memory: [email protected].
Join the wonderful Jess, a drama therapist in training who has #cysticfibrosis, in the "Building Resilience" workshops! If you'd like to sign up or find out more, then get in touch with us at [email protected]
Cystic Fibrosis Found.. @CF_Foundation
31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
British Thoracic Soci.. @BTSrespiratory
24K Followers 455 Following The British Thoracic Society is the largest respiratory membership body in the UK. We work towards better lung health for all. Our tweets are not endorsements.
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Royal Papworth Hospit.. @RoyalPapworth
12K Followers 441 Following UK’s leading heart and lung hospital 🫀🫁 | Biggest sleep centre | World leader in transplants | ECMO | Values: compassion, excellence, collaboration.
James D Chalmers @ProfJDChalmers
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CF inpatient unit -Pe.. @PearceWardMFT
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Normal Life @NormalLife7
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Ian Sinha (wheezylike.. @wheezylikesund1
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Jillian McNulty @jilli09
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Royal Brompton and Ha.. @RBandH
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Newcastle University .. @NCL_medscience
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Mark Philpott Photos @PhilpottPhotos
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Alice Jenner @AliceAnJenner
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Molly Batchelor 👩�.. @MollyPsychology
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Wynn @Cell_ECM_9988
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Smeaton’s Ploughman.. @iskibar14
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BUCHANAN: Dublin Time.. @RobLooseCannon
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Julia @JuliaHoyser
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Kate Robinson @katerobbokate
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Caroline Whitton @CFNurseCaroline
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desiree @desilynn222
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Stephen @InfinitePrattle
30 Followers 117 Following I am Stephen, I speak about about various topics & things that I, & you will find of interest.
stek @__stek
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Paul @Paul97531136
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Racha Khalaf, MD @RachaKhalafMD
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Cystic Fibrosis Found.. @CF_Foundation
31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Andrew @Andyassert
645 Followers 195 Following Married. Father. Double Lung Transplant. Cystic Fibrosis. 34. Music lover, you'll usually find me wearing headphones! 🤟😂🤟 🐜 #9372 & all things ViewAskew
British Thoracic Soci.. @BTSrespiratory
24K Followers 455 Following The British Thoracic Society is the largest respiratory membership body in the UK. We work towards better lung health for all. Our tweets are not endorsements.
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Royal Papworth Hospit.. @RoyalPapworth
12K Followers 441 Following UK’s leading heart and lung hospital 🫀🫁 | Biggest sleep centre | World leader in transplants | ECMO | Values: compassion, excellence, collaboration.
CF inpatient unit -Pe.. @PearceWardMFT
741 Followers 497 Following Manchester's Adult Cystic Fibrosis Inpatient unit - now back home on Pearce ward from Spire Manchester as of April 21 ✨🏠
Normal Life @NormalLife7
2K Followers 300 Following Content creator with Cystic Fibrosis and a bit of moaning on the side.
Josh Llewellyn-Jones .. @JoshLJ24
4K Followers 794 Following Endurance Athlete & WR Holder with Cystic Fibrosis 🚀 Performance Coach 🔸 Lift Club Enquiries- [email protected] [email protected]
Holly Rosanna 🌻 @hollyrosanna
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Jillian McNulty @jilli09
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743 Followers 247 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
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ERS publications @ERSpublications
30K Followers 308 Following European Respiratory Journal, European Respiratory Review, ERJ Open Research, Breathe, the ERS Monograph and ERS Handbooks, and European Lung White Book
Royal Brompton and Ha.. @RBandH
11K Followers 854 Following The UK’s largest centre for specialist heart and lung care, part of @GSTTnhs and @NHSuk. Tweeting 9am-5pm, Mon-Fri
Womens Business Hour @womenbizhour
2K Followers 2K Following Use #womenbizhour Thursday 8-9 pm Help grow & connect with other #women in #business. Promote your #biz & find out whats going on. Created by @misswonderwheel
CFCLiC Rob @cfclic_rob
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Laura 💛 @Laura_Cam1
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Lucy Crisp @lucycrisp_
784 Followers 727 Following the optimistic force and pop princess from Nottingham 💕 MY DEBUT EP ‘65 Roses’ IS OUT NOW 🌹❤️
EHRC @EHRC
50K Followers 1K Following We’re here to stand up for freedom, compassion and justice in our changing times.
Shane Howard Magill @TransManKnits
300 Followers 486 Following If it wasn't for my C.F. team I wouldn't be half the man I am today. I can't thank them enough for all their recent support.
Juli Frances Taylor @juli_frances
108 Followers 44 Following Loves words, Greek mythology, and the correct use of the Oxford comma. Writes poetry for children. Unable to pronounce the word ‘cinnamon’ correctly.
Transport for All @TransportForAll
18K Followers 921 Following Disabled-led campaign group fighting for transport justice. Join our movement: https://t.co/D7Cm6bRz3d
Goodpods @GoodpodsHQ
100K Followers 110K Following The global community of podcast lovers. The “Goodreads for podcasts.” Follow friends to discover and share podcasts. https://t.co/V01JhhLu1z
MQ @MQmentalhealth
30K Followers 2K Following Through research we’re creating a future where mental illnesses are understood, effectively treated and one day even prevented. #WithoutResearchItsJustGuesswork
Vaughan Gething 🏴�.. @PrifWeinidog
151K Followers 560 Following Prif Weinidog Cymru | First Minister of Wales 🏴
Marion Fellows MP @marionfellows
13K Followers 1K Following Motherwell & Wishaw MP. SNP Westminster spokesperson on Disabilities. Chair of the Post Offices APPG. Promoted by Marion Fellows, 7 Scott St, Motherwell ML11PN
Simon Lightwood MP @simonlightwood
14K Followers 4K Following Labour & Co-operative MP for Wakefield. (Parliamentary Candidate for Wakefield and Rothwell) Shadow Minister for Local Transport. 🏳️🌈
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405 Followers 1K Following Award winning play by Amy Lever ⭐️⭐️⭐️⭐️⭐️ Binge Fringe, ⭐️⭐️⭐️⭐️⭐️The Tab , ⭐️⭐️⭐️⭐️⭐️Northern Soul,⭐️⭐️⭐️⭐️⭐️London Review 1, ⭐️⭐️⭐️⭐️.5 Varsity,
Teapot Trust @TeapotTrust
2K Followers 730 Following Teapot Trust is at the forefront of mental health support for children and young people living with chronic conditions Registered SCIO: Charity number SC041885
Ruby @RubyLGregory
4K Followers 2K Following 💎 Local Democracy Reporter @myldn sometimes @BBCNews covering all things EAST ldn: Tower Hamlets, Newham, Barking + Dagenham
Louise Thomson @DrLouThomson
329 Followers 563 Following Respiratory Paediatrician RHC Glasgow, Interested in leadership, change/improvement, collaboration and humanity in medicine #SQSF Cohort 15
Chris van der Gast @ChrisvanderGast
398 Followers 299 Following Professor of Microbiomics. Honorary Consultant Microbiologist. #Firstgen. Gut & Lung Microbiomes in Cystic Fibrosis. Microbial Ecology. Ex2nd/BackRow🏉
Nick Smith @ZanzibarSmith
148 Followers 148 Following please donate if able: https://t.co/vna1U9sR5x RAF, Sqn Ldr, Air Ops
CF AMR Syndicate @CFAMRSyndicate
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Dr Pip Gregory @FWWcartoonPip
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314 Followers 375 Following 27 🌸 cf fighter 🌹 @tinietempah fan, met him- 8.5.13, 11.4.15, 8.9.15, 8.4.17, live on IG together- 17.03.20.
vincent franklin @vincentfranklin
9K Followers 1K Following he/him Actor - Gentleman Jack, Bodyguard, Cucumber, Happy Valley... Co-founder @quietroomtweets. Represented by @teambraidman
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25 Followers 26 Following An independent members club focusing on Cue sports, darts and big screen sports. Spacious, safe and family friendly with a well stocked bar and good food.
Now In A Minute Produ.. @NowInAMinProds
1K Followers 2K Following 🏴 Welsh production company specialising in Acting Showreels and small screen projects #MadeInWales #Showreels Contact: [email protected]
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250 Followers 597 Following Writer, cat lover, crisp addict, award winning idiot. https://t.co/SoO694trBc
KOP207Pins @kop207pins
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Tonia Antoniazzi MP @ToniaAntoniazzi
24K Followers 4K Following Welsh Labour MP for Gower 🏴 🌹 Shadow Whip. Promoted by David Evans on behalf of the Labour Party, 20 Rushworth Street, London SE1 0SS
Zephryn Taitte @theactorsdiary
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Ben Oxlade @BenOxlade1
21K Followers 5K Following Husband, Father to a #CFWarrior and a manic toddler! Contract & Quality Manager - EHAP (Adults), views expressed are my own. #TeamBradford #SWFC
WONDER DRUG: A Comedy.. @WonderDrugPlay
189 Followers 333 Following ⭐️⭐️⭐️⭐️⭐️ ‘Wondrous’ - ThreeWeeks ⭐️⭐️⭐️⭐️⭐️ ‘Incredible’ - Broadway World ⭐️⭐️⭐️⭐️⭐️ ‘Unique’ - Liam O’Dell
Charlie Merriman - WO.. @CharlieMerriman
563 Followers 981 Following Actor rep @Simon_How | Writer/Performer WONDER DRUG: A Comedy about Cystic Fibrosis - ⭐️⭐️⭐️⭐️⭐️ ‘Wondrous’ ThreeWeeks - WATCH ONLINE 6-10 SEPT @WonderDrugPlay
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LaingBuisson @LaingBuisson
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Miriam Walker-Khan @mimwalkerkhan
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2.9M Followers 731 Following Founder @moneysavingexp, @mmhpi & (ish)@itvmlshow. Home of the daily twitter poll, tips, puns, athletics & musings. Mrs MSE’s husband, Sapphire’s dad
The National Lottery .. @TNLComFund
79K Followers 4K Following Awarding @TNLUK funding to strengthen society and improve lives across the UK. #ItStartsWithCommunity Available Mon - Fri, 9am - 5pm. 📞 0345 4 10 20 30.
Sport England @Sport_England
137K Followers 2K Following We use our insight, expertise, campaigns and funds from @TNLUK and @DCMS to ensure that everyone feels able to take part in sport and physical activity.
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31 Followers 81 Following Research associate at Charite Berlin, PhD Fellow at Uni of Manchester, interested in researching health inequalities of vulnerable groups, first time mum
Kerry-Lee Watson @KerryLeeWatson2
11 Followers 31 Following
Imagining Futures @ImaginingFuture
672 Followers 1K Following ESRC/Wellcome Trust research programme exploring the social and ethical implications of genomic screening in the UK. Prof Felicity Boardman, Dr Corinna Clark
Perceptions of NGS fo.. @CFScreeningNGS
51 Followers 81 Following Exploring views of stakeholders on the proposed CF screening protocol incorporating next generation sequencing. @louisecmoody @imaginingfuture @JaneChudleigh
Birmingham 2022 @birminghamcg22
77K Followers 2K Following Official Twitter of the Birmingham 2022 Commonwealth Games 🎉
Pete Williamson 🇺�.. @PeteCWilliamson
1K Followers 763 Following Illustrator of 'Stitch Head: The Graphic Novel' out now Rep'd by @alicelovesbooks Insta - pete.williamson.illustration (website nearly working...)
Natalie @natkeff
494 Followers 1K Following Long standing cheerleader for the falafel van near work - work in comms at @cftrust
Paul Baverstock @PaulBaverstock
1K Followers 857 Following https://t.co/Kc9LmFf5YW https://t.co/tDNJIlLREZ & https://t.co/Bx6RkNIdvl Jeremy Donaldson in Not For Broadcast
Westerton Primary @WestertonPri
836 Followers 227 Following
Congratulations Joshua! It was a pleasure to supervise this project supported by funding from @cftrust. A well deserved award from @RoyalSocBio
🤩 Congratulations to Joshua Houston who was awarded the @RoyalSocBio Top Project Award on an Accredited Degree Programme @UlsterUni. Joshua attended a ceremony at the Houses of Parliament, Westminster with Course Director, Dr Rachelle Irwin to collect his award
One of my favourite days at work ever 💛
London Marathon 2024 ⭐ Thank you to the runners, the supporters, the cheerers, to everyone who united with us for a life unlimited at this year's London Marathon! You have so far raised over £400,000 for #TeamCF! 💛🏅✨
Really thought provoking presentation on dietary management of CF diabetes by DR Sarah Collins Specialist CF Dietitian @RoyalBrompton @bda_cf @cftrust
London Marathon 2024. Completed 🏃🏼♀️✅ £3700 raised for @cftrust . Absolutely loved being a part of such a special team! You can still donate below if you’d like to 🏃🏼♀️ 2024tcslondonmarathon.enthuse.com/pf/stevie-romn…
Looking forward to having you there! #ABPIConf24
On Thursday this week, our research team have a stand at the @ABPI_UK conference. Please come along and say hello to find out how we can support your research and move your projects closer to the clinic #ABPIconf24
@cftrust Amazing 👏 so inspiring to the CF youth. Good luck xxx
Great to be working alongside Lucy Allen @cftrust and @lifearc1 at #LATSS2024 to promote cross sector collaboration and partnership. Very inspirational.
Lovely to catch up with Jesse as he continues to thrive @cftrust bbc.co.uk/news/uk-englan…
Sophie Grace Holmes has cystic fibrosis and is running 36 marathons in 36 days. bbc.in/3JtlDoF
At 36 years old, Nathaniel Dye was diagnosed with stage four incurable bowel cancer. On Sunday, he completed the iconic 26.2 miles as part of his bucket list, while fundraising for @macmillancancer . 👏 You're an inspiration Nathaniel. 💪
Made it! London - you were amazing!! 2 marathons done in 6 days. Both in 3.41 by some random chance. Nothing if not consistent 🤣. Thank you for all your support. Now to rest my legs and raise a glass. 🥂🏃♀️🇬🇧🇺🇸🙏 #londonmarathon2024
MARATONA DE LONDRES 2024 - Correndo por uma causa, os verdadeiros campeões!!! @macmillancancer @TheBHF @BritishRedCross @oxfamgb @cftrust @MDUK_News @AmbitiousAutism @Place2Be @hospiceuk @PilgrimsHospice @mencap_charity @oxfamgb @WarChildUK @nsppc @CwCUKNews
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