Stripey Nerd @stripeynerd
#EhlersDanlos #EDS #EDSAwareness @ehlersdanlosuk uk Joined November 2013-
Tweets485
-
Followers337
-
Following109
-
Likes68
Stripey Nerd retweeted
Pain? Dislocations? For helpful info connected to Izzy’s pain storyline in @itvcorrie see ehlers-danlos.org
5
30
38
0
0
Double check your omeprazole batches! buff.ly/1QOHvJx
Abi still really needs donations for her surgery #eds gofundme.com/q7ajsen7 please retweet, share and donate what you can!!
Please RT & donate to help Abi get a break and get the eye surgery she needs! gofundme.com/q7ajsen7?pc=14… #eds
Heart warming scene at EDS UK winter ball as someone bids up smart crutches then donates then back to one of the warriors of the community!
Please RT & donate to help Abi get a break and get the eye surgery she needs! gofundme.com/q7ajsen7?pc=14… #eds
Please RT & donate to help Abi get a break and get the eye surgery she needs! gofundme.com/q7ajsen7?pc=14… #eds @gofundme
Please RT & donate to help Abi get a break and get the eye surgery she needs! gofundme.com/q7ajsen7 #eds @AJsChallenge @DinkyKt @edslottie
Stripey Nerd retweeted
UK to be first country facing high-level inquiry by the UN on the rights of persons with disabilities - do any good? tinyurl.com/qaxzezj
Stripey Nerd retweeted
Student faces race against time to raise thousands for operation or be paralysed fb.me/25R4OYw6m
Stripey Nerd retweeted
How do you normally stand? Left, middle, or right? #JointHypermobility #EDSFacts #EhlersDanlos #MedEd #Genetics #
Stripey Nerd retweeted
To those who pre-judge....don't! #invisibleillness #EhlersDanlosSyndrome #vascularEDS vasculareds.org
Stripey Nerd retweeted
@stripeynerd raising awareness and hope for invisible illnesses including EDS at hopesoup.me
Stripey Nerd retweeted
Kay White is an inspirational member who gradually trained for & completed a triathlon buff.ly/1OaRO9B
Stripey Nerd retweeted
"'You can walk, it’s a miracle!' Umm, no I can’t." Lucy's story: bit.ly/1VeWDiC #EndTheAwkward
Stripey Nerd retweeted
"Cure sometimes, treat often, and comfort always." Wonderfuk quote from one of the honorees, Ang Xu, #2015ggsummit
#EDS charity ball! 21st November at the Basingstoke Country Hotel, get tickets now by emailing [email protected]
#EDS charity ball! 21st November at the Basingstoke Country Hotel, get ticket now by emailing [email protected]
Helen Rice is Showing... @helenriceshow
741 Followers 1K Following Writer-performer combining spoken word with music to explore important things like: grief, sex, being a #disabled #stepmum and bread. Mostly #bread TBH.
consentistt @consentistt
936 Followers 2K Following UCD law graduate advocating for social change. she/her. #blacklivesmatter #proabortion #sexworkiswork #abolishprisons #ibelieveher ([email protected])
@purplegrandmavapes @ConnieGarvie
126 Followers 624 Following I'm 60 years old and I have bright purple hair! I have 4 children and two grandchildren I adore! I'm active in my church, love Sci-fi, all crafts, She/Her.
Nichol Neto @nicholneto
727 Followers 4K Following #Mom #Catoholic #ChronicPainPatient #RSD #CRPS #Lupus #spoonie
Eos Advocacy Ltd @EosAdvocacyLtd
387 Followers 1K Following High quality advocacy & support service working with leading solicitors, charities, families & national media #falseallegations #Fii #education #EDS #autism #ME
Marie-Claire Flavin @TheDigitalRad
276 Followers 2K Following Director of Site Success EU• 1st Research Delivery Digital Lead• Therapeutic Radiographer• NIHR ALP 2019• My views are my own
EDS Warrior @bestlifewithEDS
676 Followers 302 Following Living with Hypermobile Elher Danlos Syndrome, mum of three, loves art, food and wine. Tying to find the me in this debilitating chronic illness
ChronicPerserverance @TeamTeer
1K Followers 3K Following Intractable Pain Warrior, CRPS, Arachnoiditis, Autoimmune,SCI, Scoliosis, Sjogrens, AS, Migraines, Rare,♿️ https://t.co/sngEWbRzQh
Mariajosé Vieira @MajoVieiraH
64 Followers 461 Following Consejera en Lactancia Materna 🤱 Entrenadora de porteo con meitai CHCC 💚💜🌈 🦓 hEDS #EhlersDanlosSyndrome 💙 Nurse #NursesWhoTweet ❤ Mom 👦👧👶 IG @mj_vieira
Chronically ill thoug... @Alicia97377240
48 Followers 172 Following Chronically ill. POTS - EDS - MCAS- Fibromyalgia- TCS
sufferinginsilence @lndavis87
212 Followers 673 Following I was officially diagnosed with #eds #pots #dysautonomia and 30 other diagnosis’s after a 32 yr diagnosis process. patient advo read my story/blog. link in bio
RN advocating @RNadvocating
6K Followers 4K Following retired after 30yrs of nursing. advocating & educate ppl that ppl in chronic pain need access to pain meds. denying access to pain meds is inhumane.
JJ @felixkitten82
159 Followers 3K Following ME/CFS, HSD/hEDS, POTS +more fighter. My world is full of acronyms. Crazy Cat Lady. STP lover. Ex-aspiring medic, ex-singer, ex-mostthingsrightnow.
Amy Diaz Hollis @AmyDiazHollis
351 Followers 1K Following Multicreative indepenuer working to make the world a better place. #ZEBRASTRONG
Jodie @Jodie71848368
7 Followers 78 Following
Diva-3D @theDiva3D
29 Followers 78 Following Fine artist, Fiber artist, Calligrapher. Chronic Pain Patient: Ehlers Danlos Syndrome 3, CTE, Failed Cervical fusions, 5thr, PTSD. Advocate.
Fiightback @fiightback
774 Followers 3K Following Fiightback offers support for those wrongly accused of FII/Munchausen by Proxy. We also aim to fight the current epidemic of false accusations.
Liz the Stomach #fuck... @bettyflorence23
529 Followers 909 Following Passed away from stomach cancer 18th June 2020, fed through a JEJ. also fighter of #EhlersDanlosSyndrome
Autumn Observer 🍂 @millionsmilesx
1K Followers 3K Following A Happy tree hugging rat Momma 🐀🐁 #Spoonie #Bats 🦇 #Nature #TheMoon 🌒🌕🌘 Small toilet space hater. 🧜🏻♀️ Tweets R my own🕊
What a Pain @whatapain_blog
1K Followers 2K Following 🇬🇧 Rachel • Writer • Blogger • Mum • Wife • Foodie An honest account of life with multiple chronic illnesses, allergies, motherhood and everything inbetween.
Salomsl @SSalomon5
949 Followers 4K Following Avid learner. Relying on a meat & water #keto diet for improved health. #hEDS, #POTS, #MCAD, #Resist, #Pokemon, #gardening
EDS Canada Foundation @EDSCanadaFnd
770 Followers 2K Following EDS Canada Chronic Pain and Ehlers Danlos Charitable Foundation
RogueWolf @RogueWolf2001
4K Followers 5K Following Southern woman whose not Red or Blue living in a deep Red VERY conservative state. Living w/EDS, dysautonomia, Chronic migraines, chronic pain, etc 1 day@time.
Ranjan Kumar @rkumaryyc
247 Followers 750 Following Founder & CEO @deltabrewery | Married to @anjunc08 |CSRS Board| Past-Neuroscientist| ALSA Board| HBITO Edu Director| PhD Neuro| UCalgary, Canada| 🧠to🍻
Linda @Kindacalm
2K Followers 4K Following social and disability activist; supports equity and respect for all people; feminist values; interests in aged care issues, childrens issues; & small business
Caroline @robyndarcey5
2K Followers 4K Following Advocate for my daughter’s #hEDS #PoTS #MCAS #thyroidcancer 🦋 #ovariancancer #BRCA1 🩵 Supporting families wrongly accused of Fii/MSbP/PP #FalseFiiAllegations
Katie Wearing @DinkyKt
3K Followers 4K Following 😊40, makeup lover💄vlogger & EDS🦓Awareness. Follow me on here, fb page, inshttps://www.youtube.com/user/KatieMarieWebhttp://www.worldofdinky.co3yl.uktvGz1Wx3
Deborah Tauscheck @Debtauscheck
2K Followers 4K Following RA and fibromyalgia patient, love my life and family. I’m very appreciative of all the CPP advocates. we shouldn’t be denied access to life changing medication
RA - Not just joints @RANotjustjoints
486 Followers 2K Following Rheumatoid arthritis - an autoimmune condition that affects joints & other body systems. Find out more..... Tweets by @Medicastra, @rheumsupport, @twofishnocat
Kimberly Amelia @fireflyrn84
1K Followers 2K Following RN/full time pt, advocate, #raredisease blog @PatientsLikeMe TOA Alumni @WEGOHealth Patient Leader/Expert #BreakthroughCrew Ambassador #SavvyPatient #pinksocks
RCH Publications @RCHPublications
826 Followers 3K Following Publications that raise awareness. Our book 'Understanding hypermobile Ehlers-Danlos syndrome & hypermobility spectrum disorder.' is now available.
Scooter @scootnscooters
99 Followers 1K Following Helping Disabled Individuals be Able to be Independent With Their Pets.
James' Journey EDS @james4eds
181 Followers 344 Following James' Journey is a non-profit organization for awareness and research for a rare genetic disorder, Ehlers-Danlos syndrome (EDS) in memory of James Kayler.
Acer Therapeutics @AcerTherapeutic
625 Followers 397 Following Focused on the acquisition, development and commercialization of therapies for serious rare and life-threatening diseases with significant unmet medical needs.
whatEDSlookslike @EDSlookslike
478 Followers 440 Following with awareness comes hope for the future... #thisiswhatEDSlookslike #EhlersDanlosSyndrome
ZebraStar @ZebrasParade
698 Followers 5K Following 🧬🏳️🌈♿️⚖️ADVOCATE #TestDontGuess #EDS #POTS #TBI #PatientsNotProfits #MedicalKidnap #PrecisionMedicine #Genomics #RareDisease #JustinasLaw #ZebrasOnParade
Star Squires @StarDeSoul
788 Followers 4K Following 🦓MOM💞#Advocate🎤#Vocalist👽#Research🔬#RareDisease🧬#Genomics #PRIONS #SPOONIE #TBI #CTD #EDS #GP #POTS #Dysautonomia #Autism #TestDontGuess #ZebrasOnParade✌️
Olivia Smeenk @OhSmeenk
78 Followers 381 Following
The Ehlers-Danlos Soc... @TheEDSociety
24K Followers 5K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
EhlersDanlosChic @MyEhlersDanlos
375 Followers 74 Following The Ehlers-Danlos syndromes are a group of inherited disorders that affect collagen structure and function. Wants to help raise awareness!
TimeToTalkMH&Chronic @TimeToTalkMH
225 Followers 442 Following MHFA & Studying BSc (hons) Psychology wth Counselling. Advocate: mental&chronic illness. Crime Fiction author - A Scars Pathway GO TO: @CharLathwell43
butterfly @invisable_aware
7 Followers 18 Following
Always in Hope @alwaysinhope
285 Followers 2K Following
Nicky Smith @GoSmittie
193 Followers 534 Following mum of three beautiful children. Author, poet, philosophist. Coming to terms with EDS and limitations it's brings. Always searching for positives!
Pursuit Of Love Blog @PursuitLoveBlog
816 Followers 4K Following Bringing you the real life dating stories of a single girl. All Enquiries- [email protected]
Professor Lara Bloom @LaraBloom
7K Followers 1K Following President & CEO @TheEDSociety•Prof of Practice Patient Engagement & Global Collaboration•Rare & Chronic Disease Advocate•🏳️🌈Gay•She/Her• Views my own
Sophie E. Daws (LLB) @SophieEDaws11b
331 Followers 981 Following
Basingstoke ARC @BasingstokeARC
65 Followers 10 Following Basingstoke based club for Amateur Radio enthusiasts
Cherylee Houston @cheryleehouston
38K Followers 2K Following Write to your MP to vote against the welfare cuts using our template generator at https://t.co/mx4Oza8CKY Help stop horrific cuts!
Bendypunkgirl @Bendypunkgirl
360 Followers 75 Following Subjected to, but not defined by Ehlers Danlos, gastroparesis, M.E & osteoporosis.Tubie, business owner and workaholic. Work enquiries https://t.co/yOrPE6v2lI
Atlantic EDS Society @Atlantic_EDS
566 Followers 563 Following Peer support network for families and individuals in Atlantic Canada affected with EDS or HSD.
Stormmanagement @stormanagement
44 Followers 139 Following Currently representing @emilia_official Any enquiries please email ✉ ℹ️[email protected]
Melanies Mission @melaniesMission
426 Followers 470 Following 33 with Ehlers-Danlos Syndrome(EDS)& Cranio-Cervical Instability(CCI), fundraising for lifesaving surgery: https://t.co/LZsEHwav2J please donate
Daniella's EDS Blog @DaniellaPassco
123 Followers 93 Following Dee, 22 -This is my blog to connect & support fellow #spoonie. To raise awareness & understanding of #EhlersDanlos #EDS #ChronicPain #chronicillness #disability
Steel Zebras 🦓 ♿... @Zebrafishspoony
4K Followers 5K Following We are real life Zebras! We have Ehlers-Danlos Syndrome hypermobile type, with crossover, plus other delightful stuff. All opinions are our own.
Global Genes @GlobalGenes
29K Followers 6K Following Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
Disabled ID (DID) Car... @disabled_id
288 Followers 322 Following To provide a unique disability initiative improving the lives of disabled people. Producing a much needed single recognised Disabled Identification (DID) Card.
Sarah Wells @mystripylife
1K Followers 954 Following Empowerment Coach Helping you gain control of your health, life and happiness + create a life you love 💫Chronic illness 🦓 EDS, CMT, ME/CFS ⬇️ Become Empowered
StripesForLife @Stripes4LifeEDS
84 Followers 110 Following My name is Lauren Walsh and this is my EDS journey also follow me on FB stripes for life my eds journey
DysautonomiaTN @dysautonomiacs
86 Followers 274 Following
Soph Ellie @SophiesSpace01
959 Followers 3K Following ✨ 25. ✨ Blogger. ✨ Bisexual. 🌈 Chronic Illness Fighter 🥄 Endometriosis Warrior. 🌻 Christian. ✨ I hope to make a positive difference to this world. ✨
Life With Lottie @lifewithlottie0
942 Followers 557 Following Full-Time Mother to 2 under 2 • Living with multiple Chronic Illnesses • https://t.co/KBr9DcpAJz https://t.co/wVfwBytvd8
chronicallysickgirl @chronicallysick
514 Followers 402 Following chronically ill advocate & cosplayer at http://t.co/EckH1UgoGf
Leeah @POTSstrong
611 Followers 282 Following fighting my -so far- lifelong battle w/ POTS • Chronic Pain • Chronic Migraines • Trochanteric Bursitis• Raynaud's Syndrome • Anxiety• PTSD• Depression • NOH8
Tom @marijuanaforEDS
392 Followers 901 Following I live with Ehlers Danlos Syndrome. I find relief with medical marijuna.
Jade Wilkins @Jadewilkins999
123 Followers 158 Following
SilverRingSplints @SRSplint
1K Followers 2K Following Silver Ring Splint Company provides high-quality, custom-fit SIRIS™ Ring Splints to individuals around the world who have hand problems.
silverbelle6 @silverbelle6
21 Followers 25 Following Living and loving with #EhlersDanlosSyndrome in tow.
Colin Gorrie @colingorrie
22K Followers 981 Following Linguistics PhD | Old English | Middle English | Latin | Old Norse | Your guide through the history of English and its relatives | Get started below 👇
Full Time Patient @fulltimepatient
481 Followers 949 Following I am a blog writter and I have Ehlers Danlos Syndrome and Chiari Check out my blog http://t.co/7iWCwl2v0F Raising awareness for this disease Full Time Patient
Chiari Warriors @chiariwarriors
263 Followers 134 Following
Intl Chiari Assn @IntlChiariAssn
87 Followers 0 Following The International Chiari Association (ICA) is a 501(c)(3) nonprofit organization that helps those with Chiari and the people that care about them.
alejandra @AType3Zebra
424 Followers 194 Following Hey! I'm living with Ehlers Danlos & POTS while traveling all over the world. Just trying to live a normal life. Feel free to tweet, write, or message me!
F.I.T @facingillness
354 Followers 957 Following F.I.T - Facing Illness Together is a support network for anyone facing illnes of any kind - Dont suffer alone, join us! 'Finding Strength, Hand In Hand'.
Spoonneedssalt @rachelwalcher
1K Followers 4K Following 🦄🥄😻🐅🦄🗼🛰️💺🚤,🥄#Advocate #review's #Influenster strives to be a #professionalnapper
Susan White @waterswaves
518 Followers 2K Following Married to an awesome Ojibwe trucker, Ehlers Danlos Syndrome hypermobile type & POTS,, Avid reader, beadweaver and life long learner.
Dysautonomia Intl. @Dysautonomia
26K Followers 350 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Tania Tirraoro FRSA -... @TaniaLT
10K Followers 6K Following Writer; National #SEND Parent Advisor @SpcialNdsJungle founder; CoFounder @SEND_CA; Devoted Grandma of 2; #ActuallyAutistic; ♿#EhlersDanlos She/Her
M Bond @MystiLinne
3K Followers 2K Following #Publisher #Trauma #Survivor #DomesticViolence Living a beautiful, quiet life.
Miz Klutzy @MizKlutzy
308 Followers 712 Following I'm a disabled giant.. with EDS. CRPS. POTS. Gastroparesis, Food Allergies & more. Medical Cannabis, Chronic Illness, Prolotherapy, PRP & Stem Cell Advocate!
HMS @HMSawareness
738 Followers 506 Following 20 years old & formally diagnosed with Hypermobility Syndrome. My mission is support & awareness. Personal account: @heathervwear
EDSWellness @EDSWellnessSol
3K Followers 2K Following 501(c)(3) nonprofit providing EDUCATION, DIAGNOSIS, and SOLUTIONS for ALL hypermobility disorders and related conditions. • @Wellapalooza • @KNMyles
OhTWIST.bsky.social n... @H2OhTwist
8K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely diagnosed.
Tammy Beck @Tammich72
518 Followers 1K Following Aunt of 2/Love animals/fashion/bargains. Have Erythromelalgia & EDS Type 3
Nadia @NadiaBodkin
3K Followers 3K Following Rare Disease Community-based Activist & Philanthropist @RareAdvocacy
Cheyenne Love @love_zebras_eds
97 Followers 17 Following Hey y'all! I am a 21 year old living with Ehlers Danlos Syndrome (EDS). EDS causes all of my joints to dislocate daily. Please follow my bendy life! ;)
mandy's mission @hmsinvisible
50 Followers 279 Following Im a full-time mum to 2 gorgeous girls, and also full-time sufferer of hEDS. Life is a full time battle to make us, the invisibles, visible. #SpoonieLife
Save A Spoon @Spoonie_Life
6K Followers 5K Following A girl battling #chronicillness & #chronicpain almost all my life: sharing support, tips & general life! #spoonie
DONNA WICKS @bmdonna
407 Followers 741 Following The opinions expressed in this Twitter account are my own and have nothing to do with the organisation I work for.
Tamsin Ferrier @Tamsin_Tweets
938 Followers 2K Following Dancer, mum, volunteer, lover of life. Volunteer @Inspire_DD #DennyPoppies
Kyle Harding @Kyle_Harding594
474 Followers 1K Following Kyle|26|Serial Entrepreneur|CBT I have the conditions Ehlers Danlos Syndrome, POTS and Fibromyalgia. Bound to my wheelchair you will often see me in it at 7am.
Rare Disease Day @rarediseaseday
42K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Claire Murray @Dys_Diva
176 Followers 313 Following I'm 20 years old & my dream is to be a WWE Diva. I've fought my Dysautonomia (POTs), EDS type 3, & more to get 1 year of wrestling training. I never quit!
Helen Rice is Showing... @helenriceshow
741 Followers 1K Following Writer-performer combining spoken word with music to explore important things like: grief, sex, being a #disabled #stepmum and bread. Mostly #bread TBH.
Trends for United States
16,2 B posts
11,2 B posts
1.593 posts
7.510 posts
19,8 B posts
1.959 posts
3.863 posts
75,6 B posts
2.317 posts
149 B posts
46,6 B posts
1.879 posts
3.374 posts
5.643 posts
50,7 B posts
1.915 posts
29,6 B posts
7.703 posts
8.908 posts
2.002 posts
You might like
Jenny Wheeler
@jennywren42681
596 Followers
Ralinda Lowman
@RalindaLowman
259 Followers
Janice Smith Ramage
@janice1975
451 Followers