TAPS Support @tapssupport
Non-profit dedicated to raising the profile of #TwinAnemiaPolycythemiaSequence and supporting research. #TAPSisReal #TAPS #raredisease. Awareness day: March 3rd tapssupport.com The Netherlands Joined December 2018-
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1 in 8 spontaneous TAPS donors is born deaf with ANSD. Meet Piper and Jemma in this video, and share the special moment that her cochlear implant was turned on. bit.ly/3nkjH5M #tapssupport #tapsisreal
Today starts an intensive 3 day congress with the @EFCNIwecare Parent Organisation Summit in Munich, Germany. Our founder Stephanie is attending. #EFCNIPOS #POS2024 #EFCNIwecare #tapssupport @EFCNI
TAPS screening is controversial, but without it, and creating central registries to pool data, we can't learn more about it. It's time to update guidelines, and cooperate to learn more about this rare disease. #tapssupport #tapsisreal bit.ly/3E9rVFv
TAPS may place fetuses and neonates at increased risk for cerebral injuries. Incorporation of fetal brain imaging protocols may enhance precise prenatal diagnosis and allow for accurate parental counseling and post-natal care. bit.ly/3SvW8Gz #tapssupport #tapsisreal
Tell us what you wish existed for a TAPS diagnosis. Do you think there should be brochures? Books? Videos? We're listening! Join the conversation here: bit.ly/3dqdeTR #tapstalkstuesdays #tapssupport #tapsisreal
The Twin Run is the major fundraiser for @tapssupport, supporting the LUMC Fetal Therapy team and twin research. Donate here: twinrun.nl/donate/ . #twinrun #twinresearch #fetaltherapy
While we aren't officially hosting a Twin Run this year, you can still join in! If you're running the Leiden Marathon, and want to help us - please get in touch. Well Bee Study: twinrun.nl/well-bee-study/ #twinrun #tapssupport #twinresearch #wellbeestudy @twinrunnl @FetalLumc
Alle bloedvaten tussen donor en ontvanger (die TTS of TAPS veroorzaken) worden met behulp van de laser dicht gemaakt. Op deze manier wordt de gezamenlijke placenta kunstmatig in tweeën verdeeld. Lees meer: bit.ly/3ezAP46 #tapssupport #tapsisreal #laserbehandling
There are often times where talking about things like TTTS, TAPS, and SFGR with kids can be difficult because you don’t know where to start. As parents, we want to find out the best way to talk to our children... bit.ly/3ExxRIx #tapssupport #tapsisreal
Delighted to contribute to the Maternal Fetal Medicine meeting this year, working with experts in the field. The programme is fantastic. I really hope that you enjoy the next couple of days. I look forward to engaging discussions. english.extempore.info/maternal-fetal…
Twin Anemia Polycythemia Sequence is a new disease, different from TTTS, and here are the 15 most important facts you need to know. bit.ly/3mEm03t #tapssupport #tapsisreal
To distinguish between TAPS and acute TTTS, you need to do 3 things. Look at the placenta for tiny anastomoses and flip over to see if there's a color difference, and check hemoglobin and reticulocytes for both twins. #tapssupport #tapsisreal bit.ly/3dRyMaJ
Given the potential long-term adverse effects of prolonged and severe neonatal hypoglycaemia, we advocate for active screening to ascertain normoglycaemia in the first 24 hours after birth in TAPS twins: bit.ly/3o3D8AZ #tapssupport #tapsisreal
Footprints Baby Loss provides vital support to parents and families who experience the death of one or more of their twins or triplets before, during or after birth. Please do share so that people can find us, and do follow us on our social media platforms. #footprintsbabyloss
What kind of information should be available for TAPS families? Join the conversation here: bit.ly/3dqdeTR #tapstalkstuesdays #tapssupport #tapsisreal
At the moment, 2 types of laser surgery are considered standard treatment for TTTS: Selective Laser Ablation and Solomon Technique. Read more: bit.ly/3a26WYj #tapssupport #tapsisreal
10 days later, to our surprise and joy, we discovered that we were having twins. Our single embryo had split into you and your sister. This was a wonderful surprise... bit.ly/3h9z1RM #tapssupport #tapsisreal
Fifty medics cram into operating theatre to save baby's life with rare procedure - apple.news/A0EDqQNEyQM6do…
We have resources and information on our website created to break down the jargon and myths about TAPS. Discover more here: bit.ly/3mG2OCy #tapssupport #tapsisreal
NEW RESEARCH: "... sFGR in identical twins is associated with a reduction in static and dynamic lung volume and a reduction in lung diffusion, even when taking the reduced lung volume into account." More: bit.ly/3xAgZCD #sfgr #monochorionictwins #lungfunction
Liona Poon @LionaCPoon
3K Followers 716 Following Prediction & prevention of #pregnancy🤰🏻complications incl. #preeclampsia, #FGR, #preterm birth, #stillbirth; devoted in improving maternal & fetal👶🏻health.
Asma Khalil @ProfAsmaKhalil
7K Followers 938 Following Professor in Obstetrics & Maternal Fetal Medicine • Passionate about maternal & fetal health. Vice-President - Royal College of Obstetricians & Gynaecologists
Aris Papageorghiou @FetalUltrasound
3K Followers 222 Following Clinician, Scientist & Innovator. Global Maternal Fetal & Perinatal Health. AI in Ultrasound Imaging. Editor in Chief of BJOG. Tweeting in a personal capacity
Jezid Miranda, MD, Ph.. @JezidMiranda
3K Followers 918 Following Maternal fetal Medicine\Surgery, a father and Professor at Universidad de Cartagena 🇨🇴, not necessarily in that order. Opinions are my own.
Fetal Medicine Barcel.. @medfetalBCN
7K Followers 597 Following Leading institution in the management, creation and development of training programs and projects in the field of pregnancy and fetal medicine. #fetaleducation
Stefan Verlohren @stefanverlohren
1K Followers 548 Following Professor of Obstetrics. Maternal-Fetal Medicine specialist based at Charité Berlin. Passionate about Preeclampsia research. Views are my own.
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556 Followers 211 Following Director of the Division of US in OBGYN - Lis Maternity Hospital - Tel Aviv Sourasky Medical Center. Senior Lecturer Tel Aviv University. ISUOG SciCom
SMFM @MySMFM
26K Followers 3K Following The Society for Maternal-Fetal Medicine (SMFM) represents the interests of high-risk pregnancy experts and the families they serve.
Professor Mark Kilby .. @Mark_D_Kilby
3K Followers 908 Following Consultant Fetal Medicine @BWC_NHS, Emeritus Professor of Fetal Medicine at University of Birmingham, UK. Tweets my opinion
Andrew H Shennan OBE @OBSevidence
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142 Followers 586 Following CMS fetal medicine @_TheNmh RM RGN RNP MSc Ultrasound #UCD MSc Healthcare Mgt #RCSI
Together Socks @Togethersocks
989 Followers 4K Following Together Socks, a brand that gives 50% to Tommy’s. We were set up by two fathers who want to make a difference. 💖🌈💙🧦
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ISUOG @ISUOG
19K Followers 862 Following #LoveUltrasound ❤️ International Society of Ultrasound in Obstetrics and Gynecology.
AJOG @AJOG_thegray
29K Followers 715 Following Established in 1869, The American Journal of Obstetrics & Gynecology is the world's leading Obstetrics and Gynecology Medical Journal and Website.
Liona Poon @LionaCPoon
3K Followers 716 Following Prediction & prevention of #pregnancy🤰🏻complications incl. #preeclampsia, #FGR, #preterm birth, #stillbirth; devoted in improving maternal & fetal👶🏻health.
Asma Khalil @ProfAsmaKhalil
7K Followers 938 Following Professor in Obstetrics & Maternal Fetal Medicine • Passionate about maternal & fetal health. Vice-President - Royal College of Obstetricians & Gynaecologists
Aris Papageorghiou @FetalUltrasound
3K Followers 222 Following Clinician, Scientist & Innovator. Global Maternal Fetal & Perinatal Health. AI in Ultrasound Imaging. Editor in Chief of BJOG. Tweeting in a personal capacity
Basky Thilaganathan @ProfBasky
3K Followers 290 Following Fetal Medicine/Surgery | Director Fetal Medicine @StGeorgesTrust | Director Tommy's National Centre for Maternity Improvement @RCObsGyn | @UDSHarleyStreet
BJOG @BJOGTweets
21K Followers 164 Following Leading international OBGYN journal. Reporting the best research in women's health from around the world since 1902. Supports #BlueJC. Leads @CoreOutcomes
Jezid Miranda, MD, Ph.. @JezidMiranda
3K Followers 918 Following Maternal fetal Medicine\Surgery, a father and Professor at Universidad de Cartagena 🇨🇴, not necessarily in that order. Opinions are my own.
Fetal Medicine Barcel.. @medfetalBCN
7K Followers 597 Following Leading institution in the management, creation and development of training programs and projects in the field of pregnancy and fetal medicine. #fetaleducation
Stefan Verlohren @stefanverlohren
1K Followers 548 Following Professor of Obstetrics. Maternal-Fetal Medicine specialist based at Charité Berlin. Passionate about Preeclampsia research. Views are my own.
AJOGMFM @ajogmfm
6K Followers 20 Following AJOG MFM will be focused on the latest research in the specialty of maternal-fetal medicine, or high-risk pregnancy.
Karina Krajden Haratz @HaratzKarinaK
556 Followers 211 Following Director of the Division of US in OBGYN - Lis Maternity Hospital - Tel Aviv Sourasky Medical Center. Senior Lecturer Tel Aviv University. ISUOG SciCom
SMFM @MySMFM
26K Followers 3K Following The Society for Maternal-Fetal Medicine (SMFM) represents the interests of high-risk pregnancy experts and the families they serve.
ISPD @ISPDHQ
4K Followers 324 Following International Society for Prenatal Diagnosis -- Building Global Partnerships in Genetics and Fetal Care
Professor Mark Kilby .. @Mark_D_Kilby
3K Followers 908 Following Consultant Fetal Medicine @BWC_NHS, Emeritus Professor of Fetal Medicine at University of Birmingham, UK. Tweets my opinion
DocElovitz 🎗️ @DocElovitz
8K Followers 407 Following Dean, Women’s Health Research; ⭐️Women's Biomedical Research Institute. 🧬 Physician-Scientist; Mentor. ❗️More science for #womenshealth✨My views only
Andrew H Shennan OBE @OBSevidence
7K Followers 984 Following Finding Evidence to Save Lives in Pregnancy and Childbirth
RoyalCollegeObsGyn @RCObsGyn
51K Followers 1K Following The Royal College of Obstetricians and Gynaecologists (RCOG) works to improve healthcare for women and girls everywhere.
Fatima Crispi @FatimaCrispi
2K Followers 1K Following CONSULTANT, SCIENTIFIC COORDINATOR & ASSOCIATE PROFESSOR at BCNatal, Hospitals Clínic and Sant Joan de Déu, University of Barcelona
Gillian Sapia RN @GillianHSapia
973 Followers 2K Following Rare Disease mom. Legislative Advocate and Activist. I post rare disease bills from Congress and Senate. Ask Congress to cosponsor current bills. Ask me how?!
Panagiotis Benardis @pbenardis
67 Followers 100 Following Fetal Neurology guru. Talking about life before birth.
Isabel Araya @Isaarayab
199 Followers 526 Following Mamá de LOS mas increíbles!, medica pediatra neonatologa. Esposa en entrenamiento. Interes en nutrición neonatal
Felicia L Henry, BCCE.. @MybirthCBELC
3K Followers 304 Following Bradley Certified Childbirth Teacher & International Board Certified Lactation Consultant for Ventura Country, CA & Aetna Preferred Provider
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56 Followers 62 Following Welcome to So IL Ob-Gyn Associates. Obstetrics and Gynecology practice with locations in Carbondale and Herrin, IL. Providing complete healthcare for women.
MMOTA-Founding Chapte.. @ChapterMmota
13 Followers 10 Following Founded in 1956 by the late Rita Lewis of Arlington, we are the original chapter of the state organization known as the Mass. Mothers of Twins Assoc.
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121 Followers 8 Following I like to think I am a kind person... but lets face it. I am not going to share my chocolate with anyone.
IU Health @IU_Health
29K Followers 3K Following Indiana University Health is changing healthcare for the better. We bring together the state's most highly skilled doctors with a personalized approach to care.
Julia Pugachevsky �.. @jaypugz
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159 Followers 2K Following En proceso de todo lo q quiero ser.! 🤰🏻👨🏻⚕️🤱🏻R3 GINECOLOGIA Y OBSTETRICIA🤰🏻👨🏻⚕️🤱🏻 Bolivia🇧🇴
Together Socks @Togethersocks
989 Followers 4K Following Together Socks, a brand that gives 50% to Tommy’s. We were set up by two fathers who want to make a difference. 💖🌈💙🧦
Clinical Practice Edu.. @PracticeEducat1
124 Followers 61 Following We are a team of Clinical Practice Educators for Maternity and Gynaecology at Liverpool Women's Hospital
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42 Followers 178 Following MFM Fellow | Zeynep Kamil Women and Children’s Diseases Training and Research Hospital
GA @AspanidzeGvants
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Catherine O'Donohoe @CatherineODono7
1K Followers 2K Following Rural GP. Views are my own. RT does not equal endorsement. https://t.co/bBX8BwAKOM
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142 Followers 50 Following
Leon Metlay @leon_metlay
6K Followers 6K Following Pediatric & autopsy pathologist at University of Rochester. My only advice: don't be my patient.
Barby Ingle Official @BarbyIngle
20K Followers 8K Following #AZ #PCRC D5, AZ State Rep Candidate #LD7 |#IAm #Writer #RareDisease #ChronicPain, #UniversalPetite, Creator of #NERVEmber
Dr. Mario Rodríguez .. @marrodbosch
381 Followers 831 Following El @INPer_mx, La Placenta Acreta, el Embarazo de Alto Riesgo y los Dallas Cowboys son mi pasión. (Comentarios Personales)
IRDiRC @irdirc
3K Followers 2K Following #IRDiRC is a consortium of #RareDisease #research funding agencies n stakeholders. RTs shares likes ≠ endorsement. Account managed by IRDiRC Scient. Secretariat
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Neonatal Surgery @NeonatalSurgery
2K Followers 657 Following A group of Neonatal and Paediatric Nurses, AHPs ACPs with a drive to standardise and improve the care of Surgical Neonates. A special interest group of @NNAUK1
Daniel Paez @danielpaez91
115 Followers 979 Following Médico, Ginecólogo y Obstetra - Fellow Medicina MaternofetalThe Twin Run is the major fundraiser for @tapssupport, supporting the LUMC Fetal Therapy team and twin research. Donate here: twinrun.nl/donate/ . #twinrun #twinresearch #fetaltherapy
The Twin Run is the major fundraiser for @tapssupport, supporting the LUMC Fetal Therapy team and twin research. Donate here: twinrun.nl/donate/ . #twinrun #twinresearch #fetaltherapy
Delighted to contribute to the Maternal Fetal Medicine meeting this year, working with experts in the field. The programme is fantastic. I really hope that you enjoy the next couple of days. I look forward to engaging discussions. english.extempore.info/maternal-fetal…
Delighted to be a jury member for the #PEOF Made With Patients awards recognising quality #PatientEngagement & #PatientChampions
Footprints Baby Loss provides vital support to parents and families who experience the death of one or more of their twins or triplets before, during or after birth. Please do share so that people can find us, and do follow us on our social media platforms. #footprintsbabyloss
Have you discovered our NEW rare disease awareness day calendar? Make sure to save the page to your internet browser so you never forget an awareness day again! Do you think we've missed your awareness day or month? Let us know by emailing [email protected].
Did you know ???
A member is asking: My twins were invited to a birthday party, should each twin bring a present for the birthday kid?
👣 🍼 #multiplebirth rate has risen significantly since the 80s! 🌈As more parents welcome multiple bundles of joy, #multiplebirthAwarenessMonth educates new parents about the unique qualities & special challenges of these children while celebrating their joys. 💙💕
Fifty medics cram into operating theatre to save baby's life with rare procedure - apple.news/A0EDqQNEyQM6do…
#WorldHealthDay: My health, my right. Access to #healthcare is fundamental for babies born #preterm. #premstem partner @EFCNIwecare advocates for such rights, coordinating the European Standards of Care for Newborn Health @ESCNHstandards #HealthForAll ➡️ newborn-health-standards.org/implementation…
Dive into “I am writing to complain” now, AIMS March Journal Vol 36 No 1. Link in bio. #aims #birth #informedbirth #maternityservices #resolution
We are fundraising for research in twin pregnancies. Our aim is to raise £100,000 which is a very ambitious target but with everyone’s help I’m sure we can do it! One of my colleagues is even running a marathon! Please consider supporting us here: tinyurl.com/3uffzhu4
Texas Children’s Fetal surgery, always innovating @TCHFetalCenter @bcmhouston @BCMSuperfund @masancor07 @Belfort_MD
In this month’s #UOGJournal, Munoz et al. report a case of heterokaryotypic monochorionic twin pregnancy managed with fetoscopic laser photocoagulation as an alternative to selective termination bit.ly/3VupvNr
Congratulations to the team at the Edinburgh Royal Infirmary @NHS_Lothian who randomised their 16th participant today for @Stoppit3Study #twins #16 #AbsolutelyFabulousRecruitment
We have a private Facebook group that you can join if you have experienced twin or triplet loss. Find details of our online community here. buff.ly/48IayLb “In the days after my loss I read facebook posts from other people in the community. It helped me feel less alone.”
Remembering all of our April babies. We join you in thinking about them for any special dates such as due dates, birthdays and anniversaries. Please do share your twins and triplets names with us if April is a special month. #youarenotalone #footprints #saytheirnames #remembering
📢 Our latest newsletter is out! Check out our new videos featuring insights from the @ESCNHstandards Topic Expert Group on “Birth & transfer”. Don’t miss research on intermittent fasting during Ramadan & foetal health impacts. More: bit.ly/EFCNInewslette…
Fetal survey at 18 weeks gestation. #FetalSurgery
Neonates always seem so stable up until they're not. The cliff is steep & the fall a rapid one #neotwitter
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