Victoria Feddersen @teamfeddo
Mum of 2. Trying to raise awareness of Phelan-McDermid syndrome. My youngest daughter is 1 of 1500 worldwide diganosed with this rare genetic condition. pmsf.org.uk Joined June 2015-
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@LincsFM I can’t remember what I won, think it was a leisure centre pass, but I won a dance competition dancing to The Bart Man 🤣
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@colleaguebox Thank so much to Colleague Box for these fab chocies!! Winner winner chocolate dinner!! Very much appreciated x
@colleaguebox @Andy_JacksonLFC Awwwww that’s lovely, thank you so much. Can I email my address? Thanks again 😊
@StGilesRetford ever since we’ve had a home reading book little miss has become so much more engaged with books. Thanks St Giles
@StGilesRetford Emily was enjoying Sarah’s signing screen in reception this morning 😁
@StGilesRetford The Friends of St Giles school would like to invite all parents, carers and staff along to a coffee morning, Friday 11th October, 9.30am in school. Friendly chat, a chance for new parents to meet others & loads of yummy cake. Hope to see you there!
@StGilesRetford #LookForABook hiding our book for someone else to enjoy
Victoria Feddersen retweeted
Today we received a special #sensory delivery from the Friends of St Giles. We are so grateful to the incredible support they give to our school. #TeamStGiles
@StGilesRetford @sinfoniavivauk Awwww!! This is awesome 😍
@revkatebottley @StGilesRetford Thank you Kate for taking part in our makaton Christmas advent and your support of St Giles school. My daughter attends the school and loves it there 😁
Victoria Feddersen retweeted
And our final #Makaton #advent sign comes from the one and only @revkatebottley. Thank you for your support and we’ve loved listening to #GMS on @BBCRadio2 #ChristmasDay
Victoria Feddersen retweeted
Funny how society imagines Disabled people are ill because they're Disabled, without grasping that for many of us our illnesses are caused or worsened by how society disables us. EG I've spent the last 6 days ill from an infection caused by a lack of toilet on a 4hr train journey
Victoria Feddersen retweeted
What an exciting week for PMSF! 5 days until our FIRST ever #PMSAwarenessDay! Please join us spreading awareness for Phelan McDermid!
Victoria Feddersen retweeted
Coca-Cola Christmas truck ‘stuck in field’ on way to Gainsborough lincolnshirereporter.co.uk/?p=203191
Victoria Feddersen retweeted
Another wonderful donation from one of Beechy's fundraisers! A fab £1900 for FOSG and £665 for school!! Thank you so much!!
Victoria Feddersen retweeted
Fantastic! lincolnshirelive.co.uk/news/local-new…
Victoria Feddersen retweeted
Can't wait to see you on 9/23! Look out @thestarboard ...here come's #PhelanLucky!!! 🍀💚 x.com/PrincipalNauma…
The Naumans are #PhelanLucky in Coronado, California!
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