Burning Nights CRPS @BNightsCRPS
Burning Nights CRPS Support is a UK charity raising awareness & supporting all those affected by Complex Regional Pain Syndrome (CRPS). Charity No 1166522 burningnightscrps.org UK Joined July 2014-
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The Burning Nights CRPS in Children & Teenagers Information Leaflet is a useful resource for parents, guardians and others who may know children and young people living with Complex Regional Pain Syndrome (CRPS). #CRPS buff.ly/40mK2Cd
Thought of the day I am constantly in pain. Yes, constantly. Every single second of every single day. • • • • • #BNightsCRPS #CRPS #CRPSawareness #CRPSwarrior #CRPSlife #CRPSsupport #chronicpain #CRPSisReal
Burning Nights Zentangle with Dawn starts tomorrow and will run every Wednesday 4pm- 6pm BST for 10 weeks. Everyone is welcome to join just sign up via the link below. #CRPS #zentangle buff.ly/4aYvcYM
Now on #PainReports: “Social health in young women with chronic pain” by Boggero et al. bit.ly/4bbc2P3
PLEASE SHARE The DWP consultation on PIP is out. The gov is trying to take away a vital benefit for so many disabled people Closes 22nd July gov.uk/government/con…
As a disabled person requesting reasonable adjustments or accommodations is often met with an instant 'No'. I want to collect some positive examples of adjustments & accommodations. If you're disabled can you share an example of someone meeting an access need? I'll start ⬇️
“It’s a day-to-day battle… a lot of the time it feels more like just surviving… pain makes the most simplest tasks, like getting out of bed or getting dressed, difficult feats. You’re battling everything. All of the time.” buff.ly/4b6BGEQ #ChronicIllness #ChronicPain
New episode! What do you think? @lvaughan1974 challenges clinicians to step outside of traditional practice: Longer appointments? Better awareness of resources... And genuine collaboration with people living with pain. #chronicpain #patientvoice
The only person who is an expert in their pain is that person. This is why collaboration is key, with appreciation of strengths, autonomy, choice and wisdom of the person. #thepaincoach #chronicpain #painriffs
Call out for participants! We want to hear your stories 📢 Every day is a learning day! 🤓 Thanks @Fizzbw for teaching me about alt text! Incredibly grateful to have you along this journey with me 🙏
Don’t forget to apply to join The Patient Voice Committee if you’re someone with lived experience of pain & interested in working with healthcare professionals @Sahara88uk just in case you hadn’t seen this👇🏼Just 11 days left to apply! #ChronicPain #CRPS
Don’t forget to apply to join The Patient Voice Committee if you’re someone with lived experience of pain & interested in working with healthcare professionals @Sahara88uk just in case you hadn’t seen this👇🏼Just 11 days left to apply! #ChronicPain #CRPS
Well worth a watch @BritishPainSoc about how this Congress has involved people, who have a living experience of living persistent pain 👇 Dr Furlan was Live chatting with Virginia McIntyre at Canadian Pain Soci... youtube.com/live/ykigEClhx… via @YouTube
A quick & easy tip for navigating the oven 👨🍳
“#ChronicPain prevents me from concentrating… Then there are the really bad days—where my bones feel like glass and nerves like molten wires. When the #pain is so much I want to cry… I can’t move or get out of bed—they’re completely debilitating.” buff.ly/43uRoqA #EDS
The Dorsal Root Ganglion (DRG) Stimulation Information Leaflet is a 24-page booklet that explains what this process involves in the treatment of CRPS. #CRPS buff.ly/3oz2Twz
Thought of the day The experts of CRPS are those living with the condition themselves. • • • • • #BNightsCRPS #CRPS #CRPSawareness #CRPSwarrior #CRPSlife #CRPSsupport #chronicpain #CRPSisReal
“No one wants to be home sick—it’s just not always possible to go out… But even if people with #chronicillness aren’t able to go out most of the time, it doesn’t mean they never want to… Continuing to be invited and included means so, so much.” buff.ly/49k81Xb #spoonie
“What many don’t seem to take into account is that these things can be a symptom of or a reaction to being sick, rather than the cause… You aren’t going to not have #chronicillness because you suddenly picked up a diet. It’s easier to blame #depression.” buff.ly/49oRgdA
“Overdoing it. Walking too much. Doing too much work around the house. I want to pace all the time, but sometimes my brain thinks ‘Hey we can do this’ and my body is like ‘What the…!'” #PainFlare Triggers buff.ly/3J5OcII @AChVoice #chronicallyill #chronicpain
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPPPete Moore @paintoolkit2
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5K Followers 4K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.Bev Schechtman🇮�.. @ibdgirl76
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2K Followers 1K Following Nonprofit Raising awareness, education & research of CRPS #COMPLEXREGIONALPAINSYNDROME #CRPS #ChronicPain #FTF #ChronicIllness #PainSupport #PainFighter #FTF5kɹǝʇlnoԀ pıʌɐ�.. @Retlouping
24K Followers 965 Following All my opinions are my own. Dislikes evidence based ostriches ( An evidence based ostrich ignores evidence against, whilst waiting for evidence to support)Louise Trewern 🇬�.. @loulouscorpio
3K Followers 5K Following Immediate Past VP-@PatientBPS @livewellpain @MyLiveWell @FestivalPain @WorksWalking @PhysioPainAssoc @Paindofficial LX Opioids Advocating Safe PrescribingA Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depressionChronic Pain Champion.. @PainChampions
3K Followers 1K Following Led by self-management pundit & pain strategist, Tom Bowen - focused on understanding #chronicpain, accepting pain, & adapting to pain. Not medical advice.Felicia Cox FRCN 💙.. @FeliciaJCox
4K Followers 2K Following Nurse Consultant, Pain ~ Chair @BritishPainSoc Acute Pain SIG ~ @IASPpain -Sec @ApsigI @RNPainNet ~ Nurse research clinical group lead ~ Keep the dateDr. Rachel Zoffness @DrZoffness
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121 Followers 499 Following "Life's temporary - enjoy the ride! If you know, you know. Embrace the moment and let loose. Make memories and cherish every moment. 🌟"Dolores Vasculain de .. @Maty_pr
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211 Followers 2K Following We are in favor of a safe regulated supply of FDA approved prescription medications. Check link and get a safe supply nowFEBUS Soaps @SoapsFebus
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109 Followers 399 Following Tired of being quiet. Ready to be heard. Full-body #CRPS. 🔥🐦🔥Defender of the voiceless, ALLY🏳️🌈, EXvangelical, loves Jesus (PK). Survivor.✌🏼Angela Tracy @blueshedview
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64 Followers 50 Following Student radiographer. trying to spread awareness about chronic pain and the influence we can have!Claire Yacoub @ClaireYacoub
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1 Followers 43 FollowingEnaid @Enaid8881544824
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91 Followers 225 Following NHS Physiotherapist, PhD Student and CMR lecturer. Exploring the role of cognition in rehabilitation through clinical practice & researchAnna M. Chudyk (she/h.. @AMChudyk
248 Followers 349 Following Patient-oriented researcher “SHARE”-ing the responsibility for better healthcare (https://t.co/MNr4HPF5Q1). Views are my own.American Chronic Pain.. @ACPAnow
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45 Followers 109 Following My old account was @theunicaaman and bad people taking advantage of the need I have for medical attention, offer help but ended up hacking. Helpme denouncing itMary 🌱 @mary_yoxall
334 Followers 680 Following Specialist pain management physiotherapist at WVT🌻 Ehlers danlos syndrome and mental health awareness 💕Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPPPete Moore @paintoolkit2
12K Followers 3K Following Pete is a SelfMgt Coach/Author/Broadcaster of the Pain Toolkit ® Honorary member of the British Pain Society. Born in Woolwich so a #Gooner #HarleyRider 😎Thomas Kline MD, PhD @ThomasKlineMD
34K Followers 20K Following 42 yrs rehab medicine; Hosp-in-Home Chief@Harvard-MGH; Stanford Peds,UOre PhD; JATH LLC CEO; National Pain Council Senior Advisor https://t.co/rRaWMYj6KuAngie B @quinky_dink
5K Followers 4K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.Bev Schechtman🇮�.. @ibdgirl76
10K Followers 4K Following Wife, mom of 2 girls & an Aussiedoodle, Crohn’s, PsA, PTSD, sexual abuse survivor, chronic pain advocate. VP/Researcher for The Doctor Patient Forum/DPPFight The Flame - CRP.. @FightTheFlame5k
2K Followers 1K Following Nonprofit Raising awareness, education & research of CRPS #COMPLEXREGIONALPAINSYNDROME #CRPS #ChronicPain #FTF #ChronicIllness #PainSupport #PainFighter #FTF5kɹǝʇlnoԀ pıʌɐ�.. @Retlouping
24K Followers 965 Following All my opinions are my own. Dislikes evidence based ostriches ( An evidence based ostrich ignores evidence against, whilst waiting for evidence to support)Louise Trewern 🇬�.. @loulouscorpio
3K Followers 5K Following Immediate Past VP-@PatientBPS @livewellpain @MyLiveWell @FestivalPain @WorksWalking @PhysioPainAssoc @Paindofficial LX Opioids Advocating Safe PrescribingA Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depressionChronic Pain Champion.. @PainChampions
3K Followers 1K Following Led by self-management pundit & pain strategist, Tom Bowen - focused on understanding #chronicpain, accepting pain, & adapting to pain. Not medical advice.Felicia Cox FRCN 💙.. @FeliciaJCox
4K Followers 2K Following Nurse Consultant, Pain ~ Chair @BritishPainSoc Acute Pain SIG ~ @IASPpain -Sec @ApsigI @RNPainNet ~ Nurse research clinical group lead ~ Keep the dateDr. Rachel Zoffness @DrZoffness
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56K Followers 654 Following Professor, Curtin University, Specialist PT, https://t.co/PtvOZsO0my, Bridging research and practice to empower clinicians & people in pain. My views.Barby Ingle Official @BarbyIngle
20K Followers 9K Following #AZ State Rep Candidate #LD7 |#PCRC D5, | #IAm #Writer #RareDisease #ChronicPain, #UniversalPetite, Creator of #NERVEmberAdam Dobson @adamdobson123
11K Followers 1K Following Father. Physiotherapist in back pain. Member of NSN and NE CSP group. Prepping Painful Lumbar Radiculopathy course. Mini leopard cohabitation 🐆Arianne @ravensspirit68
14K Followers 9K Following Old soul, creating, hoping, learning. ME/cfs C-spine injury Chronic pain Adenomyosis survivor Married Underestimate me, that'll be fun.🌸💞🌸Andrea Anderson @aander1987
7K Followers 5K Following National advocate for patients, clinicians, research & scientists… all who are involved in living with, treating, or researching chronic/persistent pain.Pain News Network @PainNewsNetwork
16K Followers 12K Following Pain News Network is an independent, nonprofit online news service providing in-depth coverage of chronic pain and pain management.LindaCornish @LindaCornish8
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1K Followers 1K Following Not-for-profit organisation set up by Sheffield GPs to deliver world class primary care. 'Primary and Community Care Provider of the Year' at 2022 HSJ AwardsPainAppResearch @PainAppResearch
15 Followers 53 Following PhD research into the Curable app for the treatment of chronic painLee Vaughan @lvaughan1974
199 Followers 191 Following Living and working with 24hr Chronic Pain. The neuropathic kind, so basically nothing wrong with me. Set up #PartneringPain (FB) in Sheffield in December 2022Lesley Singer @lspht
203 Followers 245 Following Home rehab/chronic pain physiotherapist / Pain educator McGill University/patient partnerKeymaster @MichaelX90210
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11K Followers 9K Following YA Author | Rep: @carolinejtrulit at @MetamorphLitAg | hEDS, POTS, CRPS Warrior🦓🥄🔥 | she/herSusan Cook @suzywongster
492 Followers 486 Following Loving life the #WongWay! GB women's and Cardiff Huskies para-ice hockey goalie with lower body CRPS, still occasionally roll through life with my race chair!Shelby @ShelbyRadcliff
3K Followers 2K Following Still figuring out life🙈 Sometimes I travel✈️ Love interior design🏡 CRPS🔥&POTS🩸warriorAlison Flehr @AlisonFlehr
447 Followers 2K Following PhD, Postdoc @UniMelbDGPPC @UniMelbMDHS #MindinBody #neuroscience #psychobiology 🏳️🌈 🏳⚧ Ally. She/Her. Views are my ownMichael Mosley @DrMichaelMosley
117K Followers 133 Following TV presenter, the 5:2 Guy. Author of The Fast 800Nicole Hickman James @nicolejames
11K Followers 4K Following Proud Mom of 3. Political Writer. Proud Democrat. Tired of Trump and his ilk. Suffer from CRPS and always looking for fellow Chronic Pain people. Hate Fentanyl.dr CRP @CRPS79tiga
82 Followers 2K Following Anesthesiologist Intensivist Sedare Dolorem Opus Divinum EstRheumaWarrior @steffie_davis
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50K Followers 430 Following The Lancet Neurology is the leading journal in clinical neurology. We publish articles and reviews that advocate change in, or illuminate, clinical practice.Enaid @Enaid8881544824
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154 Followers 973 Following I’m just me, try to be a good soul. More opinionated as the years go by. I love the Lake District, it feels like home. views are purely my own.Centre for Pain Impac.. @PainIMPACTNeuRA
314 Followers 413 Following Led by Professor Sylvia Gustin and Professor James McAuley, NeuRA’s Centre for Pain IMPACT aims to improve the lives of individuals suffering from chronic pain.🌛Miss Fly By Night @MissFlyByNight
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774 Followers 5K Following Evertonian, and an arty,tattooing,music and fashion enthusiast. #spoonie #witchchelsea (hotel) 🤍 @ohyikesitschels
1K Followers 988 Following #1 Me! defender• Nick ❤️•eating disorder and CRPS ❤️🔥advocate/survivor•CD collector• #AllGrit• #WeAreND•Flav x2 Cole Swindell x1 Carly Pearce x1 TNx1!!!ChronicIllnessHumor @HumorChronic
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334 Followers 680 Following Specialist pain management physiotherapist at WVT🌻 Ehlers danlos syndrome and mental health awareness 💕American Chronic Pain.. @ACPAnow
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12K Followers 1K Following Plataforma dedicada al mundo de la Cardiología, con especial interés en ofrecer información de calidad sobre cirugía cardíaca, así como intervencionismo.Chews Health HQ @Chews_Health
778 Followers 68 Following State-of-the-art rehab & performance facilities in Timperley, Cheshire. Follow us here for health & fitness tips from the 'Physios that Physios Trust'.Roy @RoyLUFC
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248 Followers 349 Following Patient-oriented researcher “SHARE”-ing the responsibility for better healthcare (https://t.co/MNr4HPF5Q1). Views are my own.Joaquim Brasil @joaquimbrasil
64 Followers 115 Following Neurologista e neurofisiologista, desde 1990 trabalha com neuroplasticidade. Autor de "Estimulação Magnética Transcraniana: Manual Prático", Amazon Books.Allexmarie @AllexmarieHoll1
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819 Followers 118 FollowingHelen Eccles @HelenEccles1
161 Followers 746 FollowingNow on #PainReports: “Social health in young women with chronic pain” by Boggero et al. bit.ly/4bbc2P3
PLEASE SHARE The DWP consultation on PIP is out. The gov is trying to take away a vital benefit for so many disabled people Closes 22nd July gov.uk/government/con…
As a disabled person requesting reasonable adjustments or accommodations is often met with an instant 'No'. I want to collect some positive examples of adjustments & accommodations. If you're disabled can you share an example of someone meeting an access need? I'll start ⬇️
“It’s a day-to-day battle… a lot of the time it feels more like just surviving… pain makes the most simplest tasks, like getting out of bed or getting dressed, difficult feats. You’re battling everything. All of the time.” buff.ly/4b6BGEQ #ChronicIllness #ChronicPain
thebiologist.rsb.org.uk/biologist-feat… An interesting article to read about chronic pain. My husband jokingly calls me the queen of pain but I see now there's an actual Queen of Pain very worthy of the title!
I attended a fantastic session run by the @BritishPainSoc on chronic pain and the menopause. Really insightful. Having experienced both menopause and chronic pain I thought I knew everything, I was clearly wrong! Thanks to all.
New episode! What do you think? @lvaughan1974 challenges clinicians to step outside of traditional practice: Longer appointments? Better awareness of resources... And genuine collaboration with people living with pain. #chronicpain #patientvoice
#CommunitySupport at its very best @Stocksclc Listening to people & identifying what communities need. No membership req or fees to access. Removing barriers👏 @Chris_Boardman @movemoresheff @SheffCouncil @HelpSheffield @Sport_England @YorkshireSport facebook.com/share/p/Ut8fC6…
today at @primarycareshef free conference. Many thanks huge effort. But it was all medication focused (maybe sponsor led?). Health outcomes relate to both medical and non-medical support. Is it our responsibility to champion both? Should we pay equal attention? @AndyHilton74
The only person who is an expert in their pain is that person. This is why collaboration is key, with appreciation of strengths, autonomy, choice and wisdom of the person. #thepaincoach #chronicpain #painriffs
Call out for participants! We want to hear your stories 📢 Every day is a learning day! 🤓 Thanks @Fizzbw for teaching me about alt text! Incredibly grateful to have you along this journey with me 🙏
@j_widdecombe Amazing stuff well done. You've planted seeds with this all over 👏 I'm kicking off our first session this week with @olliehart7 in a local Sheffield PCN. Two sessions per month for the year. #CommunityMatters #PeerToPeerSupport #PersonCentredCare #LEXMatters #ChronicPain
Don’t forget to apply to join The Patient Voice Committee if you’re someone with lived experience of pain & interested in working with healthcare professionals @Sahara88uk just in case you hadn’t seen this👇🏼Just 11 days left to apply! #ChronicPain #CRPS
Do you have experience of living or caring for someone with pain and would like the opportunity to work with healthcare professionals? The Patient Voice Committee at @BritishPainSoc is recruiting new members. Take a look & apply here👇🏼 britishpainsociety.org/people-with-pa…
Well worth a watch @BritishPainSoc about how this Congress has involved people, who have a living experience of living persistent pain 👇 Dr Furlan was Live chatting with Virginia McIntyre at Canadian Pain Soci... youtube.com/live/ykigEClhx… via @YouTube
A quick & easy tip for navigating the oven 👨🍳
People don't choose to be on disability benefits. It's their last resort. Stop blaming people with mental health problems. If the Secretary of State wants a grown-up conversation about this, then he should meet with us. We've sent an invite. 1/3
Exciting line up for our ASM on 13th May 2024; - Proactively Coping with Change and Uncertainty with Jo Irwin - Exercise for Persistent Pain: Helping People Move with Confidence with Prof. Kieran O’Sullivan Book your spot today by emailing us at [email protected]
Join us for the #IPNMSASM2024 on 13th May! €25 covers your attendance and membership for 2024/2025.
“#ChronicPain prevents me from concentrating… Then there are the really bad days—where my bones feel like glass and nerves like molten wires. When the #pain is so much I want to cry… I can’t move or get out of bed—they’re completely debilitating.” buff.ly/43uRoqA #EDS
Fantastic Session @KIITUniversity @KIMSBBSR delivering Essential Pain Management workshop to anaesthesia trainees, confidence to treat pain effectively grew from 0/21 pre workshop to 31/31 post workshop @achyuta_samanta @FacultyPainMed @IASPpained @IASPpain @RCoANews @ANZCA_FPM