Annette Call @CallAnnette

Faith Family Friends living with ALS : not today ALS Joined December 2012

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Annette Call @CallAnnette

a year ago

@WHLeavitt D

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Annette Call @CallAnnette

3 years ago

As your constituent & someone impacted by #ALS, I urge @senatorshaheen to increase and not cut #ALSResearch in the FY2024 budget: als.org/2024ALSResearc…

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Annette Call @CallAnnette

3 years ago

As your constituent & someone impacted by #ALS, I urge @senatorhassan to increase and not cut #ALSResearch in the FY2024 budget: als.org/2024ALSResearc…

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MLB @MLB

3 years ago

On #LouGehrigDay we remember an American icon and strive to honor his legacy. Visit MLBTogether.com/4ALS to see how you can help in the fight against ALS.

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Brian Wallach @bsw5020

3 years ago

Why do we need to have #ALSAwarenessMonth? Because the vast majority of the country does not know that ALS is always fatal or even what it is. So we will keep making noise until we change that.

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There are tens of millions of you who do not follow me. I am a 42-year-old father and husband with a fatal disease. I have one focus in life: Changing the healthcare system so it helps patients like me. Said differently, following me will be both fun and we will get shit done.

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Annette Call @CallAnnette

4 years ago

@nicolecimbura @MGHNeurology @glen_rouse @Troy_W_Fields @larsondh1 I could not agree more. I am currently in my third trial with MGH

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Brian Wallach @bsw5020

4 years ago

I, for one, believe that every member of the ALS community - patients, advocates and organizations - should be in favor of the NurOwn AdComm. It is finally a chance to have a transparent assessment of the science and the real world evidence.

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Annette Call @CallAnnette

4 years ago

@runnerguy262 Have you acquired official office space there yet?

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Annette Call @CallAnnette

4 years ago

I miss being able to message @becky_mourey at random times to share our shitty ALS journey together. While I never met her in person we connected on a zoom call when we were first both diagnosed. We were close in age, similar symptoms, recently she called me her ALS sister.

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Annette Call @CallAnnette

4 years ago

Considering signing up for @synapticure I currently receive excellent care from Healey Center for ALS at Mass General. I also have a wonderful primary care physician closer to my home. What's your opinion?

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Annette Call @CallAnnette

4 years ago

@bsw5020 @people @noc_film @misskph @katiecouric @RachelPlatten @PhilRosenthal @sabrevaya Or for those of us who no longer turn pages, Amazon Kindle unlimited includes it with my subscription📰🖥️

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Sandra Abrevaya @sabrevaya

4 years ago

As @bsw5020 said, “Based on the science and the amazing progress we're making today, ALS is no longer hopeless." And “It is time to have the first ALS survivor." @US_FDA the world is watching. @noc_film @iamalsorg #NurOwn #Tofersen #DefyingTheOdds 3/3