Chasing Life Project @ChasingLifeProj
This is a project created to inspire others who are battling illnesses,diseases, disabilities to live a life full of adventure and without limitations. chasinglifeproject.com Joined January 2016-
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Followers284
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Following314
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Likes238
“Remember, look at the stars and not at your feet." -- Stephen Hawking
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Hau’oli Makahiki Hou (Happy New Year) from our family to yours!! As 2017 comes to a close I pray that 2018 will be a year filled with blessings, love, family, faith and friendship 💕
Mele Kalikimaka 🎄 Wishing our friends and family a wonderful and blessed Christmas!
Chasing Life Project retweeted
I #StandwithKeaton. Keaton baby, just know you’re not alone. There are so many people who come out of bullying so much stronger and you will be one of them!! God bless you sweetheart.
I #StandwithKeaton. Keaton baby, just know you’re not alone. There are so many people who come out of bullying so much stronger and you will be one of them!! God bless you sweetheart.
Happy Thanksgiving from our family to yours!
Chasing Life Project retweeted
Love you #YellowHeartSquad💛I'm recovering at @UCLAHealth WE DID IT -AGAIN! #GodBless #OrganDonors #LungTransplant @DonateLife @CF_Foundation
Love and prayers to our dear friend @travisflores who received his 2nd double lung transplant today 💛💛 #YellowHeartSquad #DonateLife
Chasing Life Project retweeted
#YellowHeartSquad, Travis received the call for transplant. Please pray in this time of waiting for transplant & for the donor/their family💛
Chasing Life Project retweeted
Over $1.75 Million Raised for #RareDisease at @GlobalGenes' Star-Studded 6th Annual #2017GGtribute & #2017GGsummit prnewswire.com/news-releases/…
Had a great week in California. Until next time.....
Tailen and I were honored to meet the @WeCarryKevan team at this year's #2017GGSumitt and Gala event #neverstopchasinglife
Tailen with @MadisonMcLaugh at the Champions of Hope Gala
Tailen with @SparshPurhythm
Jodi and Tailen with @GlobalGenes founder and CEO nicoleboice instagram.com/p/BZIc2pBH1e4g…
So honored to meet the @WeCarryKevan team ❤️#neverstopchasinglife instagram.com/p/BZIa2xgHjmEc…
Chasing Life Project retweeted
Live at the #2017GGtribute as @stephricemusic performs pscp.tv/w/bIyiwzF6WUti…
Celebrating the Champions of Hope Gala @GlobalGenes
Attending the RARE Champion of Hope Awards #2017ggsummit instagram.com/p/BZFS0uLls1b/
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Professor Lara Bloom @LaraBloom
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Stephanie Fischer @RarePOV
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HODA @HODAssoc
22 Followers 68 Following Hypertrophic Olivary Degeneration Association official Twitter account
Brian Holmes @BrianHo23961173
65 Followers 923 Following Looking for the 4/11 Field Artillery Regiment, contaminated in 1993!
United Porphyrias Ass... @UnitedPorphAssc
180 Followers 288 Following The Future of Porphyria...Raising Awareness, Research and Therapies
Customer Relationship... @CRM__CRM
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American Porphyria Fo... @Porphyria_Help
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M&B Sciences @mbsciencesinc
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Esther M Saladié @esther_msaladie
35 Followers 217 Following Diversity and Inclusion Advocate #esthermsaladié #reconnectingonlinkedin
karen petitjean @karenpetitjean
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นาย ร้อ�... @O8pi8r34HfkcBNk
92 Followers 1K Following นาย ร้อยตําตรวจโท บัญชาเวช🍐🍏🍊ขยัน.อดทน.ตรงต่อเวลา.รูหน้าที่ของตนเอง.ใฝ่หาความรู้.สู้คุณธรรมกับความเป็นจริง.เป็นคนร่าเริงแจ่มใส.สนุกร่าเริง.รักเพื่อนรักฝูง
ForwardRolling @ForwardRolling
378 Followers 496 Following Helping women obtain leadership positions through the POWER of their Voice. CEO/Founder of VICKtorious|Keynote|BSA|STEAM|Ed. #chronicpain #rare #MGwarrior #EDS
Rachit Shah @Rachitforhealth
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DISORDER: The Rare Di... @DisorderRare
907 Followers 206 Following Two rare disease dads took their films for Menkes Disease and USP7 & built them into a festival for all films on rare disease. https://t.co/Qjsl21HRH4
Putting RDPF! @PuttingRDPF
1K Followers 2K Following We are a non-profit that provides eactionable information on clinical trials and drug development to patients with rare diseases. #rarediseases
Axenfeld-Rieger Found... @Axenfeld_Rieger
160 Followers 696 Following Our mission is to find effective treatments for the Glaucoma caused by Axenfeld-Rieger Syndrome, which occurs as early as infancy & childhood.
Christy Greeley @ChristyGreeley
517 Followers 2K Following Rare Disease Advocate. University of Michigan Public Health. Mom to two of the best. Views are my own.
Sheila M. Stefhon @sweet_pea_315
909 Followers 5K Following
Smith-Kingsmore Syndr... @SmithKingsmore
242 Followers 381 Following Smith-Kingsmore Syndrome is a rare genetic disease. We are committed to improve quality of life through medical advancements and community support.
steven strouth @StrouthSteven
89 Followers 4K Following Steve ( old boy) strouth smoking in Baltimore ☠️PSALM 23 am I evil yes I am☠️ I am a Democrat😀
Children's Music Fund @theCMForg
615 Followers 730 Following 🎵 #Musicheals! 🎶 CMF is a nonprofit organization that provides #MusicTherapy to children with chronic conditions or life-altering illnesses.
Tara Parham @TaraParham
1K Followers 3K Following Once blind, daughter of USMC #VietnamVet #AgentOrange #COVVHA triple #RareDisease #AvascularNecrosis #IntracranialHypertension #IIH #InterstitialLungDisease
Blue Collar Rauisuchi... @BlueRauisuchid
44 Followers 822 Following husband, father, Teacher scientifically responsible Christian, History fan,Earth Science , Mechanic, Rare Disease advocate, dog lover,
Pain is no gain @Bjdiazntx
630 Followers 810 Following Living life the best I can! I am a Intractable Pain patient with in curable rare disease. Advocating for CPP Suffering due to governments injustice!
Julie Comperchio @JulesC2022
1K Followers 5K Following #Raredisease #Biotech Exec #Raredisease #Momvocate #speaker #health-equality activist #medical implicit bias fixer #LC MomX3 Proud #CSU Mom #GoRams
Julianna Kustelski @JuliannaKustel1
6 Followers 288 Following
DrPasEle @DrPas84Ele
2K Followers 5K Following Communication | Advocacy | Policy | #Neuroscience #PhD | Founder n President of #RareSpecialPowers | #rarediseases | #pinksocks | Own views
Danny's Dose @dannys_dose
522 Followers 2K Following Campaign to change Emergency Treatment Protocols in every state for over 32 million Americans requiring specialized care. (501C3)
JenAside @jenandtonicCo
629 Followers 5K Following
Believe*in*Yourself�... @Allisonisme1323
2K Followers 5K Following I🩶ANIMALS!Chronic illneses/pain/MH/Abuse changed my life.Eminem,NF,TOP,LP/COYS,Blazers,NOP,Sounders & Seahawks.💞Be kind & support others✌️Smile & Live happy!
Pulmonary Fibrosis Wa... @PFWarrior
3K Followers 3K Following PF Warriors, a support network that provides education, inspiration, & hope to those living with pulmonary fibrosis.❤💙
CdLS Foundation @CdLSFoundation
1K Followers 963 Following Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.676.8166 #raredisease #cdlsawareness
TheRareFair @therarefair
737 Followers 765 Following Powered by @tda4rare, The Rare Fair is the original virtual event designed for all members of the rare disease community. https://t.co/m4Ar9Fuzkl
Jane Hartman Adamé @AdameJane
354 Followers 1K Following Mom. Inventor. User researcher. Future gynecological trivia winner. (Then add “disabled” to the front of all of those)
Dr Felicity McGeown @mckee_felicity
1K Followers 2K Following Trustee for @DiscoverySVS Consultant with @ChangeDisabled She/They RT≠endorsement
Marc Yale @MarcYale
833 Followers 1K Following Advocacy & Research Coordinator, International Pemphigus and Pemphigoid Foundation, #RareDisease Patient, Passionate Advocate and Father. #pemphigus, #pemhigoid
Pro Bono Omics @ProBonoOmics
335 Followers 1K Following A journey to assist with rare disease challenges offering nil cost advice using computational modeling targeting personalized medicine for those in need.
Jeanette Sealy @jeanette_sealy
119 Followers 292 Following Jeanette is a Yoga Therapist, Ayurvedic Doula, and Massage Therapist offering contemplative healing practices and education for health and happiness.
Carol J. Dickerson, P... @RCSFounder
599 Followers 3K Following Founder & CEO @RareChannels / Visionary / Thought Leader #RareIsDifferent #SpectrumOfConnections #ConceptToCure #BeFound
NFSD #sällsyntaliv @NFSDse
1K Followers 3K Following Ågrenska har under åren 2012-2018 drivit Nationella Funktionen Sällsynta Diagnoser på uppdrag av Socialstyrelsen inom området sällsynta diagnoser.
Relapsing Polychondri... @RP_Organization
1K Followers 2K Following The RP Foundation’s purpose is to facilitate awareness, education, and research to improve the quality of life for patients with relapsing polychondritis (RP).
Juanita Parsons @cutzeemomma
158 Followers 770 Following Director-AP/Staff Devel #MarshallU, proud momma to MU alumna; chapter advisor to #MU_TriSigma; Rare disease survivor; I can and I will!
Hope the Zebra @hopethezebra
500 Followers 407 Following Bringing the rare disease community together by sharing Hope, laughter and support. [email protected]
doctweets @doctweets3
51 Followers 668 Following A doctor, willing to provide helpful medical information to the ones who need!
Optio Biopharma Solut... @OptioBiopharma
104 Followers 344 Following Specializes in providing biopharmaceutical companies with comprehensively experienced marketing and strategic commercial support.
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
Stephanie Fischer @RarePOV
7K Followers 5K Following #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.
Rare Disease Day @rarediseaseday
42K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Wakefield HS @WakefieldHS
3K Followers 1K Following Wakefield HS official Twitter. Its all about the W! Facebook: https://t.co/hkY2592GwC Instagram: https://t.co/7SvVtZsyDZ
Nick Cannon @NickCannon
4.3M Followers 6K Following @NickCAtNight @dailycannonshow @counselculture_ @cannonsclasstv @bigdriveshow MR. NCREDIBLE aka THE KING of RAW&B
Howie Mandel @howiemandel
743K Followers 11K Following Check out my podcast, Howie Mandel Does Stuff!
America’s Got Talen... @AGT
987K Followers 4K Following ✨two minutes can change your life✨ #AGT is streaming now on @peacock
Evie Clair @evieclair
23K Followers 610 Following mom, recording artist, singer, pianist, songwriter
Angelica Hale @angelicahale
62K Followers 378 Following Artist🎤🎶🎹 AGT Runner-up🥈@agt ‘17🇺🇸 #AGTChampions Finalist🏅 SAG-AFTRA🎙Actress🎞 KidneyXplant & Sepsis Survivor🌟 ParentsRunAcct💖[email protected]
Vipin_Singh_Rajput �... @VipinSinghvns
393 Followers 1K Following EE@JIET @ BHU I Sustainability I Eco Friendly lifestyles I SmartTech I GIS I GreenEnergy I Greenpreneur I Awareness Humanity_Eco Healing♻ Nexus strangest ever!*
Sparsh Shah (Purhythm... @SparshPurhythm
4K Followers 960 Following Singer/songwriter/rapper/inspirational speaker/Guinness World Records Holder. Has OI (150+ fractures), but an unbreakable spirit. Watched by 2 billion+ people!
Simon Wheatcroft @andadapt
3K Followers 743 Following Storyteller, technologist, adventurer, inclusivity consultant. For speaking enquiries check https://t.co/frkwxcn6aX
kikosys @kikosys
198 Followers 200 Following
Patti M Hall @PattiMHall
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nicoleboice @nicoleboice
1K Followers 2K Following Founder RARE-X and Founder/Former CEO of Global Genes #CareAboutRARE #raredisease. Opinions are my own.
Rare In Common @RareInCommon
860 Followers 456 Following MANY VOICES. ONE MISSION. A user-generated short-film about the inspiring people in the rare disease community — Rare in Common.
Shine Light @shineonrare
835 Followers 744 Following The Founder is Sika. She's a marketer, fundraiser, and works at Travere. She's her Sister's sister. Views shared here are her own.
WeHealth @WeHealthNews
935 Followers 2K Following Putting patients at the forefront of health outreach, advancing scientific advancement and promoting equitable healthcare for all communities ✨
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Your Holistic Solutio... @MartinFleming13
344 Followers 1K Following Life, Business, Health, Success & Ability Coach in. Helping people to achieve their goals and potential, to help disabled people believe in their abilities
Star Squires @StarDeSoul
788 Followers 4K Following 🦓MOM💞#Advocate🎤#Vocalist👽#Research🔬#RareDisease🧬#Genomics #PRIONS #SPOONIE #TBI #CTD #EDS #GP #POTS #Dysautonomia #Autism #TestDontGuess #ZebrasOnParade✌️
Cushing's Survivor @ACushieLife
108 Followers 146 Following I am a Cushing's Disease survivor. My hope is that by sharing the ups and downs of my journey, someone else may feel not so alone.
DivinitySkyy Duchemi @DivinitySkyyDu1
202 Followers 195 Following 13 years old/ likes girls/also a huge Jason Michael Miller fan
Mark D Pritchard @MarkDPritchard
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Cure Tay-Sachs @_CTSF_
88 Followers 1 Following Dedicated to funding ongoing research needed to find treatments & a cure for Tay-Sachs Disease. Hereditary, neurological, degenerative. https://t.co/y8wygEhm9c
Becky Warren • Demo... @Smee81
1K Followers 3K Following 🙏🏼 Working to cure #TaySachs & #AlliedDiseases. @_CTSF_. JUSTBELIEVE in a cure! Love family (includes Hickory Belle, my cat), sports, Barack Obama, tech. ♿
HPS Network @HPSNetwork
1K Followers 2K Following Hermansky-Pudlak Syndrome, a type of albinism that causes low vision as well as a bleeding disorder. It can cause a Crohns-like GI problem/pulmonary fibrosis
Marissa Mclaughlin @marissamclaugh
84 Followers 864 Following Just your average book huggin',screen lovin',musical theatre kid just rollin' through life on her own two wheels.| TikTok and Tumblr: marissamclaugh
Carrie Ostrea, MBA @RareDiseaseAdv
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rareLife solutions @rarelifetalks
688 Followers 530 Following building custom communities with integrated knowledge libraries
Agility Clinical @AgilityClinical
335 Followers 581 Following Clinical development experts with a special focus on rare diseases. Now part of Precision for Medicine ORD
🌊 JourneyOfAJellyf... @innerjellyfish
203 Followers 521 Following Girl’s journey living with a rare, neurogenic disorder, chronic pain, Celiac & POTS #spoonie #raregenetics #resist #activist #goodtrouble #activism #resistance
Nina Dobrev Fans @ElenaDobrev__
188 Followers 992 Following #Arrow #Olicity #TheFlash #ChicagoFire #ncisLA #Supernatural #FiftyShadesDarker #Teenwolf #StephenAmell #EmilyBettRickards #DavidRamsey #OTA #Supergirl
Ashley Blankenship @Ash_Blankenship
824 Followers 156 Following LA/NYC -actress/model/life lover -let your light shine Instagram&snapchat : @ash_blankenship
bass/casting @basscasting
18K Followers 431 Following bi coastal casting+production office - feature film/tv/theatre
Chris ♔ Giovanni @chrisgiovannii
6K Followers 689 Following Hollywood Talent Manager | CEO @CGEMTalent Romans 8:28
cgem talent. @CGEMTalent
14K Followers 874 Following Official Twitter of #CGEMTalent. 15 Years of Representing, Booking, and Publishing Stars in the Entertainment Industry.
Emily @lilbithuntstx
235 Followers 2K Following I'm a 33 yr old mom to a MPS Warrior! I love penguins and cheese.
Sickle Cell Partners @sicklecellpartn
2K Followers 135 Following Founded in 2009 to support patients and families affected by Sickle Cell Anemia; to raise awareness and educate the community; and to advocate for a cure.
PSR Orphan Experts (n... @PSRorphan
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Sickle Cell Awareness... @SCAGOSCD
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R.M.C. Inc @RMCAwareness
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Sam Falsetti @DrFalsetti
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ProjectVision @projectvisionhq
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SCDAC @sicklecellca
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PKUnity @PKUnity
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