Chronically Film @ChronicallyFilm
Movies and ME. #mecfs She/her. chronicallyfilm.wordpress.com Joined March 2018-
Tweets124
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Followers79
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Following175
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Likes233
Got a phone call from an unlisted number saying that my name was selected by a big machine and I am therefore responsible for picking the next Batman. This is how they do it every time apparently. If I abdicate the duty I get a tax penalty. Anyway I'm choosing Stanley Tucci
.@MikeAmesbury As your constituent, I hope you are attending and voting at the #MEdebate on January 24th. 385 #pwME in your constituency are missing from their lives. Their carers, families and friends want them back! #MillionsMissing #MyalgicE #UKParliament
Excellent subtitle error as Michael Gove winds down no confidence debate. #batman #jeremycorbyn #NoConfidenceMotion 🦇
Ooooooooooohhhhhh 😍
He was a visionary. She made him a star. Sam Rockwell is Bob Fosse. Michelle Williams is Gwen Verdon. @FXNetworks’ new limited series, Fosse/Verdon, is coming in April. #FosseVerdonFX
Wheelchairs are not luggage. They're an extension of the users body, just the same as a prosthetic limb. Blatant #ableism, yet somehow it's perfectly legal. As an aside, if Usain Bolt was treated like that, there would be a media frenzy.
Absolutely disgusted with @qatarairways @British_Airways. Travel agents got permission to travel our wheelchairs on the flight, got to check in and told they won’t take it without a £700 extra charge, as our wheelchairs are classed as baggage too!...
I am not wheelchair bound. Without my #wheelchair I cannot work or socialise, & I am house bound. I am limited not by the wheelchair, but by others' false perceptions & unwillingness to be #accessible. I am liberated by my wheelchair; I am #wheelchairUnbound. ♿
@WheelsofSteer Wonderful! You look beautiful! So does your walker! Huge congratulations. X
Can I divorce my chronic illnesses on the grounds of irreconcilable differences because it's really not working out between us.
"We are not cargo, we are people." This is beyond infuriating and insulting, this is dangerous and should be criminal.
New fad diet: only eat things you can sing to the tune of “Alexander Hamilton”
I’m really enjoying the season finale of The UK.
Petty detail but circumstances of Esther McVey’s resignation are galling. She got to resign as if a principled stateswoman - when she should have been kicked out on her arse as a liar inflicting misery on the poorest and disabled.
Sonough @Sonoughwux
17 Followers 501 Following
Sophie C @SCLifeThruALens
556 Followers 1K Following #MyalgicE - #MEICC #SevereME #MyalgicEncephalomyelitis
Susannah H @firebug70
2K Followers 5K Following Mum. Carer for my son. Former English teacher. Researching bacterial and viral infection &symptoms #Lyme #ME #LongCovid #Pandas #Pans #Bartonella #Convalescence
dSavannah = #disabled... @dSavannahCreate
3K Followers 3K Following #spoonie FT sick since 12/2014 #ChronicFatigue #ChronicPain When brain & body behave: #blogger & #advocate #DogCatTurtleWrangler #wife #feminist she / her
Monica Santese @dragonflymsngr
229 Followers 745 Following Scientist | Trainer | Marketing | Cook | Reiki ❤ Dragonflies. 🌻 We can endure much more than we think we can! ~ Frida Kahlo *views are my own*
Salus Fatigue Foundat... @Salus101
459 Followers 2K Following Salus Fatigue Foundation is a not for profit organisation that provides support, education and help to inspire people living with fatigue related conditions.
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF
Rachel Ann Barker @rachelmaxfield5
36 Followers 172 Following Im currently struggling through life with M.E/CFS and fibromyalgia. i have a daughter and 2 wonderful step children and a lovely husband
Pam Laird @Pam
1K Followers 374 Following Fighting for women's health equity, #MEAction board, #MillionsMissing, #pwme
BrainlessBlogger🧠 @brainless_blog
3K Followers 2K Following #Blogger and #Writer- I blog about #fibromyalgia, #chronicmigraine and living with #ChronicPain and #ChronicIllness Book: https://t.co/0BRxz30Re4 she/her
Heather @spoonie_strong7
1K Followers 3K Following Resist Facism. Support Kindness. Spread Hope. #resistance #dontobey #thinkforyourself
Fleur Duivis @Fleurtje_Eliza
936 Followers 3K Following Fellow human being. Meditating my butt off, while struggling with ME. https://t.co/tpCOC8EoBW
Bionic Man @fourstriper
245 Followers 3K Following Sufferer of iatrogenic Severe Myalgic Encephalomyelitis.Lover of Aviation/Aerospace.Civilian Pilot.Was chosen to be a 🇨🇦NASA Shuttle Astronaut! In bed 25 yrs!
Sunrise enlighten @SunriseME2
255 Followers 392 Following Missing life since 2015 due to #ME from being a mum/grandma/daughter/friend/productive worker/driver/ballroom & latin dancer #MILLIONSMISSING #CanYouSeeMENow
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Megan Jenkins @life_from_a_bed
183 Followers 279 Following Love to hear from friends old & new - excuse slow reply; v. ill with M.E (for years). Although it confines me, it doesn't define me - more to me than M.E! 😀
Anna (please boost pi... @halcionandon
3K Followers 7K Following ‼️NEED SAFE HOME ‼️🏡 Diary of ongoing abuse & trauma Inquiring mind derailed by chronic illness #SevereME #LongCovid #Endometriosis #ChronicPain more
#ThisIsM.E. @ukthisisme
89 Followers 93 Following #ThisIsME is a multi-platform campaign raising awareness for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME/CFS). DM us to be featured.
Beautiful Exhaustion ... @SleepIsPretty
613 Followers 4K Following This account is to document my journey w/CFS.ME.🌷 Poet. NW Native. | Memories interwoven in my tweets.| Chronic Pain. Chronic Fatigue.|
Art on a Mission @ArtMission
480 Followers 878 Following All proceeds from our store support people with #MyalgicEncephalomyelitis. Special orders, #art & #photography donations welcome. [email protected]
Olivia Fitch @livwithhope
338 Followers 176 Following I’m Liv :) I use this account to advocate for the #MillionsMissing b/c of #MyalgicEncephalomyelitis. Calling for equity, research & funding. Fighting for hope.
Ruby @RubyIsGrowing
503 Followers 1K Following Growing fruit, veg, and a sense of balance. I’m more fun than that sounds
Rochelle @rjoslyn
947 Followers 3K Following Immunologist, Recovered & relapsed #MECFS patient, Wife of @mattklein123, Mom, Seattleite, Feliphile #pwME #MyalgicE #MyalgicEncephalomyelitis
A Life Suspended by M... @b5field
2K Followers 3K Following Amplifying the voice of Canadians living with ME while advocating for treatment access, appropriate medical care, & equitable research funding spanning decades.
Sick Tips and Tricks @HowToBeSickTips
262 Followers 264 Following A #podcast for folks with new onset #disability or #chronicillness, of all the things no one thinks to tell you beforehand. Produced by @ladypoetess
SickShare @Sick_share
703 Followers 4K Following Free social networking app that connects patients and families experiencing similar medical conditions. 📱 Download our app, available on iOS and Android! 👍
Suzan Jackson @livewithmecfs
4K Followers 3K Following Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.
Marie LeBlanc @humanendangered
1K Followers 5K Following Disability Artist/Advocate #overdressed #marieleblanc #leblancoverdressed #WHOsaysweneedfreshair #MCS #IlluminateCanadaYellow
Karen Denmark @kmdenmark
2K Followers 3K Following Maternity RN ‘til #mecfs arrived. #MEpedia. Tried #Ampligen. #Abilify is helping. USAF Nurse Corp vet. Mostly tweet ME CFS news. Joined Jan 2015
Hannah Pearl @HannahPearl_1
1K Followers 2K Following Bookworm, wife and mum. Always exhausted, never bored. #pwME Books with Choc Lit/ Ruby and Heatseeker winning short story available now.
Phoebe Boag @PhoebsBo
3K Followers 3K Following Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. She/her.
Geoff 💙 @geoffers1967
2K Followers 3K Following Bit poorly. Campaigning for ME Research/Awareness. Music ⭐️ Films ⭐️ Sport ⭐️ Comedy ❤️ Nieces ❤️ Animals ⭐️ Spurs ⭐️ Thomas Dolby ❤️ Janey ❤️
A Journey Through the... @JourneyFog
4K Followers 2K Following Jo Moss. #MECFS, #Fibromyalgia and #MentalHealth campaigner. Loves #music & playing #guitar. https://t.co/EYGdMlzvSM. Blog; A Journey Through the Fog.
mandy @MandyBrownlow
886 Followers 718 Following Mum, wife and spoon life! PWME, Fibromyalgia, diagnosed with ME /CFS since January 2018 , suffering since 2012 Powered by cold water therapy since March 2021
Sian L @SianGotME
860 Followers 806 Following Advocate with @WorldMEAlliance & @DecodeMEstudy. ME since 2013. Lover of birds, spreadsheets, and graphic design. || She/her
Chronic Illness Inclu... @chronicinclude
4K Followers 4K Following We are a voice for disabled people with energy limiting conditions and chronic pain. Join Us https://t.co/nUFz5xUJ0W
A Chronic Voice @AChVoice
19K Followers 14K Following I share #ChronicIllness, #ChronicPain & #disability info fr VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #MentalHealth
Jade Thomson @JadeThomson17
2K Followers 3K Following M.E severe sufferer, fibro & lyme disease patient. Love all my family and my pooch. Love music, films and chocolate. My son is my world #nevergiveuphope
BeckyH @Beckster_2
1K Followers 5K Following Prof Mella @Invest_in_ME #IIMEC12 Quote "#mecfs is in blood not btw the ears" Muscle cells grown in pt serum = abnormal lactate #metabolism.
Diary of a Disabled P... @WheelerDax
15K Followers 3K Following M.E, Endometriosis, depression, powered wheelchair user ♿ Bisexual non-binary (they/them). @WheelerDax.bsky.social
Jamison Hill @NotTheWhiskey
30K Followers 24K Following No, not like the whiskey | Writer | Bylines: @NYTimes @LATimes @WashingtonPost | Disability & Chronic illness (#MECFS #Lyme) Advocate
Lili Bell @LiliBell84
821 Followers 2K Following ME 21ish yrs, Autistic. I’ll always give a hug to anyone who needs one 🫂.
Charles Turner @kafkaboots
1K Followers 4K Following Losing my life to a contested illness one day at a time. Deep af
Lucy Ainsley @Mummy2rascals
259 Followers 710 Following
Samantha Jones @ozhypnotherapy
8K Followers 8K Following North Shore & City Hypnotherapy #Sydney #Australia~ Clinical #Hypnotherapist & #Counsellor #hypnotherapy, #hypnosis #NLP & #counselling #Online #worldwide f2f.
albert samuel @alberts87973578
10 Followers 147 Following
Ruby @RubyIsGrowing
503 Followers 1K Following Growing fruit, veg, and a sense of balance. I’m more fun than that sounds
Natasha Lipman @natashalipman
5K Followers 448 Following Host of The Rest Room Podcast. Journalist (former BBC) writing about chronic illness on Substack. Content Lead @visible_health. Learning German.
Alice Wong @DisVisibility
47K Followers 745 Following Created by @SFdirewolf. Disabled oracle. Editor, DISABILITY INTIMACY pre-order https://t.co/Yth6IK1ZCZ Available April 30, 2024
David Williamson @theirishego
4K Followers 2K Following 2020 Shaw Trust #Power100 - #30in30 - 30 maras in 30 days - Pride of Britain & 4x NDA nominations - 4x DSotY awards - Service to Sport award - not a salamander
Charlotte @thebeddays
473 Followers 145 Following Hey 👋🏻 I'm Charlotte, I've been chronically ill & disabled for 6 years. Wheeling through life. #MillionsMissing #AmbulatoryWheelchairUsersExist
wigglethemouse @wigglethemouse
892 Followers 140 Following 49ers and Swindon Town supporter. Engineer. #mecfs has got in the way of having a life
Sick Tips and Tricks @HowToBeSickTips
262 Followers 264 Following A #podcast for folks with new onset #disability or #chronicillness, of all the things no one thinks to tell you beforehand. Produced by @ladypoetess
Suzan Jackson @livewithmecfs
4K Followers 3K Following Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.
MalkaG on Bsky 💙�... @Malka_G
595 Followers 1K Following Freelance communications specialist, editor, writer, advocate. Thoughts are my own, RTs ≠ endorsements.
Karen Denmark @kmdenmark
2K Followers 3K Following Maternity RN ‘til #mecfs arrived. #MEpedia. Tried #Ampligen. #Abilify is helping. USAF Nurse Corp vet. Mostly tweet ME CFS news. Joined Jan 2015
Alistair Broomhead @theheadofabroom
415 Followers 416 Following Disabled pythonista, automator of things, knitter, PS5 nerd& general geek. Cishet He/Him. #NotJustTired #MyalgicEncephalomyelitis #pwME #spoonies 🛌♿🥄🇬🇧 🇪🇺
Ruth Braham 🔥 @RuthBraham
274 Followers 468 Following Revolutionary socialist in the UK, bedbound by ME. she/ her
Karen Radenkova @laradenkova
830 Followers 686 Following artist, partner, keen archaeologist,mother and baker of cakes! Carer of daughter with M.E. for 12years, housebound for 10 of those years.
Phoebe Boag @PhoebsBo
3K Followers 3K Following Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. She/her.
#SpoonieProblems @spoonieproblem
6K Followers 5K Following Short quips about living with a chronic illness. #SpoonieProblems #Spoonie | Not associated with bydls. Pro-Vaccine
mandy @MandyBrownlow
886 Followers 718 Following Mum, wife and spoon life! PWME, Fibromyalgia, diagnosed with ME /CFS since January 2018 , suffering since 2012 Powered by cold water therapy since March 2021
A Journey Through the... @JourneyFog
4K Followers 2K Following Jo Moss. #MECFS, #Fibromyalgia and #MentalHealth campaigner. Loves #music & playing #guitar. https://t.co/EYGdMlzvSM. Blog; A Journey Through the Fog.
Samantha Renke @SamanthaRenke
17K Followers 2K Following My book is out now! athttp://smarturl.it/SlicedBreadBook Broadcaster / Actress / Columnist / Author / Podcast Host / Speaker / Consultant
Jack Croxall @JackCroxall
9K Followers 357 Following Sci-Fi author || Read a free interactive story via my Linktree!
Jeannette Burmeister @JKBurmeister
3K Followers 699 Following Attorney (California, formerly licensed in Berlin, Germany), successfully sued NIH + HHS for ME-related FOIA violation (incl. all of $140k attorneys' fees)
Jo Cienfuegos 🔥 @Jo_Cienfuegos
438 Followers 350 Following Once a historian, a fire artist and a political activist... Now caregiver for my love @me_perspective who is severly ill with #MyalgicE. Co-Chair @SGME_CH
EndMECFS @EndMECFS
948 Followers 173 Following Caregiver for husband. Navigating the rough waves of ME/CFS and hoping for an end to the disease soon.
Olivia Fitch @livwithhope
338 Followers 176 Following I’m Liv :) I use this account to advocate for the #MillionsMissing b/c of #MyalgicEncephalomyelitis. Calling for equity, research & funding. Fighting for hope.
ClairME @ClairME_
855 Followers 372 Following ♿️ #pwme Dying very slowly from progressive #SevereME, so mostly reposts. Positive thinking didn't heal me! Can't live til there's a cure. #MillionsMissing
BeckyH @Beckster_2
1K Followers 5K Following Prof Mella @Invest_in_ME #IIMEC12 Quote "#mecfs is in blood not btw the ears" Muscle cells grown in pt serum = abnormal lactate #metabolism.
URevolution @uncomfortablism
2K Followers 702 Following URevolution® is an independent disability-led media, lifestyle, and e-commerce brand challenging how disability and chronic illness are represented.
BrainlessBlogger🧠 @brainless_blog
3K Followers 2K Following #Blogger and #Writer- I blog about #fibromyalgia, #chronicmigraine and living with #ChronicPain and #ChronicIllness Book: https://t.co/0BRxz30Re4 she/her
A Chronic Voice @AChVoice
19K Followers 14K Following I share #ChronicIllness, #ChronicPain & #disability info fr VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #MentalHealth
Annie Segarra @annieelainey
23K Followers 722 Following Content Creator, Activist— Queer, Disabled (Ehlers-Danlos & co), Latina/x (She/They) 🏳️🌈♿✊🏾 #TheFutureIsAccessible
The Deaf Passenger @deafpassenger
931 Followers 1K Following Advocate & advisor for Deaf & Disabled Rights in public access, travel & fire brigade services | #101DeafProblems (she/they) 👩🦼🦻🏳️🌈🧡🇲🇽🇬🇧❤️🏳️⚧️🇵🇸
ScooterGirl Campaign @CampaignScooter
474 Followers 147 Following Started by comedian Tanyalee Davis. For anyone with ANY KIND of disability that would like to share their transportation horror stories in the UK
Diary of a Disabled P... @WheelerDax
15K Followers 3K Following M.E, Endometriosis, depression, powered wheelchair user ♿ Bisexual non-binary (they/them). @WheelerDax.bsky.social
The Road Back to Emma @theroadbktoemma
21 Followers 131 Following Practising self care and sass as I get my confidence back. Living with chronic illness and anxiety. Self acceptance. Trash TV junkie.
Kelly ASC hEDS ME �... @Kelly_Denning21
144 Followers 254 Following Interested in: social justice/fairness, Autism, food as medicine, functional medicine, Su Doku, organising, categorising, collating, recycling.
Clare @SmilingClare
2K Followers 1K Following ME since 2005, POTS & hEDS #OUGraduate Often found with my Yorkie X, knitting, laughing, blogging or reading
Mookpixie ✨ @mookpixie
2K Followers 734 Following Mostly horizontal due to the unholy trinity of ME, PoTS, and FM. She/they.
Melissa @SpoonieCult
4K Followers 2K Following Leading ourselves through the illness & ND experience. Hi I’m Melissa. Comedian to some. Total drag to others. 🧟♀ Uniquely human & neurodivergent. 😘
dSavannah = #disabled... @dSavannahCreate
3K Followers 3K Following #spoonie FT sick since 12/2014 #ChronicFatigue #ChronicPain When brain & body behave: #blogger & #advocate #DogCatTurtleWrangler #wife #feminist she / her
Tom Kindlon @TomKindlon
16K Followers 627 Following With ME 37 years (32 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 29 yrs
Jennie Spotila @jspotila
2K Followers 374 Following Writer/ME Activist. We are more than our disease.
Samuel Taylor-Bearman @sb14121991
556 Followers 2K Following I’m a Husband to the inspirational @jayletay & a Father to our beloved children Felicity & Rupert Taylor-Bearman. #Family #MillionsMissing
Janet Dafoe @JanetDafoe
17K Followers 231 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Jacqz🇦🇺🇬🇧... @MEwarrior_au
2K Followers 2K Following ME advocate longing for a cure, or some form of treatment. Mum of 3, grandmum of 3. Lived with the horrendous & disabling disease ME (not CFS) for 31 years.
Victoria @VictoriaNoelte
153 Followers 72 Following MECFS patient. I include a daily dose of laughter as part of my treatment. I long for the day to walk freely and get back on my bike. VEGAN
dov @DovZeller
1K Followers 4K Following He/him. Founder of Tiny Golem Press, author of The Right Thing to Do at the Time & Book of Hats. #queerwriters #disabledwriters #pwME #homeboundphotography
Tina Rodwell #TeamPat... @TinaRodwell1
3K Followers 3K Following They called us activists 🤦♀️ I wear that slanderous name calling with pride for all the #MEheroes out there Fighting for my #MEhero son #TeamPatient💚













