Susannah H @firebug70
Mum. Carer for my son. Former English teacher. Researching bacterial &viral infection &symptoms #Lyme #ME #LongCovid #Pandas #Pans #Bartonella Gloucestershire Joined December 2013-
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Susannah H retweeted
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Susannah H retweeted
We supported this powerful @guardian piece on Milly’s fight for a Lyme diagnosis. Her story shows why the UK urgently needs better testing, awareness & research. Read here theguardian.com/world/2025/sep… #LymeDisease @patrick_barkham
Susannah H retweeted
When most people think of being sick, they think sickness =recovery. Colds, viruses, maybe even surgery. A few days of inconvenience while the body fights it off and then it’s back to normal. They don’t realize that some sicknesses never end. Sometimes the body doesn’t heal.…
Susannah H retweeted
Dr Arif shares 'best' phrases that 'make doctors listen to you' Thanks @DailyMirror for sharing my online educational videos- hope this helps many more people who are navigating the healthcare system mirror.co.uk/news/health/it…
Susannah H retweeted
This is the story of my daughter Milly & Lyme Disease. There was no rash, no "summer flu", NHS blood tests negative. And she's been ill for a quarter of her life. theguardian.com/world/2025/sep… Thanks @UKLyme @LymeResourceCtr for raising UK awareness. NHS must take this more seriously.
‘As my daughter got sicker and sicker, our quest for answers dragged on,we didn’t know then, her body was being invaded by an insidious bacterium, Borrelia burgdorferi, hides in connective tissue, confounding immune systems, Milly had #Lyme disease theguardian.com/world/2025/sep…
Susannah H retweeted
'Unbelievable pain and suffering': How a common throat infection can rewire children's brains bbc.com/future/article… via @BBC_Future #Strep #Pandas #throatinfection
Susannah H retweeted
It was always a lie that covid doesn't affect kids. Emergency room covid presentation by different age groups. Arrow pointing at 5-14s.
Susannah H retweeted
There’s still very little recognition of Pans Pandas. It can be a very lonely and frightening journey that many family members & friends just don’t understand. It is an illness - 🧠 inflammation triggered by a Virus &/or infection society needs to acknowledge this & offer support
There’s still very little recognition of Pans Pandas. It can be a very lonely and frightening journey that many family members & friends just don’t understand. It is an illness - 🧠 inflammation triggered by a Virus &/or infection society needs to acknowledge this & offer support
Susannah H retweeted
This is a powerful message from a registered charity. Please share it widely on as many platforms as you’re able.
Susannah H retweeted
#Research Impact of COVID-19 infection on the sleep of infants and toddlers Conclusion: Our findings demonstrate that COVID-19 infection causes significant and prolonged disruptions to sleep architecture in infants and toddlers pubmed.ncbi.nlm.nih.gov/40993557/
Susannah H retweeted
The gut microbial composition is different in chronic fatigue syndrome than in healthy controls. nature.com/articles/s4159…
Susannah H retweeted
In med school, I learned that Huntington's disease was one of the most devastating inherited conditions. It caused progressive neurological decline, starting around age 30. There was no treatment. Now, Huntington's has been treated for first time. This is why we fund science.
Susannah H retweeted
Susannah H retweeted
New PANS PhD studentship advertised. Competition will be fierce, 30 projects offered, only 8 scholarships available. We will need a very good applicant! medsci.ox.ac.uk/study/graduate… . #PANS #pwME #LongCovid #lyme
Susannah H retweeted
We warned about thrombotic endothelialitis, microclotting and platelet hyper-activation since the start of the pandemic. We provided the evidence: look in the blood. If you had Covid, you are at risk. With every new infection you are at risk to develop LongCOVID.
We warned about thrombotic endothelialitis, microclotting and platelet hyper-activation since the start of the pandemic. We provided the evidence: look in the blood. If you had Covid, you are at risk. With every new infection you are at risk to develop LongCOVID.
Susannah H retweeted
New research highlights the power of two #bioflavonoids, nobiletin and eriodictyol, in protecting the brain from inflammation caused by the #COVID spike protein and the mold toxin ochratoxin A. ✅ Ochratoxin A & Spike Protein exposure triggered high levels of inflammatory…
Susannah H retweeted
Susannah H retweeted
@tusla Our 6 yo had great attendance. She developed #Pandas from strep. Delays in paediatric medical care due to lack of awareness & lack of clinical guidelines to treat meant she missed more days than necessary. @HMcEntee @CarrollJennifer #SchoolAttendance #PansPandasHour
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Notes to my boy ✉�... @notestomyboy
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