Carrie Kellenberger - MySeveralWorlds.com @globetrotteri
♿️ #Arthritis & #Disability Advocate @spondylitis @TeamFibro ➡️ I write so you can learn about life w #axSpA #Fibromyalgia #ME #ChronicIllness #ChronicPain myseveralworlds.com Taiwan Joined October 2007-
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#MayAwarenessMonth… May always kicked my AS, but it's full of great things: awareness days, radio shows, videos, podcasts, medical conferences, and more! Learn how I prep for #MayMomentum and what's happening during my biggest month of the year! Read: myseveralworlds.com/2021/05/25/adv…
Heat Intolerance in Fibromyalgia & Chronic Fatigue By @thefibromama buff.ly/498r7zl
Register now for the Global Spondyloarthritis Summit, May 3 - 4, to hear Dr. Denis Poddubnyy discuss how AI can open new possibilities for enhanced care and improved patient outcomes for people with SpA. spondyloarthritissummit2024.vfairs.com #spondysummit #spondylitis #axspa #backpain #ai
btw, this is also why I do not agree with the idea that you can't 'see' whether a patient is in pain. When blind, and as I regained my eyesight, I saw the tension in their faces, the changes in their posture, the differences in their reactions, + the changes to their voices
Clinicians are not sufficiently well trained, in general, to make such an assessment so quickly. Pain + disease in general (as you alluded to) change people's faces, postures, and reactions, and reaction time. To try to reduce that to a 3 digit number is...inappropriate
Clinicians are not sufficiently well trained, in general, to make such an assessment so quickly. Pain + disease in general (as you alluded to) change people's faces, postures, and reactions, and reaction time. To try to reduce that to a 3 digit number is...inappropriate
Show your friend your support her by learning about her disease. In all the years I've been sick, a few friends have taken the time to look up what I have. That meant the world to me. Read more: myseveralworlds.com/2020/09/18/how… #ChronicIllness #ChronicPain #Fibromyalgia #ME #arthritis
So many in our community - myself included - have been mistreated, judged, verbally abused and denied proper care that it affects us in myriad ways. It's horrible. It affects some people more than others - esp the ones who don't want to 'rock the boat' So sad for this person
So many in our community - myself included - have been mistreated, judged, verbally abused and denied proper care that it affects us in myriad ways. It's horrible. It affects some people more than others - esp the ones who don't want to 'rock the boat' So sad for this person
@NeuroSjogrens Interesting- mitochondrial damage could explain some of the profound fatigue and overlapping symptoms between Sjogren's and MECFS. Perhaps there are different pathways to mitochondrial dysfunction.
There isn’t always a point to pain. There is no lesson to be learned, besides the body bearing more than you think. It’s not a flex but a horror movie: imagine realizing you can survive, but not escape, a Saw movie.
Today was fun-day! Made drops of cookies & wristbands to #bostonrheumroyalty … what an afternoon to share some purple cheer ahead of #lupusawarenessmonth 💜💁🏻♀️🦋
Surveys of people diagnosed with Sjogrens in middle age find about 1/2 identify symptoms starting in childhood or early adulthood. Sjögrens is not a disease of middle age, it just takes decades to diagnose. We need better tests and treatment.
Surveys of people diagnosed with Sjogrens in middle age find about 1/2 identify symptoms starting in childhood or early adulthood. Sjögrens is not a disease of middle age, it just takes decades to diagnose. We need better tests and treatment.
Extended illness changes you forever. 🥺 #ChronicIllness #MySeveralWorlds #ColdHardFacts
#ToxicPositivity is harmful, folks! You know why #PainPatients fear & mistrust doctors & specialists in general? It’s because of people like this who try to take your validation away." Read: myseveralworlds.com/2022/04/08/uns… #ChronicPain #CPP #DontPunishPain #MedicalGaslighting
1. Optimal Breathing and Relaxation technique, which combines a slow deep diaphragm breathing technique with a visualization. I'll be teaching it again in a few weeks 2. Practice the breathing while reading, watching videos, listening to music, anything that takes up attention
1. Optimal Breathing and Relaxation technique, which combines a slow deep diaphragm breathing technique with a visualization. I'll be teaching it again in a few weeks 2. Practice the breathing while reading, watching videos, listening to music, anything that takes up attention
Via @leeroygood at @FibroBloggers 🎨 📺 📖 What kind of distraction techniques do you use to distract yourself from #fibromyalgia? "Participants in the study experienced the #pain stimulus as less intense when directing attention away from the pain." fibrofiles.blogspot.com/2018/06/using-…
Learn about my international #advocacy work, 15 years of blogging at #MySeveralWorlds, & check out my research articles: buff.ly/3tHxqGB My site helps patients navigate foreign healthcare systems. It's recognized by many health non profits & by readers around the world.
“Overdoing it. Walking too much. Doing too much work around the house. I want to pace all the time, but sometimes my brain thinks ‘Hey we can do this’ and my body is like ‘What the…!'” #PainFlare Triggers buff.ly/3J5OcII @AChVoice #chronicallyill #chronicpain
@doctorORbust Anytime you see a patient with fibromyalgia, you need to look for Sjogrens. People with Sjogrens often spend years misdiagnosed with fibromyalgia. sjogrensadvocate.com/post/sjogren-s…
A Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depression
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Fibro Bloggers @FibroBloggers
18K Followers 9K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFriday
Cynthia Covert, The D.. @TheDisabledDiva
17K Followers 13K Following 🤕My chronic life, 💡lifestyle tools, 🛍 product reviews, & 🏰 Disneyland accessibility ♿️ 💜 Fibromyalgia 💙 Psoriatic Arthritis 💛 Endometriosis
Foreigners in Taiwan .. @foreignersinTW
24K Followers 2K Following We blog to help convince foreigners to come to Taiwan and teach them how to survive here. Run by US expats. 我們是台灣的外國人！我們透過部落格幫助外國人了解怎麽在台灣生存及旅遊！（美國人管理）Tks to Ken
Barby Ingle Official @BarbyIngle
20K Followers 9K Following #AZ State Rep Candidate #LD7 |#PCRC D5, | #IAm #Writer #RareDisease #ChronicPain, #UniversalPetite, Creator of #NERVEmber
𝐓𝐢𝐟𝐟𝐚�.. @TiffanyKairos
7K Followers 4K Following Founder @tenofficial | Epilepsy Advocate | Blogger | Content Creator | All views are my own
International Pain Fo.. @iPainOfficial
24K Followers 12K Following International Pain Foundation (iPain) providing #ChronicPain community resources since Nov 2006 @NERVEmberProj @iPainLivingMag #OurPain #HopeIsTrue #NERVEmber
Ellie53 @SeddighEllie
2K Followers 2K Following just me ,I'll be friendly as long as you are ,if turn nasty ,so will I ,suffer from FM ,here to interact ,life is too short ,#bekind 🚫NO DM 🚫
michaelturton @michaelturton
5K Followers 1K Following Playing boardgames. Writing about Taiwan every Monday in the Taipei Times.
Orkney Fibromyalgia S.. @OSufferer
4K Followers 5K Following Writer, aspiring speaker, blogger, Advocate for Fibromyalgia & Invisible Disabilities. Fibromyalgia, FND & MECFS sufferer for over a decade.
Joanna No Banana @JoannaNoBanana
31K Followers 21K Following Joanna (she/her) 28 Queen of Allergies 👑 MCAS, POTS, EDS & CCI💛 Autistic, ADHD, OCD. PMDD. Check out @allergybeauty for allergy friendly products!
Eileen Davidson - Rhe.. @chroniceileen
4K Followers 2K Following Rants @CreakyJoints Blog https://t.co/ghdlGYZy4h Research Partner @Arthritis_ARC Ambassador @ArthritisSoc Staff @IfAiArthritis Host @Arthritis_SHYVR
Tricky Taipei @trickytaipei
11K Followers 1K Following
☃️☃️Fibro Slo.. @FibroSloth
6K Followers 3K Following Epilepsy fibromyalgia POTs depression anxiety ptsd psoriasis👩🦼love sloths,cats all animals and sea life Halloween.Laughter is the best medicine💕
Cheryl Crow, Arthriti.. @realcc
4K Followers 4K Following ❤️ RA patient and OT helping others live life to the fullest *with* arthritis. 🎤 Arthritis Life Podcast❤️ Rheum to THRIVE self management & support program.
William Yang @WilliamYang120
82K Followers 7K Following Freelance correspondent covering the Greater China region for @voanews. Words in @DWNews, @Guardian and @thetimes. tips and assignments to [email protected]
Andrew Ryan 阮安祖 @thefeast
5K Followers 3K Following Taiwan-based journalist + sound collector • deputy @taiwanplusnews • Fulbright • buttered toast enthusiast • 🌈 • he/him
Arianne @ravensspirit68
14K Followers 9K Following Old soul, creating, hoping, learning. ME/cfs C-spine injury Chronic pain Adenomyosis survivor Married Underestimate me, that'll be fun.🌸💞🌸
Julie Killingworth Ka.. @jmkillingnyc
2K Followers 3K Following 🇺🇦New Yorker #Sarcoidosis #CPP #NarcoticHysteria Incurable Disabled Rare Disease Activist. #CDC #DEA #PROP Suck!
DR.Christopher Jennin.. @Christo51607547
2K Followers 6K Following I'M AN MEGA-ENTREPRENEUR, NORML ADVOCATE, FINANCIAL ADVISOR, ETC... SO BASICALLY I'M APART OF A AMERICAN COALITION FIGHTING TO END THE WAR ON DRUGS PERIOD.
Roxy06 @Roxy_sads
20 Followers 147 Following
Hubei Focus @hubeifocus
2K Followers 3K Following Culture, art, nature, wildlife and stories; here you can see different facets of Hubei and China in photos and short videos
Siri Supports Biden @siristone
4K Followers 3K Following I choose the earth. I choose education. I choose equality. I choose freedom. I choose peace. I choose gun reform. I choose healthcare for all.🇺🇸🇺🇦🇸🇪🏳️🌈
TurningPainIntoStreng.. @MichellesMemoir
253 Followers 460 Following Is pain a part of your life? Contact me! AUTHOR: Turning Pain Into Strength PODCASTER: https://t.co/Ns752TrvdI
Linzi @linzi_mcintosh
369 Followers 5K Following Mother of multiple disabilities including Hypermobility, fibromyalgia, to mention a few. All daughter health struggles. EDS. Autism. Gillian Barre' syndrome
Casey @caseyramsey519
128 Followers 647 Following Music is good for the Soul. I love supporting music. Volunteer for @bbcsi. I’m a liberal. I love spending time with my family and friends.#fibromyalgia warrior
Lea 🐝 @_lea35166
11 Followers 226 Following Postgraduate 2021 📑📚from Life Long Learning Centre at University of Leeds. Will always be a lifelong learner.
Chrissy Gainey @cgainey1671
3 Followers 60 Following
weskchukes @weskchukes
403 Followers 3K Following My aspiration are to incite in each individual the motivation and desire to share your story
Gmar @Gavmarsh86
20 Followers 405 Following
Malin @MalinCastle
7 Followers 50 Following
Lara Crowther @fillthewhole
5K Followers 5K Following BSc, MRes Neuroscience, BMedSci, PhD Med Ed (& life) on hold due to covid caused #longcovid #pots #mcas #adenomyosis #hypothyroid Ex PT & yoga teacher 😷
Loe @LorriNielsen
140 Followers 1K Following
cocoorkiki @cocoorkiki
60 Followers 340 Following
Anoof Peediyak.MD @anoofpp
153 Followers 1K Following Med Director ,Cheif Rheumatologist and Clinical immunologist @ dranoof'sRheumaCare,Sr Consultant Aster MIMS, Entrepreneur,foodie, Hotelier, loves travelling...
🌲🌲🌲 @christinatickle
10 Followers 924 Following 📚🌊🌲artist, booklady, professional driftwood walker, tbtl ten🌲🌊📚
Ariane~I NEED A GI DO.. @arianek
4K Followers 2K Following Co-founder @Textillia! ✂️💕• SFU Geog • Public health/urban planning/web nerd • Sick AF #Sjogrens #Dysautonomia #IatrogenicIllness #IVIG / ♿️🌈🇦🇲🦆🐶🖖📚💌🌿
Dr. Sarah E. Buck @drsarahebuck
1K Followers 5K Following #FirstGen 🩺 D.V.M. = #Veterinarian #WomenInSTEM #Entrepreneur Enthusiast of: #Agriculture 🌎Travel #GenderEquity #InvisibleDisability
Kathy Young @kathyy1
38 Followers 35 Following
rotia @rotia888_aitor
910 Followers 1K Following Author. Interested in History and Education. Retired University lecturer & tutor. Bilingual. Child Psychologist. Dog lover. No DMs.
ddddrrrrittttt @dsrdsr23
40 Followers 243 Following
Linda Palmer @LindaPalme17121
434 Followers 773 Following
Sweetwitch2697 @SweetWitch2697
3K Followers 5K Following Widow, mother & grandmother, Disabled,#ChronicPain🧡,TRUE BLUE💙,Cat lover😸,White Witch🔮🙏🏼,NO MAGA🚫,NO DM'S🚫,NO PORN🚫,#StrongerTogether🌊🌊🌊 💙🇺🇸
Eve @foxhaven333
1K Followers 4K Following To recommend thrift to the poor is both grotesque & insulting. It's like advising a starving man to eat less. It's immoral. Backup acct 👎 Oscar Wilde
ROSE Bradbury 🇬�.. @RosalinaCa1
1K Followers 7K Following WORKING FOR THE INTEREST OF THOSE IN NEED #Nopoverty #EducationForAll and more
Rena @SpicyRena
98 Followers 166 Following
NICK CARTER @Nickcarter4uon
173 Followers 3K Following
KT @atmoonsharp
55 Followers 260 Following I dress myself like a charcoal sketch, my eyes are brown and my hair's a mess.
Wilder Girls @WilderGirls865
12 Followers 109 Following Visit our Etsy store for a little bit of everything from tshirts, sweatshirts, jewelry, candles, and gifts. New items added daily!
ASHSMI @ASHSMI
383 Followers 2K Following work with disabled adults,parent of autistic kids,live with fibromyalgia and asthma
Covid Victims Bereave.. @FearghailEamon
47 Followers 153 Following This account promotes what it wishes. Freedom of Speech is absolute.
Amy Schwiderski @aschwide1993
126 Followers 205 Following Assistant Director of the Center for Academic Excellence and Assistant Professor of Education, Illinois College
TheLittleBrownBearCo�.. @Nannar_Bear
216 Followers 443 Following knitter, small biz owner, Wife, Mum, Nannar and involuntary member of #SBC #fibromyalgia #ME/CFS #Longcovid.
Maria Florinda Loreto.. @mariafloreto
10K Followers 10K Following Multi-genre #writer on @smashwords and @draft2digital #WritingCommunity #writersoftwitter #BooksWorthReading #writerslift #BookTwitter #LatinXIAA
Torri_TMI @Torri_TMI
124 Followers 784 Following
Brooke @Brookecato24
178 Followers 266 Following I’m brooke, I have two kids ❤️ I love singing and love my kids. Music is my life 🎶.
OnlyArt Poetry @OnlyArtPoetry
2K Followers 4K Following A diverse poetry catalog with over 15,000 poems by the greatest poets of all time. Discover famous poems and original quotes from legendary personalities.
𝓛𝓪𝓶𝓲𝓪�.. @lamia_bsbegypt
558 Followers 1K Following @KevinRichardson gave me a Handshake& I haven’t washed it since🥰/@Brian_Littrell is indescribable😍/Angelic @NickCarter U got Us, We got U🤗❤️#StayStrongNick🐊
Marie Carter @MarieCarte44035
215 Followers 386 Following
Alex Yazan @YazanAlex6080
24 Followers 285 Following
Shaquana Fernandez @ShaquanaFe78905
0 Followers 4 Following
Jennifer Lear #JJL @SweetmamaJJL
2K Followers 2K Following Mother, artist, Rock chic for life. 80s girl. Art, Nature&Music is my medicine( Keep all in Gods Hands) 💚🌄 🇺🇸 #LiveFearless #IstandwithNickCarter
🐊Sabrina🐊#IStan.. @nickgirl_BE
924 Followers 661 Following Belgium Single mom from 2 beautifull boys💖#NickCarter💖#BackstreetBoys💖#BSBfansince1995💖#KTBSPA💖 https://t.co/wL8C1lxVaz
Dr. L.T. Force @drforce
1K Followers 2K Following Gerontologist/Writer/Professor. Practice & Research: Adult Development. National Board Certified Clinical Hypnotherapist, Gerontological Serial Entrepreneur.
A Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depression
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Fibro Bloggers @FibroBloggers
18K Followers 9K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFriday
Cynthia Covert, The D.. @TheDisabledDiva
17K Followers 13K Following 🤕My chronic life, 💡lifestyle tools, 🛍 product reviews, & 🏰 Disneyland accessibility ♿️ 💜 Fibromyalgia 💙 Psoriatic Arthritis 💛 Endometriosis
Foreigners in Taiwan .. @foreignersinTW
24K Followers 2K Following We blog to help convince foreigners to come to Taiwan and teach them how to survive here. Run by US expats. 我們是台灣的外國人！我們透過部落格幫助外國人了解怎麽在台灣生存及旅遊！（美國人管理）Tks to Ken
Barby Ingle Official @BarbyIngle
20K Followers 9K Following #AZ State Rep Candidate #LD7 |#PCRC D5, | #IAm #Writer #RareDisease #ChronicPain, #UniversalPetite, Creator of #NERVEmber
𝐓𝐢𝐟𝐟𝐚�.. @TiffanyKairos
7K Followers 4K Following Founder @tenofficial | Epilepsy Advocate | Blogger | Content Creator | All views are my own
International Pain Fo.. @iPainOfficial
24K Followers 12K Following International Pain Foundation (iPain) providing #ChronicPain community resources since Nov 2006 @NERVEmberProj @iPainLivingMag #OurPain #HopeIsTrue #NERVEmber
Ellie53 @SeddighEllie
2K Followers 2K Following just me ,I'll be friendly as long as you are ,if turn nasty ,so will I ,suffer from FM ,here to interact ,life is too short ,#bekind 🚫NO DM 🚫
stable finally, getti.. @bennessb
27K Followers 693 Following currently: haunted / unwell & host of No End In Sight, creator of #NEISVoid, a keeper of @RTsFromTheVoid. find me on 🦣: @[email protected] she/her.
michaelturton @michaelturton
5K Followers 1K Following Playing boardgames. Writing about Taiwan every Monday in the Taipei Times.
Orkney Fibromyalgia S.. @OSufferer
4K Followers 5K Following Writer, aspiring speaker, blogger, Advocate for Fibromyalgia & Invisible Disabilities. Fibromyalgia, FND & MECFS sufferer for over a decade.
Joanna No Banana @JoannaNoBanana
31K Followers 21K Following Joanna (she/her) 28 Queen of Allergies 👑 MCAS, POTS, EDS & CCI💛 Autistic, ADHD, OCD. PMDD. Check out @allergybeauty for allergy friendly products!
Eileen Davidson - Rhe.. @chroniceileen
4K Followers 2K Following Rants @CreakyJoints Blog https://t.co/ghdlGYZy4h Research Partner @Arthritis_ARC Ambassador @ArthritisSoc Staff @IfAiArthritis Host @Arthritis_SHYVR
Tricky Taipei @trickytaipei
11K Followers 1K Following
☃️☃️Fibro Slo.. @FibroSloth
6K Followers 3K Following Epilepsy fibromyalgia POTs depression anxiety ptsd psoriasis👩🦼love sloths,cats all animals and sea life Halloween.Laughter is the best medicine💕
Cheryl Crow, Arthriti.. @realcc
4K Followers 4K Following ❤️ RA patient and OT helping others live life to the fullest *with* arthritis. 🎤 Arthritis Life Podcast❤️ Rheum to THRIVE self management & support program.
William Yang @WilliamYang120
82K Followers 7K Following Freelance correspondent covering the Greater China region for @voanews. Words in @DWNews, @Guardian and @thetimes. tips and assignments to [email protected]
Andrew Ryan 阮安祖 @thefeast
5K Followers 3K Following Taiwan-based journalist + sound collector • deputy @taiwanplusnews • Fulbright • buttered toast enthusiast • 🌈 • he/him
Sjögren's Foundation @SjogrensOrg
10K Followers 3K Following Creating a community where patients, healthcare professionals & researchers come together to conquer the complexities of Sjögren's. #ThisIsSjögrens
Neuro Sjogrens @NeuroSjogrens
2K Followers 706 Following Neuro damage is prominent in Sjogrens. NeuroSjogrens/Sjogrens/chronic illness info posted. Advocacy, not med advice. RT's appreciated, helps spread the word!
Amy Schwiderski @aschwide1993
126 Followers 205 Following Assistant Director of the Center for Academic Excellence and Assistant Professor of Education, Illinois College
Jenny Miller LGPC, NC.. @ceruleanot
261 Followers 2K Following psychotherapist, art-ist/lover, chronic illness/disability haver-(30yrs) & advocacy. POTS, M.E., #pwME, she/her/hers…aspiring optimist
أرشفة الفيب.. @KsaFM_CFS_ME
3K Followers 5K Following أرشيف الفيبرومياليجا FM و متلازمة الإجهاد المزمن CFS و ME التهاب الدماغ والنخاع المؤلم للعضل 🦋 لوني:Purple أرجواني 2.5K
Alice Knows Chronic @SmallTownBusy
4K Followers 5K Following Fibromite, Struggling but Gaining RA warrior, Autoimmune Disab Advocate, Pain Fighter, Mental Health Comrade, some days a PJ junkie, Love my #chihuahua #spoonie
✏Kimmie❤️ #ISta.. @kimm_moekotte
3K Followers 510 Following Artist, Mommy, Nick Carter and Backstreet Boys fan!😊 Positive vibes only!🌟 Fibromyalgia warrior💪❤ Making of the Backstreet30Project https://t.co/FMIeKhvBWa
Dr. Robin Pfaff @rtpfaff
105 Followers 677 Following Flourishing with Fibromyalgia National Board Certified Health and Wellness Coach for Women 50+with Fibomyalgia
QuillMuse @Quill_Muse
160 Followers 93 Following Learn how to write anything perfectly with QuillMuse. #WritingCommunity #WritingTips #Writers #Authors #Writing #amwriting #writerslift
Kindlebookpromotion @Kindlebookprom3
10K Followers 11K Following Promote your book to 300,000 readers for only $30! Click to order now and skyrocket your exposure! Click here: https://t.co/ClweFvDqVz
H.K.H @Cybermageddon
3K Followers 3K Following CISO | Telecom Security Specialist | Cybersecurity Architect | Researcher | Husband | Indie Author 📚 My Book on Amazon: https://t.co/YWLQW7eVnp
Elaine Hale @LainyJThomas1
2K Followers 2K Following Wife, mother,secondary school teacher, writer. Likes: reading, writing, living! Hates: flies and lies.
It's just Sean @smcgillis248
2K Followers 2K Following ❤️ of 😺 🎶 outdoors & visiting new places with my wife
Carly 📚🍂☕️�.. @YorkshireCarly
5K Followers 5K Following Yorkshire Girl 🌿/Reading Enthusiast/Spinal Fusion /Chronic Pain Sufferer/Contact via my Blog https://t.co/lX3d9CpoES
Bill Fairclough (aka .. @BurlingtonFiles
46K Followers 47K Following Bill Fairclough was an MI6/CIA secret agent. The Burlington Files series of novels is based on his life: https://t.co/8KHr6sH2B6 - 🚫NO DMs.
Lisa Henry Writer �.. @LisaM_soundz
5K Followers 5K Following Writer, Mum, Wife, My Amazon Author Page! https://t.co/irkjwuHwos
The Tårn @thetarnck2
272 Followers 351 Following Blogging about alternative history & fiction. Writing. Inspired by: the Norse & their Viking Age history; art; & gaming (Paradox), especially Crusader Kings II.
Cuoghi Edens @CuoghiE
916 Followers 1K Following #MedPeds #Rheumatologist @Uchicagomedicine ❤ #ReproductiveHealth #Pregnancy #reprorheum #rheumpreg #PedsRheum #HealthcareTransition #Rheumatology Views=mine
Lupus Foundation of P.. @LupusFndnOfPA
55 Followers 156 Following The Lupus Foundation of Pennsylvania serves to advocate and educate about Lupus. We provide information and support for those with lupus.
Trisha @TrishaReads8
203 Followers 253 Following
Mark-Jonathan @AuthorMarkRunte
2K Followers 2K Following Author of LB: Coming soon. Disclaimer; ADHD, agenesis of the corpus callosum. It takes me 3x to read SM. Be patient with me. 🥺https://t.co/AflUg0HcK5
Gregory Alexander Sha.. @SempaiGreg
18K Followers 17K Following #author of #supernatural #thrillers, 𝙄𝙇 𝙇𝙐𝙋𝙊 and 𝙆𝙄𝙇𝙇 𝘼𝙉𝘿 𝘾𝙐𝙍𝙀. Host of 𝙋𝙤𝙙 𝘽𝙮 𝙏𝙝𝙚 𝙁𝙞𝙧𝙚𝙨𝙞𝙙𝙚.
birdiesquill @birdiesquill
4K Followers 4K Following Multi genre Author BookReviewer: Working on book 2 (editing) & book 3 (writing 2nd draft) of a Dragonborn Saga and book one of Historical Western Romance series
G. F. Allen @AuthorGFAllen
4K Followers 3K Following Published Author of 'A Kingsguard Tale' series | Gamer | Proclaimed thinker. #WritingCommunity 📚 https://t.co/RT0LND5Ax9
Alyssa Louttit, Autho.. @Alyssa_Louttit
1K Followers 1K Following A proud lover of fantasy and magic with an unquenchable thirst for new stories to sink my teeth into. (She/Her) Banner and Book Covers done by: @strawburryusagi
C J Keating - is quer.. @CJKeatingWriter
2K Followers 2K Following Writer. Seeking representation for novel constructed by mechanical spiders from the ruins of unsatisfactory realities. (NB photo is my protagonist, not me!)
FibroFairy @fibro_fairy
565 Followers 233 Following I'm the FibroFairy🧚♀️. I broke free from the chains of Fibromyalgia, and now seeking to help others with chronic pain.💜 https://t.co/Gpf5D4tmuD
TurningPainIntoStreng.. @MichellesMemoir
253 Followers 460 Following Is pain a part of your life? Contact me! AUTHOR: Turning Pain Into Strength PODCASTER: https://t.co/Ns752TrvdI
Chronic Pain Ireland... @ChronicPainIRL
5K Followers 3K Following Chronic Pain Ireland aims to provide information & support to those living with chronic pain, their families & friends. RT is not necessarily an endorsement
John Nguyen @HandsomeInRed
107 Followers 140 Following
Michael Neuvirth @LetsGoCure
1K Followers 285 Following Billions of people dream of cures for Invisible Illnesses. We merge patient intelligence & AI to make their dreams come true. Watch us bring cures to life!
Mohamad Bittar @MohamadBittarMD
136 Followers 99 Following Assistant Professor @OHSUSOM. Rheumatologist. Main Interests: #AxialSpondyloarthritis, #AnkylosingSpondylitis, and #PsoriaticArthritis.
Arun Dahiya @dahiya_anu
5K Followers 3K Following (she /her) .Eternal Sunshine in this void,feminist,always reading, teacher,pixie soul, chronic illness and disability activist
GRAPPA Network - Offi.. @GrappaO
1K Followers 126 Following GRAPPA - Group for Research and Assessment of Psoriasis and Psoriatic Arthritis is an international collaboration aiming to improve the care of Pso/PsA patients
JohannaSr @JohannaSr6
1K Followers 2K Following Wife, mother, grandmother. Writer on the Psychology of Life. Activist for Economic Equality. https://t.co/CyOlWEFF0N
Kirk Adams @KirkAdamsPhD
1K Followers 5K Following Innovative Impact LLC. Accelerating inclusion of people with disabilities in the workforce!
Hong Wei @hwsoh
3K Followers 2K Following Hey there! Avatar credit: @kosherjellyfish. Explore my business at https://t.co/GsSeEIKyd7.
Chrisf69 @cw_floyd
341 Followers 822 Following Just an average guy who likes to go camping and photography. #chronicpain #forcedintoawheelchair #butyoudontlooksick #ptsd #sasurvivor #bipolar #depression #cpp
Dr Meghna Gavali @meghnagavali
62 Followers 205 Following Rheumatologist Asst Prof Rheumatology,NIMS , Hyderabad Interested in Spondyloarthropathy_esp AxSpA and it's imaging , PsA and love playing badminton,cricket
Kate Mitchell | Kate .. @kmitchellauthor
4K Followers 1K Following Boston chronic illness patient, advocate, blogger, and creator. RA, Sjögren’s, POTS, & more. Opinions are mine. aka Kate the (Almost) Great®️. she/her
Sarcoidosis News @SarcoidosisNews
226 Followers 23 Following We exist to bring you science, research and clinical news about Sarcoidosis. We are a free digital publication dedicated to the patient community.
Ciara Wright PhD, Gle.. @CiaraGlenville
2K Followers 801 Following Nutritional Therapist, Scientist, Director of Glenville Nutrition Ireland, Long Covid Mar 2022
Dr. Kaleb Michaud @Dr_K
716 Followers 264 Following Rheumatology researcher - UNMC & FORWARD. Spielbound Director. Curious Caring Exuberant Independent Father Cinephile Board-Gamer
Natalia Trehan, DMD @natalia_trehan
118 Followers 340 Following Oral Medicine Chief Resident @PennMedicine | Foreign Dental Grad | 🇨🇦 | My interests include oncology, trauma and research | HCPA @takeapaincheck
Rare Disease Advisor @RareDisease_Adv
5K Followers 1K Following Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
Cristina Montoya RD |.. @ArthrDietitian
2K Followers 2K Following Arthritis Dietitian | Sjögren's & Gut Health | IG @arthritisdietitian Personal Views
Alejandro Martinez Mu.. @ale_mmzgonc
280 Followers 545 Following Investigador Principal. Reumatologo (UBA).
Durga Prasanna Misra @DurgaPrasannaM1
2K Followers 1K Following Rheumatologist (Associate Prof, SGPGIMS),Epidemiologist.Vasc Rheum, #Takayasu, Executive Editor@ijrheum, Deputy Editor@JRCPE, AE@Int J Rheum Dis. EC Member(IRA)
CAPA @CAPA_Arthritis
2K Followers 2K Following The Canadian Arthritis Patient Alliance (CAPA) is a grass-roots, patient-driven, independent, national advocacy organization with members across Canada.First stop on the #bostonrheumroyalty tour for #lupusawarenessmonth cheer was @rheum_cat 💁🏻♀️ 💜@BU_BMC_Rheum @CureArthritis @LADAOrg @LupusNE @UMassLupus
Heat Intolerance in Fibromyalgia & Chronic Fatigue By @thefibromama buff.ly/498r7zl
Have my first appointment with a medical psychologist tomorrow on the recommendation of my wonderful pulmonologist. In her words, "they won't mess around with talking about your feelings on a couch". What should I expect #NEISvoid?
I was beyond thrilled to deliver cookies & wristbands to Dr. Feldman @MassGenBrigham for #lupusawarenessmonth in May. #bostonrheumroyalty
Register now for the Global Spondyloarthritis Summit, May 3 - 4, to hear Dr. Denis Poddubnyy discuss how AI can open new possibilities for enhanced care and improved patient outcomes for people with SpA. spondyloarthritissummit2024.vfairs.com #spondysummit #spondylitis #axspa #backpain #ai
Most docs don't have that kind of experience, nor are they taught these forms of Dx (Oriental Medicine does, btw). They aren't trained to see these things, often leading to erroneous conclusions To bring this full circle, this is a huge problem w the 3 digit code. 3/3
btw, this is also why I do not agree with the idea that you can't 'see' whether a patient is in pain. When blind, and as I regained my eyesight, I saw the tension in their faces, the changes in their posture, the differences in their reactions, + the changes to their voices
Clinicians are not sufficiently well trained, in general, to make such an assessment so quickly. Pain + disease in general (as you alluded to) change people's faces, postures, and reactions, and reaction time. To try to reduce that to a 3 digit number is...inappropriate
@Impact2HEAL This came about after the ICD- 11 codes came out with the 3- digit extensions for clinicians to diagnose our affect – anxiety, anger, etc. (even if it is a one time encounter in urgent care or the circumstances are completely appropriate. 1/2
Sole masked patient in pain management. People are exhausting.
So many in our community - myself included - have been mistreated, judged, verbally abused and denied proper care that it affects us in myriad ways. It's horrible. It affects some people more than others - esp the ones who don't want to 'rock the boat' So sad for this person
I have another horror story about this, I wish it was the only one of its kind… A pain patient and vet lives across from me and even though it has been obvious to everyone - him, his friends, and family - that he was deteriorating cognitively and physically, he was unwilling to…
@NeuroSjogrens Interesting- mitochondrial damage could explain some of the profound fatigue and overlapping symptoms between Sjogren's and MECFS. Perhaps there are different pathways to mitochondrial dysfunction.
There isn’t always a point to pain. There is no lesson to be learned, besides the body bearing more than you think. It’s not a flex but a horror movie: imagine realizing you can survive, but not escape, a Saw movie.
Gifts in the mail today from @patientvoiceca - Excited to be part of their Ambassador program! Stay tuned to learn more about that. These products are fitting as tomorrow I am off to Halifax to present at a conference a patient voice in a session!
Today was fun-day! Made drops of cookies & wristbands to #bostonrheumroyalty … what an afternoon to share some purple cheer ahead of #lupusawarenessmonth 💜💁🏻♀️🦋
Surveys of people diagnosed with Sjogrens in middle age find about 1/2 identify symptoms starting in childhood or early adulthood. Sjögrens is not a disease of middle age, it just takes decades to diagnose. We need better tests and treatment.
Although pediatric #Sjogren Disease, or diagnosis of SD before the age of 18 years, was previously considered quite rare, cases are increasingly reported. ~ Unique Aspects of Pediatric Sjögren Disease #SjogrensAwarenessMonth ncbi.nlm.nih.gov/pmc/articles/P…
@globetrotteri It does. I was raised to not be jealous or resentful of someone else's success and not compare myself with anyone. 5 years of descending into comorbid chronic illnesses, I'm ashamed to admit that I'm having these thoughts for the first time in my life.
1. Optimal Breathing and Relaxation technique, which combines a slow deep diaphragm breathing technique with a visualization. I'll be teaching it again in a few weeks 2. Practice the breathing while reading, watching videos, listening to music, anything that takes up attention
Via @leeroygood at @FibroBloggers 🎨 📺 📖 What kind of distraction techniques do you use to distract yourself from #fibromyalgia? "Participants in the study experienced the #pain stimulus as less intense when directing attention away from the pain." fibrofiles.blogspot.com/2018/06/using-…
Too often I let worry seep into my life when there's no valid reason. A little more emotional discipline will help me be better for myself and for others. chrishamiltonsstuff.wordpress.com/2024/04/28/wha…
@SarahSchaferMD @globetrotteri @doctorORbust Thank you for sharing this! I had abnormally elevated ANA that was not clearly Lupus. My doctor stopped testing. It’s very difficult going through life wondering what the heck is wrong with me!
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