Lupus Foundation NE @LupusNE
To educate and support people with lupus, promote awareness and fund scientific research that will lead to better treatments and ultimately a cure. lupusne.org New England Joined November 2012-
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Patients need #PBMReform NOW. United Healthcare is one of the biggest #PBMs in the market. Their profits have skyrocketed recently & patients are paying the price. New England patients deserve answers – what is UHG doing to lower our prescription prices? @RepLoriTrahan
Intellectual property rights are fundamental to incentivizing innovation in the biopharmaceutical sector. On #WorldIPDay, let’s stand for #PatentProtections that enable the development of life-changing treatments. @RepAnnieKuster @RepChrisPappas @SenatorHassan @SenatorShaheen
.@SenatorHassan, on April 30 you have a unique opportunity to ask the questions Granite Staters deserve answers to. Why have #PBMs like UnitedHealth raked in record profits while doing nothing to lower the cost of prescriptions? #PutPatientsFirst @SenateFinance
Dear @SenatorHassan, please stop #PBM middlemen from pocketing prescription savings that belong to Medicare patients by supporting S. 2973 and S. 3430. Pass savings to seniors & patients, separate drug costs from #PBM profits. @SenateFinance
Nearly 50% of new medicines, like a potential cure for #lupus, will never come to market if @POTUS expands government drug price setting. @RepAnnieKuster @RepChrisPappas @SenatorHassan @SenatorShaheen #FixIRA @VitalTransform (weworkforhealth.org)
Patients deserve affordable care. @POTUS The first step in addressing the issue is delinking #PBM compensation in commercial and #Medicare Part D. @POTUS @RepAnnieKuster @RepChrisPappas @SenatorHassan @SenatorShaheen concordmonitor.com/My-Turn-PBMs-v…
Looking forward to E&C hearing where important issues for patients with #RareDiseases will be discussed, including common sense clarifications to the IRA. We urge you to support MA #patients! @RepLoriTrahan #CareAboutRare
Thank you. @RepAnnieKuster for supporting rare disease patients and ensuring there is continued hope for new treatments and cures. #Lupus #RareDiseaseDay #SupportInnovation #CareAboutRare
Our Lupus Medical and Educational Symposium is May 9th 2024! Space is limited, register today at lupusne.org/lupus-medical-…
The #IRA discourages the crucial R&D needed to create lifesaving medications for NH #lupus patients. Congress must address the #IRA’s harmful impact on medical developments, starting with the small molecule penalty. @RepAnnieKuster @RepChrisPappas americanactionforum.org/research/the-i…
Multi-cancer early detection tests can potentially change how millions detect and fight cancer. Congress: pass access to these tests in Medicare once FDA-approved and clinical benefit is shown. #FightCancerMakeTime @SpeakerJohnson @RepJeffries @SenSchumer @LeaderMcConnell
This @POTUS’ s proposal to employ #MarchInRights will disincentivize the public-private collaboration that brings patients critical cures and treatments. Granite Staters support medical innovation! @RepAnnieKuster @RepChrisPappas @SenatorHassan @SenatorShaheen.
Let's come together to pass #MCED in 2024! @RepAnnieKuster @RepChrisPappas @SenatorHassan @SenatorShaheen
Let's come together to pass #MCED in 2024! @RepAnnieKuster @RepChrisPappas @SenatorHassan @SenatorShaheen
Sen. Bailey, Rep. Perry, & members of HCFIS committee: LD1165 would lower out-of-pocket prescription costs for thousands of Mainers. Please prioritize patients over profits with a favorable vote on LD1165! Thank you Rep. Craven for sponsoring this critical piece of legislation.
What a superb #PBMreform op-ed by @NewEnglandHemo! “PBMs vs. patients: Congress can help decide the winner” @RepAnnieKuster @RepChrisPappas @SenatorHassan @SenatorShaheen concordmonitor.com/My-Turn-PBMs-v…
When Lucille Atlookan found out her kidneys were failing, she never expected to find a transplant match so quickly, let alone from her partner. cbc.ca/news/canada/th…
Please reject this proposal. @HowardPearlNH @SharonCarsonNH @TeamRebeccaNH @DebrasATeam
Please reject this proposal. @HowardPearlNH @SharonCarsonNH @TeamRebeccaNH @DebrasATeam
There has been a significant shift in the cultural and scientific understanding of obesity. This new awareness about obesity medications is encouraging more people to seek treatment for obesity, leading to wider benefits for overall health. medriva.com/diseases/chron…
Catherine Ames is author of “Chronically Catherine,” a “Sex and the City”-inspired column about life as a young person coexisting with chronic illness, without losing sight of fabulosity. statnews.com/2024/01/03/fer…
Laurent ARNAUD @Lupusreference
17K Followers 596 Following MD, PhD | Professor of #Rheumatology | #Lupus #SLE | #Digitalhealth | President of @SLEuroSociety | @ERN_ReCONNET Disease Coordinator for Lupus & RP 🇪🇺
Tiffany ⁷ @TiffanyAndLupus
13K Followers 10K Following #Lupus Patient Advocate | Follow @Lupus_Chat | Mental Health #KBeauty | #BTS ARMY | 💗💛💙| 2024 📚: 40/75 - 📙: Smoke N Stroke by Aja
More Than Lupus @LupusMore
2K Followers 836 Following More Than Lupus is a patient focused nonprofit run by Kelli Roseta aimed to amplify the patient voice through lupus advocacy, support, and patient education
#LupusChat @Lupus_Chat
10K Followers 3K Following #Lupus Online Community - Chat: Sundays at 3PM ET - Next #LupusChat May 5th - Moderated by @TiffanyandLupus, @Xtel007, @CaringForLupus & @Syncenerd_Carli
Kathleen Arntsen @KathleenArntsen
5K Followers 5K Following President & CEO of Lupus and Allied Diseases Association. Passionate advocate, collaborator, strategist, communicator. Empowered lupus & autoimmune warrior.
Kaleidoscope Fighting.. @Kaleidoscope_FL
4K Followers 3K Following We educate the public and the medical community about lupus, to push for earlier, life-saving diagnoses for those afflicted, and to spur funding for a cure.
Asociación de #Lupus.. @LupusMadrid
6K Followers 5K Following La asociación AMELyA #Lupus Madrid tiene como objetivo mejorar la calidad de vida d toda persona afectada d lupus e informar a los afectados. Visita nuestra web
Looms4Lupus @Looms4Lupus
2K Followers 1K Following Looms For Lupus-501c3 provides bilingual resources & support to minority families affected by Lupus,Fibromyalgia,mentalhealth https://t.co/6ueEPl9VKu
Lupus Association @LADAOrg
6K Followers 5K Following Improving access to care & quality of life by wielding the patient voice as a catalyst to advance advocacy, education, awareness & research efforts.
MariposaWarrior @LunaRivera96
2K Followers 3K Following Florida Lupus and Disability Advocate - Educate. Encourage. Empower and Inspire Lupus Butterflies!
Caring For Lupus @CaringForLupus
4K Followers 798 Following Passionate about improving Lupus Awareness; Co-host of #LupusChat (Sun. 3pm EST) - #Lupus #LupusWarrior #LupusAwareness #KearnyCares #BerkeleyAlumni #PinkSocks
Lupus Academy @LupusAcademy
2K Followers 211 Following Communicate. Educate. Treat. #lupus #SLE #Rheumatology
Michigan Lupus Founda.. @LupusMI
84 Followers 55 Following The MI Lupus Foundation exists to improve the quality of life for those living with lupus through support, education & research with the goal of finding a cure.
Alexandria Urbanek @alexfranu
4 Followers 68 Following regulatory clinical research coordinator for pediatric rheumatology. || bs in social neuroscience.
Josiah Mackey @mackeyjb74
0 Followers 7 Following
Luna @EchoEthere50136
6 Followers 778 Following
Herbert Spencer @seinkonnen
90 Followers 251 Following Risk is the multiplication of possibilities, some of which are negative. $XBI $IBB
Mette Dyhrberg @metamette
3K Followers 632 Following Serial entrepreneur. Founder/CEO @mymeehealth Rethinking autoimmunity. I'm an economist, not a doctor. I'm an autoimmune patient too.
Abdelhamid Hamdy @abdelhamed012
2K Followers 5K Following اللهم إنى أسألك اليقين والعافية nephrologist.MRCP
Shamekka Marty @prettylupuschic
231 Followers 1K Following I'm not chronic. I'm ICONIC. Advocate*Speaker*Influencer*Cyber HIT Girl Patient Leader at Health Union 📧Bookings: [email protected]
American Cancer Socie.. @ACSCAN
21K Followers 3K Following ACS CAN advocates for evidence-based public policies to reduce the cancer burden for everyone. Nonpartisan advocacy affiliate of @AmericanCancer.
New England Hemophili.. @NewEnglandHemo
875 Followers 80 Following Serving the New England bleeding disorders community since 1957.
Carolyn Davidson @mzheartofluv
824 Followers 3K Following Christian, Worshiper, Wife, Mommy, Author, Cert. Life Coach, Cert. Motivational Speaker, Michigan Alum, Politics Junkie, Lupus Diva & Adv., Hope Infuser
Safe Surgery Coalitio.. @SafeSurgeryUSA
312 Followers 28 Following
Victoria Chomka @VChomka40580
0 Followers 2 Following
Donna @Seigh135539
127 Followers 4K Following See the world on the road, and get to know yourself on the way!
NorthPolarGoose @WendyPumpkin3
6 Followers 115 Following 💎 Diamond || Swiftie || Pet Person || A control system student || 🏳️🌈
IFMRS @IFMRSGlobal
825 Followers 405 Following We aim to advance MSK research globally in order to prevent and treat MSK diseases through sharing resources, raising public awareness, and providing education.
Marabel79 @MBellicchi
1 Followers 121 Following
mary Walker @12407791605
6 Followers 30 Following
Jill Belli @jbelli13
743 Followers 1K Following English professor immersed in #utopia #pedagogy #writing #healing #wellness #grief #data #nature #tarot & (sadly) #longcovid. Desiring elsewhere & otherwise.
Tom Miller @TomMill31232633
149 Followers 231 Following I am the man the myth the legend my grandkids call me Peppa
Raynaud's Assn. @raynaudsorg
4K Followers 595 Following The Raynaud's Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud's Phenomenon.
Commitment To Seniors @commit2seniors
5K Followers 332 Following Here to expose AARP's advocacy, political, and policy engagement, and how it affects their members and financial partners. Paid for by American Commitment.
Phelics Freeguy @PhelicsFreeguy
40 Followers 225 Following FG-UMUPONDO,,Giving Up isn't part of me!#African proverbs
Fhg Gui @fhg_gui78191
0 Followers 14 Following
สุรวัศ �.. @WasMi16943
0 Followers 6 Following
Maria Gutierrez-Arcel.. @mariaGTAC
933 Followers 615 Following Assistant Professor at Boston Children's Hospital, Harvard Medical School. She/her.
Angel Rose @RoseAngelheaven
20 Followers 2K Following
A.C.E.S. @aces300k
422 Followers 2K Following
Kristin 💉x6 💙�.. @mini2z
3K Followers 5K Following Patient Advocate: #Lupus #Fibromyalgia #Migraines #Hashimotos #Diabetes #MentalHealth #Arthritis #ChronicPain #Gastroparesis #Wanderlust 🌎 She/her #ACNH
Sarah Winans @swinans84
29 Followers 295 Following Educator, author, & proud mother of a Lupus Warrior.
Bridget 🏳️�.. @Bridgetisbored
2K Followers 3K Following Wife, Mama, and Artist. Lupus Warrior💜 Proudly WOKE.✊ Equal rights. Halloween afficionado🦇👻🚫No DM's w/o my ok. I won't answer.🚫
Alexis Roma @CapeCodLexi
352 Followers 3K Following B-Creative! Be-Scene! B- Heard! *Artist, Advocate, Auntie Cerebral Palsy, Lupus, Fibromyalia, Scoliosis Disability Awareness Find me on IG: CapeCodLexi
Patients Not PBMs @PatientsNotPBM
46 Followers 52 Following
Fatima Alnaimat @AlnaimatFatima
160 Followers 104 Following Associate professor of Medicine and Rheumatology- University of Jordan. Vice President of the Jordanian Society of Rheumatology
Lupus Lone Star @LupusLoneStar
2K Followers 1K Following The Lupus Foundation of America, Lone Star Chapter services over 200 counties in Texas, aprox 80 percent of Texas, advocating for lupus patients!
Zuriel Gibson @zurielgibsonceo
993 Followers 3K Following Building connections with people and organizations to help them find transformational clarity & thrive as a Lupus Coach ~ Advocate ~ Speaker ~Author ~ Model
WorldAiArthritisDay @AIArthritisDay
2K Followers 2K Following World #AiArthritisDay | Annual AUTO-themed awareness event for AUTOimmune and AUTOinflammatory arthritis diseases. Hosted by @IFAiArthritis
DR MADEEHA TAJ. @TajMadeeha
497 Followers 1K Following MBBS.PGcert in Public Health(U.K). Health promotion, Leadership and Research, Health Policy Management, Disease Control and Prevention, Forever Business Owner.
Taylor Meiring @TaylorMeiring2
31 Followers 134 Following
delmennurse @DelmenNurse
140 Followers 194 Following I Love People, I Will Always Try and Help. Retired Nurse, Oncology. New Family Member German Shepherd-K-9 Oakley. Bubba Boo has Died. He Will ALWAYS be missed.
บัณฑิตา.. @BanthitSak
1 Followers 10 Following
นาท แปย�.. @nathpaeyaw02
9 Followers 84 Following
Lupus Foundation of P.. @LupusFndnOfPA
55 Followers 156 Following The Lupus Foundation of Pennsylvania serves to advocate and educate about Lupus. We provide information and support for those with lupus.
Meghan Neiswender @MeghanNeiswend1
6 Followers 373 Following
Neuro Sjo @neuropsychSjo
485 Followers 1K Following Research : ~ up to 55% of CIDP, POTS, SFN, MG, MECFS, NMO, long COVID & other neuro pts have Sjogrens Most clinicians : Sjogrens is just dry eye & dry mouth!
Lupus Foundation of A.. @LupusOrg
46K Followers 1K Following Lupus Foundation of America is the only national force devoted to solving the mystery of lupus while giving support to those who suffer from its brutal impact.
Dr. John Cush @RheumNow
22K Followers 481 Following Know-it-Now. Info on RA, Stills disease, Lupus, Gout, Pregnancy, Spondylitis, Psoriasis, Drug Safety, Rheumatology Research, Medical Education & Drug Evaluation
Lupus Research @LupusResearch
49K Followers 900 Following The Lupus Research Alliance is the world’s largest private funder of lupus research. Together with your help, we will conquer lupus.
Tiffany ⁷ @TiffanyAndLupus
13K Followers 10K Following #Lupus Patient Advocate | Follow @Lupus_Chat | Mental Health #KBeauty | #BTS ARMY | 💗💛💙| 2024 📚: 40/75 - 📙: Smoke N Stroke by Aja
More Than Lupus @LupusMore
2K Followers 836 Following More Than Lupus is a patient focused nonprofit run by Kelli Roseta aimed to amplify the patient voice through lupus advocacy, support, and patient education
#LupusChat @Lupus_Chat
10K Followers 3K Following #Lupus Online Community - Chat: Sundays at 3PM ET - Next #LupusChat May 5th - Moderated by @TiffanyandLupus, @Xtel007, @CaringForLupus & @Syncenerd_Carli
American College of R.. @ACRheum
34K Followers 4K Following Global medical society providing education, research, advocacy, and practice management support to over 9,100 rheumatology professionals since 1934.
Kathleen Arntsen @KathleenArntsen
5K Followers 5K Following President & CEO of Lupus and Allied Diseases Association. Passionate advocate, collaborator, strategist, communicator. Empowered lupus & autoimmune warrior.
Kaleidoscope Fighting.. @Kaleidoscope_FL
4K Followers 3K Following We educate the public and the medical community about lupus, to push for earlier, life-saving diagnoses for those afflicted, and to spur funding for a cure.
Lupus Europe @LupusEurope
4K Followers 351 Following Lupus Europe is the umbrella association of currently 31 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.
MyLupusTeam @MyLupusTeam
4K Followers 1K Following The social network JUST for people living with #lupus. We now have over 150,000 members! 💜 Connect, share resources, and get support! It's FREE & private too!
Asociación de #Lupus.. @LupusMadrid
6K Followers 5K Following La asociación AMELyA #Lupus Madrid tiene como objetivo mejorar la calidad de vida d toda persona afectada d lupus e informar a los afectados. Visita nuestra web
LUPUSUK 💙 @LUPUSUK
11K Followers 673 Following LUPUS UK is the only national registered charity supporting people affected by #lupus and assisting those approaching diagnosis. Reg Charity: 1200671
Carly by Nature @SynceNerd_Carli
2K Followers 2K Following Virgo|Made in BKLYN|Science Nerd|she/they| #BLACKAndSTEM | #Lupus & #Raynauds Patient Advocate |Co-host of #LupusChat - Sun.3pm ET https://t.co/r0ds5XezyS
Looms4Lupus @Looms4Lupus
2K Followers 1K Following Looms For Lupus-501c3 provides bilingual resources & support to minority families affected by Lupus,Fibromyalgia,mentalhealth https://t.co/6ueEPl9VKu
CreakyJoints.org @CreakyJoints
19K Followers 2K Following CreakyJoints is a digital community for millions of arthritis patients and caregivers worldwide. | Part of @GHLForg | [email protected]
Lupus Trust @lupustrust
4K Followers 182 Following The Lupus Trust was set up as a registered charity in 1991. Its aim is to support lupus research at Guys Hospital & raise lupus awareness.
Lupus Association @LADAOrg
6K Followers 5K Following Improving access to care & quality of life by wielding the patient voice as a catalyst to advance advocacy, education, awareness & research efforts.
Rheumatology & Rheuma.. @RheumJnl
12K Followers 2K Following Rheumatology & Rheumatology Advances in Practice are the official journals of @RheumatologyUK.
Lupus Canada @LupusCanada
2K Followers 185 Following Working to improve lives of Canadians living with lupus through advocacy, education, public awareness support & research | 1-800-661-1468 | [email protected]
Trisha Santos, MD, MS @TrishaSantosMD
364 Followers 474 Following Brooklyn’s Own🗽@MSKRad_Onc PGY5💥 via @HarvardChanSPH @PennMedicine @BrownUniversity | I study #HealthPolicy • #ImmigrantHealth • #AccesstoCare | My Views🌱
Aurinia Pharmaceutica.. @AuriniaPharma
2K Followers 306 Following We pursue promising science to address some of the toughest challenges in autoimmune disease. See our community guidelines here: https://t.co/gGiBZ27Ff8
Trisha @TrishaReads8
201 Followers 253 Following
JP Summers @authorjpsummers
4K Followers 5K Following #1 Best Selling Author / Senior Patient Advocate Community Outreach Manager @GHLForg #migraine #heartdisease #rheumatoidarthritis / Tweets Are My Opinion
Liz Ross @LizRoss45813725
18 Followers 95 Following Biomedical Laboratory Diagnostics student at Michigan State University researching possible lupus treatments to help people like my mom
Michelle @HopeinBracelets
3K Followers 3K Following **Artist*Designer*Author** Bringing awareness to medical conditions one bracelet at a time! I have RA, a titanium spine, a Spinal Cord Stimulator & a BOOK!
GoodJuJu @jujubeee714
2K Followers 3K Following Proud Zionist 🇮🇱 #PfizerSurvivor #LupusAwareness Full of goodJuju now, formerly @baaadjuju :) 😉
Carolyn Davidson @mzheartofluv
824 Followers 3K Following Christian, Worshiper, Wife, Mommy, Author, Cert. Life Coach, Cert. Motivational Speaker, Michigan Alum, Politics Junkie, Lupus Diva & Adv., Hope Infuser
Supermodelsonya @supermodelsonya
2K Followers 3K Following Writer/lupus/chemowarrior/Astrophysics/Law/Virology/German🇩🇪❤️-er ♿️chair user♿️🌈 Eat MJ haters 4 lunch. You'll LOSE debating me w/any topic.✊🏾🇳🇬 Polyglot
The Lupus Rainbow @thelupusrainbow
1K Followers 2K Following
World Health Organiza.. @WHO
12.3M Followers 2K Following We are the #UnitedNations’ health agency - #HealthForAll. ▶️ Always check our latest tweets on #COVID19 for updated advice/information.
Lynn Gagnon @LynnGagnon11
9 Followers 14 Following I Love to work on Creative visual projects, especially with my Lupus Support Group as one of my main goals is to spread Lupus awareness.
Jessica Courter @jkcourter
19 Followers 33 Following
American Cancer Socie.. @ACSCAN
21K Followers 3K Following ACS CAN advocates for evidence-based public policies to reduce the cancer burden for everyone. Nonpartisan advocacy affiliate of @AmericanCancer.
Progentec @ProgentecDx
85 Followers 190 Following Developing laboratory and digital health solutions for autoimmune diseases. aiSLE™ MGMT, a modern approach to #lupus care, is available now!
Rheum Journal Club @RheumJC
6K Followers 124 Following Rheumatology Journal Club on Twitter: #RheumJC
AstraZeneca @AstraZeneca
303K Followers 2K Following We're transforming the future of healthcare by unlocking the power of what science can do. Community Guidelines: https://t.co/Kh08zUdFpT
Lupus Society of Albe.. @LupusSocietyAB
131 Followers 184 Following We provide education and support on lupus and lupus related issues, and enable research to improve quality of life.
Amanda @MsAmandaGreene
520 Followers 1K Following Sharing passions in the health and wellness communities. Discovering the “flair” of sharing kindness and joy. #WithAGforce
HIV+Hepatitis Policy .. @HIVHep
2K Followers 595 Following Led by Carl Schmid, promotes quality & affordable healthcare for people living w/ or at risk of HIV, hepatitis, or other serious and chronic health conditions
Estela Mata @estelamata
844 Followers 1K Following Healthcare IT/President Looms for Lupus/HealthcareAdvocate #Looms4Lupus #matasisters
Mary Sias @DiamondNHouston
908 Followers 1K Following Extraordinary lady that loves sports, sewing, and baking. Health Advocate for lupus, rheumatoid arthritis, osteoarthritis, gout, cancer and nephritis.
Sandi Frear @SandiFrear
198 Followers 335 Following
International Foundat.. @IFAiArthritis
4K Followers 3K Following We impact education, advocacy, & research for those with AiArthritis diseases by addressing patient-identified issues and creating patient-infused solutions.
DocWire News @mydocwire
2K Followers 2K Following DocWire News delivers the most relevant medical news to over 1M HCPs daily.
Cheryl Crow, Arthriti.. @realcc
4K Followers 4K Following ❤️ RA patient and OT helping others live life to the fullest *with* arthritis. 🎤 Arthritis Life Podcast❤️ Rheum to THRIVE self management & support program.
Kezar Life Sciences @KezarBio
477 Followers 492 Following Pioneering first-in-class, small-molecule therapies for immune-mediated and oncologic disorders, with the hope of helping patients overcome their disease.
Lupus LEAP @lupusLEAP
614 Followers 465 Following Lupus Education Awareness Program (LEAP) addresses HP2020 through lupus awareness, education and treatment for patients, health professionals and students.
Voice of Lupus Founda.. @thevoiceoflupus
777 Followers 272 Following We have been creating change of Lupus in Trinidad & Tobago through Advocacy,Awareness and Action since 2010. Our mission is simple: To Give Lupus a Voice!
Dr. Jill Richmond, Ph.. @tcelltracker
2K Followers 3K Following Skin #immunology & chemokine #biology. I study T cells in autoimmune disease #lupus & cancer #lymphoma. Love to #teach! Also: @UMassLupus she/her, #BLM, 💛💙
AK @akshootaz
455 Followers 159 Following
My Life With Lupus @liveswithlupus
561 Followers 67 Following Dedicated to teens with Lupus and other chronic illnesses
Mo @LupusChampion
480 Followers 79 Following living w/ SLE Lupus I have inspired over 5k ppl here in the state of GA & still inspiring ppl today! I wish to inspire MORE including celebrities!:)
lupusdoesNOThaveme @LupusWarrior41
834 Followers 985 Following Just a mom...I pretty much say what's on my mind. Some ppl think my filter is broken, lol. I am a #lupuswarrior. I may have lupus, but lupus does NOT have me...
Lupus Friends & Fam @LupusFFF
667 Followers 103 Following Lupus Friends & Family Foundation is a patient-to-patient organization focusing on providing support and resources needed to motivate patients to keep fighting.
LUP of Love @lupoflove
171 Followers 73 Following Raising awareness for Lupus by sharing love with the world.
Lupus Warrior @Floetry617
233 Followers 284 Following Lupus Survivor since 2008... If you or someone you know has Lupus. Please join Living With Lupus a group I created on Facebook.
Diane Gross @DianeGrossMPH
508 Followers 361 Following
Know Lupus @618_562
274 Followers 380 Following
Boston Lupies @BostonLupies617
78 Followers 106 Following A Boston-based group bringing awareness to Lupus. Events will be hosted throughout the year in attempt to raise money for the Lupus Foundation. ✋
LupusGirl99 @LupusGirl99
31 Followers 76 Following
Lupus Style @Lupus_Style
217 Followers 303 Following Striving and thriving to live with #Lupus flair while avoiding or fighting a flare. #LupusStyle Shifting to new account @LupusStyle - see you there.Multi-cancer early detection tests can potentially change how millions detect and fight cancer. Congress: pass access to these tests in Medicare once FDA-approved and clinical benefit is shown. #FightCancerMakeTime @SpeakerJohnson @RepJeffries @SenSchumer @LeaderMcConnell
Sen. Bailey, Rep. Perry, & members of HCFIS committee: LD1165 would lower out-of-pocket prescription costs for thousands of Mainers. Please prioritize patients over profits with a favorable vote on LD1165! Thank you Rep. Craven for sponsoring this critical piece of legislation.
Congrats to the extraordinary team @Lupus_Chat ! @LADAOrg @LupusNE @LupusMI @LupusIL @LAlupusLady
Spoiler alert! The lovely folks from @Lupus_Chat will join @DermTalks & @TheresaLuLab for #lupus awareness month on May 6! 💜 globaldermatologytalks.com/home/upcoming-…
Holidays are tough; gatherings provide the opportunity to re-educate those not familiar with #lupus symptoms. @LAlupusLady reminds us to laugh a bit & enjoy! @LADAOrg @LupusNE @UMassLupus @Lupus_Chat @LupusMI @LupusIL @mlweh3 @AutumnAustin616 @CaringForLupus
When it seems as though no one understands how #Lupus impacts your life… #Thanksgiving happens and the cooks who have gone out of their way to shop and prepare a meal for family gain a bit of empathy. “You feel like this all the time? I’m so exhausted and everything hurts.”
Looking for Dr. T? He will be at TWO GSK-sponsored events today! He will be at the #GSK booth at 11 am & catch him again at 1:30 pm in Theatre B. #ACR23 #lupus @lupuscyclopedia @LADAOrg @LupusNE @UMassLupus
Major love & support for our own @LAlupusLady, who crushed patient perspectives this am! #ACR23 #lupus
I couldn’t have been more excited to see @jamiechiehlo posters -PLURAL this am. A bracelet exchange & a big hug of congrats! Bravo! #ACR23 #lupus
Patient extraordinaire @chroniceileen - it was such a pleasure to start & end my #ACR23 day with you. Beyond thrilled to see your work at the patient perspective posters this am & questions at oral patient presentations. You Rock! 💙 #RA #patientvoice
Our friend Emmitt Henderson III #malelupuswarriors radiates positivity in the face of lupus. A patient project where Emmitt participates? Yes, please! #ACR23 #lupus
I have you covered - Coming by today! @DoctoraPastore @jen_leslie #ACR23 #tamingautoummunity
Closing out World Kindness Day, we celebrate friendship, hope & mutual support for each other to share our stories & create awareness for lupus. We are stronger together. 💜 #ACR23
Is there a connection between historically redlined neighborhoods & missed medical appts? Sherry Yang, pictured here, shares this data during poster presentations this morning. #ACR23
There’s still time to visit @LADAOrg #Lupus Community Booth #2713 at @acr23 to meet our amazing #LupusWarriors and #Carepartners. Thank you to all of our collaborators. @Lupus_Chat @LupusNE @LupusMI @LupusIL @C_O_L_N @IAFaccess @KathleenArntsen @Dave_Arntsen @Annezab @bvogel9
There’s still time to visit @LADAOrg #Lupus Community Booth #2713 at @acr23 to meet our amazing #LupusWarriors and #Carepartners. Thank you to all of our collaborators. @Lupus_Chat @LupusNE @LupusMI @LupusIL @C_O_L_N @IAFaccess @KathleenArntsen @Dave_Arntsen @Annezab @bvogel9
We were proud to help represent the patient voice at #ACR23! @LADAOrg, @Lupus_Chat, @LupusNE, @LupusIL, @C_O_L_N & @IAFaccess came together to collaborate & provide the patient perspective in rheumatology. We appreciate the opportunity on behalf of all warriors across Michigan!
Jumped with excitement to catch a moment with the GREAT @Lupusreference to talk importance of patient engagement to collect data to fuel research. Will be watching for updates from @Iracon2023 Hyderabad. Safe travels, Professor! #ACR23 #lupus ✈️💜
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