CureME - UK ME/CFS Biobank @mecfsbiobank
Driving clinical and biomedical research for recognition, diagnosis and treatment of ME/CFS at @LSHTM. Advocating for #pwME. cureme.lshtm.ac.uk London, England Joined March 2016-
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👏 Huge congratulations to Krista Clarke, one of our early career collaborators at @UniOfSurrey, on successfully defending her PhD! 🩸 Using samples from the UK ME/CFS Biobank, Krista examined the differences in the electrical properties of white blood cells in #pwME.
🎉 The first round of participants in our HHV-6 study have completed their 6 months of sample collection! 👏 Huge thanks to our amazing community of #pwME and healthy controls for helping us advance #MECFS research. 📢 Stay connected for more insights: eepurl.com/huUOiL
📢 Have you donated a sample to the UK ME/CFS Biobank or participated in a CureME study? 💬 Share your experience with us! 🙌 Your story could help shape the future of #MECFS research. Get in touch ➡️ forms.gle/YCYeGabzcqFiQL… #pwME #MyalgicEncephalomyelitis #UKMEB
🤔 Another thoughtful article from @GeorgeMonbiot which doesn’t shrink from the politicising of this life-changing disease, where #pwME remain so stigmatised. 💪 Thank you to all the researchers seeking answers and to those who fund them. theguardian.com/commentisfree/…
👏 Another recruitment success for our HHV-6 study! Massive thank you to all those who got in touch. Your participation is key to making a meaningful difference for all #pwME. We're pausing briefly to assess potential participants. 📢 Keep updated: eepurl.com/huUOiL
💙 Are you, or is someone you know, living with #SevereME? 🧬 We need #pwME to participate in our HHV-6 study to help further our understanding of the condition. 🤝 Get involved: bit.ly/48u1bhn #MECFS #MyalgicEncephalomyelitis
🔬 Dr Eliana Lacerda and Caroline Kingdon will join experts from @UniOfSurrey on a 12-month study funded by @MEResearchUK and @MEAssociation. 🚀 The diverse team aims to develop a reliable and repeatable diagnostic tool for #MECFS. 💡 Learn more: bit.ly/48w5U26
🤝 Our team has been working collaboratively with @NMCB_studie to establish a new #MECFS biobank in the Netherlands. 📅 This January we joined the team, led by Prof. Jos Bosch, to mark the launch of the biobank. 💙 Find out more about NMCB: nmcb.eu
🙌 Thank you for the extraordinary response to our #HHV6 study! You're making real change for #pwME. 👩🔬 We are pausing recruitment to evaluate how many potential participants meet study criteria. 📢 Stay in the loop about future recruitment: eepurl.com/huUOiL
🧬 Join our HHV-6 Study as a healthy control participant! 🧪 Support #pwME by collecting saliva samples and completing weekly questionnaires from home. 🤝 Get involved: bit.ly/49n0Xtr #MyalgicEncephalomyelitis #MECFS
📢 We know that prescribing exercise for post-exertional malaise can be detrimental, as experienced by #pwME. 💡Parallels with #pwLongCovid highlighted by @jwgale in @business emphasise the need for informed and compassionate care. 📰 Read the article: bloom.bg/427OS8O
Many patients with severe ME/CFS face neglect in healthcare. 📖Our chapter in @HealthcareMDPI_ explores diagnostic challenges, treatment debates, and stigma for #pwME. Find out more about our proposed solution, "Compassion in Practice": bit.ly/3tVsUta
🎉 We're starting the new year with over 100 new participants! 🔬 However, our research relies on the comparison between #MECFS patients and healthy controls to uncover vital insights. 🙋 Volunteer as a healthy control to support #pwME bit.ly/48pLMPT
Sample day, month 3, for this 6 month study by the @mecfsbiobank who are based at the @LSHTM exploring the link between HHV-6 DNA levels and M.E. #MEcfs severity. All of us donors are spitting for the team today! 🧪 #pwME #MEcfs #MedTwitter 🧪🔬🦠🧬
Sample day, month 3, for this 6 month study by the @mecfsbiobank who are based at the @LSHTM exploring the link between HHV-6 DNA levels and M.E. #MEcfs severity. All of us donors are spitting for the team today! 🧪 #pwME #MEcfs #MedTwitter 🧪🔬🦠🧬
The ME Association and ME Research UK are jointly funding a new 12 month study using nano electronic testing which could produce a diagnostic marker for people with ME/CFS. Read the full article here: meassociation.org.uk/r2ua #pwME #MECFS #research #biobank @MEResearchUK
Prioritising mental health is critical for #pwME 🌍💙 This #WorldMentalHealthDay, Ffion shares her way of nurturing her mind while living with ME. How do you take care of your mental wellbeing?🌱 📖 Read more of Ffion's poetry bit.ly/3LU9NWa
🔬 CureME's Dr. Eliana Lacerda & @ucl's Prof. Geraldine Cambridge have been awarded funding by @MEResearchUK to investigate ME/CFS immune responses. Their work will use samples from the ME/CFS Biobank 🧪 🤔 Find out more: bit.ly/3rEtzhA
ME Research UK is delighted to announce that we have awarded funding to Dr Eliana Lacerda at @LSHTM, and Prof. Geraldine Cambridge @ucl for a new project exploring patterns of antibodies in ME/CFS. Read more: meres.uk/lacerda061 & full details meres.uk/lacerda061inf #MECFS
🔬 Exciting News! Our new study is underway. 🧬 Our focus? Exploring the link between HHV-6 DNA levels and ME/CFS severity. 📆 Over the next 6 months, our participants will be collecting saliva samples for us to analyse. Want to know more? bit.ly/3Q3vKVm
📢 Study in @AdvSciNews, co-authored by CureME's Eliana Lacerda & Caroline Kingdon, offers hope for #pwME. Led by @UniofOxford, they shared preliminary findings on a blood cell-based diagnostic test. 📖 Read more: bit.ly/3ERZyxv #MECFS
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4.4M Followers 290 Following The best place to find out what’s new in science – and why it matters.
Irish ME/CFS Associat.. @IrishMECFSAssoc
2K Followers 2K Following Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.@mecfsbiobank Thank you so much for all your hard work on this study & for making it possible for us to participate
🚨 #PwME!! 🚨 Have you donated a sample to the @mecfsbiobank or participated in a Cure M.E study? They want to hear from you!! 👇 *Foggy* I ❤️ Cure ME! 🐶🥰 #SevereME #MEcfs
📢 Have you donated a sample to the UK ME/CFS Biobank or participated in a CureME study? 💬 Share your experience with us! 🙌 Your story could help shape the future of #MECFS research. Get in touch ➡️ forms.gle/YCYeGabzcqFiQL… #pwME #MyalgicEncephalomyelitis #UKMEB
(15) Paper accepted in The Journal of Endocrinological Investigation. More details over the next few weeks.
(4) We used plasma samples - provided by @mecfsbiobank - from mild/moderate, severely affected patients and healthy controls. The samples were analyzed by ultra-high-performance liquid chromatography-tandem mass spectrometry (UHPLC-MS/MS).
Absolutely! You can also catch all the films from the #HealthierTogether series directly on our YouTube channel, here: bit.ly/3xlZFBj (Love the behind-the-scenes shot, by the way!) x.com/womantrial/sta…
Based in the UK? 🇬🇧 You can watch the film via @WHOFoundation 👉 bit.ly/3TNZPZo #HealthierTogether
Really good to receive the latest issue of “Breakthrough” from @MEResearchUK There’s some really good #ME #MEcfs research currently taking place at @GriffithUniVC @mecfsbiobank @DecodeMEstudy @OxMEDiscovery ++ Thanks to all who are working hard on this #MEdTwitter #pwME
Cure ME - @mecfsbiobank Human Herpesvirus 6 (HHV-6) study. Thank you to everyone who responded to the request for people who are severely affected to become participants in this research. Recruitment has been extremely successful and has been paused to assess potential…
Identifying the mental health burden in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients in Switzerland: A pilot study. Highlights • First time study on mental health and well-being among M/CFS patients in Switzerland. • High level (68.5%) of stigmatization…
@mecfsbiobank @ClaireCozler @MEAssociation I’m a healthy control! Super excited to be able to help
Today. Apologies if you’re waiting for an email from me 😔 #pwME
@mecfsbiobank It's been a real pleasure, I feel extremely lucky to have been able to participate & I could not be more grateful to all of you at CureME for all the incredible work you're continuing to do.
My month 6 sample heading to the @mecfsbiobank for their research into the connection between HHV6 & #ME #MEcfs #MEdTwitter #pwME
@Dan_Wyke @MEResearchUK @MEAssociation Absolutely, & the @mecfsbiobank !
🎉We're proud to announce The Netherlands National Cohort and Biobank Consortia – an eight-year collaboration of Dutch research institutes, medical centers & patient organizations dedicated to the study of ME/CFS➡️nmcb.eu
For the weekend, read our latest paper (with Anna Grabowska, @fcowester, and @mecfsbiobank team) about estimating the prevalence of ME/CFS patients within long COVID epidemiological studies. #MECFS #LongCovid #diagnosis frontiersin.org/articles/10.33…
I just want to shoutout the #MECFS community for being there for the #LongCovid community. Even though it’s the same illness, most of you guys have been sick for many years, if not decades. Thank you for not giving up, that gives people like me hope 🫶🏻
The #DragonsDenGR debacle. I say why patients with #ME deserve more than bunk medicine thecritic.co.uk/pseudoscience-…
@mecfsbiobank aha. interesting. I didn't know that - makes sense!
@JCeoltaSmith @LongCovid_Me @CounsellingSam @LOCOMOTIONstudy @trishgreenhalgh @mecfsbiobank It was only when I completed the full questionnaire to become a participant in @mecfsbiobank research studies that I realised how many symptoms I experienced=50/58 on the list, at that time No one had ever asked before x.com/happyhoundhous… #MECFS #MyalgicEncephalomyelitis 0
At enrolment for @mecfsbiobank study, I had 50/58 of the listed symptoms Here's a good list on Tom's post If only we were able to fully discuss w HCPs. But time constraints=HCP still unaware why we are so massively disabled #PESE *Post Exertional* *Symptom Exacerbation* #MECFS
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