Sickle Cell Disease Coalition @ConquerSCD
The Sickle Cell Disease Coalition is an international alliance aiming to improve outcomes for individuals living with #sicklecell. Together, we can #ConquerSCD! scdcoalition.org Global Joined August 2017-
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Meet Our Summit Moderator: Heather Avant 🎤 A passionate advocate for the sickle cell community and Chair of the NHLBI Cure Sickle Cell Initiative Panel. Join us for her insights at the Summit! #SCDCPartner #SCDCSummit2025
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Our Blood Donor Diversity National Sickle Cell Awareness Month Toolkit is here! ✅ Fast facts ✅ Myths vs facts ✅ Patient stories ✅ Customizable graphics 📥 Download: ow.ly/7QlE50WWaCQ Want to learn more? Apply to join the Coalition: ow.ly/uvC250WWaE1
We’re excited to attend the 2025 SCD Educational Summit by Cayenne Wellness Center, Sept 17–20! 👀 Spot Ivy by the pop of pink in the crowd — and don’t forget to ask for a pin! 💗 #SCDSummit2025 #SickleCellAwareness #SCD
👀 Here’s a look at the exclusive 2025 SCDC Summit gear — designed just for attendees! 🎁 Gear will be available to registered attendees with a redemption code. #SCDCSummit2025 #SCDCommunity #SummitMerch #SCDC
🗓️ Only 2 days left! Join the SCD Coalition Peer Learning Exchange on Sept 11 at 10am EST / 3pm GMT. Hear from patient leaders & drive change. Register: ow.ly/WbVQ50WTjAc #SickleCell #SCD
Sickle Cell Awareness Month is here! 🩸 Take a look at some of the key events happening across the sickle cell community this September. 📅 View the full calendar: ow.ly/LE1M50WS5ZA 🔁 Share & help spread awareness. #SickleCellAwarenessMonth #SCD #SickleCell"
We’re ONE MONTH out from the 2025 SCDC Summit — and registration is officially OPEN! And yes, we’re back on Whova! Our members loved the experience. Connect with others, and personalize your Summit journey from anywhere. 🎟️ Register now: ow.ly/ANTl50WQtsG
🗣️ Join the SCD Coalition Peer Learning Exchange! 📅 Sept 11 | 10 a.m. EST 🎙️ Featuring Bukola Bolarinwa & Jenica Leah. 💡 Patient voices lead to smarter research. 📲 Register:ow.ly/mGMu50WOrlF #SCDCoalition #SickleCell #PatientVoices #SCD #PeerLearning
National Sickle Cell Awareness Month is around the corner! Planning events, toolkits, or campaigns? One perk of being in the SCDC network: we help promote your work. 📩 Send us your plans—we'll help amplify them! #SickleCellAwarenessMonth #SCD#SCDCNetwork
August is #MedicAlert Awareness Month. For people with #SickleCellDisease, medical ID jewelry can mean faster, safer care in a crisis. SCDAA is continuing their partnership with @MedicAlert to improve ED experiences for those living with SCD. Learn more: ow.ly/f6ew50WCWRU
Subscriber Notice: A technical issue may have removed some from our SCDC Update mailing list, delaying this month's edition. We're fixing it! Keep sending events via email! Thank you for your support! #SCDCoalition
Don’t be that person who hears SCDC news 3 months later 👀 Get the latest tools, events & updates straight to your inbox. 📬 Not on our list? Have your organization join us: ow.ly/zLZ550WCVfN
🌍 GANSID is surveying clinical research pros in high-resource countries to identify barriers to sickle cell & inherited blood disorder trials. Your insights matter! 🧬 Learn more & take the survey: ow.ly/WG4N50WCT1R
🚨 New SCDC Resource Alert! 🚨 The SCD Strategic Dissemination Model is now live! This guide helps orgs & individuals plan how to share resources & initiatives with the #SickleCell community & beyond. 📥 Download here: ow.ly/QXrL50WCRiP
Last chance! Abstract submissions for the #ASHAnnualMeeting are due tomorrow! Share your research with thousands of heme & heme-onc professionals this December and help drive innovation in the field. Submit now: ow.ly/OzJx50WztLm #ASH2025 #Hematology #CallForAbstracts
We're thrilled to welcome Friends of Sicklers Foundation Uganda to the SCDC! 🌍 This CBO advocates for sickle cell awareness, provides psycho-social support, and leads water sanitation and hygiene initiatives. Learn more about them here: ow.ly/juuG50WiJ3S
This Disability Pride Month, and every month, we affirm: -Sickle Cell Disease is real -Sickle Cell Disease can be disabling -People living with sickle cell disease deserve to thrive #DisabilityPrideMonth #DisabilityJustice #SickleCellAwareness"
The SCDC is proud to welcome CrimsonBow Sickle Cell Initiative! They are improving the lives through care support, empowerment and awareness. Visit their website to learn more: ow.ly/lMmS50WiIOE
🚨 Ready to lead? Co-chair nominations are officially open! We’re filling spots on all 5 subcommittees! 🗓️ Deadline: July 23, 2025 🧬 Must be part of an SCDC member org in good standing. 🔗 Nominate here: ow.ly/i8Yw50WiIE9
🎉 The 12th Annual Warriors Convention in Orlando, FL is almost here! Community Presentations on July 17.🌟 Theme: Legacy of Leadership: A Sickle Cell Family Reunion Still time to register for virtual attendance. 🔗 ow.ly/PWYj50WiIv7 #SickleCell #WarriorsConvention #SC3
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Olateru olagbegi Olad... @OlagbegiOl10417
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trevoralchemist @Trevoralchemist
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Vanessa Namutebi @Vanessa26540261
1K Followers 3K Following As a young health professional I choose to be the voice for the voiceless..Just an extraordinary African gal... I did not choose to be black I just got lucky...
Let’s Create Togeth... @letscreateorg
48 Followers 153 Following A great organization set out to help , inspire , impact and save children with chronic diseases & better wellbeing To donate https://t.co/dyyO2qTt2s
ASH @ASH_hematology
72K Followers 2K Following The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
Pat McGann, MD @PTMcGann
4K Followers 1K Following #SickleCell #GlobalHealth #ObamaLeader Views/Tweets my own
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11K Followers 1K Following The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.
Alexandra Power-Hays,... @DrPowerHays
3K Followers 2K Following Same username on Blue Sky. Find me there! Sickle Cell Doc & hematologist fighting for our pts, locally and globally 🌍
Julie Kanter @jkw4444
3K Followers 2K Following I specialize in sickle cell disease care for all ages with the heart of a pediatric hematologist. My tweets are my opinions to be shared and to support others
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Memej99-SickleCellLif... @Memej99
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4K Followers 399 Following Sickle cell disease affects us all. Help us support, inspire, empower and advocate for patients & families affected by SCD. Join the fight to end sickle cell
Blood Journals Portfo... @BloodPortfolio
54K Followers 428 Following Portfolio of ASH journals including Blood, Blood Advances, Blood Global Hematology, Blood ICT, Blood Neoplasia, Blood RCI, and Blood VTH.
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5K Followers 2K Following The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.
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Sanofi @sanofi
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Gregory Kato, MD @GregoryKatoMD
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SCTPN @SCTPN
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David Beneitez, MD @beneitez_david
1K Followers 1K Following @Hemato_Vhebron / Red Blood Cell Disorders Unit / ERN-EuroBloodNet Center / Clinical confirmation unit of SCD newborn screening programme in Catalonia
ESSENCE @Essence
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COACH Tone @ToneTime10
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National Association ... @nasponline
19K Followers 557 Following Representing 25,000+ school psychologists, grad students, & related professionals throughout the U.S. & 25 other countries. #NASPadvocates
NatlBlkChrchInitive @NBCIBlackChurch
494 Followers 574 Following A coalition of 150,000 African-American churches working to eradicate social, racial, religious, & economic disparities across the nation.
Chetana Belagere @chetanabelagere
8K Followers 2K Following Editor, Health @TheSouthfirst. Former Assistant Editor @NewIndianExpress; City Editor @DeccanChronicle; Opinions shared here are all mine, for better or worse.
Saint Louis Zoo @stlzoo
110K Followers 641 Following One of the few free zoos in the nation, the Saint Louis Zoo is home to 12,000 animals, representing 450 species. #stlzoo
Mary Claire McGlynn @mc_mcglynn01
75 Followers 219 Following Aspiring pediatric hematologist oncologist @WUSTLPeds. Views are my own.
Marquita Nelson @MNelson_MD
43 Followers 41 Following Hematologist at @UTHSC. Sickle Doc and advocate. Grady Made/UChicago fellowship grad. She/Her. Views=my own.
Ministry of Health Za... @mohzambia
20K Followers 120 Following The Ministry aims to address and share ideas with the public on various topics in the health field and related services
Hannah Lichtsinn, MD @DoctorLix
3K Followers 691 Following Parent | #MedPeds doctor | Advocate for health justice in MN especially for #sicklecell and #immigrant health |Abolitionist | She/her | Views are mine
Sana Saif Ur Rehman @SanaSaifUrRehm
162 Followers 58 Following
BrkThSSickleCellCycl @brkthesscycle
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