RADeep (Rare Anaemia Disorders European Epidemiological Platform) is a GDPR-compliant patient registry launched in 2017.radeepnetwork.eu BarcelonaJoined May 2025
📣We are looking for a dedicated & detail-oriented Study Coordinator!
✅Ensure smooth communication across teams and stakeholders
✅Documentation management
✅Act as a bridge between the RADeep coordinating team, data providers & external collaborators.
bit.ly/4nsaE12
✅A successful and inspiring RADeep DAC Annual Meeting!
🌍Last week, representatives from Italy, France, Spain, the Netherlands, Greece, Cyprus, Belgium, and Portugal gathered at @vallhebron for the annual #RADeep Data Access Committee (DAC) meeting.
radeepnetwork.eu
By coming together as a united community, we can advance knowledge. With collaboration at the core of our initiatives for furthering research, clinical practice, and education, we help you advance your career in #hematology.
View our upcoming networking opportunities around the…
📢Exciting news! The RADeep Data Access Committee (DAC) is meeting next Thursday, the 18th, at @VHIR_
We'll come together to collaborate, share updates, and define the next steps for the future of RADeep🤝
🌐radeepnetwork.eu#RADeepNetwork #RADeep#RareDiseases
🗓On April 11, #RADeep hosted an in-person Hands-On Session on Data Entry at @VHIR_ , Barcelona.
🌍Participants joined from Belgium, Portugal, Denmark, Norway, the Netherlands, Spain, Italy, and Greece.
▶️Find out more radeepnetwork.eu#RareDiseases#hematology
Interested in synthetic data, rare diseases, or AI-powered breakthroughs in hematology? Visit #SYNTHEMA’s publications section to explore work on data privacy, federated learning, AI in rare blood diseases, clinical decision-making for HSCT, and more.
👉 Start reading:…
📣 Registration and abstract submission for the 2026 #EHA Research Conference are now open.
Dive into normal and malignant hematopoiesis in young and aged settings over the course of 3.5 days. #EHAReCon2026 will once more feature multiple poster walks, a social activity, and…
💻Now it's Sara Reidel's (@VHIR_ ) turn at the BoN meeting!
✴️“Registries like #ENROL can definetely enhance the developement of health polocies in rare hematological diseases”
Discover more about #ENROL (The European Rare Blood Disorders Platform): lnkd.in/eyDGjf2B
📍 On site at #EHA2025? Come visit us at Hall 4, Allianz MiCo - Milano Convention Centre !
Meet the team and explore how we're advancing care in rare hematological diseases and the latest outcomes of:
🔹The @RADeep_network
🔹The @SYNTHEMA_EU
🔹The @genomed4all#Hematology
🩸🌍The #RADeep Network team is on site at the #EHA2025 , connecting, sharing and advancing knowledge about rare anaemia disorders across Europe.
📍 Come meet us at the @ERNEuroBloodNet booth!
🤝Let’s talk about research, registries, and the future of rare disease care!
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Read our community guidelines: https://t.co/7k1HdbdrYL
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#SocialRights
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Published by Springer Nature
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(Moderation see https://t.co/2e2RTNdSQ2)
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The project will end on the 16/09/2023.
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Contact us: [email protected]
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Experimental Hematology Group at VHIO
No institucional
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