Corey Baysden @CoreyBaysden
#RareDisease mom to Saylor w/ #Syngap1 🧬 Director of Community Activation @cureSYNGAP1 🧠Working 2 find a cure for #epilepsy #autism #hypotonia #nonverbal #ID linktr.ee/coreybaysden North Carolina, USA Joined July 2021-
Tweets532
-
Followers6K
-
Following5K
-
Likes898
Today, on #RareDiseaseDay, we honor all affected by conditions like #Syngap1. Since Saylor's dx, our journey has been a mix of challenges & blessings. Let's also recognize the unsung heroes—teachers, caretakers, therapists—who play crucial roles in our journey 💜🧬🙏@cureSYNGAP1
Where is the best list of public drug repurposing wins for rare monogenic CNS disorders? @ClementYChow @rarebasepbc @omidkarkouti @eperlste @onnofaber @JMGraglia
So proud of this sweet girl! #syngap1 #AutismAwareness #intellectualdisability #Neurology @cureSYNGAP1
NEWS! @julietkknowles of @Stanford_Neuro awarded $1⃣3⃣0⃣,0⃣0⃣0⃣ to study maladaptive myelination 🧠 & epilepsy⚡️ in #SYNGAP1 🧬, testing in SRF supported 🐭 models from @rhuganir. #collaboration 🤝 👉 @cureSYNGAP1 Grant applications due in 15 days. eurekalert.org/news-releases/…
So great to hear from Suzanne 💜 Thankful to have her part of our team!
So great to hear from Suzanne 💜 Thankful to have her part of our team!
Saylor was able to participate in this study! Great work Dr. Frazier & team
Saylor was able to participate in this study! Great work Dr. Frazier & team
There is no cure for #SYNGAP1, but SRF and its extensive team of volunteers are working daily toward that goal. Together, we can do great things! #SYNGAP1Conference2023 #Volunteer
Today, June 21, is SYNGAP1 Awareness Day! #SYNGAP1 families need family and friends to form a community of support. SRF needs similar support to help us achieve our ultimate goal of finding a cure. #strongertogether Syngap.Fund/Donate syngapresearchfund.org
Es un honor participar y representar a @cureSYNGAP1 como panelista compartiendo la historia de nuestra hija Amelia y la importancia de las organizaciones de pacientes que logran cambiar el rumbo de la enfermedad. @cureSYNGAP1 @SMNPediatrica @mexico #Chihuahua #Neurology
SYNGAP1 #WarriorWednesday🧬 Michael (age 2) from📍Vienna, Austria 🇦🇹“He likes slides and swings…” Read his story & see more photos at syngapresearchfund.org/syngap-warrior… #SRFWW no.186 #SYNGAP #epilepsyawareness #autismawareness #rarediseaseresearch #SYNGAPResearchFund #CareAboutRare…
Our legal director Kevin Frye and CEO @JMGraglia are @StJude PTNI to learn about Pediatric Translational Neuroscience alongside 3️⃣0️⃣ Patient Advocacy Groups. We are ensuring that #SYNGAP1 is part of the conversation & our patients will have every opportunity for new therapies.
Yesterday was our annual #Sprint4Syngap! Thankful for all the families that participated, researchers who are working hard & @cureSYNGAP1! Still time to donate! Syngap.Fund/Sprint
This is so great! Thank you @hanspschlecht!
This is so great! Thank you @hanspschlecht!
Effie Parks @OnceUponAGene
5K Followers 3K Following Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Mike Graglia 🌻 @JMGraglia
7K Followers 3K Following CEO @cureSYNGAP1 🧬 Pod https://t.co/9jkDkMg5R8 🎧 Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Becky Sansbury @AftrTheShock
2K Followers 2K Following Emotional Support Specialist | Rare Disease | Palliative Care | Author of "After the Shock" | former hospice chaplain | always a mom
Brain Ablaze @BrainAblaze
9K Followers 7K Following As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
Peter Halliburton @phalliburton
3K Followers 2K Following Raising $$ for #SYNGAP1 gene therapy 🧬 // @cureSYNGAP1 501(c)(3) Board // Carter & Presley’s Dad // @lindsayhalli 💜 // @cyberark Channel
Abby Turnwald (she/he.. @PedsGCAbby
927 Followers 1K Following Pediatric genetic counselor, neurogenetics, advocate for the rare disease community, let’s talk about sibling health
Sandy Smith @sandysmith317
3K Followers 2K Following #RareDisease #SYNGAP1 auntie. Working for a cure with @cureSyngap1. Healthcare IT professional. Micah 6:8 💜#epilepsy💙#autism💚#id
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Dr. Heather Mefford @hcmefford
3K Followers 948 Following Physician, scientist, mom, wife #genetics #epilepsy #pediatrics #raredisease @StJude @StJudeResearch formerly @UWMedicine
FamilieSCN2A @FamilieSCN2A
2K Followers 1K Following Our vision is to find effective treatments and a cure for SCN2A disorders.
Laura Palmer @LauraPalmer712
604 Followers 811 Following Language Arts teacher, parent of 3, lover of reading and running, epilepsy and rare disease mom.
Torie Robinson 🇺�.. @TorieRobinson10
6K Followers 2K Following @EpilepsySparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | #Epilepsy & #MentalHealth Research fiend | @MaudsleyNHS Gvnr | All views my own
Marni Cartelli @Purrfectly_Rare
3K Followers 2K Following Rare Disease Patient, mom, & advocate. Danny's Dose Alliance Board Member. Know who you are & live a way you can be proud of.
Kimberly Aldinger, Ph.. @kaaldinger
1K Followers 968 Following Assistant Professor @UW_Pediatrics | PI @seattlechildren | neurodevelopment | genomics | epilepsy | twin mom | rare disease mom | Co-Founder @mastgenes
Beata Tarasiuk @beatasyngap1
1K Followers 1K Following SynGAP1 Mom @curesyngap1 #syngap1 volunteer at SRF
Devin Shuman (she/her.. @DevinShuman
3K Followers 5K Following A genetic counselor with #MitochondrialDisease. @SmithCollege Alum, #mitoGC #disabledGC #GeneChat #AbortionIsHealthcare #RareDisease opinions are my own🏳️🌈
Cambridge Rare Diseas.. @camraredisease
8K Followers 7K Following Improving #RareDisease lives. Creators of #RAREfest, #RAREsummit, Companies Forum & #UniqueFeetCam https://t.co/bWJ8DVF9iw
Jill Hawkins @fam177a1mamma
402 Followers 702 Following Founder and President, FAM177A1 Research Fund
Vicky Arteaga @VickyAArteaga
4K Followers 4K Following Directora para America Latina Fondo Syngap / Co-founder SHER (Sociedad Hispana Enfermedades Raras) / @cureSYNGAP1 Board #SYNGAP1 #RareDiseases
Boltzmann Labs @LabsBoltzmann
101 Followers 412 Following A Company with the vision of revolutionizing Drug Discovery. Designing precision medicine with data-driven solutions.
Recordati Rare Diseas.. @RecordatiRareES
4K Followers 1K Following En Recordati Rare Diseases nos centramos en una minoría: los afectados por las #EnfermedadesRaras (poco frecuentes, minoritarias) #FocusedOnTheFew
Owoeye David @davoshalom
771 Followers 2K Following God Lover. Infection Prevention & Control Specialist. Sickle Cell Warrior & Advocate. Author. https://t.co/9z1lvAfJYh…
TNia @Dr_Tnia
3K Followers 4K Following Anatomist | Neuroscientist | Embryologist / IVF | Biologist | Anthropology | Evolution | Nature
Ebony Cisneros @CisnerosEb17289
43 Followers 711 Following
CERPOHCHI @cerpohchi
26 Followers 367 Following 1° Congreso de Enfermedades Raras, Poco Frecuentes y Huérfanas que se realizará del 13 a 15 de noviembre próximo en 🇨🇱. Más información en: [email protected]
lxjrj7dx2wgou3 @uq4othpktzh
1 Followers 353 Following If you want to make friends, you can contact me anytime TG：https://t.co/zYFGyitm87 WS：https://t.co/iT6lompEcw
Thesma @Thesma1822643
26 Followers 2K Following
jamesjfink @jamesjfink
259 Followers 1K Following Girl Dad l Neuroscience l Drug Discovery l Synaptic Biology
Shedat @Shedat397258
44 Followers 1K Following
Bob Oster, PhD @DocOster
2K Followers 2K Following Professor, Biostatistician, and Educator at UAB. @ONealCancerUAB. #Biostatistics. #StatisticsEducation. Love music. Love the outdoors. Tweets are my own.
Deigh @Deigh914394
43 Followers 2K Following
Philip Amenyo @PekaaPhilip
245 Followers 747 Following 1st gen|@UVA~alum Neuroscience/Biology🔬 #🇬🇭🇺🇲
Netety @Netety177146
45 Followers 2K Following
The Real Eric Moulton @etmoulton
15 Followers 43 Following
José Guillén🧬 @JoseGuillen2602
513 Followers 5K Following Ciclopentanoperhidrofenantreno y ahora un DAMP más generado por esta vida. 🫀🤓🧠
Bridger Zamora @Bridgazamora
7K Followers 7K Following Success lies in doing not what others consider to be great but what you consider to be right.
Shannon Strader, DO @ShanStraderDO
1K Followers 811 Following Chief PM&R Resident at UofL | Future Cellular Therapy Fellow - Mayo Clinic | Developmental Disabilities Advocate | Founder of Bella Soul @livebellasoul
Dr Abayomi O Ojetayo .. @DrOjetayo
544 Followers 4K Following I am a Medical Doctor with several years of clinical experience, MSc Degree in International Public Health,and M.S. Degree in Clinical Research Administration.
Darby McQueen-Dever @D_McQueenDever
105 Followers 458 Following Legislative Assistant at the US House of Representatives | Antonin Scalia Law School, JM | The University of Alabama, BSW | Opinions are mine.
muhammad halabia @mhalabia1975
8 Followers 380 Following
LISA CLINTON @LISA_CRYPT0
961 Followers 4K Following Make 5 times your capital within 120hrs without sending a dime to anyone, just fund your Blockchain wallet and watch your money grow through mining
Garrett Fullerton @gcfullerton
281 Followers 715 Following PhD student doing cool MRI research at @WiscMedPhys
HAPFellows @HAPFellows
2K Followers 2K Following Official account of the Health and Aging Policy Fellows Program. The HAPF NPO is based at The New York State Psychiatric Institute.
Kimberly Ramseur, JD,.. @kimberlyramseur
63 Followers 266 Following Black Medical History | Health Equity | Afro-Carolinian | Rookie Gardener | Rare Disease | Creator @raremelanin | HU💙♥️ | NCCU 🦅| GSU 🐾 |🔺1913
Jen Rinker 👩�.. @DrJRink
2K Followers 2K Following Asst Prof @neuro_MUSC 🧠 👩🔬 We study the neurobiology of stress & alcohol use. MI (🥶)⇾DC (👩🎓)⇾NC (🐏🩵)⇾SC (🧪) Opinions my own. (she/her) #WomeninSTEM
Odongo Josh @JoshOdongo
300 Followers 3K Following introvert with interest in all aspects of life, medical writer, interested in science of pharmaceutics and a humble son of the soil
José Jaime Martínez.. @JJaimeMarti
568 Followers 4K Following Husband, Science, BSc. at @unam_fesz and MSc. at @UNAM_MX, PhD at @UJAT, Postdoc at @Yale
Liz H Moss @indeeditsliz
228 Followers 669 Following Assistant professor at OHSU APOM | neural circuit enthusiast | BRAIN Initiative K99 | constructive self-critic
Bruno Ramos-Molina, P.. @Brunorm84
6K Followers 5K Following Group Leader of the #Obesity, #Diabetes and #Metabolism Laboratory at the Biomedical Research Institute of Murcia (IMIB) | Miguel Servet Researcher (ISCIII)
TomFrigginHanks @TomFriggin
1K Followers 4K Following Knowledge is an underrated gift, time is priceless. Never give up on yourself! 0://arcade , code4rena , 3d printing , AR , DFS MYFFPC , Building in Public
Abdulhadi Aman @abdulhadi_aman
111 Followers 304 Following Child Neurology Resident 🧠 at PSMMC, Medical University of Warsaw 🎓🇵🇱
Dr Salunkhe Shivaji @YDrshivaji
471 Followers 1K Following Paediatrician generalist; coping situational vagaries
Sindile Pearl Khosa �.. @PearlCindy5
147 Followers 476 Following Dietitian | Tennis player| Runner| Health is wealth email:[email protected] for online consultation
KC (Kang-Chieh) Huang @kkkkkchuang
378 Followers 582 Following Postdoc @SynapsesInSight @bcmhouston | PhD @MeyerLab @IUPUI @NeurosciStark | neuron regeneration in retina🔬| Taiwanese
Rafael Corral Pastor @Rafi_Corral
315 Followers 1K Following Entrenador de fútbol Nivel II y Director Deportivo - Socio del @FCBarcelona y aficionado del @RVMOficial
Sadie LaPonsie, MD @DoctorSadieL
5K Followers 4K Following Pediatric Hospitalist & #PHM fellowship APD @luriechildrens. Former Chair of Pediatrics @cnmichcc. Child health advocate, educator, adventurer. Opinions my own.
Browny8U🧬🇺🇸�.. @SkinAtheist
3K Followers 4K Following I used to believe in theistic Islamic BS; exmuslim; real human with deep insecurities; highly undereducated, socially inept; cheesy; nauseating;
Phoenix Professional .. @phoenixprodev
1K Followers 4K Following Phoenix Professional Development ™ is a UK-based professional development consultancy providing mentoring, CV writing and tutoring. New services coming in 2024.
Ed Lamon @ed_lamon
179K Followers 183K Following My current chapter of study & related reference verses is Numbers 24⭐. Sola Scriptura (KJV) (🚫DMs)
Maria Falzone @MariaFalzone9
282 Followers 413 Following 🧪🧬 postdoc in the MacKinnon lab, interested lipid regulation of membrane proteins 🔬
Carlos Florez @carlosflorezneu
215 Followers 354 Following Florez CM. 🇨🇴🇨🇦. Neurologist FRCPC, MD, Epileptologist, University of Toronto, Canada.
Dr. Adrián Martínez @dradrianmtz11
849 Followers 1K Following Papá, Esposo,Pediatra, Neonatólogo, Director del Centro de Simulación Clínica UDEM,asesor médico en Genomi-k, Biker, Rocker
Marco Abis @capotribu
3K Followers 5K Following Recovering Tech entrepreneur - Runner 🏃 OSS & SDGs 🌱 @[email protected] - @[email protected] Socio-political account in Italian 🇮🇹 👉 @MarcoAbisIT
Dr. Olufemi Amoo @amoo_olufemi
2K Followers 2K Following Research Fellow/Scientist/Research Influencer with passion for infectious diseases of epidemic nature and use of blood as therapy
Trish Whetzel, MS, Ph.. @TrishWhetzel
3K Followers 5K Following Full Stack Web developer, ontologist #bioinformatics #genomics #python #react https://t.co/MCrROWDGbI
Elvis @evyslee29
3K Followers 5K Following .You don't need to be White to be called a human, You are not called a human cos u are Black, u are called a human cos that's what u are. NO TO DISCRIMINATION.
Effie Parks @OnceUponAGene
5K Followers 3K Following Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
SynGAP Research Fund .. @cureSYNGAP1
10K Followers 6K Following #SYNGAP1 🧬 = 🧠NDD DEE causing #Epilepsy #Autism #ID #Sleep #GI. Incidence = 6️⃣.1️⃣/💯k ICD10 https://t.co/4UJNF5bKTl https://t.co/pjCrzqlbV7 🎙
Mike Graglia 🌻 @JMGraglia
7K Followers 3K Following CEO @cureSYNGAP1 🧬 Pod https://t.co/9jkDkMg5R8 🎧 Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
The Notorious EEG (M... @TheNotoriousEEG
10K Followers 2K Following Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Becky Sansbury @AftrTheShock
2K Followers 2K Following Emotional Support Specialist | Rare Disease | Palliative Care | Author of "After the Shock" | former hospice chaplain | always a mom
Brain Ablaze @BrainAblaze
9K Followers 7K Following As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
Ana Mingorance @CNSdrughunter
3K Followers 1K Following 🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others.
Ingo Helbig @IngoHelbig
3K Followers 349 Following Child Neurologist, epilepsy genetics researcher, blogger
Peter Halliburton @phalliburton
3K Followers 2K Following Raising $$ for #SYNGAP1 gene therapy 🧬 // @cureSYNGAP1 501(c)(3) Board // Carter & Presley’s Dad // @lindsayhalli 💜 // @cyberark Channel
Abby Turnwald (she/he.. @PedsGCAbby
927 Followers 1K Following Pediatric genetic counselor, neurogenetics, advocate for the rare disease community, let’s talk about sibling health
Dennis Lal @LalDennis
3K Followers 329 Following Director of the Center for Neurogenetics; Associate Professor at UTH - Neurogenetics & Informatics - My opinions are my own & do not reflect my employer.
American Epilepsy Soc.. @AmEpilepsySoc
14K Followers 721 Following Official account for American Epilepsy Society. We support research + education for professionals working towards a world without epilepsy. RTs ≠ endorsements.
Ethan Perlstein @eperlste
17K Followers 2K Following ceo @PerlaraPBC (@ycombinator W16), ceo @epalrestat, solo vc @AngelList, evo pharmacologist, mTOR worshipper, HODLer since '14, cofounder of Kai & Luca, bio/acc
Sandy Smith @sandysmith317
3K Followers 2K Following #RareDisease #SYNGAP1 auntie. Working for a cure with @cureSyngap1. Healthcare IT professional. Micah 6:8 💜#epilepsy💙#autism💚#id
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Dr. Heather Mefford @hcmefford
3K Followers 948 Following Physician, scientist, mom, wife #genetics #epilepsy #pediatrics #raredisease @StJude @StJudeResearch formerly @UWMedicine
Stoke Therapeutics @StokeTx
1K Followers 175 Following Stoke Therapeutics is addressing the underlying cause of severe diseases by upregulating protein expression with RNA-based medicines.
Laura Palmer @LauraPalmer712
604 Followers 811 Following Language Arts teacher, parent of 3, lover of reading and running, epilepsy and rare disease mom.
Torie Robinson 🇺�.. @TorieRobinson10
6K Followers 2K Following @EpilepsySparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | #Epilepsy & #MentalHealth Research fiend | @MaudsleyNHS Gvnr | All views my own
Rose Kemmerling @rose_kemmerling
389 Followers 571 Following the tweets find me || OC’20, UT’22 || Oozma Kappa || UMGCP’25 〽️
Historic Vids @historyinmemes
5.2M Followers 210 Following Daily history lessons. Education through memes!
The Real Eric Moulton @etmoulton
15 Followers 43 Following
kamal aderibigbe @aderibigbeko
214 Followers 2K Following
Jen Rinker 👩�.. @DrJRink
2K Followers 2K Following Asst Prof @neuro_MUSC 🧠 👩🔬 We study the neurobiology of stress & alcohol use. MI (🥶)⇾DC (👩🎓)⇾NC (🐏🩵)⇾SC (🧪) Opinions my own. (she/her) #WomeninSTEM
Lunatic Savant On Lan.. @on_savant
450 Followers 4K Following we are in recovery. please regard us with kindness. we lost our mind. we are a biunary being & a triune spirit in one causal body. forgive us for we are fallen.
Carla Brenner @carlabrenner007
1K Followers 3K Following co- founder @rootsbyga //Enterprise SaaS//startup mentor/ angel investor. ex. @salesforce @Aws @valeant(formerly medicis) @healthtechwomen
Odongo Josh @JoshOdongo
300 Followers 3K Following introvert with interest in all aspects of life, medical writer, interested in science of pharmaceutics and a humble son of the soil
Hassan Adel @7asan3adel
332 Followers 1K Following Neurologist who's interested in Neurointervention and Critical Medicine, Madridista
Shannon Strader, DO @ShanStraderDO
1K Followers 811 Following Chief PM&R Resident at UofL | Future Cellular Therapy Fellow - Mayo Clinic | Developmental Disabilities Advocate | Founder of Bella Soul @livebellasoul
Chris Traner, MD @cbtraner
1K Followers 652 Following Assistant Prof of Neurology / Epilepsy at Yale, Associate Fellowship Director - CNP / Epilepsy, NMP board member. Tweets are my own and my own opinion.
QuererFoundation @QuererF
84 Followers 263 Following Foundation dedicated to education, research and dissemination related to children with special educational needs derived from their neurological diseases.
Michael Gutbrod @mjgutbrod
102 Followers 464 Following Biotech at Santé Ventures, former postdoc at CSAIL/MIT - disease dissection with genomics and stem cell models, CSHL PhD
Bob Oster, PhD @DocOster
2K Followers 2K Following Professor, Biostatistician, and Educator at UAB. @ONealCancerUAB. #Biostatistics. #StatisticsEducation. Love music. Love the outdoors. Tweets are my own.
Alex Muccilli @AlexMuccilli
2K Followers 2K Following Neurohospitalist & teacher @UofTNeurology @SMHNeurology, @UHNSHSNeurology. Passionate about equity, inpatient 🧠, stroke & neuroinflammation (she/her/dr).
Dinesh Puppala @dineshxr
418 Followers 2K Following AI & No Code enthusiast. Currently @Google Prev @Verily. Passionate about leveraging tech for better health & wellness.
mrs warwickshire gala.. @NatalieRigby81
212 Followers 168 Following Mrs Galaxy grand finalist 2022. Rich house poor house . tiktok and Insta mrs_warwickshire_galaxy22 you tube Epilepsy Queen https://t.co/685NzVMKSM
HAKAN AKBAŞ @hakana
45K Followers 19K Following Government Affairs Advisor | Board Member | Former EVP @sabanci & CMO | Angel Investor | Senior Advisor @ASG | Chair @SAS_Corporate | GSL 120 | BU IE93🇹🇷🇺🇸
Parents Powwow @ParentsPowWow
2K Followers 2K Following Reliable, evidence-based maternity and parenting information for parents and practitioners. Written by two UK midwives - Vicky Carne & Sue Williams. Bristol.
Micah W. Hobbs @heavenboundcom
126 Followers 788 Following I am a Christian taking back the streets in the name of our Lord and Saviour YeShua Messiah (Jesus Christ of Nazareth)!!!
Jessica Bell @jbscience1
51 Followers 376 Following Dickinson College ‘18 | Won Lab UNC | 🧠🧬🐭 | she/her
I Heart Awareness @IHeartAwarenes1
402 Followers 2K Following No one has to fight alone. #survivors , #warriors or #caregivers , Mission: Raise Awareness Through The Conversations Started By Wearing Our Clothing
Kimberly Ramseur, JD,.. @kimberlyramseur
63 Followers 266 Following Black Medical History | Health Equity | Afro-Carolinian | Rookie Gardener | Rare Disease | Creator @raremelanin | HU💙♥️ | NCCU 🦅| GSU 🐾 |🔺1913
Monica Dhakar MD, MS,.. @MonicaDhakar
2K Followers 794 Following Epileptologist || first-generation 👩⚕️, mom #EEG nerd, 📸 enthusiast, she/hers
Garrett Fullerton @gcfullerton
281 Followers 715 Following PhD student doing cool MRI research at @WiscMedPhys
Stephanie Reyes, MD @stephreyesMD
932 Followers 936 Following PGY3 @Duke_Neurology l @UMichMedicine ‘21 l @Harvard_2015 l Interested in general neurology and medical education #firstgen 🇩🇴
Arya (infinitiventure.. @arya_infiniti
65 Followers 342 Following
Philip Amenyo @PekaaPhilip
245 Followers 747 Following 1st gen|@UVA~alum Neuroscience/Biology🔬 #🇬🇭🇺🇲
Jennifer Carroll MacN.. @CarrollJennifer
12K Followers 3K Following Minister of State with responsibility for EU Affairs & Defence. Fine Gael TD for Dún Laoghaire. She/her.
Leonardo Chicaybam @leochicaybam
383 Followers 1K Following Designing CAR-T cells and T cell engagers for solid tumors. CAR-T Insights newsletter #CARTcells #immunotherapy #bispecifics #biomarkers Views are my own.
cellfreelab @cellfreelab
2K Followers 5K Following I'm not a person. I'm the @cellfreetech auto-generated updates that are kinda cool. Sometimes I'm biochemical, other times robot, or just a preeety pic...
CanaleFinancialGroup @CanaleFinancial
57 Followers 796 Following https://t.co/nIfWZbgV42 https://t.co/uxJ4xed3mr
Rapamycin News @RapaNews
5K Followers 3K Following Rapamycin (and other longevity drugs) user group, news & discussion forum. New research, clinical science, and user's results. Partnering with geroscientists.
Liz H Moss @indeeditsliz
228 Followers 669 Following Assistant professor at OHSU APOM | neural circuit enthusiast | BRAIN Initiative K99 | constructive self-critic
kat dakay @katarinadakay
688 Followers 388 Following Stroke #neurointerventionalist, vascular #neurologist, with interests in #perfusion, #thrombectomy, and #SAH research.
José Jaime Martínez.. @JJaimeMarti
568 Followers 4K Following Husband, Science, BSc. at @unam_fesz and MSc. at @UNAM_MX, PhD at @UJAT, Postdoc at @Yale
Britt 🖖 @BrittGratreak
7K Followers 8K Following 🌈♿ Very stubborn #FirstGen/low-income MD/PhD student, proud community college alum, open book. All posts reflect personal values & ethics, not my institution's
BonoQuak 💊 @BonoQuak
971 Followers 5K Following
Raymond Puerini @Are_You_Ray_Dy
267 Followers 489 Following Associate Director @fastercures Tweets reflect my own opinions.
Brett Spark @bsparkmn
56 Followers 342 Following
Jonathan Sp @jonathanusp
93 Followers 624 Following VC @food_labs | Interested in anything FoodTech & BioTech
Abdulhadi Aman @abdulhadi_aman
111 Followers 304 Following Child Neurology Resident 🧠 at PSMMC, Medical University of Warsaw 🎓🇵🇱
Commission for an epoxy piece to highlight SYNGAP1 protein localization in #neurons. Inspired by a cover from @SfNJournals (link in comments). Walnut, 19in tall. @cureSYNGAP1
@cureSYNGAP1 @ClementYChow @rarebasepbc @omidkarkouti @eperlste @onnofaber @JMGraglia Thanks for posting this @JMGraglia Response coming tomorrow. Sit tight.
@cureSYNGAP1 @ClementYChow @rarebasepbc @omidkarkouti @onnofaber @JMGraglia @mattmight @ssermone There could be an approved form of THC aka Jaden’s Juice for SYNGAP1 if someone actually picked up that ball and ran with it!
@cureSYNGAP1 @ClementYChow @rarebasepbc @omidkarkouti @eperlste @onnofaber This one by @ClementYChow on #NGLY1 feels like a win, journals.plos.org/plosgenetics/a…
@AleRossiNeuro @marlenerong @DrDaniAndrade @Quratulainzali @SyngapNetwork @Syngap1Fnd Thank you for this important work. There are so many #Syngap1 adults. Here is our movie about the oldest one syngap.fund/caren
NEWS! @julietkknowles of @Stanford_Neuro awarded $1⃣3⃣0⃣,0⃣0⃣0⃣ to study maladaptive myelination 🧠 & epilepsy⚡️ in #SYNGAP1 🧬, testing in SRF supported 🐭 models from @rhuganir. #collaboration 🤝 👉 @cureSYNGAP1 Grant applications due in 15 days. eurekalert.org/news-releases/…
ICYMI - #SYNGAP1Stories Episode 14 with SRF BOD Chair Suzanne Jones, featuring Jansen. Have you heard it? Have you subscribed? Syngap.Fund/Stories
There is no cure for #SYNGAP1, but SRF and its extensive team of volunteers are working daily toward that goal. Together, we can do great things! #SYNGAP1Conference2023 #Volunteer
I am absolutely honored to receive a McKnight Scholar award to help us tackle the critical challenge of how the brain encodes social isolation. Especially excited to be included in this incredible cohort of scientists!
📢Announcing the 2023 McKnight Scholar Awards🧠 These 10 scholars are committed to solving the most fundamental problems in neuroscience. Learn more about these incredible neuroscientists and the McKnight Endowment Fund for Neuroscience 👇 mcknight.org/news-ideas/202…
Es un honor participar y representar a @cureSYNGAP1 como panelista compartiendo la historia de nuestra hija Amelia y la importancia de las organizaciones de pacientes que logran cambiar el rumbo de la enfermedad. @cureSYNGAP1 @SMNPediatrica @mexico #Chihuahua #Neurology
Thank you @VickyAArteaga & Paulina for representing #SYNGAP1 🧠🧬at @SMNPediatrica. Our population is underdiagnosed everywhere and we need to raise awareness in Mexico 🇲🇽 and across Latin America. #FondoSyngap
Es un honor participar y representar a @cureSYNGAP1 como panelista compartiendo la historia de nuestra hija Amelia y la importancia de las organizaciones de pacientes que logran cambiar el rumbo de la enfermedad. @cureSYNGAP1 @SMNPediatrica @mexico #Chihuahua #Neurology
Who knew blueberries could teach us about healthy cells? 🫐😲. Today’s #IntroToPath, I use 'em to explain metaplasia (🖤 blackberries), hyperplasia, and hypertrophy 💪🏽. It's like a berry-licious journey through the world of pathology! 🌎#Path4People #BerriesForEducation 🍓🍒🔬
A nice write up at @KSLcom about our partnership with @cureSYNGAP1 to try to find a possible therapy for SYNGAP1. Flies to the rescue. ksl.com/article/506385…
Thank you @KSLcom & @loganstefanich for this writeup on @ClementYChow and @cureSYNGAP1! We are excited about this work and grateful for the partnership for patients with #SYNGAP1. 💊🪰🔬🧬🤞
A nice write up at @KSLcom about our partnership with @cureSYNGAP1 to try to find a possible therapy for SYNGAP1. Flies to the rescue. ksl.com/article/506385…
SYNGAP1 #WarriorWednesday🧬 Michael (age 2) from📍Vienna, Austria 🇦🇹“He likes slides and swings…” Read his story & see more photos at syngapresearchfund.org/syngap-warrior… #SRFWW no.186 #SYNGAP #epilepsyawareness #autismawareness #rarediseaseresearch #SYNGAPResearchFund #CareAboutRare…
Our legal director Kevin Frye and CEO @JMGraglia are @StJude PTNI to learn about Pediatric Translational Neuroscience alongside 3️⃣0️⃣ Patient Advocacy Groups. We are ensuring that #SYNGAP1 is part of the conversation & our patients will have every opportunity for new therapies.
@JMGraglia @curestxbp1 @PennMedicine @ChildrensPhila @Prosser_Lab @EAHellerPhD @IngoHelbig @JillianLMcKee @SydneyStel @charleneson @NolanJoeylynn @SarahRuggieroGC @JulieXXian @SyngapNetwork Can’t wait to see this progress! Also grateful we can go on this journey alongside @curestxbp1.
Another wonderful #Sprint4Syngap! Love connecting with other families while raising awareness and funds for Kai’s rare disease. @cureSYNGAP1
Yesterday was our annual #Sprint4Syngap! Thankful for all the families that participated, researchers who are working hard & @cureSYNGAP1! Still time to donate! Syngap.Fund/Sprint
Trends for United States
You might like
